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MVP and MVPS Support   Message List  
Reply | Forward Message #202 of 619 |
Re: MVP support needed

I have a husband with MVP he wanted to go to
hospital the other night,we opted to stay home,he has
attacks when has certain medicines, and we have been
fighting this for 2 years now,we would love more info and
am grateful for this support room have been finding
it hard to find info.




Tue Feb 6, 2001 3:17 pm

craftnut_tc
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Forward
Message #202 of 619 |
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Coping with MVP a book says no. But I guess you can call your states disability and find out for sure....
phil_a_07644
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Feb 1, 2001
7:06 pm

I have a husband with MVP he wanted to go to hospital the other night,we opted to stay home,he has attacks when has certain medicines, and we have been ...
craftnut_tc
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Feb 6, 2001
3:17 pm

Hi,<br>Just saw your message as I have not been on this site for a couple of weeks. I have been taking a beta blocker for 10 years (Tenormin 75mg) and it has...
dv5dar
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Feb 7, 2001
12:51 am

The people there are so nice and knowledgeable! <a href=http://amazingforums.com/forum/MVPSUPPORT target=new>http://amazingforums.com/forum/MVPSUPPORT</a>...
WillnJenny
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Feb 28, 2001
4:55 pm

Hiya:)<br>I'm 27 yrs old and from England.I have had MVPS for a number of years and its great to find a site like this where I can read about others like ...
iceblazingfire
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Mar 4, 2001
6:55 pm

I just want to know if Panic Disorder is one of the symptoms of MVP/MVPS? And it is possible to treat Panic Disorder without taking any medications? What about...
danbautista_2000
danbautista_...
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Mar 8, 2001
7:44 am

Hiya:)<br>Panic disorder is all part of the MVPS syndrome and to be honest it is the thing I struggle with the most.I have at one time been prescribed Beta ...
iceblazingfire
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Mar 8, 2001
8:50 am

myself. I have suffered with MVPS for years...ever since I was little. (I fainted after getting shots and I noticed palpitations for the first time when I was...
southern_gal12000
southern_gal...
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Mar 10, 2001
4:09 am

Hi I have MVP. I was just diagnoised with it. I also suffer from panic/anxiety attacks which dont help this any.<br><br>Would love to hear from others who are...
flasun1234
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Mar 11, 2001
3:54 am

Hi Jodi! I was just diagnosed with MVPS . Also like you, I have panic attacks which do make this worse. The important thing I know now is, to try to control...
whitneylsimpson
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Mar 12, 2001
7:53 pm

Hi! I was diagnosed with the MVP in 1993 but just in the past month was diagnosed with the MVPS (the syndrome which isn't widely accepted by some doctors yet) ...
southern_gal12000
southern_gal...
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Mar 13, 2001
2:36 am

Hiya Jodi:)<br>I'm 27 and have the same condition.Feel free to contact me(or anyone else for that matter) it helps to talk:)<br>My email is...
iceblazingfire
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Mar 13, 2001
9:32 am

Hi guys! I was just told today that they want to do an echo w/ doppler on my heart, and prescribe me Tenormin. I read up on Tenormin and found out it is a type...
whitneylsimpson
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Mar 14, 2001
2:43 pm

Please when is the group here. i'm new. i have chest pains every day. i was in the hospital on March 5th. the hospital got the pain to go away. but now that...
irene_bailey0
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Mar 17, 2001
2:58 am

Hi! Oh my goodness! I'm from Lubbock! Or Used to live there anyway. Now in Idaho. But Wow! What a small world. I'm gonna try to e-mail you to the e-mail that ...
southern_gal12000
southern_gal...
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Mar 17, 2001
5:34 am

HELLO COULD SOMEONE TELL ME WHEN THERE ARE MEETINGS HERE. I COME HERE EVERY DAY AND I SEE NO BODY. I WAS EVEN INVITED TO GO TO COPING WITH MVP OVER AT TALK...
irene_bailey0
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Mar 28, 2001
12:28 am

I tried to set up meetings but no one seems to come to them. I would try starting up a conversation with another member if they are online. If you want to set...
Snowy_f37
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Mar 31, 2001
1:18 am

Has anyone been to the MVP Center in Birmingam ALA and if so did it help you? Thanks TAM...
tjppo414
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Apr 10, 2001
10:20 pm

Hi Tam!<br>I know you are a member of the other MVPS club too. Do you think we could get this club going also??? :o) And no, haven't been to the Alabama MVP...
southern_gal12000
southern_gal...
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Apr 17, 2001
4:39 pm

Laurie<br>I am a member of 4 clubs and I learn from each of them. And meet great people in all of them! I called the Alabama MVP center and they said if I get...
tjppo414
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Apr 21, 2001
6:36 pm

I have read on one of the MVP sites that it is possible to have MVPSyndrom but not MVP. I am not sure if this is true or not but it may be something for you to...
corimaree
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Apr 21, 2001
7:20 pm

Thanks for the site I will have to check it out. I have both MVP and MVPS so any site concerning either one is a help. Thanks TAM...
tjppo414
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Apr 21, 2001
8:15 pm

Just wanted to say Hi and I hope everyone has a great week! I am in Nursing school so the stress level is pretty high. Today I have to give an oral report and...
tjppo414
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Apr 23, 2001
12:22 pm

What I gather from everything I've read is that MVP is the actual prolapse, found by echo, (which I have) and that the MVPS is the dysautonomia. I think (but...
southern_gal12000
southern_gal...
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Apr 23, 2001
4:51 pm

Hi TAM!<br><br>I didn't know you were in Nursing School. My mother is a retired RN and she taught vocational nursing students. My husband's mother is also a ...
southern_gal12000
southern_gal...
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Apr 23, 2001
5:00 pm

They didnt have time for me today....so now I have to give my oral report first thing tomorrow....just something to stress over tonight to ruin my sleep. I am...
tjppo414
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Apr 24, 2001
1:39 am

Tam,<br>I know the feeling of wanting to take a class or something to not become house bound. I have been a house wifem for 14 years now after workign many ...
meebeehoney
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Apr 26, 2001
1:54 pm

Pamela<br>Thanks for the morale boost. I HAVE to make myself go to school or I will get completely housebound and I just cant allow that to happen.It could so ...
tjppo414
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Apr 27, 2001
1:46 am

You are welcome!<br>And yes I keep myself busy at HOME!!!!!<br>But I am trying so hard to get out of the home ALONE doing more and more like I said...lunches...
meebeehoney
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Apr 28, 2001
6:10 pm

Hi Whitney,<br><br>I have been using atenolol (aka Tenormin) for about 5 years not and have found it fairly effective, but not as effective as Inderal ...
nan_cy_t
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Apr 30, 2001
12:37 pm
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