Ivan, Anyone, To whom do we write or call? I've done with congressmen, senators, president, the "candidates," all of them, Oprah, our governor, and what I get, if anything at all, is a pat on the head. Where would the effective letter be addressed? I've written the local and the Big Three tv stations, the radio stations in my area, the newspapers within the state, and got nothing from any of them. I recognize a "flood" is needed but that's hard to organize & I'm not as healthy as I have been. I am wondering if the suggestion to flood Oprah might be most effective? Anyone? Ann
Ivan Roseland <iroseland@...> wrote:
Date: Thu, 29 May 2008 17:54:59 -0000 From: "Ivan Roseland" <iroseland@...> Subject: Re: Phase II Trials Rejected by JDRF
--- In
nathanfaustmantrials@yahoogroups.com, > The only way we'll ever be cured is to find the funding ourselves. No > one who makes their living off of our dying will ever help us, just > bleed us dry. Ann >
Sadly, Ann is 100% correct.
Big Pharma likes us plenty the way we are. Worse yet, the folks running the JDRF have fallen in love with the money and power they now wield. They have grown comfortable with talking about a cure, but only funding research that is not actually leading to real results. It has come time to stop bothering with those fools and put as much pressure as possible on elected officials. We need to turn this into an election year issue with both sides taking as much of a beating as they are they will promise to poney up the funding and the fast tracking and the resources to make the research turn into a new viable cure for the folks it will work on.
Ivan, Anyone, To whom do we write or call? I've done with congressmen, senators, president, the "candidates," all of them, Oprah, our governor, and what I...
I emailed her yesterday at the following site : http://www.oprah.com/email/tows/email_tows_main.jhtml Deanne Kacmar PA State Captain Iacocca Foundation ...
I just did too.. Let's keep this moving, get it noticed! EVERYONE! Thanks Deanne! Duane Benson New Brunswick (Canada) Provincial Captain Iacocca Foundation ...
ME TOO... I emailed the Oprah Show yesterday, and am planning on also contacting the Today Show as well. I would suggest that you all include the Today Show...
Count me in. I'm assuming we mention funding Dr. Faustman somewhere in the petition? Ann ... intentionally blocking our way to a cure for the sake of profits...
Thank you Joshua for your input. I do read your website regularly and am grateful that you take the time and effort to do such a thing for us. Everytime I...
Well, now that many have had a chance to vent on the problems holding us back, I am ready to figure out what we are going to do about it. I am agreeable to a...
I've been thinking about how we raised money "back in the day." The way we did it was to hold raffles, clean houses, mow lawns, beg ;-) and one thing we did...
I completely agree with Ann.? These types of grassroots measures are exactly what we need to turn our little wave into that tsunami, and tools like the...
Excellent, especially your consideration to include the emotional element. TheScream wjperrittbill@... wrote: I completely agree with Ann. These types of...
Check out this new treatment for type 1 and 2. I have read this, but I plan on calling them for more info. http://www.vitalcaretechnology.com/index.html Deanne...
Guh! I am not much of a volunteer. But, when I am in a position where I can do the thing I do I have no choice. I could put up a webserver and pick uip a...
COUNT ME IN to sign any petition and support the cause in any way. Let me know if I can help in any way. TheScream wjperrittbill@... wrote: I am also...