Hello, I have just recently been diagnosed with MVP
and have most of the symptoms I have been reading on
this website... palpitations, dizziness, shortness of
breath, knee pain, numbness in fingers and heals, neck
and shoulder blade pain and the chest pain which is
the worst because it really makes you feel as if you
are going to have a heart attack any time now....

My story begins during my preganancy 2 years ago next
month... I had a great pregnancy although they needed
to put me on thyroid medicine to produce enough for
the baby and I. Also, during the last few months of
pregnancy I was diagnosed with the Gestational
Diabetes which I changed my diet for to keep under
control... Other than that the pregnancy was great.

During the labor I chose to have the epidural, during
this procedure they punctured my dural wall with too
large of a needle and I was leaking spinal fluid
through the pushing process, also on oxygen and
the babies heart rate went down too low.... They got
it back up and he was born healthy and happy! He is my
greatest JOY.

Afterwards though (because of the spinal fluid loss) I
had what they call a "spinal headache" - If anyone has
had issues with this before I can tell you there is no
pain you will ever feel like the one you
feel when your brain is starving for spinal fluid...
anyway to make a long story shorter... I had to have 2
blood patches (they take blood from your arm and
inject it into your spinal column to fill "the void"
where the fluid is missing... The blood stays in
there until your brain makes enough spinal fluid to
replace it... I feel I have many problems still from
all of this and I have been in and out of docs offices
since my son's birth to "alleviate" some of
my issues... Recently however they did an "echo" and
noticed on top of my other health issues I have MVP..
I have never had issues with my heart before this, but
all my "chest pain" issues do sound like
this is part of my problems. I noticed how many of you
were diagnosed after pregnancy, during pregnancy
etc... and wonder if the strain of a baby has
something to do with the diagnosis? I also
agree with the cut back of coffee/alchohol/cigarettes
etc.... I noticed no one really mentions all "their
bad habits" and can tell you that I drink on my bad
days (couple glasses of wine) and will smoke
occasionally to relieve stress (which I noticed really
affects my symptoms- (the stress)) - I do not work out
regularly because running after my two year old keeps
me very active. Anyway, If anyone has any information
to pass to me in regards to MVP or if
they have similiar symptoms from a epidural etc... I
am at wits end with all of it... the doctors, the
appointements, the procedures and the pains...
Thank you for listening!


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Hello,

   I was diagnosed when I was 16.Im now 21.I had a baby
last year and had no problems what so ever with my mvp
in my pregnancy or delivery.Any other questions you
can email me and auntie_mee_mee@....
                Melissa

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Hi,
   I have been pregnant three times since I have known of having MVP. It was not
that big of a problem. The only thing that was different was my pulse rate was a
lot higher, especially towards the last month. It was annoying, but not that big
of a deal. My last pregnancy I was concerned because my heart rate got up into
the mid one hundreds, but I went to my cardiologist, and he said everything was
fine. He said my heart was just having to work harder to support the baby.  Your
MVP may act up a little more than usual while you are pregnant, but like I said
it really was not that big of a deal for me. I think if you and your husband
want to have a baby, and your doctor says its okay, then I would sure go for it.
Kim
huntersdeerwife05 <huntersdeerwife05@...> wrote:
   I have been recently diagnosed with MVP.  My husband and I have been
trying to have a baby.  My doctor told me that I could continue trying
to have a baby.  I was wondering if there is anybody out there that
can tell me what it's like to suffer from MVP and be pregnant also.
I'm not sure if my husband and I should continue with our plans of
having another baby or not.  Thanks for any or all who reply.





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[Non-text portions of this message have been removed]

I have been recently diagnosed with MVP.  My husband and I have been
trying to have a baby.  My doctor told me that I could continue trying
to have a baby.  I was wondering if there is anybody out there that
can tell me what it's like to suffer from MVP and be pregnant also.
I'm not sure if my husband and I should continue with our plans of
having another baby or not.  Thanks for any or all who reply.

--- In mvpandmvpssupport@yahoogroups.com, mantall2020 <no_reply@y...>
wrote:
>
>
> Hi, my name is Peter. I am 35 and recently diagnosed with MVP after
> echo test. I only had a fainting spell some weeks ago so far. I did
> not experience any panic attacks or other inconviences so far. My
> doctor almost brush off the issue as nothing serious and told me
that
> life will be as normal. I hope he is right. Does all mvp suffers
> experience panic attacks and other stuffs?
> Pls enlighten me as some websites are very encouraging and others
> less encouraging. I am getting rather confused.
> Thank you.
>
Hi Peter.  I was just diagnosed a few days ago with MVP.  I have done
a lot of research on the subject and have been very well informed by
my doctor as well.  I have a lot of the symptoms that are associated
with MVP except for the fainting.  I'm not sure if all MVP sufferers
experience panic attack but my doctor told me that a lot of people
that suffer with panic/anxiety disorders are more likely to have MVP.
I think a lot of the panic actually comes from the fact that you now
know what your heart is doing.  From what I hear, MVP is very common
and most people can live a normal life without any treatment at all.
Hipe this helps a little bit.

I really appreciate hearing from people that can understand what I
am going through.  My doctor has currently put me on Well-Butrin XL
to help me to quit smoking.  I'm a big nicotine and caffeine addict
and have been for many years.  I will defenitely try the de-caf
coffee.  Thanks so much for reaching out to me.

--- In mvpandmvpssupport@yahoogroups.com, ummhudhaiyfah
<umhudhaiyfah@y...> wrote:
>
> Hello:
>   from a former smoker of about 15 years ago.... first....QUIT
SMOKING.....2ND...u will find switching to de-caf coffee  can cut
the palpitations down.....symptoms? I get good days and bad
days...but  as long as i stay on my light med. regime and do plenty
of fluids...i  feel pretty good.  my echo's for the last 2 years
have not  changed.  Take care of yourself, and do moderate exercise
if u  can.  An treadmill test helps to see how much you can really
do  without hurting yourself. Much success to you and the best on
your  echo.
>   AA
>
>
>
> ---------------------------------
> Yahoo! Shopping
>  Find Great Deals on Holiday Gifts at Yahoo! Shopping
>
> [Non-text portions of this message have been removed]
>

I really appreciate hearing from people that can understand what I
am going through.  My doctor has currently put me on Well-Butrin XL
to help me to quit smoking.  I'm a big nicotine and caffeine addict
and have been for many years.  I will defenitely try the de-caf
coffee.  Thanks so much for reaching out to me.

--- In mvpandmvpssupport@yahoogroups.com, ummhudhaiyfah
<umhudhaiyfah@y...> wrote:
>
> Hello:
>   from a former smoker of about 15 years ago.... first....QUIT
SMOKING.....2ND...u will find switching to de-caf coffee  can cut
the palpitations down.....symptoms? I get good days and bad
days...but  as long as i stay on my light med. regime and do plenty
of fluids...i  feel pretty good.  my echo's for the last 2 years
have not  changed.  Take care of yourself, and do moderate exercise
if u  can.  An treadmill test helps to see how much you can really
do  without hurting yourself. Much success to you and the best on
your  echo.
>   AA
>
>
>
> ---------------------------------
> Yahoo! Shopping
>  Find Great Deals on Holiday Gifts at Yahoo! Shopping
>
> [Non-text portions of this message have been removed]
>

Hello:
   from a former smoker of about 15 years ago.... first....QUIT 
SMOKING.....2ND...u will find switching to de-caf coffee  can cut  the
palpitations down.....symptoms? I get good days and bad days...but  as long as i
stay on my light med. regime and do plenty of fluids...i  feel pretty good.  my
echo's for the last 2 years have not  changed.  Take care of yourself, and do
moderate exercise if u  can.  An treadmill test helps to see how much you can
really do  without hurting yourself. Much success to you and the best on your 
echo.
   AA



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[Non-text portions of this message have been removed]

Hi,

   I was  diagnosed in Feb. 98, so it has been about 7 years now.  I have periods
of time where I feel so normal that I almost forget I have MVP.  I also have
other periods of time when the heart palpitations and shortness of breath drive
me crazy.
Since being diagnosed, I have also been diagnosed with fibromyalgia, and 
Irritable bowel sydrome.  Some say that these are some side effects of MVP
syndrome.  I hope this helps and if you have anymore questions, please don't
hesitate to email me directly at bthayes0@...

   Traci



huntersdeerwife05 <huntersdeerwife05@...> wrote:  I've read several of the
messages that have been posted on here.
Shoot, that is pretty much all I have been doing lately is reading up
on MVP.  I was just diagnosed with MVP a few days ago.  I had never
heard of this condition.  I am scheduled for an echocardiogram in a
couple of days.  I guess what I want to know is how long some of you
have had this condition and do the symptoms worsen the longer you have
this condition?  I'm currently trying to quit smoking and quit the
large quantities of caffeine intake.  I do have symptoms, such as,
rapid heartbeat, palpitations, fatigue and shortness of breath.  Does
that mean that my MVP condition could be bad or is this just normal
for anybody that has this condition?






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[Non-text portions of this message have been removed]

I've read several of the messages that have been posted on here.
Shoot, that is pretty much all I have been doing lately is reading up
on MVP.  I was just diagnosed with MVP a few days ago.  I had never
heard of this condition.  I am scheduled for an echocardiogram in a
couple of days.  I guess what I want to know is how long some of you
have had this condition and do the symptoms worsen the longer you have
this condition?  I'm currently trying to quit smoking and quit the
large quantities of caffeine intake.  I do have symptoms, such as,
rapid heartbeat, palpitations, fatigue and shortness of breath.  Does
that mean that my MVP condition could be bad or is this just normal
for anybody that has this condition?

Dear Kimberly,
   take heart, many of us are listening.  We've been through the disbelief when u
go to the doctor, trip to the hospital that says panic attack or other things
that don't make sense.  Well, finally most of us have come across a doctor who
says, "we're going to figure out what is wrong" and they do.  After years of
vague symptoms, my first echocardiogram showed mvp and tvp w/regurg... Just
learn as much as u can to help control the symptoms that come along w/it and
adjust your lifestyle around it.  Somedays I just feel tired, others I get goofy
palpitations for no reason.  Find a good and I mean good cardiologist who will
listen 2 u......and stick with a regimen of light meds if needed and a bit of
exercise.  Sounds pretty routine but it seems to help...i take a small dose of
toprol xl to keep blood pressure down and reduce strain on my heart, lost a few
pounds and do a little exercise machine.
      The one thing I haven't been able to work out is the tightness in
chest...if anyone has sugestions for that please let me know.
       But basically Kimberly, know u r not alone, and just keep on top of it.  1
doc will miss it and the next one will pick up on it.
   AA


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Hello,
I was diagnosed with MVP with mild regur. about 2 years ago when I was
eight months pregnant. My heart was just out of control and they
thought I could be having heart failure and I had an echo done. I have
had my symtoms ( fast heart beat, skipping beats, shortness of breath)
since right after my first son was born when I was 19. I really
thought I was dying and went from dr. to dr. trying to find out what
was wrong with me, just to hear they thought it was anxiety and panic
attacks. Many years of that, I finally really started to believe it
was all in my head. Now I'm 30, and ever since i've been diagnosed I've
tried to get information about mvp and it is usually so mixed. I've
been to sites that say it's no big deal, and thats its very comman,
and it is very very rare for there to be any complications from it.
Then there are the sites that scare me to death talking about sudden
death, strokes and heart failure. Ofcourse I focus on these, and even
feel more panicy. And, when my symptoms start acting up, I
think....yep, This time my heart is just going to stop, or this next
breath is definitly my last......or I think my valve must be leaking
worse now and I'm going to have to have heart surgery!!!! It's just
terribble what your mind can do to you!!!! I have never known anyone
besides me who has mvp. I try to talk to my family and friends about
how I feel, but they have no idea how I feel. So, I guess I'm looking
for a little reassurance from someone who has it.
Thanks!!
Kimberly

shortness of breath can get better over time. I have noticed that as I get used
to it and realize that while its not all in my head, the more i do think about
it the worse it gets, so when its happening i try to mentally remind myself to
relax and that "this too shall Pass". it still happens a lot but since i've come
to recognize it and live with it, its much easier and i do notice it less. being
in sales i know what you are talking about. i decided not to go on a daily med
but i take Xanax and have had ZERO problems on presentations, meeting people,
big meetings, etc. Unfortunately for people with panic attacks and anxiety, and
being in the kind of upfront jobs that you and I both have, it is a little
harder to manager anxiety. I do not take xanax every day, but i do take it for
busy or high confrontation days. occasionally i use it before bed as well as it
helps you calm down and go to sleep. i only take .25 which is the lowest dose
possible, but it helps a lot.

   Lara

k_emo <k_emo@...> wrote:
   Hello group, I'm a new member.   I think I'm experiencing MVPS but
have not been diagnosied officially yet.   I do have a MVP,
diagnosed 5 years ago.  I'm 40 and very active with two kids, a full
time marketing job with lots of travel and a very aggressive
Triathlon and running habit.  Over the last few years, I've had
palpatations and chest pain but it's always been minor.  However,
three weeks ago, I had a full blown panic attack after swallowing
too many vitamins at once and feeling like I was going to choke.  I
ended up in the ER, they did a full range of tests (EKG, CT-scan,
thyroid workup, etc) and I came out healthy.  They sent me home.
Subsequently, I had two more panic attacks caused by fear of eating
and food getting stuck.   My doctor has diagnosed anxiety and has me
on lorazapam and Zoloft.

I'm feeling much better now except for one symptom that just won't
leave and that's shortness of breath.  I've had shortness of breath
for three weeks now and it only is relieved when I'm sleeping or
running.   It's troublesome as I want to go back to work (I've been
off since the first attack) but I'm having difficulty talking for
long periods of time since I can't catch my breath and most of my
job is phone calls and presentations.   The doctors say I'm getting
100% oxygen so they don't know why I can't catch my breath.

I've been all over the internet looking for ways to alieviate this
symptom and have found nothing.  I cut out caffienne and that
stopped the chest pain and palps annd I'm working on the sugar (that
is much harder for me to cut out) but nothing speaks to the
breathlessness.  Any ideas?

Thanks and I'm happy to have found this group!
Kelly





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hello guyz. tnx for creating this yahoo group those who have MVP
problem. i've also MVP this last few days i experienced the pain. its
so hard to have a problem like this. by the way im 30male filipino im
going 31 this coming december 16. i hope you greet me all lolz., if u
do that im very thankful. i stayed in hospital 3 days then they found
i have MVP.. for me its hard...co'z im a health conscious, i goto gym
almost everyday. i have goodbody. i keepaway salt, sweet, and
cholesterol. then i'm so shock co'z i had MVP problem. its so hard to
accept  but it was. i have no choice, now the better is keep my faith
in god. im sure he's the most good doctor.

to all those members this yahoo group. pls...send me a message and i
promise i will give you a response.

..take care always and god bless us.


PS ( to miss piggy tnx a lot) u have a good story...


noel

Hello everyone
          I know that i've gotten emails from some of
you saying similar stories so im writing to ask you if
anyone has gotten any relief from their problems with
mvp. I went to the er recently because i was having
severe chest pain,i was blacking out and my breathing
wasnt good.After doing the usual tests(ekgg,blood
work,etc.)they said i have anxiety/depression because
im a new mother(my son is 10 months).So they gave me
medicine for 10 days which did nothing.Ive had pain
almost every day now for quite awhile and i was
wondering if anyone has had anything done for them
besides the doctors making up other reasons for our
pain.By the way i was diagnosed with mvp when i was
16;im now 21. Any help would be great. Thanks. Melissa



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Hello group, I'm a new member.   I think I'm experiencing MVPS but
have not been diagnosied officially yet.   I do have a MVP,
diagnosed 5 years ago.  I'm 40 and very active with two kids, a full
time marketing job with lots of travel and a very aggressive
Triathlon and running habit.  Over the last few years, I've had
palpatations and chest pain but it's always been minor.  However,
three weeks ago, I had a full blown panic attack after swallowing
too many vitamins at once and feeling like I was going to choke.  I
ended up in the ER, they did a full range of tests (EKG, CT-scan,
thyroid workup, etc) and I came out healthy.  They sent me home.
Subsequently, I had two more panic attacks caused by fear of eating
and food getting stuck.   My doctor has diagnosed anxiety and has me
on lorazapam and Zoloft.

I'm feeling much better now except for one symptom that just won't
leave and that's shortness of breath.  I've had shortness of breath
for three weeks now and it only is relieved when I'm sleeping or
running.   It's troublesome as I want to go back to work (I've been
off since the first attack) but I'm having difficulty talking for
long periods of time since I can't catch my breath and most of my
job is phone calls and presentations.   The doctors say I'm getting
100% oxygen so they don't know why I can't catch my breath.

I've been all over the internet looking for ways to alieviate this
symptom and have found nothing.  I cut out caffienne and that
stopped the chest pain and palps annd I'm working on the sugar (that
is much harder for me to cut out) but nothing speaks to the
breathlessness.  Any ideas?

Thanks and I'm happy to have found this group!
Kelly

>
>
i was diagnosed with mvp in 2000. i have never heard
that you had to have those traits to have mvp.i dont
have them.i know how frustrating it is for doctors to
not know how you feel and blame it on something else.
if you think it is mvp you should continue to find out
melissa


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I have been reading about MVP alot recently.  I have been
experiencing all the symptoms and frustration that goes along with
it.  I have yet to find a doctor to give me an echocardiogram.
Everyone just tells me they are panic attacks.  I feel like it is
more then that because my chest aches and I am lightheaded even when
I don't feel like I am having a panic attack.  I currently have a
holter monitor on, but I know this won't tell them anything.

The only reason I think I may not have it is because I read on the
webmd website that people with MVP usually have these physical
traits which I do not have.

Low body weight.
Low blood pressure.
Flat rib cage.
Straight back.
Loose joints.
Long arms, fingers, and toes.

Can anyone out there tell me weather or not they think I should
still pursue finding out if it is MVP even though I do not have
these traits?

Thank you for your time.

Hi there! I am 28 and finally getting a 24 hr holter this week. I became good
friends with my family doctor after setting him up with my best friend, and
wouldn't you know, all of the sudden i am getting taken more seriously when i
talk about my palpatations etc. He told me (much like all of you have said) that
my ECHO coming back ok just means that structurly everything appears ok but I
could still have mitral valve. or the symptoms, espeically if I have an
irregular heartbeat. anyways...so this should be interesting.

NEILA VIERNES <ladytitanium2001@...> wrote:I feel for you and I also
wonder when I will be having heart surgery too.  Same, my mom got quad bipass.
I'm still wondering how I got this disease? One Dr. told me that I might have
surgery ten years from when the time I was diagnose, that will be three years
from now.  I feel fine, except I can't or I'm scared to do some things that will
require my heart to work harder because that's the time I get a lot worse
symptoms.  So far I tried to live mylife without thinking about it too much.  I
have no symptoms like you but the Dr. did told me that if having a hard time to
sleep at night in flat position, I have to put my head elevated and that is the
sign that I will need a surgery. Go back to your Dr. and state your concern.

Melinda@... wrote:Hello. I am a 31 year old women who was diagnosed with MVP
8 years
ago. It was just 6 months after the birth of my son that I had my
first full blown panic attack in the middle of a grocery store. My
heart was racing so fast. I had trouble catching my breathe. I had no
idea what was happening to me so I thought I was going to die. I
remember leaving my cart in the middle of an isle, walking up to a
front cashier and asking her to call my husband for me. I was so
incapacitated he had to come and pick me up. Days later more symptoms
came on. I would be cold and shake even when it was hot outdoors, I
could feel my heart flutter over and over again which made me cough
and gasp for breathe. My fingers would go tingly and numb. I was
terrified I suddenly had some major disease. I went to doctor after
doctor and even visited the emergency room one night after I woke up
from a sound sleep with my heart pounding out of my chest and my left
side completely numb. Finally, just when I thought I was nuts because
all the doctors did was prescribe Zoloft and tell me to chill out I
found a REAL doctor. He placed his stethoscope on my chest, listened
for a few seconds and said. "You have Mitral Valve Prolapse." I was
floored. How come none of the other doctors had heard it? It only
took this doctor a minute to hear. He even gave me the stethoscope so
I could listen. Being a bit skeptical I asked for an Echocardiogram.
He gave me one and sure enough there was my floppy Mitral Valve
Flopping away... Whew! What a relief to know I was not insane!
Problem was I still had the symptoms and I am still not entirely
convinced I might not kneel over stone dead someday from the
palpitations. (The heart is like an engine right?  If it does not run
right couldn't it stall? ) Not to be morbid....Anyway, I have been
doing well for a few years now with just mild symptoms which I
breathe through or fluid load myself away from....But today,,I don't
know what happened! I experienced palpitation after palpitation. I
was dizzy and sick to my stomach. I was shivering and could not get
warm. Now my muscles have that deep ache that makes even walking
hard. I am on a progesterone cream to stimulate my period ( but I
have been taking it for years ) although I wonder if I have some
major imbalance right now. I have banished the palpitations with
Calcium and Magnesium and lots of fluid but I still fell so tired and
I am so pale and my muscles hurt...What is going on I wonder? My
mother who is 56 just had a double heart bypass last winter so it
makes me concerned................


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[Non-text portions of this message have been removed]

I feel for you and I also wonder when I will be having heart surgery too.  Same,
my mom got quad bipass. I'm still wondering how I got this disease? One Dr. told
me that I might have surgery ten years from when the time I was diagnose, that
will be three years from now.  I feel fine, except I can't or I'm scared to do
some things that will require my heart to work harder because that's the time I
get a lot worse symptoms.  So far I tried to live mylife without thinking about
it too much.  I have no symptoms like you but the Dr. did told me that if having
a hard time to sleep at night in flat position, I have to put my head elevated
and that is the sign that I will need a surgery. Go back to your Dr. and state
your concern.

Melinda@... wrote:Hello. I am a 31 year old women who was diagnosed with MVP
8 years
ago. It was just 6 months after the birth of my son that I had my
first full blown panic attack in the middle of a grocery store. My
heart was racing so fast. I had trouble catching my breathe. I had no
idea what was happening to me so I thought I was going to die. I
remember leaving my cart in the middle of an isle, walking up to a
front cashier and asking her to call my husband for me. I was so
incapacitated he had to come and pick me up. Days later more symptoms
came on. I would be cold and shake even when it was hot outdoors, I
could feel my heart flutter over and over again which made me cough
and gasp for breathe. My fingers would go tingly and numb. I was
terrified I suddenly had some major disease. I went to doctor after
doctor and even visited the emergency room one night after I woke up
from a sound sleep with my heart pounding out of my chest and my left
side completely numb. Finally, just when I thought I was nuts because
all the doctors did was prescribe Zoloft and tell me to chill out I
found a REAL doctor. He placed his stethoscope on my chest, listened
for a few seconds and said. "You have Mitral Valve Prolapse." I was
floored. How come none of the other doctors had heard it? It only
took this doctor a minute to hear. He even gave me the stethoscope so
I could listen. Being a bit skeptical I asked for an Echocardiogram.
He gave me one and sure enough there was my floppy Mitral Valve
Flopping away... Whew! What a relief to know I was not insane!
Problem was I still had the symptoms and I am still not entirely
convinced I might not kneel over stone dead someday from the
palpitations. (The heart is like an engine right?  If it does not run
right couldn't it stall? ) Not to be morbid....Anyway, I have been
doing well for a few years now with just mild symptoms which I
breathe through or fluid load myself away from....But today,,I don't
know what happened! I experienced palpitation after palpitation. I
was dizzy and sick to my stomach. I was shivering and could not get
warm. Now my muscles have that deep ache that makes even walking
hard. I am on a progesterone cream to stimulate my period ( but I
have been taking it for years ) although I wonder if I have some
major imbalance right now. I have banished the palpitations with
Calcium and Magnesium and lots of fluid but I still fell so tired and
I am so pale and my muscles hurt...What is going on I wonder? My
mother who is 56 just had a double heart bypass last winter so it
makes me concerned................


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I'm having symptoms too, like anxiety, lightheaded ( this get severe when I was
pregnant, I even got dizzy inside the bus and find myself hugging a garbage can
for comfort), palpitations especially after drinking caffeine, sometimes
shortness of breath.  The doctor told me that my condition has not change since
my last echocardiogram.  He also said that I can do whatever I want except
always have take medication before going to dentist.  But I can't, I tried to
run, I get shortness of breath and palpitation which I know is not good.  But I
know this for a fact that stress got the biggest influence whenever I have an
attack of anxiety and palpitation.  Make sure that you're managing your stress
level and try not so worry so much.  Sometimes  we feel the symptoms worst
because it is all in your head.  The more you worry about it, the more you will
feel the symptoms.  Try to relax and see if that works for you, if not go back
to your doctor and state you concern. Make a log too
  everytime you have symptoms and try to remember what happen before the symptoms
occur.

shell0327 <shell0327@...> wrote:
I am new to this group.  I am a 25 year old women who was diagnosed with mitral
valve 6
years ago.  I have almost daily severe sharp chest pains that may last hours.  I
have
palpitations that on occasion have lasted 10+ hours.  I experience symptoms of
anxiety.
At times, I have also experienced lightheadedness.  I am very frustrated because
all of the
doctors that I have seen have basically said that this is just what it is and I
need to
basically deal with it.  It is a very disconcerting feeling to know that
something is wrong,
but there are no physiological causes for my symptoms.  All the tests have come
back to
show that I have a very strong heart.  Therefore, I don't feel like my
discomfort is being
taken seriously.  Is there any one else who feels this way, and who has had some
success
with treatment?  I did try a beta blocker years ago with some success, but I had
an adverse
reaction to it.  Thank you for any help!




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I am new to this group.  I am a 25 year old women who was diagnosed with mitral
valve 6
years ago.  I have almost daily severe sharp chest pains that may last hours.  I
have
palpitations that on occasion have lasted 10+ hours.  I experience symptoms of
anxiety.
At times, I have also experienced lightheadedness.  I am very frustrated because
all of the
doctors that I have seen have basically said that this is just what it is and I
need to
basically deal with it.  It is a very disconcerting feeling to know that
something is wrong,
but there are no physiological causes for my symptoms.  All the tests have come
back to
show that I have a very strong heart.  Therefore, I don't feel like my
discomfort is being
taken seriously.  Is there any one else who feels this way, and who has had some
success
with treatment?  I did try a beta blocker years ago with some success, but I had
an adverse
reaction to it.  Thank you for any help!

When you are having the palpitations are they just skipped beats or is your
heart beating really fast and unevenly? You might have your doc give you a
holter monitor test, see if you are having irregular beats or just skipped
and fast beats. All these things will make you dizzy and weak, it also makes
you have to go to the bathroom ALOT! akgem



















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[Non-text portions of this message have been removed]

Hello. I am a 31 year old women who was diagnosed with MVP 8 years
ago. It was just 6 months after the birth of my son that I had my
first full blown panic attack in the middle of a grocery store. My
heart was racing so fast. I had trouble catching my breathe. I had no
idea what was happening to me so I thought I was going to die. I
remember leaving my cart in the middle of an isle, walking up to a
front cashier and asking her to call my husband for me. I was so
incapacitated he had to come and pick me up. Days later more symptoms
came on. I would be cold and shake even when it was hot outdoors, I
could feel my heart flutter over and over again which made me cough
and gasp for breathe. My fingers would go tingly and numb. I was
terrified I suddenly had some major disease. I went to doctor after
doctor and even visited the emergency room one night after I woke up
from a sound sleep with my heart pounding out of my chest and my left
side completely numb. Finally, just when I thought I was nuts because
all the doctors did was prescribe Zoloft and tell me to chill out I
found a REAL doctor. He placed his stethoscope on my chest, listened
for a few seconds and said. "You have Mitral Valve Prolapse." I was
floored. How come none of the other doctors had heard it? It only
took this doctor a minute to hear. He even gave me the stethoscope so
I could listen. Being a bit skeptical I asked for an Echocardiogram.
He gave me one and sure enough there was my floppy Mitral Valve
Flopping away... Whew! What a relief to know I was not insane!
Problem was I still had the symptoms and I am still not entirely
convinced I might not kneel over stone dead someday from the
palpitations. (The heart is like an engine right?  If it does not run
right couldn't it stall? ) Not to be morbid....Anyway, I have been
doing well for a few years now with just mild symptoms which I
breathe through or fluid load myself away from....But today,,I don't
know what happened! I experienced palpitation after palpitation. I
was dizzy and sick to my stomach. I was shivering and could not get
warm. Now my muscles have that deep ache that makes even walking
hard. I am on a progesterone cream to stimulate my period ( but I
have been taking it for years ) although I wonder if I have some
major imbalance right now. I have banished the palpitations with
Calcium and Magnesium and lots of fluid but I still fell so tired and
I am so pale and my muscles hurt...What is going on I wonder? My
mother who is 56 just had a double heart bypass last winter so it
makes me concerned................

thanks! yes..i try not to drink alcohol except for random occasions and even
then in strictest of moderation and i avoid fried foods. i have to say now that
i have gotten used to it i have been able to control the anxiety....also,
certain times of the month are worse than others if you know what i mean. i was
going through a period of time where i was getting little to no sleep because i
would wake up with my heart racing, but usually i can tell when my nerves are up
and i might take a xanax that night and then even if i wake up it doesn't bother
me and i go right to sleep. when they checked my echo they said all was normal
but i guess like they said that just really checks for severe issues or
regurgitation...i would be interested in any info you have...thanks =) lara

Akgem <akgem@...> wrote:To Lara, you may just have a rhythm problem
with your heart, just a little
history on me. I had an episode of atrial fibrillation, that is when your
heart beats really fast and not regularly. Until I went into afib I never
had problems with my heart, I was 32 when it first happened. This is how I
found out I had MVP. Although I think my anxiety and the different pains I
have in my chest are associated with MVP, I also have an electrical problem
that causes irregular heart beat or fast heartbeat. I take meds to keep my
heart rate slow so I don't go into afib. I have even had surgery but that
wasn't a 100% cure. See a specialist and definitely stay off the caffeine
and any drugs that contain caffiene or psudophedrine,(anything with
phedrine) they will definitely cause you problems, also watch out for
alcohol.  And don't take those diet pills out there, they will really cause
problems. This is just my experience. I know that docs don't believe mvp
causes anything but those of us who have mvps know that it does, just
remember there are other causes too. I hope this helps. I belong to a very
informative group with all kinds of rhythm problems that might be able to
reassure you about skipped and fast heartbeats. If you let me know I can
send you the link for the group. Colleen



















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[Non-text portions of this message have been removed]

To Lara, you may just have a rhythm problem with your heart, just a little
history on me. I had an episode of atrial fibrillation, that is when your
heart beats really fast and not regularly. Until I went into afib I never
had problems with my heart, I was 32 when it first happened. This is how I
found out I had MVP. Although I think my anxiety and the different pains I
have in my chest are associated with MVP, I also have an electrical problem
that causes irregular heart beat or fast heartbeat. I take meds to keep my
heart rate slow so I don't go into afib. I have even had surgery but that
wasn't a 100% cure. See a specialist and definitely stay off the caffeine
and any drugs that contain caffiene or psudophedrine,(anything with
phedrine) they will definitely cause you problems, also watch out for
alcohol.  And don't take those diet pills out there, they will really cause
problems. This is just my experience. I know that docs don't believe mvp
causes anything but those of us who have mvps know that it does, just
remember there are other causes too. I hope this helps. I belong to a very
informative group with all kinds of rhythm problems that might be able to
reassure you about skipped and fast heartbeats. If you let me know I can
send you the link for the group. Colleen



















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[Non-text portions of this message have been removed]

In regards to the "partially angry post". =) My name is Lara and I am the same
age as you are... anyways...i'll be brief but i have had (just within the past
year and few months) some weird cases of rapid heart beat and even a panic
attack as they called it after doing all other kinds of tests and not fnding
anything. they prescribed me xanax to take if having any panicked feelings but a
very small dose (.25mg). anyways...after doing some research i found this mvp
site and didn't know what it was all about. but after reading it i realized that
all of the symptoms fit me! i went from drinking caffeine whenever i wanted to
and taking pseudoephedrine for colds all the time to not being able to take
anything like that at all (not even a sip of soda!!!) because it makes my heart
race and feel weird and insomnia etc etc. I am healthy, eat right, work out at
the gym 4 times a week, and have had similar routine for years. needless to say
this through me off course! i asked my mom about MVP
  and she told me that my aunt has it! so i decided to do the echo knowing full
well that it is not always accurate. when they told me that i "didn't have it" i
assumed ok i probably don't have it and if I do have it, it must be a mild
case...so i haven't done anything about it, other than that. well, i recently
had a brief brief convo with my doctor about mvp and "symptoms" and he did tell
me that he "doesn't know how he feels about it"..in other words, he was kinda
telling me that he is not saying their is or isnt proof one way or another. and
he kinda alluded to the whole "mvp doesn't CAUSE these symptoms, but they are
related in some fashion". anyways... does anyone know if its safe to say that
these "symptoms" since i dont seem to be the type who needs meds when i go to
the dentist, but maybe the symptoms are the same as anyone else who suffers from
anxiety. in other words, could someone with simple anxiety benefit from the meds
that ppl with MVP take for their "symptoms'? i ask
  only because i still have to take xanax from time to time ( i'd say 1 -2 pills
a week). i have kicked caffeine completely out of my diet, which is fine with
me, and the only thng that stinks is with my terrible allergies- not being able
to take pseudoephedrine. oh...the other thing i noticed is i can't use numbing
agents that have ephedrine in them at all (used to prolong the effects of the
numbing and also cease bleeding better). i had a tiny birthmark removed and had
no idea ppl use ephedrine in that and an hour later i was all dizzy and felt
terribly weird and called and they said are you allergic to ephedrine....well
this is the same stuff i've had every time i've had a cavity filled and never
had a problem with it until this past year! any thoughts/comments?

mrshkelly426 <mrshkelly@...> wrote:
Ongoing Fun fun fun! Sorry but this is a partially angry post.

So, I went to the cardiologist for the Consultation with all the
results. He marches his little foreign ass into the office rattling
off where I can't understand him and at that point I had had it. I
told him to slow down, speak English and tell me so that I could
understand what was going on. He actually smiled like a smart ass
like how dare I question him.
He said that everything was structurally normal and again asked me if
I had known I had mitral valve prolapse. I told him again as I had
told him during the echo that until I had gone home that night I
didn't even know what it was since he wasn't very forthcoming with an
explanation.
I then told him about the incident that I had the night before when I
exercised and that how 5 hours later my heart rate was still above
100. He smirked again like he didn't believe me and said that well
why did I do that if my heart rate was so high and that he would have
to see that for himself. I was pissed! Here I am a 28-year-old adult
and this guy is condescending and rude.
He said that he could prescribe a calcium channel blocker "if I
wanted". I looked at him stunned and said that I was not the doctor
and that I didn't even know what that was and that I had no intention
of taking a heart medication under these circumstances on a "whim".
He said that he would order a treadmill test and for me to come back.
I left the office fuming and set up the appointment for next Friday
but I have no intention of going back there. I also requested a copy
of the results from the holter and the echo.  The holter test showed
overall normal with 6 Supraventricular Ectopy Beats lasting a second
each. It also showed two SVE's (Skipped beats) that lasted 2 seconds
each.  I wonder if that could have been what started that episode
that I had in December.. could I have had a skipped beat that lasted
2-3 seconds and then my heart raced to try and catch up?
While I was reading through it he has progress notes with a patient
history… He says that I have a history of anxiety... wrong…. never
had it before... He also says that I have NO history of headaches…
funny what were those incapacitating ones that I've had since I was
five and was diagnosed with MIGRAINES! Under the list of Meds he put
two down… none of the ones I take for Migraines. He put on there that
I have a history of indigestion…since when?!?
Ohh he makes me furious and I am not in any way impressed or
comfortable with his observations. I had a secondary appointment
already set up with another cardiologist, this one who works for a
heart institute so I went totally disgusted expecting to get treated
the same and while they were a little rushed the doctor himself was
very kind and so we start over. I am to go in for another Holter and
another echo late this month. He said not to worry too much and that
we would get to the bottom of this. He made me feel like I wasn't an
idiot.  I also had an appointment with a Psych Nurse practitioner.
She had me fill out a few forms and said finally that she thinks I
may be slightly depressed and thought I would benefit from a short
course of Paxil. I agreed with her because I think what the heck can
it hurt?… She also upped the dosage of Ativan to 1 mg saying that .5
mg was way too low.

So anyway, that's where everything stands with me.






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In regards to mandy from Florida:
Can anyone offer this woman some advice or tell her about a real life situation?
I can't but I was hoping someone out there would take some time and give their
examples. Mandy, I will pray for you guys too. let us know how the second
opinion works out. I think that is great that you are doing this. The fact that
he is young and in good shape definitely puts him in great condition for an easy
surgery! Be strong for him and let him know your feelings but also let him see
your strength and ability to hold the family together. This way he feels it is
ok for him to let down his guard and share his true feelings of concern for what
he is going through. I hope someone gets back to you soon who has 'been there
done that" with some words of advice. Have a great night!

mantall2020 <no_reply@yahoogroups.com> wrote:

Hi Mandy,

Put yr faith on Jehovah-rapha, the God who heals. He is the same
yesterday, today and tomorrow. He never changes. He is alive and
healing His people even TO THIS DAY.



--- In mvpandmvpssupport@yahoogroups.com, "mandywildman"
<mandywildman@y...> wrote:
>
> --- In mvpandmvpssupport@yahoogroups.com, Akgem <akgem@d...> wrote:
> > I have heard from several people who have had the surgery and
they
> are doing
> > fine. I wish you all the best of luck and will keep you in my
> prayers!
> >
>
> <<<Thank you so much for the encouraging words!
>
> Mandy Porter :-)>>>
> >
> >
> >
> >
> >
> >
> >
> >   ----------
> >
> > No virus found in this outgoing message.
> > Checked by AVG Anti-Virus.
> > Version: 7.0.308 / Virus Database: 266.7.1 - Release Date:
3/9/2005
> >
> >
> > [Non-text portions of this message have been removed]




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[Non-text portions of this message have been removed]

Hi Mandy,

Put yr faith on Jehovah-rapha, the God who heals. He is the same
yesterday, today and tomorrow. He never changes. He is alive and
healing His people even TO THIS DAY.



--- In mvpandmvpssupport@yahoogroups.com, "mandywildman"
<mandywildman@y...> wrote:
>
> --- In mvpandmvpssupport@yahoogroups.com, Akgem <akgem@d...> wrote:
> > I have heard from several people who have had the surgery and
they
> are doing
> > fine. I wish you all the best of luck and will keep you in my
> prayers!
> >
>
> <<<Thank you so much for the encouraging words!
>
> Mandy Porter :-)>>>
> >
> >
> >
> >
> >
> >
> >
> >   ----------
> >
> > No virus found in this outgoing message.
> > Checked by AVG Anti-Virus.
> > Version: 7.0.308 / Virus Database: 266.7.1 - Release Date:
3/9/2005
> >
> >
> > [Non-text portions of this message have been removed]

--- In mvpandmvpssupport@yahoogroups.com, Akgem <akgem@d...> wrote:
> I have heard from several people who have had the surgery and they
are doing
> fine. I wish you all the best of luck and will keep you in my
prayers!
>

<<<Thank you so much for the encouraging words!

Mandy Porter :-)>>>
>
>
>
>
>
>
>
>   ----------
>
> No virus found in this outgoing message.
> Checked by AVG Anti-Virus.
> Version: 7.0.308 / Virus Database: 266.7.1 - Release Date: 3/9/2005
>
>
> [Non-text portions of this message have been removed]