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cure for type1 diabetes???   Message List  
Reply | Forward Message #598 of 634 |
RE: [nathanfaustmantrials] Re: cure for type1 diabetes???

I don't know anything about that website either (www.xcell-center.com), but I do know that Germany has much better care for cancer than the U.S.  That is why people such as Ronald Reagan went there for his cancer, and was cured. But you won't hear that on the news here. I believe German technology is far superior. I use a Seimens MRI where I work.
Deanne Kacmar
 
Support Type 1 Diabetes
Islet Regeneration Research
Massachusetts Gen Hospital
Cure Diabetes Now Fund

                                  




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To: nathanfaustmantrials@yahoogroups.com
From: kespelage@...
Date: Tue, 2 Jun 2009 13:15:17 -0400
Subject: Re: [nathanfaustmantrials] Re: cure for type1 diabetes???



"..and she told me that these countries do this all of the time - promise American's a cure, only to take their money."
 
Boy, you sure make my native country sound like a shady banana republic! :-) Germany and the EU have very strict regulations for everything related to healthcare. I don't know anything about this clinic but I have a hard time believing that a German hospital just makes total bogus claims on a public website to cheat Americans out of their money...
 
I've been subscribed to this group for a while. I used to donate to the Faustman research regularly. I got  frustrated though after the frequent shifts in the promised timeline (and my German relatives whom I asked to donate too now think they've just given their money away to some shady American organization...). I understand that human trials are now finally underway. Is there any information about how it's going so far?

Thanks,
Karin
 
 

 
 
----- Original Message -----
From: Ellen
Sent: Monday, June 01, 2009 7:35 PM
Subject: [nathanfaustmantrials] Re: cure for type1 diabetes???

I don't know about that particular website, but I do know that when my son was first diagnosed with Type 1 diabetes, 14 years ago, there was an article in our local paper for a fund raiser for a six year old who was going to go to Germany to be cured of Type 1 diabetes. I called the mother, and they were going to use islet cells. This was before the islet cell success in Canada. She went there, and was not cured. In fact, her blood sugar control never got better. They claimed that it was because she was too high and under too much stress during the journey to Germany. I spoke to my son's endo about it, and she told me that these countries do this all of the time - promise American's a cure, only to take their money.

--- In nathanfaustmantrials@yahoogroups.com, "jawad_majed" <jawad_majed@...> wrote:
>
> I have come across this clinic in germany ( www.xcell-center.com )They claim that they can cure diabetes 1 and 2 through adult stem cell treatment which sounds simple and cost effective. Any thoughts on this?
>
Tue Jun 2, 2009 10:53 pm

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deannekacmar
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Forward 		Message #598 of 634 |
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I have come across this clinic in germany ( www.xcell-center.com )They claim that they can cure diabetes 1 and 2 through adult stem cell treatment which sounds... 		jawad_majed
Offline Send Email 		Jun 1, 2009
3:34 pm

I don't know about that particular website, but I do know that when my son was first diagnosed with Type 1 diabetes, 14 years ago, there was an article in our...
Ellen
ellen_crain
Offline Send Email 		Jun 2, 2009
3:06 am

"..and she told me that these countries do this all of the time - promise American's a cure, only to take their money." Boy, you sure make my native country...
Karin Espelage
kespelage
Offline Send Email 		Jun 2, 2009
5:37 pm

I don't know anything about that website either (www.xcell-center.com), but I do know that Germany has much better care for cancer than the U.S. That is why...
Deanne Kacmar
deannekacmar
Offline Send Email 		Jun 3, 2009
8:11 pm

Hi Karin   I understand your feelings about the time-line for the Faustman project. However, in reality, the original time-line and goals of the project never...
Sue root
susan_root
Offline Send Email 		Jun 2, 2009
8:37 pm

- I have contacted the clinic. I was informed that treating my son who has been diabetic for 5 years (10 years old now) is possible. I filled an on line form...
jawad_majed
Offline Send Email 		Jun 4, 2009
8:09 pm

Are the researchers telling you that $12,000 must be provided by you in order for them to even review your child's condition? Or is this the cost of the...
stacy_lavery
Offline Send Email 		Jun 4, 2009
8:16 pm

Did  you ask the specific results of those type I diabetics who have already been treated with this procedure? (Not type II). ... From: jawad_majed...
Sue root
susan_root
Offline Send Email 		Jun 4, 2009
8:16 pm

Sue, thanks for the information. I think what's mostly frustrating is that despite all the work that was done there is still no indication if it actually works...
Karin Espelage
kespelage
Offline Send Email 		Jun 4, 2009
8:45 pm

Hi Karin, Actually, there were some experiments using over 1,000 of human blood samples that served as a proof of concept for this research. The protocol...
stacy_lavery
Offline Send Email 		Jun 4, 2009
8:56 pm

Karin, There are several reasons that I have a lot of hope about Dr. Faustman's work. The first is the logical progression she's followed from the very ...
Rella Abernathy
rellaraine
Offline Send Email 		Jun 5, 2009
3:36 pm

Hi Karin, I think you may be missing some points about this research. First, we would probably have results from phase 2 by now if Dr. Faustman got the needed...
Sue root
susan_root
Offline Send Email 		Jun 5, 2009
3:37 pm

And that-the fact that the drug used is already available and safe-is the heart of the funding problem. Type I maintenance is a huge business. and is...
Paul Mullens
skywriter451
Offline Send Email 		Jun 10, 2009
10:20 pm
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