Thanks for all the good information.  For what it's worth, I talked to Lynne today (as we are local to boston) and this is the information she gave me:

As for signing up for giving blood to be used in the assay, they recommend that the person be over 8 years old and they currently do it only a few days a week from 7-9am (you have to physically go there and give blood). 

As for the clinical trials, if you email Lynne she will add you to a data base and you will receive the updates on Dr. Faustman's research as well as be notified when trails will be starting and at that time will be given all criteria and have the opportunity to explore the possibility of entering the trail if you fit the criteria.  She told me to include my child's name (or the name of the person with diabetes) how long they have had diabetes, their age, and their current treatment (pump, MDI, etc).

She was so pleasant - took the time to explain exactly what Dr Faustman is doing.  :)



Stacy Lavery <stacy_lavery@...> wrote:

Good info, Jenny.  Did you have to "approve" your message?  I didn't receive anything saying I needed to approve it.  Also, I received a message earlier about approving a message, but when I got out there, nothing was pending.  Perhaps the kinks have been worked out?

 

Stacy

Jennifer Haliski <jja100miles@...> wrote:

Hi everyone,

For those of you interested in contacting Dr. Faustman's office to
participate in the blood assay, or to get on their mailing list to
receive newsletters and information about the clinical trials when it
is available, there are several good sources of information:

MGH Diabetes Unit for Type 1 research:
http://www.mgh.harvard.edu/diabetes/laboratory_type1.htm

Updates from Dr. Faustman's Lab are posted on the main page:
http://www.mgh.harvard.edu/diabetes/index.htm

JLN Page on the Trials:
http://www.joinleenow.org/html/trials.php

As it says on JLN, for specific information on the clinical trials or
ongoing blood sampling, please call Lynne Murphy at Massachusetts
General Hospital at 617-726-4084.

Please note that Lynne is just one person and she is often quite busy
with making appointments, answering questions and fielding calls from
all over, especially when the research comes up in the news!  Please
let her know when you call how much you appreciate all of her hard
work!

I hope that answers some of the questions out there.

Jenny Haliski
JLN State Captain, Washington, D.C.
Moderator, Nathan/Faustman Trials Yahoo Group

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