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Adults dealing with Mitochondrial Disease sometimes feel they have no where to turn for support. Mitoldies list is created for adults who have or suspect they have a mitochondrial disorder to discuss the needs and issues that must be dealt with on a day to day basis. It is also for the caregivers. We welcome your posts and hope we can be a source of support, strength and encouragement at all times. This list was created to discuss your adult needs whatever they may be. We welcome your posts and hope we can be the support you are seeking. We are looking forward to meeting you.
Very Important - Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed from the group, depending upon the severity of the attack! Additionally, profanity is not allowed.
Should you require assistance, please e mail justagram14@msn.com
Medical advice, information, opinions, data and statements contained in Mitoldies messages are not those of the list moderators. The author of each e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.
"Be a thriver, not just a survivor; be an active participant in your treatment; investigate every possible avenue; push the medical system to its limit; and then, no matter what the outcome, you will not have been defeated and will have lived life as fully (if not more so) than most." From His Brother's Keeper: A Story from the Edge of Medicine by Jonathan Weiner
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