Hi everyone,
I am a freelance writer in Raleigh, NC. I am also the mother of two
boys with autism.
I would like to do an article for Today's Officer or Military
Officer magazine about military families with special needs
children. I was wondering if I could get some information from all
of you.
Anyone with a story they would like to share can email me directly
at diane_morris@....
Here are a few questions I'd like to put out to the group:
Is it difficult to get services for your children (ie - ABA, speech
therapy, occupational therapy)?
If your children go to military schools, are you happy with the
services they get there? Are the teachers well-trained?
For those of you who have been deployed recently or have deployed
spouses, how have your children handled the changes? How have you
handled the stress of caring for the kids without your spouse? Is
there a lot of support from the military and other families?
Thanks to all in advance.
Diane Morris
Autism Society of America - Tidewater Chapter #256
------------------------------------------------------------------------
Circle East Bldg., Ste. 140
861 Glenrock Road
Norfolk, VA 23502
Telephone Numbers and Contact Information
(757) 461-4474 Main
Operating Agency: Autism Society of America
Agency Type: Special Interest
Person in charge: Billie Mccoy
Hours of operation: 7:00AM-9:00PM, last Tuesday of each month at
Pembroke Elementary School in Room 49.
Fees: No fees to attend meetings. Optional dues to the national
office-family dues, $30; individual, $20; student, $12.50.
Eligibility requirements: Unrestricted.
Intake Procedure: Telephone referral.
Area Served: Unrestricted
About the program:
Provides a mutual support group for professionals or those who have
family members who have autism, Pervasive Developmental Disorder (PDD),
Asperger's Syndrome, or any related disorder. Various lectures,
workshops, lending library of books, articles, audio and videotapes,
information packets, resource information, social outings, and a
newsletter are among the services provided.
on 2/29/04 11:07 AM, Danielle at jdjespe@... wrote:
> Moved to VA BCH about 3 weeks ago and was looking for support groups
> and or services specifically offered for military families. Any
> information would be greatly appreciated.
>
well, when i was there I wasn't military (just dating my navy husband at
that time) and didn't have my son yet.
i would call someone at Oceana or NAS Norfolk and ask if there are any
programs.
you already emailed other yahoo groups, right?
maybe there is an ASA chapter.
let me do an internet search-
Christine
on 2/29/04 8:42 AM, virginiagirl2004 at virginiagirl2004@... wrote:
> Christine,
>
> Thanks for the post, I just hope I can help some families in the
> process. Are you a consultant in NY?
>
> Lisa Costello
>
Nope.
I was a lovaas therapist for about a year. Also was an aide for a year (for
a 6 year old with autism going to kindergarden).
Then, 3 years later, had a son with autism.
Now i live on Long Island.
I did take 2 classes at Tidewater CC- intro to disabilities and behavior
mod. I was going to continue on at ODU- but decided to go back into doing
video (i have a BA in communications).
Good luck in that area- the education system is pretty lacking.
I know the one Mom I worked for said the school districts treated her son
very badly. That was about 5 years ago- i don't know if they have gotton
any better.
Are you military? Are you just there for a couple of years?
Christine
(ps. the Coyote cafe on Laskin Rd is my favorite restaurant)
Moved to VA BCH about 3 weeks ago and was looking for support groups
and or services specifically offered for military families. Any
information would be greatly appreciated.
on 2/27/04 8:23 AM, virginiagirl2004 at virginiagirl2004@... wrote:
> Hello, I have been working with autistic children for over 16 years
> now. I am in the process of relocating to Chesapeake, VA and have
> openings in my schedule for families wishing to start a new ABA/VB
> program or give an existing program a fresh approach.
>
> If you are looking for someone, and would like more information about
> me and the services I offer, please feel free to contact me at:
>
> virginiagirl2004@...
>
> or (212)696-6862
>
> and I would be happy to discuss things with you further.
>
> Sincerely
> Lisa Costello
>
that area is excellent in general- and you'll have a great time!
i lived in Va beach for 6 years....
Christine, now in NY
Hello, I have been working with autistic children for over 16 years
now. I am in the process of relocating to Chesapeake, VA and have
openings in my schedule for families wishing to start a new ABA/VB
program or give an existing program a fresh approach.
If you are looking for someone, and would like more information about
me and the services I offer, please feel free to contact me at:
virginiagirl2004@...
or (212)696-6862
and I would be happy to discuss things with you further.
Sincerely
Lisa Costello
Summit Chase Country Club
proudly hosts the
National Autism Association Scramble
Monday, April 19, 2004
Hello all!
Time is drawing near for our fundraising golf tournament. At this point in time
we would like to begin gathering a group of volunteers to help with securing
sponsorships, registering teams, collecting donations, and to work the day of
the tournament. If you or someone you know would be interested in helping,
please email me at adrienne@... or call 770-712-9499.
The Gwinnett Daily Post published an article in today's paper about the
tournament. To read it go to
http://www.gwinnettdailyonline.com/GDP/healthwellness.html .
For more information on the tournament, sponsorship, or registration, please go
to www.nationalautismassociation.org/golftournament.php . In addition, the
research projects, awareness items, and other projects the tournament will be
funding are available for your viewing on our site as well.
Thanks for your partnership in the fight against autism!
Adrienne Rousseau
National Autism Association
Phone: 877-NAA-AUTISM
Email: Adrienne@...http://www.nationalautismassociation.org
[Non-text portions of this message have been removed]
Just in case any of you would like this information:
In Dec. 2001 there were 2,788 children being served under the autism eligibility
in Georgia schools.
In Dec. 2002 there were 3,404 children being served under the autism eligibility
in Georgia schools.
In December 2003 there were 4,383 children being served under the autism
eligibility in Georgia schools. Of those, 3,956 are ages 6-21 and 427 are ages
3-5.
For future inquiries, the person to speak with is Richard Swinson at
404-656-3963.
Adrienne
[Non-text portions of this message have been removed]
Thanks for the input, I think we are leaning to San Diego, because
of the services. Although the cost of living there stinks.
--- In
militaryfamiliesautismsupport@yahoogroups.com, "christine@l..."
<christine@l...> wrote:
> on 1/5/04 12:01 AM, vmi89 at vmi89@y... wrote:
>
> > We just moved to Colorado last year, and are looking to future
> > assignments possibly in the next two years. We have a 2 and a
half
> > year old son with autism, hearing loss w/aids, feeding
difficulties
> > that resulted in him getting a g-tube. The potential places are
> > Hawaii, Washington State, San Diego, or Norfolk. Does anyone
have
> > any input on what states are better providing autism services (ie
> > ABA therapy, special needs services in school, etc?) We have
found
> > that for early intervention here in Colorado Springs, you have
to do
> > all your own footwork and reinvent the wheel apparently. I am
> > seeking out qualified therapists for my son, because apparently
the
> > early intervention program has never heard of conventional ABA or
> > other treatments for autism. We will soon see about the
district we
> > live in when it comes to preschool for our son. I'll write up a
> > summary of that experience when that happens. I'd appreciate any
> > input, if you have comparisons from any of the listed states, to
> > help us with the decision to move when it comes.
>
> Well, i know in general the Hampton Roads area stinks for services.
> (although i lived there for 6 years before having my son and loved
it)
>
> I would look into San Diego- not only is it a great area for Navy
(i've
> heard from military in general) california has such a high rate
of autism
> they have to have services state wide (i would think- don't know
for sure)
> But I know there are a lot of autism parent groups there.
>
> good luck, i'm staying on Long Island (even if my husband lives
10,000 miles
> away)
>
> christine
Summit Chase Country Club in Snellville, GA
proudly hosts the
National Autism Association Scramble
April 19, 2004.
Tournament Format: 4-player scramble
Features: Putting Contest, Long Drive and Closest to the Pin Prizes
Tournament Schedule: 7:30 am Registration, driving range and putting
green available for practice.
8:15 am Putting Contest
9:00 am Shotgun Start
2:00 pm Awards Luncheon
Entry Fee: $125.00 per player or $400.00 for a 4-player team. Entry includes
tournament registration, cart fee, lunch and prizes.
Tournament Sponsorship
$500.00 Hole Sponsor: Each family or business sponsoring a hole will receive a
sign displayed on one hole during the tournament, entry fee for a 4-player team,
a logo advertisement in the tournament program, and recognition during the
awards banquet.
$250.00 Golf Cart Sponsor: Each family or business sponsoring a golf cart will
receive a sign displayed on one golf cart during the tournament, a logo
advertisement in the tournament program, and recognition during the awards
banquet.
$100.00 Table Sponsor: Each family or business sponsoring a table will receive a
sign displayed on one table at the awards banquet, a logo advertisement in the
tournament program, and recognition at the awards banquet.
Families or companies interested in sponsoring the NAA Scramble, please visit
www.nationalautismassociation.org/golftournament.php to print a sponsorship
form. Sponsorship forms and payment should be mailed to the tournament
coordinator Adrienne Britt Rousseau c/o Summit Chase Country Club P.O. Box 606
Snellville, GA 30078.
Player Registration
Players or teams please visit
www.nationalautismassociation.org/golftournament.php to print a registration
form. Registration and payment should be mailed to the tournament coordinator
Adrienne Britt Rousseau c/o Summit Chase Country Club P.O. Box 606 Snellville,
GA 30078 no later than April 12, 2004. Registration is limited to the first 32
teams, so make sure to register early! Registration may be paid by cash, check,
or charge.
Donations
Your tax deductible donation of services, items, or financial contributions are
welcome. We will offer door prizes during the awards banquet and would love to
have a variety of items or services to award. Please contact tournament
coordinator (Adrienne) at 770-712-9499 for more information.
Volunteers
We would love for you to join our team to make the NAA Scramble a huge success!
If you have time to give, please contact Adrienne to sign up. Volunteers will
be expected to work from 7:00 am through the completion of the tournament and
are invited to celebrate with us at the awards banquet.
For More Information
Please visit www.nationalautismassociaton.org/golftournament.php
Please call Adrienne at 770-712-9499.
Please write Adrienne Britt Rousseau c/o Summit Chase Country Club P.O. Box
Snellville, GA 30078.
The NAA Scramble will benefit autism awareness and research through the National
Autism Association, a non-profit (status pending) organization.
[Non-text portions of this message have been removed]
Join Dr. Stanley Greenspan in the Floortime Foundation Web-Based Radio Show
The first live, web-based radio show to focus on children with autism spectrum
and other disorders will begin airing Thursday, Feb. 5th from 10:30 to 11:30
a.m. Eastern time. Infants, Children and Families, a weekly program hosted by
Dr. Stanley Greenspan, will feature a variety of guest speakers and topics;
practical advice for parents, professionals and policymakers; and an opportunity
for listeners to ask questions by phone or by e-mail.
While the first half of the segment will focus on children with special needs,
the second half hour the show will turn its attention to issues related to
typically developing children. The inaugural show, “We Can Do Better,” will
focus on revising educational goals for all children to include thinking-based
academic programs rather than rote-based learning. It will include suggestions
for revising federal and local educational guidelines to include new
intellectual and social milestones. The web broadcast can be accessed at
www.floortime.org. A telephone number to call in questions will be listed on
the website.
Questions for Dr. Greenspan can be submitted in advance to:
floortimefoundation@...
The Floortime Foundation was established to develop the programs, resources and
technologies to dramatically increase the number of children and families who
will benefit from DIR/Floortime and other innovative methodologies.
Yahoo! Groups Sponsor
ADVERTISEMENT
--------------------------------------------------------------------------------
Yahoo! Groups Links
a.. To visit your group on the web, go to:
http://groups.yahoo.com/group/autism-georgia/
b.. To unsubscribe from this group, send an email to:
autism-georgia-unsubscribe@yahoogroups.com
c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
[Non-text portions of this message have been removed]
HI Again,
It has been my past experience working with families that Tricare Prime will
pay, but you must first get the prescription from your primary care manager
(doctor).
I'm not sure how disabled your child is, but you may want to seriously consider
the option of tricare standard for your child. This eliminates the need for a
middle man in most cases. For instance, a few weeks ago, my 3 year old stopped
breathing several times throughout the night. (Sleep apnea). If I had tricare
prime I would have had to go through a primary doctor, to get a referral to a
specialist. Instead I went directly to the specialist, no middle man, no wait
for referral.
Are you in a state that offers medicaid based on disability rather than on
parentts income? If so tricare standard is also a really appealing option at
that point, as medicaid generally pays your deductibles and catastrophic cap.
Are you also enrolled in Programs for Persons with Disabilities?
Warm regards,
Kelly
---------------------------------
Do you Yahoo!?
Yahoo! SiteBuilder - Free web site building tool. Try it!
[Non-text portions of this message have been removed]
Thank you, Kelly.
We have tricare prime. Do you know if they pay? I'll
work on those steps about an OT. I'll let you know
when I get some answers and/or services!
Christine
--- Kelly Herrick <kellyherricksc@...> wrote:
> Good Morning,
> Both of my sons have been receiving OT since they
> were 2. The OT addresses many skills including
> handwriting, doning and doffing clothes, zippers
> snaps and etc. As the child gets older they can
> work on pouring, shoe tying, the goals are endless.
> Many OT have specialized in sensory integration,
> which has helped both of my boys with various
> issues.
>
> My son's are covered under tricare standard and
> PFPWD, we received a script for an evaluation and
> treatment as needed. The as needed part gives the
> therapist the leeway to determine how many sessions
> a week are appropriate for your child's specific
> needs. Tricare standard has been paying for this
> service, leaving PFPWD funds open for other things.
>
> As far as your school system goes....put it in
> writing. Write a request for an occupational therapy
> evaluation. The school system is sometimes slow in
> following up, make sure you are following up on your
> end. Make sure that you make a copy for the
> teacher, guidance counselor, yourself and whomever
> else you feel is appropriate from your IEP team.
>
> Let me know how it goes for you! Best of luck!
>
> Warm regards,
> Kelly
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Hotjobs: Enter the "Signing Bonus"
> Sweepstakes
>
> [Non-text portions of this message have been
> removed]
>
>
__________________________________
Do you Yahoo!?
Yahoo! Hotjobs: Enter the "Signing Bonus" Sweepstakes
http://hotjobs.sweepstakes.yahoo.com/signingbonus
Good Morning,
Both of my sons have been receiving OT since they were 2. The OT addresses many
skills including handwriting, doning and doffing clothes, zippers snaps and etc.
As the child gets older they can work on pouring, shoe tying, the goals are
endless. Many OT have specialized in sensory integration, which has helped both
of my boys with various issues.
My son's are covered under tricare standard and PFPWD, we received a script for
an evaluation and treatment as needed. The as needed part gives the therapist
the leeway to determine how many sessions a week are appropriate for your
child's specific needs. Tricare standard has been paying for this service,
leaving PFPWD funds open for other things.
As far as your school system goes....put it in writing. Write a request for an
occupational therapy evaluation. The school system is sometimes slow in
following up, make sure you are following up on your end. Make sure that you
make a copy for the teacher, guidance counselor, yourself and whomever else you
feel is appropriate from your IEP team.
Let me know how it goes for you! Best of luck!
Warm regards,
Kelly
---------------------------------
Do you Yahoo!?
Yahoo! Hotjobs: Enter the "Signing Bonus" Sweepstakes
[Non-text portions of this message have been removed]
I was talking to a friend who is a PT. She told me to
ask for an occupational therapist for my daughter as
services for autism. It's suppose to help with life
skills. Can anyone help me where and whom do I ask
for this service. Do I go to the pediatrician and
then request an IEP? Please help.
__________________________________
Do you Yahoo!?
Yahoo! Hotjobs: Enter the "Signing Bonus" Sweepstakes
http://hotjobs.sweepstakes.yahoo.com/signingbonus
NEW - FAQ
on the Autism Europe EYPD 2003 web pages on
< http://www.autismeurope.org >
from your contributions collected through the 'Lisbon 2003 - Call for
Questions' forum and discussed at the special session "Living with Autism"
at the 7th Autism Europe International Conference in Lisbon.
Help to increase autism awareness - consult, print and disseminate the
documents available on the EYPD 2003 pages:
… Autism Awareness document
… Autism Awareness Leaflet
… Autism and Inclusion Position Paper
… Autism and Employment Position Paper
… Autism and Ageing Position Paper
… Autism and Health Position Paper (revised)
… Autism and Education Position Paper (revised)
… Non-discrimination and Disability (on the Good Practice and Legislation
Forum)
… FAQ (on the supplementary forum: Lisbon 2003 - FAQ)
Please forward this message to those you know who have a concern for people
with autism and their families
With thanks
[Non-text portions of this message have been removed]
Fire Sale!
In an effort to raise critically-needed funds for the multi-org projects listed
below, everyone in the community has a chance to get some bargain-priced goodies
for 24-hours only!
Thursday, January 15th, 2004, starting at 8:00 AM, prices on autism-themed
merchandise will be marked down 50% to 70%.
For 24 hours, everyone in the autism community and beyond can snag some mega
deals for a good cause. If you'd like to buy all the Moms in your support group
a gift in time for Valentine's Day, this is the way to do it! Some items will
sell for as low as $.50 for 24 hours only! Buy for your kids, your family, or
yourself. Imagine the awareness you'll raise in your community while helping to
raise funds for research and family programs. Limited quantities available on
some items so shop early!
ALL proceeds will go to the projects listed below. The National Autism
Association is a nonprofit, not-for-salary organization. Prices will be marked
back up starting at 8:00 AM January 16th.
Please forward this on to family and friends. With everyone's help, we all can
get so much accomplished in 2004. Thank you.
Projects:
NAA Crisis Fund:
Sometimes tragedies happen within the ASD Community. A family may lose their
home, their employment, etc. The crisis fund would provide families in urgent
need with financial support whether it be for emergency shelter or covering
medical/funeral expenses should the unthinkable happen.
SafeMinds
Vaccine Safety Database Research Project
Enter our Online Store Here!
The NAA Team
National Autism Association
Phone: 877-NAA-AUTISM
Email: naa@...http://nationalautismassociation.org/
[Non-text portions of this message have been removed]
on 1/5/04 12:01 AM, vmi89 at vmi89@... wrote:
> We just moved to Colorado last year, and are looking to future
> assignments possibly in the next two years. We have a 2 and a half
> year old son with autism, hearing loss w/aids, feeding difficulties
> that resulted in him getting a g-tube. The potential places are
> Hawaii, Washington State, San Diego, or Norfolk. Does anyone have
> any input on what states are better providing autism services (ie
> ABA therapy, special needs services in school, etc?) We have found
> that for early intervention here in Colorado Springs, you have to do
> all your own footwork and reinvent the wheel apparently. I am
> seeking out qualified therapists for my son, because apparently the
> early intervention program has never heard of conventional ABA or
> other treatments for autism. We will soon see about the district we
> live in when it comes to preschool for our son. I'll write up a
> summary of that experience when that happens. I'd appreciate any
> input, if you have comparisons from any of the listed states, to
> help us with the decision to move when it comes.
Well, i know in general the Hampton Roads area stinks for services.
(although i lived there for 6 years before having my son and loved it)
I would look into San Diego- not only is it a great area for Navy (i've
heard from military in general) california has such a high rate of autism
they have to have services state wide (i would think- don't know for sure)
But I know there are a lot of autism parent groups there.
good luck, i'm staying on Long Island (even if my husband lives 10,000 miles
away)
christine
We just moved to Colorado last year, and are looking to future
assignments possibly in the next two years. We have a 2 and a half
year old son with autism, hearing loss w/aids, feeding difficulties
that resulted in him getting a g-tube. The potential places are
Hawaii, Washington State, San Diego, or Norfolk. Does anyone have
any input on what states are better providing autism services (ie
ABA therapy, special needs services in school, etc?) We have found
that for early intervention here in Colorado Springs, you have to do
all your own footwork and reinvent the wheel apparently. I am
seeking out qualified therapists for my son, because apparently the
early intervention program has never heard of conventional ABA or
other treatments for autism. We will soon see about the district we
live in when it comes to preschool for our son. I'll write up a
summary of that experience when that happens. I'd appreciate any
input, if you have comparisons from any of the listed states, to
help us with the decision to move when it comes.
my son is tube fed currently, and his formula (similar to pediasure)
is paid for by Tricare. At this time it is paid by Tricare Prime, I
was told that I could save the PFPWD benefit for something else so
we don't have the pharmacy bill PFPWD. I think that if you can get
the doctor to write a prescription for the pediasure, you may be
able to get it paid for. Your Tricare case manager should be able
to help you too. As far as diapers, because your child is disabled,
you could probably see if PFPWD would pay for them. Best of luck
there. What state do you reside in if I may ask? We are in CO.
--- In
militaryfamiliesautismsupport@yahoogroups.com, "shy1hummingbird"
<shy1hummingbird@c...> wrote:
> Just curious if anyone knows if Tricare would give prescriptions
for
> pull ups, diapers, or pediasure... My son is almost 4 with autism
> and is not potty trained yet. I know some insurances pay for
diapers
> and stuff and was wondering if Tricare is the same?
> Probably not, but just curious if anyone has tried...
> Thanks
> Sharon
http://www.supportourtroopsiniraq.com
Listing servicemembers in 50 states -- LIST YOURS!
Soldier-letters-and-news from the Iraq-front, photos, learn how to "Support Our
Troops" - Post messages, email messages and more. Learn, explore, support, JOIN
THE EFFORT!
www.supportourtroopsiniraq.com
"Support Our Troops" live-internet-radio-show COMING SOON! Call the show, email
the show. Listen via computer by visiting the website. Join
www.danforantiniraq.com
---------------------------------
Do you Yahoo!?
Yahoo! Photos - Get your photo on the big screen in Times Square
[Non-text portions of this message have been removed]
http://www.supportourtroopsiniraq.com
Listing servicemembers in 50 states -- LIST YOURS!
Soldier-letters-and-news from the Iraq-front, photos, learn how
to "Support Our Troops" - Post messages, email messages and more.
Learn, explore, support, JOIN THE EFFORT!
www.supportourtroopsiniraq.com
"Support Our Troops" live-internet-radio-show COMING SOON! Call the
show, email the show. Listen via computer by visiting the website.
Join
www.danforantiniraq.com
Hi there! Happy Holidays!
I'm curious to see if any of you on this listserv have lost SSI due
to BAH? Its my understanding that BAH is not supposed to be
calculated as income as of this past April. I realize this is a new
concept to many SSA offices, however, the case worker for my sons
seems to have no clue. Any thoughts on this would be greatly
appreciated.
Warm regards,
Kelly
www.specialneedsconsultant.com
Oh, I also received the following in an email, thought you all may
find it interesting.
SCHAFER AUTISM REPORT "Healing Autism:
No Finer a Cause on the Planet"
________________________________________________________________
Sunday, December 21, 2003 Vol. 7 No. 252
The Sound Of Silence
[With apologies to Simon and Garfunkle.]
Hello autism, my old friend.
I've come to battle you again.
Because an insult softly creeping
Left its seeds while I was sleeping
And the insult that was planted in his brain
Still remains
Within the sound of silence.
In restless dreams we walked alone,
Narrow streets of cobblestone
`Neath the halo of a street lamp,
I held my son from the cold and damp
When my eyes were stabbed by the flash
of a neon light
That split the night
And touched the sound of silence.
And in the naked light I saw
Ten thousand children, maybe more.
Children talking without speaking,
Children hearing without listening.
Children singing songs that voices never shared,
No doctor dared
Disturb the sound of silence.
"Doc," said I, "you do not know,
Autism like a cancer grows.
Hear my words that I might teach you,
Take my arms that I might reach you."
But my words like silent raindrops fell
And echoed in the wells of silence.
And the doctors bowed and prayed
To the pharma gods who paid
And the sign flashed out its warning
In the words that it was forming.
And the sign said "The words of the parents are
written often, loud and tall;
Emailed one and all:
Raging against the sound of silence."
-By L. Schafer
The article written about Xander and his canine companion, Woody is finally up
on the website. You may see it at www.gwinnettcitizen.com
If anyone wants to pick the article up, calling is quicker than email for the
editor. Her name is Carolyn.
Adrienne Rousseau
Vice President
National Autism Association
Phone: 877-NAA-AUTISM
Email: Adrienne@...http://www.nationalautismassociation.org
[Non-text portions of this message have been removed]