Hi everyone,



I was just diagnosed with MVP a month ago. I just mentioned that i had

had some chest pounding episodes the past week. I had the appt for

something else. Doc listened to my heart and ran a test... EKG (I

think). He gave me verapamil. He didn't talk to me about it. Said to

just live like before. I got a book from the public library about MVP

and just today found this group on the web. WOW! I am scared out of my

mind, confused, and in denial. The book lists symptoms and MVP

syndrome symptoms and I was blown away. All of those symptoms have

plagued me for 6 years and previous doctors diagnosed me with anxiety,

depression, stress....endless tests, MRIs, etc came up inconclusive. I

was medicated and then taken off meds because of the side effects. I

felt like I was getting on with my life just dealing with horrible

fatigue, anxiety, etc and after a change in insurance and doctor....he

listened to my heart on a random appt and said it was MVP. This doctor

had no records of my previous symptoms. I thought it was what all the

other docs told me...stress! I've only been on verapamil for a month

and I guess it's working. I feel relaxed or perhaps relieved that my

symptoms weren't just in my head. Does anyone else feel that way? I am

28 and a mother of two. I don't know what my limitations are with this

condition. The fatigue I have felt for so long suddenly makes sense.

My husband is really worried because this is a condition involving my

heart. He is very sympathetic now because he knows it is the condition

that makes me exhausted, anxious, and in pain (chest pain). But I

still feel so alone. I have searched for a support group in my area

but there is none. My doc wants to see me in a few months. Should I go

and see a specialist (cardiologist) before I see my doc? Please help.



Cindy

from TN

I can certainly understand where your coming from...

The biggest thing that has helped me is to cut my

morning coffee back to one cup and then limit

caffeine, chocolate, and carbs during the day. I have

felt better since doing this. My doctor wanted to put

me on a "beta blocker" which I denied because I had

not heard good things about them and wanted to

research it further. I chose to make lifestyle changes

in lieu of the "beta blocker" and all the side affects

you can have from them. There are always days when I

just feel exhausted and overwhelmed. I can however

tell you that a large percentage of people have MVP so

you are not alone! Did your doctor tell you if you

have regurgitation?



Carri Whitehouse - Estimator

United Mechanical, Inc.

Phone - 239-939-4502

Fax - 239-939-4225







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that gives answers, not web links.

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My doctor just said that I definitely had MVP. He didn't elaborate or

anything. He told me to continue to exercise and not to stop my Weight

Watchers points plan. He didn't mention anything about regurgitation.

I didn't even know that much about the condition and he did not offer

any further discussion about the diagnosis. I had heard about reducing

the caffeine. I have 2 cups of coffee every morning. But I had quit

caffeine altogether some months ago and had all the other MVP syndrome

symptoms (that was before I was diagnosed). Thanks. Maybe I'll switch

to decaf. Do you think I should go to a cardiologist?

--- In mvpandmvpssupport@yahoogroups.com, "luvsbluocean2"

<luvsbluocean2@...> wrote:

>

> My doctor just said that I definitely had MVP. He didn't elaborate or

> anything. He told me to continue to exercise and not to stop my

Weight

> Watchers points plan. He didn't mention anything about regurgitation.

> I didn't even know that much about the condition and he did not offer

> any further discussion about the diagnosis. I had heard about

reducing

> the caffeine. I have 2 cups of coffee every morning. But I had quit

> caffeine altogether some months ago and had all the other MVP

syndrome

> symptoms (that was before I was diagnosed). Thanks. Maybe I'll switch

> to decaf. Do you think I should go to a cardiologist?

>



I do not think it would hurt to have a cardiologist check it out. They

may be able to help you with questions or suggest how to help control

it. I would do my research before going on any medications though if

they suggest that!