WHY A SNOWFLAKE? Each snowflake is unique; each MG patient has unique symptoms and reactions.*Each snowflake is fragile; each MG patient has times of...
It was probably one of the scariest things that could ever happen to somebody. I had just turned 30 years old. Out of nowhere -- it happened! I wound up laying...
Hi folks, Has anyone had a permacath inserted for plasma exchanges? I just had one inserted to assist plasma exchanges more easily. Just wanted to know if ...
i never had a permacath but i have had a midline several times. usually i couldnt tell it was there but there were times that it got uncomfortable. but midline...
Good evening all, Sorry that I havn't been active of late. I was disgusted to see that we have had some undesirables join the group with all sorts of unwanted...
I will see how this goes, but to keep the undesirables posting, either Helen or I must approve people wishing to join the group. Will monitor this and let you...
Hi everyone sorry I have not been too active of late. I have been a wee bit bust and a lot has happened in the past 6 months. for those who dont know I had a...
Welcome back,I thought we had ,had a busy year. Hope things improve for you this year! Chris Culling lashmarah <no_reply@yahoogroups.com> wrote: Hi everyone ...
*SNOWFLAKE INFORMATION* WHY A SNOWFLAKE? Each snowflake is unique; each MG patient has unique symptoms and reactions.*Each snowflake is fragile; each MG...
Hi, I requested a snowflake last year,I sent you my name and address and i have not heard from you. If it is too expensive to send to Aus let me know. Good...
Hi Chris, I have emailed you privately for your home mailing address and the snowflake is on it's way. Myrna, the snowflake coordinator, said it takes about 10...
Hi everybody, I am a new member and I just want to introduce myself. My name is Cyndy and I was diagnosed with MG in 1996. I was a total vegetable but...
Hi Cyndy I wish you good luck.You must have your hands full with the two young ones. I know some days I have trouble looking after myself! Chris Cyndy...
Hi, everyone, I am a new member of Myasthenia Gravis Australia, but not new to MG. I was diagnosed in September 1973 and had the first thymectomy performed at...
I found this link this evening whilst "Surfing the net" Gee I hope you get as much out of it that I did. I think it will help new and old members. Hope so! ...
yeah, I am on Mestinon timespan for some years now. Sometimes I wonder if it is really effective. Well glad to hear you survived 6 crisis. I have been on so...
I haven't posted a message for ages been having lots of problems with my MG been in hospital 3 times in the last 4 months getting IVIG which helps but only...
Hi Tania, I also have the eating problem. I have found that by not eating cheese and less meat my symptoms are not so bad. Hope this helps Steve ... From:...
... Demyelinating ... weakness ... My doctor is talking about sending me to a sleep clinic. I will tell you when I get there what is happening.It takes a while...
Hi Chris, I have looked at the mesage and can't explain the JUNK that appears at the base of it. Now that we screen members that should help. Take care Rod ...
Hi Chris, I have looked at the mesage and can't explain the JUNK that appears at the base of it. Now that we screen members that should help. Take care Rod ...
Announcing the Spring 2006 MGnet Connect Newsletter now online. Check it out. http://mgfa-mgnet.org/newsletter/index.htm Index: From the Mgnet President Dale...
To all my good MG friends, Today we are celebrating Passover. On this occasion I like to congratulate All of you with the hebrew greeting "Hag Shameach" (Happy...
This week's topic: Myasthenia Gravis and coping with change, hosted by Monica Pires. Join us! The Support Meeting will start at: Pacific: 11 a.m. Mountain: 12...
