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millerdieker · Miller-Dieker Lissencephaly

Group Information

  • Members: 141
  • Category: Children's
  • Founded: Nov 9, 2001
  • Language: English
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Activity within 7 days:

7 New Messages - New Questions

Description

A group to meet other parents of children diagnosed with Miller-Dieker Lissencephaly, a chromosome deletion of 17p13.3., for support, discussion of health issues, medications, and life with a special child. Miller-Dieker syndrome (MDS) causes profound disabilities , such as mental retardation, severe developmental delays, feeding problems, sometimes heart and lung problems and usually a shortened lifespan. I am the mother of a daughter born 1/31/01 with MDS. She is 8 years old now, in 2009, and has three older brothers and 2 younger brothers! Please join our group if you have a child with MDS or are a close relative. No paid caregivers or therapists, sorry.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 77 50 103 54 24 32 40 23 18 73 7
2008 86 114 175 139 118 102 105 30 72 39 85 84
2007 48 45 57 76 60 66 76 107 203 132 90 76
2006 34 50 70 22 41 79 57 67 33 32 33 26
2005 57 46 57 70 59 44 24 16 16 9 7 39
2004 12 63 25 16 36 39 60 39 33 73 17 50
2003 21 46 2 30 16 9 31 29 30 17 9 28
2002 9 2 3 27 14 16 5 15 28 65 17 17
2001 7 4
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