Hi Just a quick note to let you know just after 12.30 pm today my Mum passed away She had been very ill for a while now and after a very difficult time these...
We are so sorry for your loss.Our thoughts and prayers are with you at this sad time.Keep your mum alive in your heart and she will always be with you. Love ...
So sorry to hear your news.May she rest in peace. Your family are in our prayers. Chris in Melbourne. lashmarah <no_reply@yahoogroups.com> wrote: Hi Just a...
Oh Helen, I feel so sad for you. The loss of your mother is a huge loss - no matter what age we are. And how frustrating to be immoblised when you really need...
Hi Helen Sad to hear about your mum. Remember the good times with her. Take care Jane lashmarah <no_reply@yahoogroups.com> wrote: Hi Just a quick note to let...
Hello helen, Have just read of your news. Kath and I are so sorry to hear of your loss. We will certainlly keep you in our prayers and thoughts through this...
Hi, just wondering sicne there was a conversation about pain earlier.... I am yet to be diagnosed, but since I have two chidlren with Congential myasthenic...
Hi everyone THANKS so much for all your kind words thoughts and prayers. we laid Mum to rest today with a beautiful service.everything went well and I do know...
I get neck pain but my doctor said it was 3 bulging discs.The neurologist is always getting me to straighten my head when she tests my eyes. The physio said I...
My husband has had myasthenia for 6 years now. He often gets pain in different locations more so in his neck. His neurologist told him that you do get pain...
Hi all. I need to let you know that as at 01st October 2005 the web page www.myastheniagravis.com.au will cease to be. This is unfortunate, however, due to a...
Hi all, hope everyone is travelling well. Havn't seen you post for a while Helen, is all ok? Boy hasn't it heated up in South East Queensland in a hurry? Now...
Hi all This is a wee bit long THANKS to everyone who sent me those wonderful thoughts and best wishes.As you can all imagine even though I was or should I say ...
Great to hear from you. I am still on prednisolone o get the MG into remission.It is not working-it has been almost a year and as you say the hot weather is...
Chris, I have just got off Prednisolone and am waiting for the hot weather with some trepidation, as I have had a relapse every summer for the past few years. ...
Hi Chris, Glad you wrote, sorry to hear the prednisolone hasn't kicked in yet though. Are you also taking Imuran to help with remission? Be patient it WILL...
Hi everyone I am new to the site, would appreciate a name of a Specialist in Sydney who specialises in Myasthenia Gravis. I live in New Zealand and having real...
HJ Brockie, My MG Dr was Prof B Brew At St vincents hospital sydney. Very progresive good luck steve ... From: "jeannette_brock" <jeannette_brock@...>...
I have a question to the CPAP users, Do any of you have any information on a phenomenon that sometime occur to CPAP users when your legs start moving during...
I like to thanks all that answer me already about "RLS" and I like to clarify that I'm not talking about "RLS". I'm talking about symptom from the use of the...
A big thanks to you sharry-smith, Now I know what I'm looking for, I'm looking for : PLM - (Periodic Leg Movements). ********************************* ...
Yeah hi there, i am really new to all of this and i think i may have a mild case of it. my doctor diagnosed me in march this year and i have my thiroid under...
I would like to speak with anyone who has had children whilst taking mestinon. I am considering having a child & would like to know the risks if any. Thanks RS...
Hi Renee I had a child when suffering from MG but undiagnosed and my son was born with neo natal myasthenia after spending a month in intensive care he was...
Hi Pauline, Thanks for replying so quickly. My local GP & I are going to meet up again in 1 month - so in that time she is going to do some intensive research...
Hi Renee I have had 2 children, one as recent as 4 weeks ago, the other in 2003. I was diagnosed with MG in 2001. I am antibody negative. With my first child,...
Hi Renee You struck a cord with me when you wrote that you have never spoken to any one with MG I never talk about it because no one knows what it is, so it's...
