Thank you Patsy.  I am a person living with this horrible disease 24/7.  And when there was so much chatter a year ago about this research and to watch that chatter deteriorate it just seemed that things were not as great as we all had hoped.

Hopefully, once the human trials actually begin we can expect to read some news.  So, it looks like trials won't begin for another year. 

I just wish we could get to the human trials quickly so that we know that there is a chance that this may work!  Preparation is important, I understand.

BUT, remember, all the preparation in the world will not help if the research is flawed.  If this technique works in humans, then I will be content waiting 5 years for the FDA to approve the safety, etc.  But right now we don't even know that it works (in humans)!

Hopefully, we will all know sooner than later.

-Anthony


Patsy Van Huyck <patsy@...> wrote:

Anthony,

You may be correct. However, given that there have been no human trails
yet, and therefore we do not really know if it will translate to humans
yet, I will continue to consider this promising research.

They are being very careful upfront to increase their chance of success
in the human trials. While it seems to us like nothing is happening,
there is actually quite a bit of preparation for the human trials
occurring at this time.

For those of us that are living with this disease 24/7 (either as the
patient or as their caregiver), the wait for a cure can seem endless.
However, there are multiple promising research projects at various
stages of testing that encourage me to think that there is a cure on the
horizon. Whether it will take 5 years, or 10, or more is anybody's guess.

Patsy

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