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Spasmodic Torticollis   Message List  
Reply | Forward Message #160 of 1127 |
Re: [neurofeedcommunity] Spasmodic Torticollis

I haven't worked with it, John, but I would DEFINITELY want to "give it a go" with NeuroCARE™. You would know pretty quickly if it is helping, and no downside. Build up to Zen3 though:)
Sue
Susan Cheshire Brown Ph.D.
www.zengar.com

On Nov 15, 2007, at 6:24 PM, John Thompson wrote:

I have been contacted by someone seeking help with the following 
condition. I have never even heard of this before let alone having 
any experience with it. Has anyone encountered this condition before 
and did it respond to NFB. IF not perhaps read the information below 
(from a support website) and please let me know what you think.

Spasmodic Torticollis
Spasmodic Torticollis (ST) is a painful and debilitating neurological 
movement disorder. It is also known as "Cervical Dystonia." and is 
referred to by many as "torticollis." Approximately 3 in every 
10,000 people - about 90,000 people in the United States - are known 
to suffer from ST. 
This movement disorder is caused by a dysfunction of the brain. The 
symptoms are caused by intermittent or sustained contractions of the 
muscles around the neck which control the position of the head. This 
causes the head to lean to one side, or be pulled forward or 
backward. The shoulders may also be uneven and some patients 
experience tremors in the head or arms. ST is usually accompanied by 
constant and extreme pain. 
ST can resemble other disorders including Parkinson's disease, 
epilepsy, muscular dystrophy and wry neck (an acute episode of pain 
and spasm in the neck that resolves itself in days or weeks.) 
ST can limit a person's ability to function. As a localized 
disability this disorder does not directly affect other body systems. 
Because it can be more severe during times of anxiety or stress, ST 
was once thought to be a psychiatric disorder. Research has shown, 
however, that while ST does indeed seem to originate in the brain, it 
is clearly a neurological disorder rather than a psychiatric one.
ST is different in every person. If you have spasmodic torticollis, 
there are others who understand your pain and your frustration. 
There are people you can talk to without needing lengthy 
explanations. And there are people who can help: doctors who can 
provide treatment, patients who can share coping tips and 
inspiration, and organizations like the National Spasmodic 
Torticollis Association who can provide information and other forms 
of support.
NSTA is here to help you whether or not you are a member of our 
organization! In addition to our office staff, we have support group 
leaders and special "contact" people around the country—maybe someone 
close to you--who would be happy to talk to you about ST and how they 
cope with it.
While there is still no cure, many people with ST can relief from the 
pain and disability caused by this neurological disorder using a 
combination of treatments including medications, botulinum toxin 
injections, physical therapy, "alternative" treatments and stress 
reduction techniques. If none of those methods work for you, as a 
last resort, there are two surgical procedures called Denervation 
Surgery and Deep Brain Stimulation that may help.
Thank You
John Thompson




Fri Nov 16, 2007 8:54 am

zengarhealer
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Message #160 of 1127 |
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I have been contacted by someone seeking help with the following condition. I have never even heard of this before let alone having any experience with it. Has...
John Thompson
thompson_jhn
Offline Send Email
Nov 16, 2007
2:24 am

I haven't worked with it, John, but I would DEFINITELY want to "give it a go" with NeuroCARE™. You would know pretty quickly if it is helping, and no...
Dr. Sue Brown
zengarhealer
Offline Send Email
Nov 16, 2007
8:54 am
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