Are the researchers telling you that $12,000 must be provided by you in
order for them to even review your child's condition? Or is this the
cost of the protocol itself if he is eligible after their review? That
seems pretty steep just to "review" his condition is why I ask.

Thanks,

Stacy Lavery

Moderator, Nathan/Faustman Trials Yahoo Group


--- In nathanfaustmantrials@yahoogroups.com, "jawad_majed"
<jawad_majed@...> wrote:
>
> -
> I have contacted the clinic. I was informed that treating my son who
has been diabetic for 5 years (10 years old now) is possible. I filled
an on line form to have them review his condition. The cost is aprox.
8700 euros ($12000), excluding travel cost.
>
> In relation to our clinical triles (faustman's). My understanding is
that once we have some positive feed back out of the 1st triles, it will
be much smoother to raise funds.
> --
>
> In nathanfaustmantrials@yahoogroups.com, Sue root susan_root@ wrote:
> >
> > Hi Karin
> > I understand your feelings about the time-line for the Faustman
project. However, in reality, the original time-line and goals of the
project never changed. Dr. Faustman began seeking funding for the
preclinical work and phase I human trial in 2002. The original estimated
$11 million for a total of 3 years (18 months of preclinical work and 18
months for phase I) never changed. The rejections and skeptism by the
science community and world renowned JDRF organization directly
interfered with getting adequate funding to start the project. Even when
the Iacocca Foundation launched its "Join Lee Now' campaign in August of
2004, it took almost 2 years to raise the money. Dr. Faustman's lab did
not start to get the adequate funding until July of 2006. Eighteen
months later, as predicted, the phase I human trial started in January
of 2008 and is expected to be finished sometime this July. As you and
everyone can see, once the financial support finally got to
> > the lab in July 2006, 3 years later - as originally estimated - the
work has been achieved.
> > I hear your statements all the time and people are wrong when they
blame the research as the problem for the delays. We will have the same
problem when trying to start phase II of the human trial by the end of
the year or early 2010 if we don't get the funding needed.
> > After following this research since 2002 and raising over $1 million
for it with an amazing group of women, every scientific goal has been
surpassed thus far and the ONLY thing interfering with its progression
is money.
> > As far as the research in Germany, my opinion is to read the
published data and contact the scientists directly to get the correct
information.
> >
> > Sue
> >
> > --- On Tue, 6/2/09, Karin Espelage kespelage@ wrote:
> >
> > From: Karin Espelage kespelage@
> > Subject: Re: [nathanfaustmantrials] Re: cure for type1 diabetes???
> > To: nathanfaustmantrials@yahoogroups.com
> > Date: Tuesday, June 2, 2009, 1:15 PM
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > "..and she told
> > me that these countries do this all of the time - promise American's
a cure,
> > only to take their money."
> >
> > Boy, you sure
> > make my native country sound like a shady banana republic! :-)
Germany
> > and the EU have very strict regulations for everything related to
> > healthcare. I don't know anything about this clinic but I have a
hard time
> > believing that a German hospital just makes total bogus claims on a
> > public website to cheat Americans out of their money...
> >
> > I've been
> > subscribed to this group for a while. I used to donate to the
Faustman research
> > regularly. I got frustrated though after the frequent shifts in the
> > promised timeline (and my German relatives whom I asked to donate
too now think
> > they've just given their money away to some shady American
> > organization. ..). I understand that human trials are now finally
underway. Is
> > there any information about how it's going so far?
> >
> >
> > Thanks,
> > Karin
> >
> >
> >
> >
> >
> >
> > ----- Original Message -----
> > From:
> > Ellen
> >
> > To: nathanfaustmantrial s@yahoogroups. com
> >
> > Sent: Monday, June 01, 2009 7:35 PM
> > Subject: [nathanfaustmantria ls] Re: cure
> > for type1 diabetes???
> >
> >
> >
> > I don't know about that particular website, but I do know that when
my son
> > was first diagnosed with Type 1 diabetes, 14 years ago, there was an
article
> > in our local paper for a fund raiser for a six year old who was
going to go to
> > Germany to be cured of Type 1 diabetes. I called the mother, and
they were
> > going to use islet cells. This was before the islet cell success in
Canada.
> > She went there, and was not cured. In fact, her blood sugar control
never got
> > better. They claimed that it was because she was too high and under
too much
> > stress during the journey to Germany. I spoke to my son's endo about
it, and
> > she told me that these countries do this all of the time - promise
American's
> > a cure, only to take their money.
> >
> > --- In nathanfaustmantrial s@yahoogroups. com,
> > "jawad_majed" <jawad_majed@ ...> wrote:
> > >
> > > I have come
> > across this clinic in germany ( www.xcell-center. com )They claim
that
> > they can cure diabetes 1 and 2 through adult stem cell treatment
which sounds
> > simple and cost effective. Any thoughts on this?
> > >
> >
>