Re: [nathanfaustmantrials] Re: cure for type1 diabetes???
Sue,
thanks for the information. I think what's mostly frustrating is that despite all the work that was done there is still no indication if it actually works in humans or not. That still seems to be up in the air years later. Or did I miss anything? If I understand it correctly then the only concrete result so far is that the solution works in mice and that the drug is safe.
I very much hope Dr. Faustman will be proven right about this in the end. However: from what I heard so far I can't tell what the chances of success are. It was ok with me at the beginning to donate to something that might or might not work (I understand that that's the nature of medical research). By now though I had expected to hear some more concrete results (maybe results of a small scale test on a few daring volunteers).
Subject: Re: [nathanfaustmantrials] Re: cure for type1 diabetes???
Hi Karin I understand your feelings about the time-line for the Faustman project. However, in reality, the original time-line and goals of the project never changed. Dr. Faustman began seeking funding for the preclinical work and phase I human trial in 2002. The original estimated $11 million for a total of 3 years (18 months of preclinical work and 18 months for phase I) never changed. The rejections and skeptism by the science community and world renowned JDRF organization directly interfered with getting adequate funding to start the project. Even when the Iacocca Foundation launched its "Join Lee Now' campaign in August of 2004, it took almost 2 years to raise the money. Dr. Faustman's lab did not start to get the adequate funding until July of 2006. Eighteen months later, as predicted, the phase I human trial started in January of 2008 and is expected to be finished sometime this July. As you and everyone can see, once the financial support finally got to the lab in July 2006, 3 years later - as originally estimated - the work has been achieved. I hear your statements all the time and people are wrong when they blame the research as the problem for the delays. We will have the same problem when trying to start phase II of the human trial by the end of the year or early 2010 if we don't get the funding needed. After following this research since 2002 and raising over $1 million for it with an amazing group of women, every scientific goal has been surpassed thus far and the ONLY thing interfering with its progression is money. As far as the research in Germany, my opinion is to read the published data and contact the scientists directly to get the correct information.
Sue
--- On Tue, 6/2/09, Karin Espelage <kespelage@hotmail.com> wrote:
From: Karin Espelage <kespelage@hotmail.com> Subject: Re: [nathanfaustmantrials] Re: cure for type1 diabetes??? To: nathanfaustmantrials@yahoogroups.com Date: Tuesday, June 2, 2009, 1:15 PM
"..and she told me that these countries do this all of the time - promise American's a cure, only to take their money."
Boy, you sure make my native country sound like a shady banana republic! :-) Germany and the EU have very strict regulations for everything related to healthcare. I don't know anything about this clinic but I have a hard time believing that a German hospital just makes total bogus claims on a public website to cheat Americans out of their money...
I've been subscribed to this group for a while. I used to donate to the Faustman research regularly. I got frustrated though after the frequent shifts in the promised timeline (and my German relatives whom I asked to donate too now think they've just given their money away to some shady American organization. ..). I understand that human trials are now finally underway. Is there any information about how it's going so far?
Subject: [nathanfaustmantria ls] Re: cure for type1 diabetes???
I don't know about that particular website, but I do know that when my son was first diagnosed with Type 1 diabetes, 14 years ago, there was an article in our local paper for a fund raiser for a six year old who was going to go to Germany to be cured of Type 1 diabetes. I called the mother, and they were going to use islet cells. This was before the islet cell success in Canada. She went there, and was not cured. In fact, her blood sugar control never got better. They claimed that it was because she was too high and under too much stress during the journey to Germany. I spoke to my son's endo about it, and she told me that these countries do this all of the time - promise American's a cure, only to take their money.
--- In nathanfaustmantrial s@yahoogroups. com, "jawad_majed" <jawad_majed@ ..> wrote: > > I have come across this clinic in germany ( www.xcell-center. com )They claim that they can cure diabetes 1 and 2 through adult stem cell treatment which sounds simple and cost effective. Any thoughts on this? >
I have come across this clinic in germany ( www.xcell-center.com )They claim that they can cure diabetes 1 and 2 through adult stem cell treatment which sounds...
I don't know about that particular website, but I do know that when my son was first diagnosed with Type 1 diabetes, 14 years ago, there was an article in our...
"..and she told me that these countries do this all of the time - promise American's a cure, only to take their money." Boy, you sure make my native country...
I don't know anything about that website either (www.xcell-center.com), but I do know that Germany has much better care for cancer than the U.S. That is why...
Hi Karin  I understand your feelings about the time-line for the Faustman project. However, in reality, the original time-line and goals of the project never...
- I have contacted the clinic. I was informed that treating my son who has been diabetic for 5 years (10 years old now) is possible. I filled an on line form...
Are the researchers telling you that $12,000 must be provided by you in order for them to even review your child's condition? Or is this the cost of the...
Sue, thanks for the information. I think what's mostly frustrating is that despite all the work that was done there is still no indication if it actually works...
Hi Karin, Actually, there were some experiments using over 1,000 of human blood samples that served as a proof of concept for this research. The protocol...
Karin, There are several reasons that I have a lot of hope about Dr. Faustman's work. The first is the logical progression she's followed from the very ...
Hi Karin, I think you may be missing some points about this research. First, we would probably have results from phase 2 by now if Dr. Faustman got the needed...
And that-the fact that the drug used is already available and safe-is the heart of the funding problem. Type I maintenance is a huge business. and is...
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