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Reply | Forward Message #212 of 619 |
Re: New Member

Hiya Jodi:)<br>I'm 27 and have the same condition.Feel free to contact me(or
anyone else for that matter) it helps to talk:)<br>My email is
IceBlazingFire@...:)
Tue Mar 13, 2001 9:32 am

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iceblazingfire
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Forward 		Message #212 of 619 |
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Hi! I was diagnosed with the MVP in 1993 but just in the past month was diagnosed with the MVPS (the syndrome which isn't widely accepted by some doctors yet) ...
southern_gal12000
southern_gal...
Offline Send Email 		Mar 13, 2001
2:36 am

Hiya Jodi:)<br>I'm 27 and have the same condition.Feel free to contact me(or anyone else for that matter) it helps to talk:)<br>My email is...
iceblazingfire
Offline Send Email 		Mar 13, 2001
9:32 am

Hi guys! I was just told today that they want to do an echo w/ doppler on my heart, and prescribe me Tenormin. I read up on Tenormin and found out it is a type...
whitneylsimpson
Offline Send Email 		Mar 14, 2001
2:43 pm

Please when is the group here. i'm new. i have chest pains every day. i was in the hospital on March 5th. the hospital got the pain to go away. but now that...
irene_bailey0
Offline Send Email 		Mar 17, 2001
2:58 am

Hi! Oh my goodness! I'm from Lubbock! Or Used to live there anyway. Now in Idaho. But Wow! What a small world. I'm gonna try to e-mail you to the e-mail that ...
southern_gal12000
southern_gal...
Offline Send Email 		Mar 17, 2001
5:34 am

HELLO COULD SOMEONE TELL ME WHEN THERE ARE MEETINGS HERE. I COME HERE EVERY DAY AND I SEE NO BODY. I WAS EVEN INVITED TO GO TO COPING WITH MVP OVER AT TALK...
irene_bailey0
Offline Send Email 		Mar 28, 2001
12:28 am

I tried to set up meetings but no one seems to come to them. I would try starting up a conversation with another member if they are online. If you want to set...
Snowy_f37
Offline Send Email 		Mar 31, 2001
1:18 am

Has anyone been to the MVP Center in Birmingam ALA and if so did it help you? Thanks TAM...
tjppo414
Offline Send Email 		Apr 10, 2001
10:20 pm

Hi Tam!<br>I know you are a member of the other MVPS club too. Do you think we could get this club going also??? :o) And no, haven't been to the Alabama MVP...
southern_gal12000
southern_gal...
Offline Send Email 		Apr 17, 2001
4:39 pm

Laurie<br>I am a member of 4 clubs and I learn from each of them. And meet great people in all of them! I called the Alabama MVP center and they said if I get...
tjppo414
Offline Send Email 		Apr 21, 2001
6:36 pm

I have read on one of the MVP sites that it is possible to have MVPSyndrom but not MVP. I am not sure if this is true or not but it may be something for you to...
corimaree
Offline Send Email 		Apr 21, 2001
7:20 pm

Thanks for the site I will have to check it out. I have both MVP and MVPS so any site concerning either one is a help. Thanks TAM...
tjppo414
Offline Send Email 		Apr 21, 2001
8:15 pm

Just wanted to say Hi and I hope everyone has a great week! I am in Nursing school so the stress level is pretty high. Today I have to give an oral report and...
tjppo414
Offline Send Email 		Apr 23, 2001
12:22 pm

What I gather from everything I've read is that MVP is the actual prolapse, found by echo, (which I have) and that the MVPS is the dysautonomia. I think (but...
southern_gal12000
southern_gal...
Offline Send Email 		Apr 23, 2001
4:51 pm

Hi TAM!<br><br>I didn't know you were in Nursing School. My mother is a retired RN and she taught vocational nursing students. My husband's mother is also a ...
southern_gal12000
southern_gal...
Offline Send Email 		Apr 23, 2001
5:00 pm

They didnt have time for me today....so now I have to give my oral report first thing tomorrow....just something to stress over tonight to ruin my sleep. I am...
tjppo414
Offline Send Email 		Apr 24, 2001
1:39 am

Tam,<br>I know the feeling of wanting to take a class or something to not become house bound. I have been a house wifem for 14 years now after workign many ...
meebeehoney
Offline Send Email 		Apr 26, 2001
1:54 pm

Pamela<br>Thanks for the morale boost. I HAVE to make myself go to school or I will get completely housebound and I just cant allow that to happen.It could so ...
tjppo414
Offline Send Email 		Apr 27, 2001
1:46 am

You are welcome!<br>And yes I keep myself busy at HOME!!!!!<br>But I am trying so hard to get out of the home ALONE doing more and more like I said...lunches...
meebeehoney
Offline Send Email 		Apr 28, 2001
6:10 pm

Hi Whitney,<br><br>I have been using atenolol (aka Tenormin) for about 5 years not and have found it fairly effective, but not as effective as Inderal ...
nan_cy_t
Offline Send Email 		Apr 30, 2001
12:37 pm

Does anyone know of a beta blocker or other effective drug for MVP that does not decrease libido? That's one side effect I don't care to put up...
nan_cy_t
Offline Send Email 		Apr 30, 2001
12:42 pm

Does anyone suffer from Anxiety attacks or panic which ever you want to call it? Is so...do you have them under control and HOW? Please share.<br>Thanks TAM...
tjppo414
Offline Send Email 		May 1, 2001
4:26 pm

If anyone has seen the commercial on CALMAX or does see it PLEASE write down the number on how to order and post it please.<br>thanks<br>TAM...
tjppo414
Offline Send Email 		May 4, 2001
10:29 pm

I do suffer from panic and anxiety attacks before, but good thing, i got them under control. The thing i do to have them under control was not to let them...
danbautista_2000
danbautista_...
Offline Send Email 		May 5, 2001
10:12 am

Dan<br>Thanks for the info. I think you are right about the positive self talk. I think that is part of my problem.....I am my own worst enmeny. I scare myself...
tjppo414
Offline Send Email 		May 5, 2001
11:54 am

Hi everyone, another club founder gave me this site. <a href=http://www.calcium-magnesium.com/calmag/...
tjppo414
Offline Send Email 		May 5, 2001
12:08 pm

Well for the exercise program, i do play basketball 3 to 4 times a week, like i play for about an hour. But i made it a point to do it gradually. Before i...
danbautista_2000
danbautista_...
Offline Send Email 		May 7, 2001
2:37 am

Dan <br>For someone who is 40 year old and WAY out of shape. would you suggest to start out by walking?<br>I was thinking that would be good to start with. ...
tjppo414
Offline Send Email 		May 7, 2001
4:13 pm

Yes, walking is the one of the best form of exercise. But i guess you have to consult a doctor first before you engaged in that activity and do it in...
danbautista_2000
danbautista_...
Offline Send Email 		May 10, 2001
3:18 am

Years ago I'd read in a MVPS bulletin from the Cincinnati center (run at that time by Dr. Scordo), recommending Yoga. Well I ignored that advice for about 10 ...
mlizgoodwin
Offline Send Email 		May 12, 2001
1:22 pm
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