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Fwd: Re: Phase II Trials Rejected by JDRF   Message List  
Reply | Forward Message #390 of 634 |
RE: [nathanfaustmantrials] Fwd: Re: Oprah

I emailed her yesterday at the following site :
 
                          http://www.oprah.com/email/tows/email_tows_main.jhtml


Deanne Kacmar
PA State Captain
Iacocca Foundation
www.faustmanlab.org 
                                  



To: nathanfaustmantrials@yahoogroups.com
From: ann_reiling@...
Date: Thu, 29 May 2008 11:32:32 -0700
Subject: [nathanfaustmantrials] Fwd: Re: Phase II Trials Rejected by JDRF

Ivan, Anyone,
To whom do we write or call?  I've done with congressmen, senators, president, the "candidates," all of them, Oprah, our governor, and what I get, if anything at all, is a pat on the head.  Where would the effective letter be addressed?  I've written the local and the Big Three tv stations, the radio stations in my area, the newspapers within the state, and got nothing from any of them.  I recognize a "flood" is needed but that's hard to organize & I'm not as healthy as I have been.  I am wondering if the suggestion to flood Oprah might be most effective?  Anyone?
Ann

Ivan Roseland <iroseland@midway.com> wrote:
Date: Thu, 29 May 2008 17:54:59 -0000
From: "Ivan Roseland" <iroseland@midway.com>
Subject: Re: Phase II Trials Rejected by JDRF

--- In nathanfaustmantrials@yahoogroups.com,
> The only way we'll ever be cured is to find the funding ourselves.
No
> one who makes their living off of our dying will ever help us, just
> bleed us dry. Ann
>


Sadly, Ann is 100% correct.

Big Pharma likes us plenty the way we are. Worse yet, the folks
running the JDRF have fallen in love with the money and power they
now wield. They have grown comfortable with talking about a cure,
but only funding research that is not actually leading to real
results. It has come time to stop bothering with those fools and put
as much pressure as possible on elected officials. We need to turn
this into an election year issue with both sides taking as much of a
beating as they are they will promise to poney up the funding and the
fast tracking and the resources to make the research turn into a new
viable cure for the folks it will work on.

Make phone calls and write letters.

Ivan!






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Fri May 30, 2008 1:01 am

deannekacmar
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Message #390 of 634 |
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Ivan, Anyone, To whom do we write or call? I've done with congressmen, senators, president, the "candidates," all of them, Oprah, our governor, and what I...
Ann Reiling
ann_reiling
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May 30, 2008
12:52 am

I emailed her yesterday at the following site : http://www.oprah.com/email/tows/email_tows_main.jhtml Deanne Kacmar PA State Captain Iacocca Foundation ...
deanne kacmar
deannekacmar
Offline Send Email
May 30, 2008
1:28 am

I just did too.. Let's keep this moving, get it noticed! EVERYONE! Thanks Deanne! Duane Benson New Brunswick (Canada) Provincial Captain Iacocca Foundation ...
Duane Benson
dbenson_inca...
Offline Send Email
May 30, 2008
2:42 pm

ME TOO... I emailed the Oprah Show yesterday, and am planning on also contacting the Today Show as well. I would suggest that you all include the Today Show...
TheScream
thescream50
Offline Send Email
May 30, 2008
4:11 pm

Just emailed Oprah and Today with my plea and YouTube video. Lorraine Sisto lsisto1@... ... Lorraine Sisto lsisto1@... Just emailed Oprah and Today...
Lorraine Sisto
lsisto1
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Jun 4, 2008
2:00 am

I am also completely fed up with the current power structure that is intentionally blocking our way to a cure for the sake of profits and campaign...
wjperrittbill@...
wjperritt
Offline Send Email
May 31, 2008
7:48 pm

Count me in. I'm assuming we mention funding Dr. Faustman somewhere in the petition? Ann ... intentionally blocking our way to a cure for the sake of profits...
Ann
ann_reiling
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May 31, 2008
8:44 pm

Thank you Joshua for your input. I do read your website regularly and am grateful that you take the time and effort to do such a thing for us. Everytime I...
Ellen
ellen_crain
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May 31, 2008
8:45 pm

Well, now that many have had a chance to vent on the problems holding us back, I am ready to figure out what we are going to do about it. I am agreeable to a...
deanne kacmar
deannekacmar
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May 31, 2008
8:45 pm

I've been thinking about how we raised money "back in the day." The way we did it was to hold raffles, clean houses, mow lawns, beg ;-) and one thing we did...
Ann
ann_reiling
Offline Send Email
Jun 2, 2008
1:21 pm

I completely agree with Ann.? These types of grassroots measures are exactly what we need to turn our little wave into that tsunami, and tools like the...
wjperrittbill@...
wjperritt
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Jun 3, 2008
2:53 pm

Excellent, especially your consideration to include the emotional element. TheScream wjperrittbill@... wrote: I completely agree with Ann. These types of...
TheScream
thescream50
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Jun 3, 2008
9:30 pm

Check out this new treatment for type 1 and 2. I have read this, but I plan on calling them for more info. http://www.vitalcaretechnology.com/index.html Deanne...
deanne kacmar
deannekacmar
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Jun 6, 2008
7:08 pm

Guh! I am not much of a volunteer. But, when I am in a position where I can do the thing I do I have no choice. I could put up a webserver and pick uip a...
ivan roseland
iroseland
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Jun 3, 2008
9:30 pm

Yes. Lorraine Sisto lsisto1@......
Lorraine Sisto
lsisto1
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May 31, 2008
10:21 pm

yes!!! ... From: nathanfaustmantrials@yahoogroups.com [mailto:nathanfaustmantrials@yahoogroups.com]On Behalf Of wjperrittbill@... Sent: Saturday, May 31,...
Laura
laura.pjsmom
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Jun 1, 2008
3:25 am

I'll pitch in too. and it's not just national. it's international... some of us are in Canada! _____ From: nathanfaustmantrials@yahoogroups.com ...
Duane Benson
dbenson_inca...
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Jun 1, 2008
1:12 pm

yes Blain Duane Benson <bensond@...> wrote: I’ll pitch in too… and it’s not just national… it’s international... some of us are in Canada! ...
Blain Getachew
blain516
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Jun 1, 2008
6:31 pm

COUNT ME IN to sign any petition and support the cause in any way. Let me know if I can help in any way. TheScream wjperrittbill@... wrote: I am also...
TheScream
thescream50
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Jun 2, 2008
5:07 pm
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