Hi all, just wanted to say thanks for such a helpful site.Im in the process of having workup for MG and would appreciate any tips you could offer me. thankyou....
Welcome Sally, we will do all we can to offer our experiences and tips to live with MG. When you say work up for MG, I am not sure what you mean? Can you...
Hi Rodney, Thanks for your email. What i meant by work up is im in the process of having tests.Have done the ACHR test and will get results Monday, and I have...
MGnet Support Meeting this Saturday August 14th! Join us! Saturday's Topic: "Being an Informed MG Patient" Guest Moderator: Donna Whittaker All are welcome,...
Are you, or someone you know, new to Myasthenia Gravis? Do you have questions about what this is, the testing for it, or how it is treated? Please join us for...
Hi I haven't posted for a while but I've been reading the messages. Have you had your MuSk results yet Helen? And Jane (and maybe Helen too) have the medicos...
If not then what I think that is the 6 million dollar Question Hmmmmmmmmmmmmmmmmmmmmmmmm. Well I am in TOTAL and absoloute confussion. Keep in mind everyone I...
Hello Christine My, my my, lots of questions. And unfortunately not too many answers. But here goes..... My doctors (GP neuro and gastroenterologist) are no...
Hi Helen I can't believe that you are still waiting for your pathology results. On second thoughts, yes I can. Some parts of the public health system works...
Jane I kind of have a diagnosis as neither my GPs, (I've had 2 in the 12 years or so I've had MG,) or the neurologist have ever really questioned that I had MG...
MGnet Support Meeting this Saturday August 21st! Join us! Saturday's topic: Can I overcome my low self-esteem? - tips and strategies on how to rebuild...
Think you have MG and will never be able to do much of anything? Watch the 400 meter hurdles which ESPN lists as appearing at 12:30 p.m. ET (sorry I don't have...
Hello to Everyone Hope you are all well, on this fine afternoon. I have been writing to a lady from another group that I have joined and she sent me the...
MGnet Support Meeting this Saturday August 28th! Join us! Saturday's topic: Educating your family and friends about MG - what they want, what they need to...
Can anyone help Martina?? She wrote me as follows; Hi My name is Martina and I have been experiencing problems with eye movement now for 4 years. I have...
Dear Paul, My name is Susan Boucher I attened a meeting once with my family at Ryde Eastwood and heard you speek about your MG. My daughter Elizabeth is 10...
MGnet Support Meeting this Saturday September 4th! Join us! Saturday's topic: Is this medical website reliable? - evaluating online information All are...
... writing to a lady from another group that I have joined and she sent me the following email about her "condition". I questioned if it may be MG ? If...
Hi, it does sound suspicious doesn't it!! I wonder too now, as my mum and son are both suspected MG as am I, they both mainly rather than me, have one side of...
The SSDI chat scheduled for Monday September 6th has been postponed. The new date will be announced soon. Best Regards, Monica Pires MGnet's Vice-President ...
Hi to all It has been quiet again on the list and I hope that everyone is keeping well. It's a gloomy afternoon here ( just north of Brisbane ) perhaps we will...
MGnet Support Meeting this Saturday September 11th! Join us! Saturday's topic: MG and pets - does an MGer benefit from having a pet? All are welcome, not only...
Can anyone help Alison with her quest for a nuero in Victoria? She wrote as follows; Hello I wonder if you can be of assistance to me. My father has recently ...
Good afternoon Jane. Just read your e mail and thought I'd let you know all is well here. Thanks for asking. Yep still fishing in the afternoon and golfing...
Rod, The best person, to see is Bernard Gilligan. Is my neuro, used to be head of Neurology at the Alfred. He is absolutely wonderful to deal with. Tracy...
Please see the e mail I received to day Two years ago I was diagnosed with MG, I have MuSK positive MG which is quite a severe form. I was wondering if there...
MGnet Support Meeting this Saturday September 18th! Join us! Saturday's topic: Household tips - making your home MG friendly - guest moderator - Dale...
Hello all. I received another request to day for a good Nuerologists in Sydney NSW. The message read as follows;; hi, my dad just been diagnosed with...
MGnet Support Meeting this Saturday September 25th! Join us! Saturday's topic: Understanding the process of rebuilding yourself - tips and strategies on how...
Hi everyone to cut a VERY long story short I ended up having another Musk antibody test done. When I told my neuro that Janr already had her results back she...
