The photo is of my son who was born on Thursday June 18th 2009


This group is for people with either nf1 or nf2.

If you have MSN then you can contact me on williamson50@hotmail.com

Thought l would update my photograph, this one was taken August 2006

Neurofibromatosis is a common inherited disorder, also called von Recklinghausen's disease, characterized by numerous neurofibromas (soft, fibrous swellings that grow from nerves) and by cafe au lait spots (pale, coffee-coloured patches) on the skin. Neurofibromas may develop anywhere on the skin and sometimes elsewhere in the body. These swellings may be tiny or be as large as several centimetres in diameter. If you wish to contact me then my email address is on my profile.


If you want to post messages that are not Nf releated then please post them on an appropriate groups website and NOT this one. I will start deleting members who DO NOT stick to this.

Here is the website address for the neurofibromatosis association in the UK:- http://www.nfauk.org