mycosisfungoidesint : Mycosis Fungoides International

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Group Information

Members: 91
Category: Cancers
Founded: Feb 1, 2009
Language: English

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Activity within 7 days:

1 New Member - 5 New Messages

Description

A support group for a type of Cutaneous T-Cell Lymphoma called Mycosis Fungoides.

CTCL is a form of non-Hodgkins Lymphoma and diagnosis is often only made after a number of years.

Most Recent Messages

Re: Diagnosis Question Hi Meg, Burning from UVB should not need to happen at all, just like in sun bathing on the beach only now with proper supervision. There are rule of thumb Posted - Wed May 15, 2013 9:35 am	Paul Joosten paul_pa5ul Send Email
Re: Diagnosis Question Thank you both for your responses and advice. I put a call into the doctor today to follow up on my latest appointment and ask about his certainty of the Posted - Tue May 14, 2013 11:41 pm	Meg Hanayik mhanayik Send Email
Re: Diagnosis Question Hi Meg Biopsies don't always give categorical answers and may read along the lines of "suspicious for ..." and so on. For most people, the MF stays as a skin Posted - Tue May 14, 2013 7:35 am	PatD pat.dreyer Send Email
Re: Diagnosis Question Hi Meg, Diagnosis can indeed be extremely dificult but biopsies repeatedly coming up negative? Doesn't sound familiar to me. I hope you get some kind of Posted - Tue May 14, 2013 6:57 am	Paul Joosten paul_pa5ul Send Email
Diagnosis Question Hello! I recently joined the group and was hoping to find some guidance/advice. I have had quite an eventful year dealing with a diagnosis of MF. Last summer Posted - Tue May 14, 2013 1:17 am	Meg Hanayik mhanayik Send Email
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Message History

	Jan	Feb	Mar	Apr	May	Jun	Jul	Aug	Sep	Oct	Nov	Dec
2013	22	5		2	7
2012	7	6	6	5	2	10	1	1	12	3	12
2011	9	6	3	4	8	1	4		2	2	12	31
2010	30	14	18	7	15	18	12	8	7	35	14	8
2009		81	31	28	13	15	18	16	12	16	29	24

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