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This is a joke, right?   Message List  
Reply | Forward Message #147 of 634 |
RE: [nathanfaustmantrials] Re: This is a joke, right?

The equipment is neccessary to automate the process, NOT to verify the process.  Again, I am asking can this process be done by hand, similar to what Dr. Faustman did with 250+ mice?  People learn to WALK before they can RUN. 

Paul Mullens <skywriter41@...> wrote:
Just a thought here- but without the automation process, and those same 10 people WERE NOT cured, then not only would the money not roll in, but the whole process would be stopped.  So I say DO it, but do it with care and get it right!  If only one of those ten people were cured, AND it could be shown that the process was different for that one, then there is an avenue for changing the process.  but without an automated process, how can you be certain that the tests are being done exactly the same for all?


Paul Mullens
What would you do if you knew you  would not fail?



To: nathanfaustmantrials@yahoogroups.com
From: stacy_lavery@yahoo.com
Date: Thu, 17 Aug 2006 15:22:54 +0000
Subject: [nathanfaustmantrials] Re: This is a joke, right?

I, for one, couldn't disagree more. The human trial, even on just
TEN people would still require multiple blood tests, perhaps even
several a day while they are figuring out dosage and frequency. I
double-checked my data, and doing the blood tests by hand, just ONE
test, takes a day and a half! The automation process makes it take
minutes. We don't want a half-*&#ed job here. We want it thorough,
and right. The money won't roll in, because this is a phase 1
trial. We don't want pharmaceutical money, because they have been
known to squelch cure work because it's more profitable for them and
their stockholders to maintain sick people instead of cure them.

Dr. Faustman HAS been doing work, validating that the same defect
that exists in the NOD mice does also exist in humans. There's also
other labs out there that continue to produce supporting data. Check
out the Bike the Miles for Human Trials website for some more details
about the research. They really have a great site, putting it in
layman's terms, and demonstrate why we are where we are, very well.
They talk about some possible reasons other cures in mice have failed
in human trials (and how THIS one is different), and other labs with
supporting data. Specifically, I found these links very helpful:

http://www.bikethemilesforhumantrials.com/pointstoknow.html

http://www.bikethemilesforhumantrials.com/research.html

http://www.bikethemilesforhumantrials.com/research.html

Seriously, we ALL understand feeling frustrated. Every time I have
to calculate and inject a shot into my daughter's tender skin, every
clinic visit I have to attend, every carb I have to count, every sick
day I have to worry, I PRAY for the cure to come, and to come now.

However, I want the REAL and PERMANENT cure to come, not a false
hope. I want them to do this right, and if that requires some
patience on my part, then I will do that.

There are never any guarantees with discovery work such as this. We
all just have to have trust in the process they are doing to get us
to the cure. Having met Dr. Faustman, and discussed all of this at
length with her, I completely trust her. Let's channel all our
frustrated energy into helping this move forward.

Stacy Lavery
Team Maryland Captain, Join Lee Now Campaign
Moderator, Nathan/Faustman Trials Yahoo Group

--- In nathanfaustmantrials@yahoogroups.com, "stilltypeone"
<stilltypeone@...> wrote:
>
> Bernard, what would happen if the trials began without the
> equipment, and say 10 people were successfully treated? Then the
> $$$$$ would rush to MGH. The theory would have been proven.
> Again, I think the cart is before the horse on this.
> Prove that BCG can successfully "cure" type I diabetes, then work
> on "automating the process".
> What happens if the automation process is completed, and the
> treatment(s) are unsuccessful? Millions or dollars and more
> importantly the efforts of thousands will have been wasted.
>
>
>
>
>
>
>
>
>
>
>
>
> --- In nathanfaustmantrials@yahoogroups.com, "Bernard Farrell"
> <bernard.farrell@> wrote:
> >
> > I know I'd love it all to be available now. But I also know some
of
> > what it takes to work with the FDA and others on new stuff. So I'm
> > accepting this will be a long process. And I'll also bet there are
> > obstacles coming we can't even see right now, so I expect some
> future
> > frustrations as well.
> >
> > I figure the biggest way I can make a difference is by raising
> funds
> > to support the research. What would happen if the MGH group
> received
> > $100 million in support money? I bet they'd start to make HUGE
> progress.
> >
> > So...why not just pull out those credit cards and donate to the
> > Iacocca Foundation (http://www.iacoccafoundation.org)? Last
> weekend we
> > shook some cans at the transfer station for a few hours and raised
> > nearly $100, it all adds to the forward momentum!
> >
> > Bernard
> >
> > ---------------------------------------------------------
> > Help me to cure Type 1 diabetes
> > http://bernardfarrell.com/ride.html
> >
>




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Fri Aug 18, 2006 10:44 pm

stilltypeone
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Forward
Message #147 of 634 |
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Just a thought here- but without the automation process, and those same 10 people WERE NOT cured, then not only would the money not roll in, but the whole...
Paul Mullens
skywriter451
Offline Send Email
Aug 17, 2006
6:30 pm

The equipment is neccessary to automate the process, NOT to verify the process. Again, I am asking can this process be done by hand, similar to what Dr....
R Hyatt
stilltypeone
Offline Send Email
Aug 19, 2006
12:22 am

I truly believe that Dr. Faustman's research IS going to lead to, if not, BE the cure we are all so desperately waiting for. But anything worthwhile is worth...
deanne kacmar
jaysonjaclyn
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Aug 19, 2006
2:47 pm

Deanne, I take offense to your statements "stop all the negativity already" and "Instead of complaining, how about spending that time in serious prayer" 1. My...
stilltypeone
Offline Send Email
Aug 21, 2006
12:21 pm

It's not negativity to question the process, the project plan, and where the money is going. It's smart business, particularly if some of us are contributing a...
Lara
kinners1
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Aug 21, 2006
12:21 pm

OK, so maybe this is a cheesy analogy, but this debate seems to be equivalent to some one saying, "I have a problem, I need to move 10,000 people every day...
Nancy Parr
miraclecker
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Aug 18, 2006
1:10 am

That's not the analogy. What if we did not know if LA existed? Wouldn't it make sense to send a couple people on foot first before building the plane? I...
kinners1
Offline Send Email
Aug 21, 2006
12:26 pm

THANK YOU LARA!!!!!!!!!!!! ... before ... be ... Did ... before ... move ... next ... just ... even ... I ... take ... thorough, ... been ... defect ... have ...
stilltypeone
Offline Send Email
Aug 21, 2006
4:27 pm

The project timeline has not been extended...it has always been estimated at 3 years costing approximately $11 million. The Iacocca Foundation and MGH publicly...
Sue root
susan_root
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Aug 21, 2006
4:28 pm

Thanks, Sue. I believe different dates were mentioned early in the fundraising process. I realize nothing can start until the researchers receive the grants. ...
Lara
kinners1
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Aug 21, 2006
5:56 pm

I understand everybody is upset with the 2008 start date. Yes, it stinks and when I think about it I do get depressed. I have type 1 for 19 years and am just...
imcimc1
Offline Send Email
Aug 22, 2006
11:37 am

Well said, I agree 100%.Thank you. From: "imcimc1" <imcimc1@...> Reply-To: nathanfaustmantrials@yahoogroups.com To: nathanfaustmantrials@yahoogroups.com...
deanne kacmar
jaysonjaclyn
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Aug 22, 2006
4:16 pm

To be honest, I am 31 years old, have had Type I since the age of 1 and I do not believe there would be a cure in my life time. Ever since I could remember,...
Blain Getachew
blain516
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Aug 24, 2006
10:54 am

In reading several postings in this group, it has become clear to me that many people here know a lot about Faustman's research, there are many gaps in the...
Joshua Levy
joshualevy
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Aug 22, 2006
6:27 pm

Reposting a message: This message was originally posted by Sue Root yesterday, and approved last night, but somehow was lost. Here it is again: Joshua, Here...
stacy_lavery
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Aug 23, 2006
5:42 pm

Joshua, Here is some additional information for you: Most people at this forum are aware that the NOD mouse is the animal model scientists routinely use to...
susan_root
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Aug 23, 2006
6:09 pm

I have a good friend who works in cancer research and feels Dr. Faustman is the only one "on target." She feels that Dr. Trucco's work with dendritic cells is...
imcimc1
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Aug 23, 2006
7:43 pm

Joshua, I just received several emails from Dr. Trucco and Dr. Giannoukakis. They have yet to begin Phase I trials. Best estimate is safety trials will not...
stilltypeone
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Aug 24, 2006
10:57 am

This displays an important point about the use of BCG in the Nathan/Faustman trial - there won't need to be any safety trials since it's been around forever,...
stacy_lavery
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Aug 24, 2006
2:05 pm

Stacy, by definition Dr. Faustman's work will need to go through "Phase I" trials. Here are the definitions. Phase I: Researchers test a new drug or treatment...
stilltypeone
Offline Send Email
Aug 27, 2006
9:08 pm

... How right you are. I remember reading about several studies involving BCG and type-1 diabetes. Some looked at type-1 diabetes rates amoung people who had...
Joshua Levy
joshualevy
Offline Send Email
Aug 27, 2006
10:55 pm

... Dr. Faustman showed regeneration of islet cells with and without using spleen cell transplants. The significance of her research demonstrated that those...
susan_root
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Aug 28, 2006
10:29 am

Sue, any idea what Dr. Faustman proposes to use as the second compound to make the "cure" permanent? ... using ... demonstrated ... times ... to no ... using ...
stilltypeone
Offline Send Email
Aug 30, 2006
11:41 am

From what I understand, they know what to target and the effect they need to produce. I believe they plan to investigate and use a generic readily available...
Sue root
susan_root
Offline Send Email
Aug 30, 2006
2:08 pm

Isn't there something called "toxicity trials" that can be avoided? Forgive me, though I have tried to educate myself as much as possible, I'm still learning...
stacy_lavery
Offline Send Email
Aug 27, 2006
10:56 pm
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