Hi Pat, This is Kathy from Mo. in USA. We were in MSN group togeather. Glad your doing good,I am still doing good with the CTCL/MF, still 1A. Arthritis not...
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PatD
pat.dreyer
May 16, 2011 6:07 pm
Hi Kathy - Good to hear from you and glad you're doing well (at least the MF). That email took a long time to reach you, but glad you eventually got it. Re the...
494
george janiszewski
georgeyboy_111
May 16, 2011 9:30 pm
Well hello all just curious is arthritis a symptom of mf ??...I have given up om uv light as it was doing nothing to my shin..still ichey and have large...
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PatD
pat.dreyer
May 17, 2011 8:39 am
The question often arises as to just what kind of cancer MF is. If I'm correct, it starts when white blood cells create lymphocytes (so it's a cancer of the...
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Lovita Crasto
lovita_crasto
May 17, 2011 10:33 am
Hi Pat  Am usually the passive one in this group. But cant help and relate to your doubts. Iv had mine for many months now. After I was officially declared...
497
alliance15
May 18, 2011 3:13 am
Pat, Glad to see everybody is OK! I too had a little flare up on my left arm. Thought oh boy huge patch of MF. It grew and it itched like crazy. I used vinegar...
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Mary Katherine
starshine2727
May 21, 2011 4:16 pm
Hi Pat, Jim and other members. Just checking in after some months to see how you are going. Glad that your treatment has worked Pat. Jim, keep fighting...
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Jim
willjay17...
May 26, 2011 12:16 pm
Seem to be past my selling date. Covered with an itchy rash, which steroids dont gelp. Went to St T's on monday, and they have put my Targretin back up to 7...
500
Judy Jones
judy905
Jun 15, 2011 7:45 pm
This group has been a little quiet lately, so here's something for you to check out. Jenifer Viano, our CEO attended the American Society of Clinical ...
501
PatD
pat.dreyer
Jul 1, 2011 10:54 am
Hello all An application to join the Multiply group came in, so I looked up the site. There were about 10 other applications, but the site has no facility to...
502
Judy Jones
judy905
Jul 1, 2011 5:23 pm
The following information was put on Eisai's website and sent to physicians this week. If you are currently taking ONTAK or about to start this treatment, it...
503
PatD
pat.dreyer
Jul 1, 2011 5:53 pm
Hi again Saw the derm today because of a rash of keratoses. Had the usual multiple freezing-offs. A comment made me much happier... She said that when I saw...
504
PatD
pat.dreyer
Jul 22, 2011 6:58 am
Hi Roxanna Welcome back! It's been a few years since we last chatted, so won't you give us an update? You've had and dealt with MF for many years and your...
505
Judy Jones
judy905
Sep 13, 2011 6:06 pm
Reminder: Update on Cutaneous T-Cell Lymphoma teleconference. If you have not signed up, there is still time: ...
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Judy Jones
judy905
Sep 28, 2011 7:32 pm
There will be a skin lymphoma conference in Australia on October 28th for patients hosted by Peter MacCallum Cancer Centre, the Leukaemia Foundation of...
507
Judy Jones
judy905
Oct 14, 2011 1:06 am
MD Anderson in Houston is conducting a CD30+trial to determine if SGN-35 can help to control ALCL, LyP or MF in patients. Complete information can be found a:...
508
Judy Jones
judy905
Oct 14, 2011 7:38 pm
Peter MacCallum Cancer Centre in collaboration with the Leukaemia Foundation of Australia, Skin and Cancer Foundation and St Vincent's Hospital invites you to...
509
Jim
willjay17...
Nov 17, 2011 1:38 pm
Recently had a SCC cut from my left shin, and a small white thing from my ear lobe.Ear OK, and shin SCC being dressed and cleaned by District Nursrs. It is...
510
Pat Dreyer
pat.dreyer
Nov 17, 2011 3:50 pm
So hey - you're going to be famous! Glad to hear you're still chirpy after all your cuts and stitches. How on earth did you get a BCC on your abdomen? I don't...
511
Jim Taylor
willjay17...
Nov 18, 2011 11:28 am
Jims Update Thanks for your Email. The MF on my bottom may be a problem. The white rhing on ear was Bowens Disease.A kind of skin deep Scc.The BCC is coloured...
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PatD
pat.dreyer
Nov 21, 2011 7:06 pm
Hi "Silly Sam" and welcome. Please give us some information about yourself - your proper name, where you live, when diagnosed, what stage etc. Of course...
513
silly_sam85
Nov 22, 2011 3:01 pm
Hi, My name is Sam, I am 26 and I live in East Anglia, England. I was properly diagnosed around 3 weeks ago but have had the patches for approx 3 years now. I...
514
Pat Dreyer
pat.dreyer
Nov 22, 2011 6:10 pm
Hi Sam If you're Stage 1 patch stage, it is highly likely that you will live a normal life and have lots of babies! The "secret" of this disease is to monitor...
515
Paul Joosten
paul_joosten
Nov 23, 2011 7:12 am
Hi Sam, Although nobody reacts exactly the same your case sounds similar to mine, with 20 years in between. I too spent years finding out what I had and after...
516
silly_sam85
Nov 23, 2011 9:00 am
Hello Pat and Paul, Thank you so much for your replies. I cannot tell you how reassuring you have both been and how much I admire your strength! I think...
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Anton Peploe
antonpeploe
Nov 23, 2011 10:41 am
Hi Sam: My MF history is much like Paul's. It took some 6 years to finally get a referral from my GP to a local dermatologist, who subsequently referred me to...
518
Chris Russell
chrismediumrare
Nov 24, 2011 7:12 pm
Hi Sam, My name is Chris and I live in South East London. The one, quite often, common link you will find here is that this disease is mis-diagnosed time and...
519
Jim
willjay17...
Nov 29, 2011 1:17 pm
Went to St.Thomas's monday, and saw Professor Whittaker. Hes a nice man. Shook my hand twice. They took scrapingsof the patches on my neck, in case there is...
520
PatD
pat.dreyer
Dec 1, 2011 5:13 am
Hi - am posting this message from Lisa as she sent it to me, being new (welcome) and not knowing how the boards work... hi im a mum to a twelve year old...
521
PatD
pat.dreyer
Dec 1, 2011 10:15 am
Hello and welcome to Christine. This is a mail from her - both she and Lisa don't realise that they can post directly onto this page. Hello Pat D. Thank you...
