How come none of us are offered this secret drug that makes Olympic athletes win? Maybe over there in Oz you are all on it and keeping it a secret! Surely if...
Yep thAT drug would be good eh? No secrets here though I am afraid. It would be nice to do the things you talk about though without being self concious all...
Hi everyone and thanks Rod I am OK Would you believe I went into a different chemist to have my script of Mestinon filled and was VERY surprised to see the...
Hi, I'm a mother of three, living in Perth WA. I am currenty under a Neuro, he is doing a few more tests, but has said that he thinks it is MG, which doesnt...
MGnet Support Meeting this Saturday November 29th! Join us! Saturday's topic: Holiday Hints for Myasthenics All are welcome, not only MGers but also anyone...
Hello Cindy, Thank you for joining us. Please feel free to chat with any of us at any time. Amongst us there is quite a bit of experience. Some in NSW...
Hi Cindy, I know of a woman who is about 35 - 40, married with children and lives in Perth. If you email me privately at: deborah@... I can send you...
HI Deborah, Is this intended for me??? Christina ... _________________________________________________________________ Hot chart ringtones and polyphonics. Go...
Hi everyone Its GREAT to see we are almost at that ilusive 100 mark. Now Rodney you still might have to take me out to lunch one day LOL I do hope everyone is...
Hmmmmmmm Jane's husband Robert here. Just looked at the menbers list. 98 eh ! I found a duplicate and someone with no name or profile. Helen may have to...
A big welcome to all new members. I lilke Helen would love to see the membership at 100+ . I reckon we can do it, and the beauty is we will then get more...
Hello everyone! My name is Lucy Gomez and I'm from San Diego, California. I was diagnosed with MG when I was 1 month old. I realised that I was a freak on the...
Hi to everyone As some of you may know I am still trying to get a doctor to confirm "my condition". I've been to a local neurologist at the public hospital...
Hi all sorry its been a while since my last post, which I think was my intro!!! I have not been having much luck with the docs in perth! Does anyone know of a...
Hey Cindy, I have a dr buce brew here in sydney that is fantastic. It is really hard to get a definitive diagnosis on MG as you can have MG with or with out...
Cindy We live in Perth and my daughter, Samantha, has MG. It took us a long time but we have found a brilliant medical team and it has made the world of ...
Thanks for your reply Brenda. I have been ok with the heat, although some days are much worse than others, it funny how that happens! It must be terrible to...
Thanks for your reply! I live in Perth so it is a little far away for me. But you never know I might end up having to go over there to find a decent doctor!...
I look forward to you phone call. ... From: "sin001" <no_reply@yahoogroups.com> To: <myastheniagravisaustralia@yahoogroups.com> Sent: Wednesday, December 31,...
Hi Cindy I am so sorry about the way our phone conversation ended the other day, my phone just went dead! I do not have your phone number and so I wasn't able...
Can anyone help me? I want to know the dangers or effects of highish dose prednisone, 20, 25 mls a day over years. Thankfully I haven't needed this for my...
Hi everyone as most of you know I have never been given a possitve diagnosis of MG. For the past few weeks I have been having great difficulties with weekness...
Oh Helen, Sorry to hear that your symptoms have been so very bad. This would be difficult to cope with and worrisome. Sorry that you had to reach the point of...
Hi Jane and all, Unfortunately the weather has taken a turn for the worse again and we are having things very hot and humid here in Brisbane I thought I was...
Helen although I am so sorry you are very weak again I am delighted the neuro saw you while you were bad! At last! And that she admitted you probably had MG -...
Hi Helen, The hot and humid weather we have here in Texas always makes my MG worse. I've had 2 Mg crisis during our hot summer months. Let me know how your...
Hi I am Patti a new member. I was diagnosed about 10 years ago after about 15 years of symptoms. I am 48. I was on Mestinon but taken off when double vision...
... From: Pat Lekas To: myastheniagravisaustralia@yahoogroups.com Sent: Tuesday, February 03, 2004 9:59 AM Subject: [Myasthenia Gravis Australia] depression Hi...
Hello Patti I'm sorry to hear that you are having such a stressful time. Before my symptoms appeared, my life was full of many stresses. Even though I tried...