Dear All. Went to St. Thomas', yesterday,Hospital Car got me there on time! To my delight met Mary, also waiting - used to see her at the Support Group...
261
zimanbrothers
Dec 2, 2009 3:21 am
Jim, I don't know if your towels really are very harsh. I've found that if I put my bath towel into the dryer and heat it up before a quick shower, it becomes...
262
Brenda
brendabillam
Dec 14, 2009 12:40 pm
Hello to all, I went into hospital on Nov 9th and was there for over two weeks, including my birthday! Methotrexate re introduced to go with interferon which...
263
Jim
willjay17...
Dec 17, 2009 3:55 pm
Nice to hear from you, Brenda, and that you are making good progress.A pity that you could not enjoy the Hospital food. I was lucky, with my stay at St. T's....
264
PatD
pat.dreyer
Dec 20, 2009 8:12 am
Hello all Thanks for the updates Brenda and Jim - I do hope that Jim's improvement continues and that Brenda's docs find the right combination to treat you... ...
265
alliance15
Dec 21, 2009 7:17 am
Pat, Hope you and everyone finds relief...I have a funny story that you might find interesting. One night I had my usual chocolate frenzy..I ate plain mm's,...
266
Pat Dreyer
pat.dreyer
Dec 21, 2009 9:22 am
Hi Lew Think you hit the nail on the head with your second last sentence - "appears to be correct - at least for you!" It's common knowledge that people reacts...
267
Evangelos Louizos
louizosev1
Dec 21, 2009 5:13 pm
my messages have been returned-hope this one gets though. ... From: Evangelos Louizos <louizosev1@...> To: mycosisfungoidesint@... ...
268
PatD
pat.dreyer
Dec 21, 2009 6:15 pm
Hi there Your message did reach us! I am a member of the US list and read their digests every day. One of the "annoyances" I have about this list is that so...
269
alliance15
Dec 21, 2009 8:11 pm
Pat, Yes we did get a foot of snow here in CA last week. I had to actually shovel snow for the first time in 20 years...Cylical for sure on decade time...
270
Judy Jones
judy905
Dec 22, 2009 1:03 am
By now most of you are aware of the shortage of Oxsoralen in the U.S. and Canada. Here is the latest information posted on the manufacturer's website. If you...
271
Judy Jones
judy905
Dec 22, 2009 4:12 am
For some reason the website didn't show up in my last email. Here it is again: http://www.oxsoralen-ultra.com/index.jspf If you scroll down to the bottom box...
272
Pat Dreyer
pat.dreyer
Dec 23, 2009 10:31 am
Hi again I do not "poo-poo" your thoughts. I say that they have validity, but that what suits you, may not suit everyone! Take for e.g. something you've not...
273
alliance15
Dec 24, 2009 4:53 am
Pat, I could not agree more..someone is always selling something and that is why I buy absolutely nothing. I take no drugs or PUVA or UVB or creams etc etc...
274
Judy Jones
judy905
Dec 24, 2009 3:42 pm
Doctors are not recommending indoor tanning because of the increasing risks of skin cancers. The American Academy of Dermatology Association (AADA) opposes...
275
Jim Taylor
willjay17...
Dec 24, 2009 3:59 pm
... From: Judy Jones <judy@...> Subject: [mycosisfungoidesint] Tanning Booths To: mycosisfungoidesint@yahoogroups.com Date: Thursday, 24 December,...
276
alliance15
Dec 24, 2009 6:03 pm
Judy, Your doing a nice service. FYI your link did not work. If I believed everything I was ever told or read....I would have run out right away and got my flu...
277
Pat Dreyer
pat.dreyer
Dec 24, 2009 7:24 pm
Hi Lew The link worked for me, so perhaps you didn't copy the full one in? It expands to ...
278
Pat Dreyer
pat.dreyer
Dec 24, 2009 7:25 pm
Hello everyone Just to wish everyone - and families and loved ones, a wonderful festive season and my hopes that 2010 will see us all free of this cursed MF!! ...
279
Jim
willjay17...
Dec 26, 2009 12:50 pm
Re the Skin Cancers, on my legs. Firstly, they have not been exposed to the Sun, for over 30 years. When the MF was confirmed, I had PUVA twice a week, for...
280
alliance15
Dec 26, 2009 5:15 pm
Jim, You are having your challenges and hopefully things will get better for you. Often the Sun is given a bad rap and yes PUVA is an aggressive treatment only...
... From: Evangelos Louizos <louizosev1@...> To: mycosisfungoides@yahoogroups.com Sent: Wed, 30 December, 2009 22:32:35 Subject: Fw: to shirley ... From:...
283
PatD
pat.dreyer
Dec 31, 2009 6:57 am
Hi all Interesting description of MF sent by Shirley and the vexing question of why the docs can't treat the SOURCE of the cancer is a good one. Those with...
284
Evangelos Louizos
louizosev1
Jan 1, 2010 5:35 pm
... From: Yahoo! Groups <notify@yahoogroups.com> To: louizosev1@... Sent: Fri, 1 January, 2010 17:26:57 Subject: Unable to deliver your message Note:...
285
alliance15
Jan 2, 2010 3:22 am
Vivien It is not often that I post...and I guess the reason is that very few actually need an explanation of why....they do not treat the actual cancer. Most...
286
Evangelos Louizos
louizosev1
Jan 2, 2010 10:10 am
Thank you Pat for taking the trouble to respond at such length and so thoughtfully. I always find your responses very helpful and this has certainly given me...
287
Judy Jones
judy905
Jan 4, 2010 9:17 pm
If any of you have PTCL on this listserv, you may be interested in listening to the CancerCare teleconference on January 14th from 1:30-2:30 pm EST. This is a...
288
alliance15
Jan 5, 2010 3:23 am
Pat, I wanted to thank you for the proper link. Yes this link worked. I read the article and saw that about 10 studies that determined the mentioned results....
289
Jim
willjay17...
Jan 10, 2010 1:11 pm
Weather permitting, I go to St. Thomas' on tuesday, to see Alison Baker, the Macmillan Nurse. Appointment is 9am, which means the transport will pick me up,...
