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neurofibromatosis2 · A place for people with Nf to get to know others

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Activity within 7 days:

1 New Member - 1 New Photo - New Questions

Description

The photo is of my son who was born on Thursday June 18th 2009


This group is for people with either nf1 or nf2.

If you have MSN then you can contact me on williamson50@hotmail.com

Thought l would update my photograph, this one was taken August 2006

Neurofibromatosis is a common inherited disorder, also called von Recklinghausen's disease, characterized by numerous neurofibromas (soft, fibrous swellings that grow from nerves) and by cafe au lait spots (pale, coffee-coloured patches) on the skin. Neurofibromas may develop anywhere on the skin and sometimes elsewhere in the body. These swellings may be tiny or be as large as several centimetres in diameter. If you wish to contact me then my email address is on my profile.


If you want to post messages that are not Nf releated then please post them on an appropriate groups website and NOT this one. I will start deleting members who DO NOT stick to this.

Here is the website address for the neurofibromatosis association in the UK:- http://www.nfauk.org

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Re: cold weather means more pain- did everyone switch to Facebook?
not me. facebook is not only evil it is like soooooo adolescent.
Posted - Sun Nov 1, 2009 12:44 pm
Jere
s.jere...
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Invitation to connect on LinkedIn
LinkedIn ... I'd like to add you to my professional network on LinkedIn. - Eric Accept Eric Garlick's invite:
Posted - Sat Oct 31, 2009 5:45 pm
Eric Garlick
yungcntry
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Re: cold weather means more pain- did everyone switch to Facebook?
Hi there  I am Beth . I  have Nf1. I am soooo  glad the cold weather is here . I am the oppsite . The hot weather makes me swell which makes the tumors
Posted - Thu Oct 8, 2009 7:48 pm
beth phillips
summertime3323
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cold weather means more pain- did everyone switch to Facebook?
Hi everyone! I am wondering if it is just that school started or what since we all quit posting? I am feeling the cool weather though! Particularly where the
Posted - Thu Oct 8, 2009 7:36 pm
Becky
tumorfarmer
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Check out my photos on Facebook
Hi neurofibromatosis2@yahoogroups.com, I invited you to join Facebook a while back and wanted to remind you that once you join, we'll be able to connect
Posted - Mon Sep 21, 2009 3:21 pm
Alan Strand
snickers7450
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 22 41 39 10 21 83 69 51 1 3 1
2008 22 16 7 13 10 16 9 4 4 33 40 18
2007 15 36 56 58 24 21 9 2 18 22 27 44
2006 42 25 114 119 69 34 67 30 66 41 81 47
2005 19 20 9 31 21 25 15 12 17 19 53 34
2004 14 7 18 71 15 18 26 3 23 50 38 30
2003 13 32 20 33 18 27 73 43 66 36 56 18
2002 49 61 51 19 19 39 38 27 45 25 7 9
2001 86
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