I have been reading about MVP alot recently.  I have been
experiencing all the symptoms and frustration that goes along with
it.  I have yet to find a doctor to give me an echocardiogram.
Everyone just tells me they are panic attacks.  I feel like it is
more then that because my chest aches and I am lightheaded even when
I don't feel like I am having a panic attack.  I currently have a
holter monitor on, but I know this won't tell them anything.

The only reason I think I may not have it is because I read on the
webmd website that people with MVP usually have these physical
traits which I do not have.

Low body weight.
Low blood pressure.
Flat rib cage.
Straight back.
Loose joints.
Long arms, fingers, and toes.

Can anyone out there tell me weather or not they think I should
still pursue finding out if it is MVP even though I do not have
these traits?

Thank you for your time.

Hi there! I am 28 and finally getting a 24 hr holter this week. I became good
friends with my family doctor after setting him up with my best friend, and
wouldn't you know, all of the sudden i am getting taken more seriously when i
talk about my palpatations etc. He told me (much like all of you have said) that
my ECHO coming back ok just means that structurly everything appears ok but I
could still have mitral valve. or the symptoms, espeically if I have an
irregular heartbeat. anyways...so this should be interesting.

NEILA VIERNES <ladytitanium2001@...> wrote:I feel for you and I also
wonder when I will be having heart surgery too.  Same, my mom got quad bipass.
I'm still wondering how I got this disease? One Dr. told me that I might have
surgery ten years from when the time I was diagnose, that will be three years
from now.  I feel fine, except I can't or I'm scared to do some things that will
require my heart to work harder because that's the time I get a lot worse
symptoms.  So far I tried to live mylife without thinking about it too much.  I
have no symptoms like you but the Dr. did told me that if having a hard time to
sleep at night in flat position, I have to put my head elevated and that is the
sign that I will need a surgery. Go back to your Dr. and state your concern.

Melinda@... wrote:Hello. I am a 31 year old women who was diagnosed with MVP
8 years
ago. It was just 6 months after the birth of my son that I had my
first full blown panic attack in the middle of a grocery store. My
heart was racing so fast. I had trouble catching my breathe. I had no
idea what was happening to me so I thought I was going to die. I
remember leaving my cart in the middle of an isle, walking up to a
front cashier and asking her to call my husband for me. I was so
incapacitated he had to come and pick me up. Days later more symptoms
came on. I would be cold and shake even when it was hot outdoors, I
could feel my heart flutter over and over again which made me cough
and gasp for breathe. My fingers would go tingly and numb. I was
terrified I suddenly had some major disease. I went to doctor after
doctor and even visited the emergency room one night after I woke up
from a sound sleep with my heart pounding out of my chest and my left
side completely numb. Finally, just when I thought I was nuts because
all the doctors did was prescribe Zoloft and tell me to chill out I
found a REAL doctor. He placed his stethoscope on my chest, listened
for a few seconds and said. "You have Mitral Valve Prolapse." I was
floored. How come none of the other doctors had heard it? It only
took this doctor a minute to hear. He even gave me the stethoscope so
I could listen. Being a bit skeptical I asked for an Echocardiogram.
He gave me one and sure enough there was my floppy Mitral Valve
Flopping away... Whew! What a relief to know I was not insane!
Problem was I still had the symptoms and I am still not entirely
convinced I might not kneel over stone dead someday from the
palpitations. (The heart is like an engine right?  If it does not run
right couldn't it stall? ) Not to be morbid....Anyway, I have been
doing well for a few years now with just mild symptoms which I
breathe through or fluid load myself away from....But today,,I don't
know what happened! I experienced palpitation after palpitation. I
was dizzy and sick to my stomach. I was shivering and could not get
warm. Now my muscles have that deep ache that makes even walking
hard. I am on a progesterone cream to stimulate my period ( but I
have been taking it for years ) although I wonder if I have some
major imbalance right now. I have banished the palpitations with
Calcium and Magnesium and lots of fluid but I still fell so tired and
I am so pale and my muscles hurt...What is going on I wonder? My
mother who is 56 just had a double heart bypass last winter so it
makes me concerned................


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I feel for you and I also wonder when I will be having heart surgery too.  Same,
my mom got quad bipass. I'm still wondering how I got this disease? One Dr. told
me that I might have surgery ten years from when the time I was diagnose, that
will be three years from now.  I feel fine, except I can't or I'm scared to do
some things that will require my heart to work harder because that's the time I
get a lot worse symptoms.  So far I tried to live mylife without thinking about
it too much.  I have no symptoms like you but the Dr. did told me that if having
a hard time to sleep at night in flat position, I have to put my head elevated
and that is the sign that I will need a surgery. Go back to your Dr. and state
your concern.

Melinda@... wrote:Hello. I am a 31 year old women who was diagnosed with MVP
8 years
ago. It was just 6 months after the birth of my son that I had my
first full blown panic attack in the middle of a grocery store. My
heart was racing so fast. I had trouble catching my breathe. I had no
idea what was happening to me so I thought I was going to die. I
remember leaving my cart in the middle of an isle, walking up to a
front cashier and asking her to call my husband for me. I was so
incapacitated he had to come and pick me up. Days later more symptoms
came on. I would be cold and shake even when it was hot outdoors, I
could feel my heart flutter over and over again which made me cough
and gasp for breathe. My fingers would go tingly and numb. I was
terrified I suddenly had some major disease. I went to doctor after
doctor and even visited the emergency room one night after I woke up
from a sound sleep with my heart pounding out of my chest and my left
side completely numb. Finally, just when I thought I was nuts because
all the doctors did was prescribe Zoloft and tell me to chill out I
found a REAL doctor. He placed his stethoscope on my chest, listened
for a few seconds and said. "You have Mitral Valve Prolapse." I was
floored. How come none of the other doctors had heard it? It only
took this doctor a minute to hear. He even gave me the stethoscope so
I could listen. Being a bit skeptical I asked for an Echocardiogram.
He gave me one and sure enough there was my floppy Mitral Valve
Flopping away... Whew! What a relief to know I was not insane!
Problem was I still had the symptoms and I am still not entirely
convinced I might not kneel over stone dead someday from the
palpitations. (The heart is like an engine right?  If it does not run
right couldn't it stall? ) Not to be morbid....Anyway, I have been
doing well for a few years now with just mild symptoms which I
breathe through or fluid load myself away from....But today,,I don't
know what happened! I experienced palpitation after palpitation. I
was dizzy and sick to my stomach. I was shivering and could not get
warm. Now my muscles have that deep ache that makes even walking
hard. I am on a progesterone cream to stimulate my period ( but I
have been taking it for years ) although I wonder if I have some
major imbalance right now. I have banished the palpitations with
Calcium and Magnesium and lots of fluid but I still fell so tired and
I am so pale and my muscles hurt...What is going on I wonder? My
mother who is 56 just had a double heart bypass last winter so it
makes me concerned................


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I'm having symptoms too, like anxiety, lightheaded ( this get severe when I was
pregnant, I even got dizzy inside the bus and find myself hugging a garbage can
for comfort), palpitations especially after drinking caffeine, sometimes
shortness of breath.  The doctor told me that my condition has not change since
my last echocardiogram.  He also said that I can do whatever I want except
always have take medication before going to dentist.  But I can't, I tried to
run, I get shortness of breath and palpitation which I know is not good.  But I
know this for a fact that stress got the biggest influence whenever I have an
attack of anxiety and palpitation.  Make sure that you're managing your stress
level and try not so worry so much.  Sometimes  we feel the symptoms worst
because it is all in your head.  The more you worry about it, the more you will
feel the symptoms.  Try to relax and see if that works for you, if not go back
to your doctor and state you concern. Make a log too
  everytime you have symptoms and try to remember what happen before the symptoms
occur.

shell0327 <shell0327@...> wrote:
I am new to this group.  I am a 25 year old women who was diagnosed with mitral
valve 6
years ago.  I have almost daily severe sharp chest pains that may last hours.  I
have
palpitations that on occasion have lasted 10+ hours.  I experience symptoms of
anxiety.
At times, I have also experienced lightheadedness.  I am very frustrated because
all of the
doctors that I have seen have basically said that this is just what it is and I
need to
basically deal with it.  It is a very disconcerting feeling to know that
something is wrong,
but there are no physiological causes for my symptoms.  All the tests have come
back to
show that I have a very strong heart.  Therefore, I don't feel like my
discomfort is being
taken seriously.  Is there any one else who feels this way, and who has had some
success
with treatment?  I did try a beta blocker years ago with some success, but I had
an adverse
reaction to it.  Thank you for any help!




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I am new to this group.  I am a 25 year old women who was diagnosed with mitral
valve 6
years ago.  I have almost daily severe sharp chest pains that may last hours.  I
have
palpitations that on occasion have lasted 10+ hours.  I experience symptoms of
anxiety.
At times, I have also experienced lightheadedness.  I am very frustrated because
all of the
doctors that I have seen have basically said that this is just what it is and I
need to
basically deal with it.  It is a very disconcerting feeling to know that
something is wrong,
but there are no physiological causes for my symptoms.  All the tests have come
back to
show that I have a very strong heart.  Therefore, I don't feel like my
discomfort is being
taken seriously.  Is there any one else who feels this way, and who has had some
success
with treatment?  I did try a beta blocker years ago with some success, but I had
an adverse
reaction to it.  Thank you for any help!

When you are having the palpitations are they just skipped beats or is your
heart beating really fast and unevenly? You might have your doc give you a
holter monitor test, see if you are having irregular beats or just skipped
and fast beats. All these things will make you dizzy and weak, it also makes
you have to go to the bathroom ALOT! akgem



















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[Non-text portions of this message have been removed]

Hello. I am a 31 year old women who was diagnosed with MVP 8 years
ago. It was just 6 months after the birth of my son that I had my
first full blown panic attack in the middle of a grocery store. My
heart was racing so fast. I had trouble catching my breathe. I had no
idea what was happening to me so I thought I was going to die. I
remember leaving my cart in the middle of an isle, walking up to a
front cashier and asking her to call my husband for me. I was so
incapacitated he had to come and pick me up. Days later more symptoms
came on. I would be cold and shake even when it was hot outdoors, I
could feel my heart flutter over and over again which made me cough
and gasp for breathe. My fingers would go tingly and numb. I was
terrified I suddenly had some major disease. I went to doctor after
doctor and even visited the emergency room one night after I woke up
from a sound sleep with my heart pounding out of my chest and my left
side completely numb. Finally, just when I thought I was nuts because
all the doctors did was prescribe Zoloft and tell me to chill out I
found a REAL doctor. He placed his stethoscope on my chest, listened
for a few seconds and said. "You have Mitral Valve Prolapse." I was
floored. How come none of the other doctors had heard it? It only
took this doctor a minute to hear. He even gave me the stethoscope so
I could listen. Being a bit skeptical I asked for an Echocardiogram.
He gave me one and sure enough there was my floppy Mitral Valve
Flopping away... Whew! What a relief to know I was not insane!
Problem was I still had the symptoms and I am still not entirely
convinced I might not kneel over stone dead someday from the
palpitations. (The heart is like an engine right?  If it does not run
right couldn't it stall? ) Not to be morbid....Anyway, I have been
doing well for a few years now with just mild symptoms which I
breathe through or fluid load myself away from....But today,,I don't
know what happened! I experienced palpitation after palpitation. I
was dizzy and sick to my stomach. I was shivering and could not get
warm. Now my muscles have that deep ache that makes even walking
hard. I am on a progesterone cream to stimulate my period ( but I
have been taking it for years ) although I wonder if I have some
major imbalance right now. I have banished the palpitations with
Calcium and Magnesium and lots of fluid but I still fell so tired and
I am so pale and my muscles hurt...What is going on I wonder? My
mother who is 56 just had a double heart bypass last winter so it
makes me concerned................

thanks! yes..i try not to drink alcohol except for random occasions and even
then in strictest of moderation and i avoid fried foods. i have to say now that
i have gotten used to it i have been able to control the anxiety....also,
certain times of the month are worse than others if you know what i mean. i was
going through a period of time where i was getting little to no sleep because i
would wake up with my heart racing, but usually i can tell when my nerves are up
and i might take a xanax that night and then even if i wake up it doesn't bother
me and i go right to sleep. when they checked my echo they said all was normal
but i guess like they said that just really checks for severe issues or
regurgitation...i would be interested in any info you have...thanks =) lara

Akgem <akgem@...> wrote:To Lara, you may just have a rhythm problem
with your heart, just a little
history on me. I had an episode of atrial fibrillation, that is when your
heart beats really fast and not regularly. Until I went into afib I never
had problems with my heart, I was 32 when it first happened. This is how I
found out I had MVP. Although I think my anxiety and the different pains I
have in my chest are associated with MVP, I also have an electrical problem
that causes irregular heart beat or fast heartbeat. I take meds to keep my
heart rate slow so I don't go into afib. I have even had surgery but that
wasn't a 100% cure. See a specialist and definitely stay off the caffeine
and any drugs that contain caffiene or psudophedrine,(anything with
phedrine) they will definitely cause you problems, also watch out for
alcohol.  And don't take those diet pills out there, they will really cause
problems. This is just my experience. I know that docs don't believe mvp
causes anything but those of us who have mvps know that it does, just
remember there are other causes too. I hope this helps. I belong to a very
informative group with all kinds of rhythm problems that might be able to
reassure you about skipped and fast heartbeats. If you let me know I can
send you the link for the group. Colleen



















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[Non-text portions of this message have been removed]

To Lara, you may just have a rhythm problem with your heart, just a little
history on me. I had an episode of atrial fibrillation, that is when your
heart beats really fast and not regularly. Until I went into afib I never
had problems with my heart, I was 32 when it first happened. This is how I
found out I had MVP. Although I think my anxiety and the different pains I
have in my chest are associated with MVP, I also have an electrical problem
that causes irregular heart beat or fast heartbeat. I take meds to keep my
heart rate slow so I don't go into afib. I have even had surgery but that
wasn't a 100% cure. See a specialist and definitely stay off the caffeine
and any drugs that contain caffiene or psudophedrine,(anything with
phedrine) they will definitely cause you problems, also watch out for
alcohol.  And don't take those diet pills out there, they will really cause
problems. This is just my experience. I know that docs don't believe mvp
causes anything but those of us who have mvps know that it does, just
remember there are other causes too. I hope this helps. I belong to a very
informative group with all kinds of rhythm problems that might be able to
reassure you about skipped and fast heartbeats. If you let me know I can
send you the link for the group. Colleen



















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[Non-text portions of this message have been removed]

In regards to the "partially angry post". =) My name is Lara and I am the same
age as you are... anyways...i'll be brief but i have had (just within the past
year and few months) some weird cases of rapid heart beat and even a panic
attack as they called it after doing all other kinds of tests and not fnding
anything. they prescribed me xanax to take if having any panicked feelings but a
very small dose (.25mg). anyways...after doing some research i found this mvp
site and didn't know what it was all about. but after reading it i realized that
all of the symptoms fit me! i went from drinking caffeine whenever i wanted to
and taking pseudoephedrine for colds all the time to not being able to take
anything like that at all (not even a sip of soda!!!) because it makes my heart
race and feel weird and insomnia etc etc. I am healthy, eat right, work out at
the gym 4 times a week, and have had similar routine for years. needless to say
this through me off course! i asked my mom about MVP
  and she told me that my aunt has it! so i decided to do the echo knowing full
well that it is not always accurate. when they told me that i "didn't have it" i
assumed ok i probably don't have it and if I do have it, it must be a mild
case...so i haven't done anything about it, other than that. well, i recently
had a brief brief convo with my doctor about mvp and "symptoms" and he did tell
me that he "doesn't know how he feels about it"..in other words, he was kinda
telling me that he is not saying their is or isnt proof one way or another. and
he kinda alluded to the whole "mvp doesn't CAUSE these symptoms, but they are
related in some fashion". anyways... does anyone know if its safe to say that
these "symptoms" since i dont seem to be the type who needs meds when i go to
the dentist, but maybe the symptoms are the same as anyone else who suffers from
anxiety. in other words, could someone with simple anxiety benefit from the meds
that ppl with MVP take for their "symptoms'? i ask
  only because i still have to take xanax from time to time ( i'd say 1 -2 pills
a week). i have kicked caffeine completely out of my diet, which is fine with
me, and the only thng that stinks is with my terrible allergies- not being able
to take pseudoephedrine. oh...the other thing i noticed is i can't use numbing
agents that have ephedrine in them at all (used to prolong the effects of the
numbing and also cease bleeding better). i had a tiny birthmark removed and had
no idea ppl use ephedrine in that and an hour later i was all dizzy and felt
terribly weird and called and they said are you allergic to ephedrine....well
this is the same stuff i've had every time i've had a cavity filled and never
had a problem with it until this past year! any thoughts/comments?

mrshkelly426 <mrshkelly@...> wrote:
Ongoing Fun fun fun! Sorry but this is a partially angry post.

So, I went to the cardiologist for the Consultation with all the
results. He marches his little foreign ass into the office rattling
off where I can't understand him and at that point I had had it. I
told him to slow down, speak English and tell me so that I could
understand what was going on. He actually smiled like a smart ass
like how dare I question him.
He said that everything was structurally normal and again asked me if
I had known I had mitral valve prolapse. I told him again as I had
told him during the echo that until I had gone home that night I
didn't even know what it was since he wasn't very forthcoming with an
explanation.
I then told him about the incident that I had the night before when I
exercised and that how 5 hours later my heart rate was still above
100. He smirked again like he didn't believe me and said that well
why did I do that if my heart rate was so high and that he would have
to see that for himself. I was pissed! Here I am a 28-year-old adult
and this guy is condescending and rude.
He said that he could prescribe a calcium channel blocker "if I
wanted". I looked at him stunned and said that I was not the doctor
and that I didn't even know what that was and that I had no intention
of taking a heart medication under these circumstances on a "whim".
He said that he would order a treadmill test and for me to come back.
I left the office fuming and set up the appointment for next Friday
but I have no intention of going back there. I also requested a copy
of the results from the holter and the echo.  The holter test showed
overall normal with 6 Supraventricular Ectopy Beats lasting a second
each. It also showed two SVE's (Skipped beats) that lasted 2 seconds
each.  I wonder if that could have been what started that episode
that I had in December.. could I have had a skipped beat that lasted
2-3 seconds and then my heart raced to try and catch up?
While I was reading through it he has progress notes with a patient
history… He says that I have a history of anxiety... wrong…. never
had it before... He also says that I have NO history of headaches…
funny what were those incapacitating ones that I've had since I was
five and was diagnosed with MIGRAINES! Under the list of Meds he put
two down… none of the ones I take for Migraines. He put on there that
I have a history of indigestion…since when?!?
Ohh he makes me furious and I am not in any way impressed or
comfortable with his observations. I had a secondary appointment
already set up with another cardiologist, this one who works for a
heart institute so I went totally disgusted expecting to get treated
the same and while they were a little rushed the doctor himself was
very kind and so we start over. I am to go in for another Holter and
another echo late this month. He said not to worry too much and that
we would get to the bottom of this. He made me feel like I wasn't an
idiot.  I also had an appointment with a Psych Nurse practitioner.
She had me fill out a few forms and said finally that she thinks I
may be slightly depressed and thought I would benefit from a short
course of Paxil. I agreed with her because I think what the heck can
it hurt?… She also upped the dosage of Ativan to 1 mg saying that .5
mg was way too low.

So anyway, that's where everything stands with me.






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In regards to mandy from Florida:
Can anyone offer this woman some advice or tell her about a real life situation?
I can't but I was hoping someone out there would take some time and give their
examples. Mandy, I will pray for you guys too. let us know how the second
opinion works out. I think that is great that you are doing this. The fact that
he is young and in good shape definitely puts him in great condition for an easy
surgery! Be strong for him and let him know your feelings but also let him see
your strength and ability to hold the family together. This way he feels it is
ok for him to let down his guard and share his true feelings of concern for what
he is going through. I hope someone gets back to you soon who has 'been there
done that" with some words of advice. Have a great night!

mantall2020 <no_reply@yahoogroups.com> wrote:

Hi Mandy,

Put yr faith on Jehovah-rapha, the God who heals. He is the same
yesterday, today and tomorrow. He never changes. He is alive and
healing His people even TO THIS DAY.



--- In mvpandmvpssupport@yahoogroups.com, "mandywildman"
<mandywildman@y...> wrote:
>
> --- In mvpandmvpssupport@yahoogroups.com, Akgem <akgem@d...> wrote:
> > I have heard from several people who have had the surgery and
they
> are doing
> > fine. I wish you all the best of luck and will keep you in my
> prayers!
> >
>
> <<<Thank you so much for the encouraging words!
>
> Mandy Porter :-)>>>
> >
> >
> >
> >
> >
> >
> >
> >   ----------
> >
> > No virus found in this outgoing message.
> > Checked by AVG Anti-Virus.
> > Version: 7.0.308 / Virus Database: 266.7.1 - Release Date:
3/9/2005
> >
> >
> > [Non-text portions of this message have been removed]




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[Non-text portions of this message have been removed]

Hi Mandy,

Put yr faith on Jehovah-rapha, the God who heals. He is the same
yesterday, today and tomorrow. He never changes. He is alive and
healing His people even TO THIS DAY.



--- In mvpandmvpssupport@yahoogroups.com, "mandywildman"
<mandywildman@y...> wrote:
>
> --- In mvpandmvpssupport@yahoogroups.com, Akgem <akgem@d...> wrote:
> > I have heard from several people who have had the surgery and
they
> are doing
> > fine. I wish you all the best of luck and will keep you in my
> prayers!
> >
>
> <<<Thank you so much for the encouraging words!
>
> Mandy Porter :-)>>>
> >
> >
> >
> >
> >
> >
> >
> >   ----------
> >
> > No virus found in this outgoing message.
> > Checked by AVG Anti-Virus.
> > Version: 7.0.308 / Virus Database: 266.7.1 - Release Date:
3/9/2005
> >
> >
> > [Non-text portions of this message have been removed]

--- In mvpandmvpssupport@yahoogroups.com, Akgem <akgem@d...> wrote:
> I have heard from several people who have had the surgery and they
are doing
> fine. I wish you all the best of luck and will keep you in my
prayers!
>

<<<Thank you so much for the encouraging words!

Mandy Porter :-)>>>
>
>
>
>
>
>
>
>   ----------
>
> No virus found in this outgoing message.
> Checked by AVG Anti-Virus.
> Version: 7.0.308 / Virus Database: 266.7.1 - Release Date: 3/9/2005
>
>
> [Non-text portions of this message have been removed]

I have heard from several people who have had the surgery and they are doing
fine. I wish you all the best of luck and will keep you in my prayers!



















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Checked by AVG Anti-Virus.
Version: 7.0.308 / Virus Database: 266.7.1 - Release Date: 3/9/2005


[Non-text portions of this message have been removed]

Hi everyone,

My 46 year old husband - slender, non-meat eater, non-smoker - has
jusst been diagnosed with severe (classic?) MVP with 90% mital
regurgitation and a flailing leaflet!!!!  The first cardiologist told
us he most likely will need heart surgery to re-attach the flailing
leaflet.

Needless to say, this is terrifying - we have a 4 yo son and I
absolutely adore this man.  Does anyone out there know someone who
has been through this type of surgery?  I really need to talk to some
people who have gone through this and survived it!  My husband has no
symptoms.  We are going to get a 2nd opinion tomorrow.

I'm living in fear right now - help!

Mandy in Florida

I was diagnosed with MVP about 4 years ago.  The cardiologist
initially rated the valves "floppiness" at a 3 on a 0-3 scale and
the leakage has been in the 1-2 range in the annual checkups.  He
seems convinced that I will need to have it repaired at some point.
Last year the leakage was trending worse at 1.75.  This year he
shook his head in surprise and said it shows only a trace of
leakage.  I like the good report, but this is somewhat of a roller
coaster.  Anybody have a comment about the accuracy of the
Echocardiograms?  Could I really get that much better or are the
Echo's imprecise readings?

Eating foods rich in magnesium can help you both with your heart rate and
your depression. My mitralvalve prolapse is always aggravated when I don't
get enough Magnesium. It can't hurt to try it.
http://www.ctds.info/mvp1.html

Dawn T.

----- Original Message -----
From: "mrshkelly426" <mrshkelly@...>
To: <mvpandmvpssupport@yahoogroups.com>
Sent: Friday, January 14, 2005 7:39 AM
Subject: [MVP and MVPS Support] Update.. Oh what a ride...




Ongoing Fun fun fun! Sorry but this is a partially angry post.

So, I went to the cardiologist for the Consultation with all the
results. He marches his little foreign ass into the office rattling
off where I can't understand him and at that point I had had it. I
told him to slow down, speak English and tell me so that I could
understand what was going on. He actually smiled like a smart ass
like how dare I question him.
He said that everything was structurally normal and again asked me if
I had known I had mitral valve prolapse. I told him again as I had
told him during the echo that until I had gone home that night I
didn't even know what it was since he wasn't very forthcoming with an
explanation.
I then told him about the incident that I had the night before when I
exercised and that how 5 hours later my heart rate was still above
100. He smirked again like he didn't believe me and said that well
why did I do that if my heart rate was so high and that he would have
to see that for himself. I was pissed! Here I am a 28-year-old adult
and this guy is condescending and rude.
He said that he could prescribe a calcium channel blocker "if I
wanted". I looked at him stunned and said that I was not the doctor
and that I didn't even know what that was and that I had no intention
of taking a heart medication under these circumstances on a "whim".
He said that he would order a treadmill test and for me to come back.
I left the office fuming and set up the appointment for next Friday
but I have no intention of going back there. I also requested a copy
of the results from the holter and the echo.  The holter test showed
overall normal with 6 Supraventricular Ectopy Beats lasting a second
each. It also showed two SVE's (Skipped beats) that lasted 2 seconds
each.  I wonder if that could have been what started that episode
that I had in December.. could I have had a skipped beat that lasted
2-3 seconds and then my heart raced to try and catch up?
While I was reading through it he has progress notes with a patient
history. He says that I have a history of anxiety... wrong.. never
had it before... He also says that I have NO history of headaches.
funny what were those incapacitating ones that I've had since I was
five and was diagnosed with MIGRAINES! Under the list of Meds he put
two down. none of the ones I take for Migraines. He put on there that
I have a history of indigestion.since when?!?
  Ohh he makes me furious and I am not in any way impressed or
comfortable with his observations. I had a secondary appointment
already set up with another cardiologist, this one who works for a
heart institute so I went totally disgusted expecting to get treated
the same and while they were a little rushed the doctor himself was
very kind and so we start over. I am to go in for another Holter and
another echo late this month. He said not to worry too much and that
we would get to the bottom of this. He made me feel like I wasn't an
idiot.  I also had an appointment with a Psych Nurse practitioner.
She had me fill out a few forms and said finally that she thinks I
may be slightly depressed and thought I would benefit from a short
course of Paxil. I agreed with her because I think what the heck can
it hurt?. She also upped the dosage of Ativan to 1 mg saying that .5
mg was way too low.

So anyway, that's where everything stands with me.








Yahoo! Groups Links

Ongoing Fun fun fun! Sorry but this is a partially angry post.

So, I went to the cardiologist for the Consultation with all the
results. He marches his little foreign ass into the office rattling
off where I can't understand him and at that point I had had it. I
told him to slow down, speak English and tell me so that I could
understand what was going on. He actually smiled like a smart ass
like how dare I question him.
He said that everything was structurally normal and again asked me if
I had known I had mitral valve prolapse. I told him again as I had
told him during the echo that until I had gone home that night I
didn't even know what it was since he wasn't very forthcoming with an
explanation.
I then told him about the incident that I had the night before when I
exercised and that how 5 hours later my heart rate was still above
100. He smirked again like he didn't believe me and said that well
why did I do that if my heart rate was so high and that he would have
to see that for himself. I was pissed! Here I am a 28-year-old adult
and this guy is condescending and rude.
He said that he could prescribe a calcium channel blocker "if I
wanted". I looked at him stunned and said that I was not the doctor
and that I didn't even know what that was and that I had no intention
of taking a heart medication under these circumstances on a "whim".
He said that he would order a treadmill test and for me to come back.
I left the office fuming and set up the appointment for next Friday
but I have no intention of going back there. I also requested a copy
of the results from the holter and the echo.  The holter test showed
overall normal with 6 Supraventricular Ectopy Beats lasting a second
each. It also showed two SVE's (Skipped beats) that lasted 2 seconds
each.  I wonder if that could have been what started that episode
that I had in December.. could I have had a skipped beat that lasted
2-3 seconds and then my heart raced to try and catch up?
While I was reading through it he has progress notes with a patient
history… He says that I have a history of anxiety... wrong…. never
had it before... He also says that I have NO history of headaches…
funny what were those incapacitating ones that I've had since I was
five and was diagnosed with MIGRAINES! Under the list of Meds he put
two down… none of the ones I take for Migraines. He put on there that
I have a history of indigestion…since when?!?
  Ohh he makes me furious and I am not in any way impressed or
comfortable with his observations. I had a secondary appointment
already set up with another cardiologist, this one who works for a
heart institute so I went totally disgusted expecting to get treated
the same and while they were a little rushed the doctor himself was
very kind and so we start over. I am to go in for another Holter and
another echo late this month. He said not to worry too much and that
we would get to the bottom of this. He made me feel like I wasn't an
idiot.  I also had an appointment with a Psych Nurse practitioner.
She had me fill out a few forms and said finally that she thinks I
may be slightly depressed and thought I would benefit from a short
course of Paxil. I agreed with her because I think what the heck can
it hurt?… She also upped the dosage of Ativan to 1 mg saying that .5
mg was way too low.

So anyway, that's where everything stands with me.

hello all:
well the lastest tests and things that you and heather are talking about got me
thinking about my initial diagnosis and subsequent followup tests.  following my
dr.appt with my regular doc who picked up on it-- i went to a hosp. for an
echo-cardiogrm and it was clearly shown on the screen and after the dr. read the
test, stated it was MVP and Tricusp VP.  As far as earlier episodes, i must have
had this for awhile and it was missed by a different cardiologist a year before.
Only after continuing to be sick off and on was it actually caught.  So.....be
persistent....if u feel like something is happening??maybe it should be checked
again......i was close to seeking mental health advice because of the panics.
meds help the palpitations, rest reduces the tightness in my chest and shortness
of breath.....nothing seems to relieve the dull pain that persists most of the
time, but i can cope w/that.
hope u feel better
AA


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[Non-text portions of this message have been removed]

Hi Heather! Thanks for sharing your situation. please update me ASAP re: your
Wednesday consultation.
I too have recently (within the past year) been suffering from fatigue, panic,
and hear palpitations, especially at night (thus the extreme trouble falling
asleep or staying asleep without waking up with that anxious feeling and heart
racing.
Anyways, so I had done some research and heard about MVP. So I am telling my
parents about it and my mom says that my aunt has it! So my doctor set up the
test that you just had. Anyways...they looked at it for a while and then a week
later (actually it was almost 1 1/2 weeks- ANNOYING!) they called me and said
"you're fine". and that was that- no follow up. thanks.
well, i have read and heard from people here that the test we had is only
sometimes accurate in determining MVP. But from what I gather, if it doesn't
show, and you do have it, it means it is an extremely accute case of it.

mrshkelly426 <mrshkelly@...> wrote:

Ugh! Ok.. I think I am officially over January too! Ha!
I don't think I ever finished my update from the other day but
needless to say I was relieved to get the Holter Monitor off! I was
fairly anxious that night and I couldn't sleep. The .5 mg of Ativan
didn't do squat! So, desperate to get to sleep I took one of my
Phenergan that I take for migraines. It is a sedative that is given
to patients pre-op and for nausea. Nausea is why I take it but what
the heck it couldn't hurt for sleep so I took one and off to la-la
land I finally drifted. I woke up the next day with a foggy hangover
from the Phenergan though…I'd forgotten about that because I haven't
taken it in so long. Oh well. I was still anxious all day and the
Ativan wasn't doing squat so I went back to my Primary Care for
another visit and he was like well we should get a scan of your gall
bladder to rule that out and then if nothing shows there we will send
you to the cardiologist. I was pissed at that point because he was
grasping at straws. My insurance allows us to go to a specialist
without a referral so I left feeling still lousy. I didn't tell him
that I was already seeing a Cardiologist yet because our PC is a
friend of my DH and he would think it "going over his head"
prematurely. I think I need to get a non-partisan Primary Care!! LOL!!
Anyway, so yesterday I went to the Cardiologist and had the Ehco
done. The nurse said that the Dr was going to come in to do the Echo
himself rather then the tech so I was freaked out. She assured me not
to worry. Yeah right…So he came in and said that the Holter Test was
fine and that he would discuss the results and the echo on this
coming Wednesday saying that some dumb rule with our insurance
prevents and office visit and a test in the same day. I was upset but
just layed there watching the Echo. It was really neat actually...
there on the screen I could see the mitral valve flapping away and
could see my heart! It's hard to describe but it was just neat to
watch.
Anyway, he blurts out, asking if I knew that I had a prolapsed Mitral
Valve. I was like um... NO…what does that mean and why did you ask.
He said it wasn't anything to be overly concerned about and asked me
to lay flat on my back where he proceeded with the echo for another
20 min. I was pissed but they did say that talking messed up the
sound waves so I bit my tongue.
He left as abruptly as he started and said I to make a consult
appoint for next week. His nurse came in and I almost burst into
tears asking her was I supposed to wait the whole weekend when he had
dropped the little bit of information on me. She said not to worry
that if it had been really serious he would have stopped and gone
over it all at that time. She said that he sits for "hours" at the
echo watching the test and looking at every bit to make sure of a
diagnosis. I was pissed but what could I do? I made the consult
appointment for Wednesday morning and went home.
I did a lot of research and found out that a lot of people with
mitral valve prolapse have migraines, tiredness, etc.. which I do
suffer from. So, the web sites I saw and the message boards all agree
that magnesium supplementation and Co-Q10 are really good ideas, so I
went and bought both. They can't hurt and maybe they will help. I
really am nervous, scared, and uncertain. Whatever he says on
Wednesday I think I am going to get a second opinion.

Anyway, that's it for now in my diagnostic battle. More to come next
week..

Heather






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[Non-text portions of this message have been removed]

Ugh! Ok.. I think I am officially over January too! Ha!
I don't think I ever finished my update from the other day but
needless to say I was relieved to get the Holter Monitor off! I was
fairly anxious that night and I couldn't sleep. The .5 mg of Ativan
didn't do squat! So, desperate to get to sleep I took one of my
Phenergan that I take for migraines. It is a sedative that is given
to patients pre-op and for nausea. Nausea is why I take it but what
the heck it couldn't hurt for sleep so I took one and off to la-la
land I finally drifted. I woke up the next day with a foggy hangover
from the Phenergan though…I'd forgotten about that because I haven't
taken it in so long. Oh well. I was still anxious all day and the
Ativan wasn't doing squat so I went back to my Primary Care for
another visit and he was like well we should get a scan of your gall
bladder to rule that out and then if nothing shows there we will send
you to the cardiologist. I was pissed at that point because he was
grasping at straws. My insurance allows us to go to a specialist
without a referral so I left feeling still lousy. I didn't tell him
that I was already seeing a Cardiologist yet because our PC is a
friend of my DH and he would think it "going over his head"
prematurely. I think I need to get a non-partisan Primary Care!! LOL!!
Anyway, so yesterday I went to the Cardiologist and had the Ehco
done. The nurse said that the Dr was going to come in to do the Echo
himself rather then the tech so I was freaked out. She assured me not
to worry. Yeah right…So he came in and said that the Holter Test was
fine and that he would discuss the results and the echo on this
coming Wednesday saying that some dumb rule with our insurance
prevents and office visit and a test in the same day. I was upset but
just layed there watching the Echo. It was really neat actually...
there on the screen I could see the mitral valve flapping away and
could see my heart! It's hard to describe but it was just neat to
watch.
Anyway, he blurts out, asking if I knew that I had a prolapsed Mitral
Valve. I was like um... NO…what does that mean and why did you ask.
He said it wasn't anything to be overly concerned about and asked me
to lay flat on my back where he proceeded with the echo for another
20 min. I was pissed but they did say that talking messed up the
sound waves so I bit my tongue.
He left as abruptly as he started and said I to make a consult
appoint for next week. His nurse came in and I almost burst into
tears asking her was I supposed to wait the whole weekend when he had
dropped the little bit of information on me. She said not to worry
that if it had been really serious he would have stopped and gone
over it all at that time. She said that he sits for "hours" at the
echo watching the test and looking at every bit to make sure of a
diagnosis. I was pissed but what could I do? I made the consult
appointment for Wednesday morning and went home.
I did a lot of research and found out that a lot of people with
mitral valve prolapse have migraines, tiredness, etc.. which I do
suffer from. So, the web sites I saw and the message boards all agree
that magnesium supplementation and Co-Q10 are really good ideas, so I
went and bought both. They can't hurt and maybe they will help. I
really am nervous, scared, and uncertain. Whatever he says on
Wednesday I think I am going to get a second opinion.

Anyway, that's it for now in my diagnostic battle. More to come next
week..

Heather

Hello:
I am a new member to the group and have been catching up a bit on
the mail.  I was diagnosed with MVP,& tricusp. as well.  I am 49
y.o. mom of 5 - three are adults and my 2 little ones r 5 & 7. Short
of breath and having difficulty going upstairs preceeded a visit to
my dr. last year---MVP was picked up by my family Dr., then echo and
a few other tests.
     You were talking about meds....i take 75-100mg toprol xl daily
and it really helps the palpitations and high blood pressure.
      Question...does anyone have joint pain or heard of any
connection between joint pain and MVP??
**good day**
Um

--- In mvpandmvpssupport@yahoogroups.com, colleenaugust13@c... wrote:
> Hi Colleen, how old were you when you were first diagnosed with
mvp?
> You mentioned medication helps. What meds are we talking about?
>
> Mantall2020
>
> i was about 29 or so when diagnosed with mvp- the panic attacks
started when
> i was 39 - i did suffer from exteme anxiety when i was 35 - but
then i had
> three kids under 5 and that is what we think caused the anxiety -
when i was 35 i
> took buspar which helped alot - for about a year or so - and then
all was
> well until i was 39 - the attacks were endless - all day long -
racing heartbeat
> - thoughts of dying - seizures (thoughts of them - not actual
ones - no reason
> in my background to suggest them either - with a panic attack you
have eratic
> thoughts for no reason) ect ect - now i take a few low doses of
xanax each
> day and that has really helped out alot
> hope that helped
> colleen
>
>
> [Non-text portions of this message have been removed]

Hi Colleen, how old were you when you were first diagnosed with mvp?
You mentioned medication helps. What meds are we talking about?

Mantall2020

i was about 29 or so when diagnosed with mvp- the panic attacks started when
i was 39 - i did suffer from exteme anxiety when i was 35 - but then i had
three kids under 5 and that is what we think caused the anxiety - when i was 35
i
took buspar which helped alot - for about a year or so - and then all was
well until i was 39 - the attacks were endless - all day long - racing heartbeat
- thoughts of dying - seizures (thoughts of them - not actual ones - no reason
in my background to suggest them either - with a panic attack you have eratic
thoughts for no reason) ect ect - now i take a few low doses of xanax each
day and that has really helped out alot
hope that helped
colleen


[Non-text portions of this message have been removed]

--- In mvpandmvpssupport@yahoogroups.com, colleenaugust13@c... wrote:
> i was diagnosed with mvp 13 yrs ago - just in the last two years
have i felt
> the panic attacks come on - with meds out there they help alot -
but they can
> be scary - really scary - but i didnt have any the first 11 years
of being
> doagnosed - it could just be the harried life of having three kids
> !!!!!!!!!!!!!!!!!!!!!!!!!!!
> colleen
>
>
> [Non-text portions of this message have been removed]

From Mantall to colleenaugust:
Hi Colleen, how old were you when you were first diagnosed with mvp?
You mentioned medication helps. What meds are we talking about?

Mantall2020

i was diagnosed with mvp 13 yrs ago - just in the last two years have i felt
the panic attacks come on - with meds out there they help alot - but they can
be scary - really scary - but i didnt have any the first 11 years of being
doagnosed - it could just be the harried life of having three kids
!!!!!!!!!!!!!!!!!!!!!!!!!!!
colleen


[Non-text portions of this message have been removed]

Hi, my name is Peter. I am 35 and recently diagnosed with MVP after
echo test. I only had a fainting spell some weeks ago so far. I did
not experience any panic attacks or other inconviences so far. My
doctor almost brush off the issue as nothing serious and told me that
life will be as normal. I hope he is right. Does all mvp suffers
experience panic attacks and other stuffs?
Pls enlighten me as some websites are very encouraging and others
less encouraging. I am getting rather confused.
Thank you.

I'm so happy for you.  Take it easy now okay

Lara Gyurik <buffi00@...> wrote:

Hi Everyone! I had an Echo last week and the results were called in to me a week
later: No mitral valve issues. Now I understand that there is still the chance
that I could have it, but is it true then that if I do, it is an extremely mild
case? Also, could it just be that I have the dysaunomatic issues alone and not
related to any valve? (since I still have the fatigue, neck pain, recent
caffeine and pseudoephedrine intolerance, sleep issues, anxiety issues, etc) or
could it be that I have those issues simply because I have developed anxiety
(since i know mitral and anxiety are both commom diagnoses in women of my age
-27years old.


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Hi Everyone! I had an Echo last week and the results were called in to me a week
later: No mitral valve issues. Now I understand that there is still the chance
that I could have it, but is it true then that if I do, it is an extremely mild
case? Also, could it just be that I have the dysaunomatic issues alone and not
related to any valve? (since I still have the fatigue, neck pain, recent
caffeine and pseudoephedrine intolerance, sleep issues, anxiety issues, etc) or
could it be that I have those issues simply because I have developed anxiety
(since i know mitral and anxiety are both commom diagnoses in women of my age
-27years old.


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[Non-text portions of this message have been removed]

hey all

I recently re-financed my mortgage for free even though I have BAD credit. They
even gave me a great rate! Take a look at this service...

http://grealus.com/azwh1







I posted this on mvpandmvpssupport, if you dont want to be a member anymore just
email mvpandmvpssupport-unsubscribe@yahoogroups.com

I didn't take any medicine at all.  My cardiology said that I'm fine and I can
do whatever I want to do but I get so tired and out of breath.  I'm fine right
but I'm experiencing a lot of anxiety attack lately.  My palpitation is getting
bad.  Since I work at occupational health, the PA-c here is checking me out. 
I'm hoping that when the time comes that I will need surgery, I hope my two kid
are grown already.  I know that it is coming.  My primary doctor just checked my
blood so far everything is normal.  So I hope this is just a minor problem that
I have to go through.  Goodluck to you and just be strong.

Lara Gyurik <buffi00@...> wrote:Oh I see. so it showed up on your first
test right away! so did you have to take medicine to make you not black out? how
are you now? do you get anxiety still?

NEILA VIERNES <ladytitanium2001@...> wrote:I didn't get check on my first
pregnancy but I blacked out all the time.  Nobody even thought that I should
have an echo test.  But my second pregnancy everything is abnormal so my doctor
decide for me to have the test done.

Lara Gyurik <buffi00@...> wrote:HI again!
So does that mean that the first echo did not show it but the second one did? is
that why you had to have 2? lately i can't have ANY caffeine or most types of
alcholic beverages because then I can't sleep at all!!!!

NEILA VIERNES <ladytitanium2001@...> wrote:
Hello!  I got diagnose with MVP when I was pregnant on my second one. I have
palpitations, shortness of breath and lightheaded. My heart is just pounding
hard a times. I don't know if I have an anxiety everytime I'm palpitating, but I
do know it know happen when I ate a lot or after drinking too much caffeine. I
have two echo already and it is confirm

Lara Gyurik <buffi00@...> wrote:Hi!
Do you have MVP? What symptoms do u have? Do you have anxiety? Did you get an
echocardiogram? I am getting one on NOvember 8th.

NEILA VIERNES <ladytitanium2001@...> wrote:
I don't know what is sick sinus too?  Getting a pacemaker is my biggest concern
too.

buffi00 <buffi00@...> wrote:
--- In mvpandmvpssupport@yahoogroups.com, "Tracy"
<sgar_and_spice@y...> wrote:
> Hello everyone, My name is Tracy and I just wanted to introduce
> myself.I also have mvp with mild regurgitation, I have dealt with
it
> for 6 miserable years, the doctor also thinks I have whats called
> sick sinus syndrome so he told me to prepare myself for a
pacemaker
> but he still has some test to do this friday before i know for
sure.
> Does anyone else in this group have MVP and also sick sinus
syndrome?
> I never thought at 29 years old i would be getting a pacemaker but
> I'm still hoping for the best. Hope everyone is doing well.
>
>
> Tracy/Arkansas

Hey Tracy!
I haven't been diagnosed yet but I was wondering what exactly the
sick sinus is? I get sinus infections a lot and have bad allergies.
I am going to get check for MVP because I have all of the symptoms!
What have you learned? Please reply to me at LaraG99@...
Thanks!
Lara




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