Hi all Have now had two sessions of whole body low grade radiation. Lead eye shields have to be inserted (like contact lenses), which is probably the most...
My name is Lari and I have just joined this group. I live in Toledo, OH with my husband John. I was just diagnosed on May 7, 2010. After 2 months of testing...
Hi Lari and welcome. UVA doesn't always work quickly - I took over 60 treatments before improvements were seen. This is a disease where patience is a...
Saw Alison on tuesday - Thyroid low,Cholesterol high - probably due to the Targretin I take. Going to a Diabetes and Endocrine Clinic just before Xmas. Hope it...
There were 8 of us, at the meeting, on monday. Just general chat and swopping ideas. My contribution, was to reccomend Fairy Baby for the Wash. A Nurse at the...
Oxsoralen-Ultra (Methoxsalen Capsules, USP, 10mg) that is used by patients for PUVA treatments is now available. MustargenR (mechlorethamine HCl) injection is...
Just a quickie, to say that I have an appointment at the Harefield Pacemaker Clinic on Dec3rd. They may be able to adjust it, or if it is the battery getting...
Hello all Today had the 4th of 6 total body low grade radiation. After 3 sessions, my arms in particular were swollen and sore, so the onco gave me a week...
Pat, Glad you see some improvement.. and sorry for the pain you are experiencing. I ran across this link from Dr. Duvic as I was researching scabies. My son...
Hello Lew and everyone The interesting article shows that even top docs can be stymied by the many possibilities of diagnosis. This is probably why the ...
Pat, I am not sure how he and his girlfriend picked them up. He has inherited my DNA which has always had some skin associated sensitivity problems and is...
Hi all Been battling for the past couple of weeks with radiation burns. My previous radiation onco told me that radiation doesn't "burn." Hmmm.... Don't...
Hi Pat. I've been reading your posts and have some questions if you don't mind. What radiation treatments are you having? Is MF your only diagnosis? How long...
Hi The big teaching hospital here in Cape Town (Groote Schuur where the first heart transplant took place - ahem!) use a protocol developed by one of their...
I am in stage 1 and I live in Toledo, OH, USA. Thanks for the reply. I'm glad to hear that you are feeling good and still active with what you are going...
Oh no Jim! How on earth did this happen? If you're on a zimmer then it must surely mean that the break wasn't complete? If it was, I'd presume you'd be on...
Break top of Femur - screw - getting to move leg more every day --no pain - just patience and time to get more mobile -Â Â Â Â Â Â Â Â Â Â st T's on 11 and...
Hello everyone Just to wish each and every one of you a most, most, most healthy 2011 and that in addition, it's a year filled with love and happiness....
Hi, My name is Chris and I just wanted to (re)introduce myself to the group. I was a member of the old group until it migrated to yahoo about a year ago and...
Hey! Welcome back Chris! In our original MSN group, Chris was a regular contributor and helped us to "contain" a couple of strange characters - you know,...
Hi all: I too like Chris drop in to St Thomas' London once a year and am also under Dt Whittaker. I also see a a local dermatologist every 6 months. I am not...
Well, everything seems to have healed nicely, although a couple of layers of my skin have come off, leaving me with a baby-pink covering. We are in the...
Here is a great article on CTCL in the Washington Post by David Lamb: http://www.washingtonpost.com/wp-dyn/content/article/2011/01/03/AR2011010306 123.htlm ...
Judy, the web site below doesn't bring up the article, but it can be retrieved by going to washingtonpost.com and then entering David Lamb in their search...
