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myastheniagravisaustralia · Myasthenia Gravis Australia - Myasthenia Gravis in Australia

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Discussion of MG related matters. The only criteria here is that you have an interest in Myasthenia Gravis. Do you have Myasthenia Gravis? Do you think you have Myasthenia Gravis? Do you know someone with MG (Myasthenia Gravis)or that thinks they have MG (Myasthenia Gravis)?

Did you know we have members that have not been diagnosed with Myasthenia Gravis after years of displaying what they believe are symptoms synonymous with the disease? How can this occur? What makes this disease so difficult to diagnose? Is there a definitive diagnostic tool?

Join us and seek answers to these questions from people that have experienced MG and that have had similar instances in their life.

Myasthenia Gravis IS NOT a death sentence, it is merely a condition that we must learn to cope with. And remarkbly most people lead a near normal life once they have learnt to cope with their medication regime etc. Obviously we are all different. That's what makes us interesting! :-)

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MGnet chat Saturday May 17, 2008
Please join Deb Butler in the MGnet Chat room today. She will be presenting MG Friendly Vacations. A very timely topic! Join her and share your experiences!
Posted - Sat May 17, 2008 4:20 am
donnasjmo
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Re: mestinon
It was a bit scarey when I read about how too much of it can kill you - sort of thing. I suppose if the GP is inexp in how to use it - just start slow and
Posted - Tue May 6, 2008 5:41 am
aussi_jane
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mestinon
Don't worry about the Mestinon. You may be started on just a half, or maybe one. It may give you some pains in your gut at first but if it relieves your
Posted - Tue May 6, 2008 5:18 am
chrissie_liz
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Re: negative tests
The GP has already spoken of being willing to trial me on Mestinon - just waiting for Neuro and first appts to see what he says. I have also been told of a
Posted - Tue May 6, 2008 1:14 am
aussi_jane
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negative tests
Yes I have always had negative tests. So have some others who probably do have MG Its notoriously difficult to diagnose. You sound as though you probably have
Posted - Mon May 5, 2008 8:45 pm
chrissie_liz
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