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neurofibromatosis2 · A place for people with Nf to get to know others
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Activity within 7 days:

2 New Members - 6 New Messages - New Questions

Description

The photo is of my son who was born on Thursday June 18th 2009


This group is for people with either nf1 or nf2.

If you have MSN then you can contact me on williamson50@hotmail.com

Thought l would update my photograph, this one was taken August 2006

Neurofibromatosis is a common inherited disorder, also called von Recklinghausen's disease, characterized by numerous neurofibromas (soft, fibrous swellings that grow from nerves) and by cafe au lait spots (pale, coffee-coloured patches) on the skin. Neurofibromas may develop anywhere on the skin and sometimes elsewhere in the body. These swellings may be tiny or be as large as several centimetres in diameter. If you wish to contact me then my email address is on my profile.


If you want to post messages that are not Nf releated then please post them on an appropriate groups website and NOT this one. I will start deleting members who DO NOT stick to this.

Here is the website address for the neurofibromatosis association in the UK:- http://www.nfauk.org

Most Recent Messages

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Re: hello
So far I haven't. I beleve that whatever comes my way, God will get me through it. So I don't worry about what might happen. Terry ... From: littlenloud78
Posted - Thu Jul 9, 2009 2:07 am
 Terry Long
pawpawto3
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Re: hello
hello everyone im tessy i have nf but not sure if is 1 or 2 anyway nobody in my family has it im the only one and when i got pregnat my first daughetr shes 7
Posted - Thu Jul 9, 2009 1:44 am
 Tessy Merino
laredogirl_2...
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Re: hello
Hi Terry, Nice to meet you. That's good that your granddaughter doesn't have NF. :) Have you had any problems with tumors in the intestine since you had that
Posted - Thu Jul 9, 2009 1:30 am
 littlenloud78
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Re: hello
Hi Nora  My father had NF, I have NF, my son "Paul 30 years old"  has NF. Thank God my new granddaughter does not NF. I had a groth on my small intestine,
Posted - Wed Jul 8, 2009 10:37 pm
 Terry Long
pawpawto3
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Re: Birth of my son
congrats, Brian! he is gorgeous!! how much did he weigh? :) so much hair, too. :)
Posted - Wed Jul 8, 2009 7:40 pm
 littlenloud78
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 22 41 39 10 21 83 6
2008 22 16 7 13 10 16 9 4 4 33 40 18
2007 15 36 56 58 24 21 9 2 18 22 27 44
2006 42 25 114 119 69 34 67 30 66 41 81 47
2005 19 20 9 31 21 25 15 12 17 19 53 34
2004 14 7 18 71 15 18 26 3 23 50 38 30
2003 13 32 20 33 18 27 73 43 66 36 56 18
2002 49 61 51 19 19 39 38 27 45 25 7 9
2001 86
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