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#3835 From: "taylorsmama01" <taylorsmama01@...>
Date: Thu May 7, 2009 11:39 am
Subject: Re: How do you get Tricare to approve a DAN doctor?
taylorsmama01
Offline Offline
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Our DAN dr, like most, does not take any kind of insurance.  We pay out of
pocket then submit our claims to Tricare.  We are Prime, but since there is "no
referral" it falls under standard.  Once we met our deductible, we started
getting reimbursed.  Tricare covers a little more than half the cost.  HTH!

#3834 From: "Holley B." <holleybeeman@...>
Date: Thu May 7, 2009 10:00 am
Subject: Re: Advice requested
holleybeeman
Offline Offline
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Hi Cecilia.

  We are currently stationed in Mannheim Germany, and the school-based services
here are great. My son is in 2nd grade and currently receives both Speech and OT
through the school. He also has an aide for about 60% of the day. There are
other students as well who have an aide for the entire day. If your friend is
only looking for school services, this is the place to be.  ABA services are
limited here, anyone that I know who receives them has to drive elsewhere. The
SPED staff here at Mannheim ES is very enthusiastic and upbeat, and loves to
take our kids on field trips (so far they have gone bowling 3X, to Kid's World,
Burger King, the PX, and just this week to the Special Olympics in
Kaiserslautern).

Feel free to have your friend email me on or offboard, if she has more questions
or needs more info.

Holley

--- In militaryfamiliesautismsupport@yahoogroups.com, "cig_ptp" <cc_garin@...>
wrote:
>
> Hello all,
>
> I'm a mother of 3 children.  One who is autistic.  I am stationed at Kunsan
AB, Korea so that my son could go to an ABA-VB school.  He was fortunate to be
referred by the public school system to Y.A.L.E. Southeast.  It is the best
school I've found for him so far.
>
> I've run into a few parents who are here for similar reasons-to keep their
families in the same place or move them to a better place.
>
> I've had a lot of success using support groups in the past so I thought that I
would start here on the behalf of a friend.  I have a friend who has an autistic
son and his orders to Aviano will probably be cancelled due to lack of services
for his son.  His 9 year old son presently uses an aide and has speech therapy
provided by the school system. His son has no ABA services.  Aviano says that
the DODEA school system can not provide for his son. He wants to go to Europe
with his family.  Do you know if there are any DODEA schools in Europe that may
provide an aide and speech services?
>
> Thank you very much for your help.
>
> Cecilia
>

#3833 From: "pezzuto28" <pezzuto28@...>
Date: Thu May 7, 2009 5:26 am
Subject: How do you get Tricare to approve a DAN doctor?
pezzuto28
Offline Offline
Send Email Send Email
 
My developmental ped. wrote an order for us to see a "DAN" doctor. The order was
denied by tricare. Any suggestions?

#3832 From: "Michael E. Robinson, Sr." <peace4kids@...>
Date: Thu May 7, 2009 5:22 am
Subject: Military Families.. GET A FAPE NOW !!!
peace4kids
Online Now Online Now
Send Email Send Email
 
ello all,

We've worked very hard in the recent past to put together a non profit org. to
allow parents Nationally to gain the help of experienced Advocates not only
within our org's main office but as well throughout the country with the
umbrella of protection many need to be able to help parents promptly and with
accuracy.
Many of us have been in the same position before... Lost in the maze.. wondering
where to go.  For over 13 yrs. I've ran a 'solo mission' with the help of a few
combining Advocacy with Lobbying (one thing that doesn't work with a 501c3 which
has created this 'split' into two groups.. www.getafape.org being the new kid in
town..and a growing kid by the day !).  The need for parents to be able to find
refuse with the help of 'Protection and Advocacy' within individual states has
been hindered by yet another unfunded mandate - with the state's parents are
fighting paying a very very large majority of cost to keep them running. So, in
essence,  many parents are attempting to gain help at no avail..and being turned
down by more then likely good advocates with the best interests at heart but
unable to handle cases that don't involve the most serious of abuses.
It is in our opinion that one of the worst abuses is the lack of a Free and
Appropriate Public Education.  Without this, our children grow to need more and
more supports with less and less control in the hands of the parents..and most
important... in the hands of the child that is now a teen ready to transition.
From problems with the provisions of the simplest of modalities such as ABA,
Floortime, and so many more... all the way to the provision of the most very
simple items such as Speech Language Therapy or O.T. I have found that many
districts are cutting the corners quite a bit short.  This doesn't just effect
the taxpayers and the state in the future.. it most important.. effects the
child and his/her ability to be as 'free' in this world as possible by
transition into adulthood.
If you are having continued problems with your school district - they don't
follow the IEP/ARD,  They don't follow or track goals and benchmarks, they don't
follow a reconciliation agreement or actual settlement to stay out of due
process... whatever it may be that is standing in the way of a Free and
Appropriate Public Education..must be rid of.  Sometimes it just takes an
attitude 'adjustment' or a wake up call - sometimes it takes a bit more drastic
measures.
But,  what could be more 'drastic' then one of our kids falling through the
cracks of the system ?
We have everything from Time Out/Seclusion Rooms to 'lack of time given' and
'secluded by the help of aides/teachers' going on in our schools.  For ALL kids
in Special Education - I hope and pray for their very best.  For the parents..we
have an alternative that may help.   Please send me an email and let me know
whats good..or not so good about your child's program.  If your child has been
denied services, has had their IEP placement changed without notice, if you are
having a hard time getting an IEP scheduled or done or do not agree and feel you
need to move to the next venue...  ANYTHING that effects our children.. we want
to hear about.  It's time for ALL of our Children to ' Get a F.A.P.E.  ' Contact
me at yahoo@ peace4kids or contact us at www.getafape.org.   We look forward to
being that strong hand when even the strongest needs one..and the strong voice
that helps those speak for thier child - but most of all, we look forward to
teaching what we know to other parents and advocates.
I look forward to talking with you.  My contact info is on my Lobbyist site at
www.officeofautismadvocacy.com . There are a few very informative video's about
controlling your IEP that I think will help many - watch them.. it only costs
your time.

Sincerely,
Michael E. Robinson, SR.
www.getafape.org
Michael's father (16, non verbal Autism)

#3831 From: "Campbell, Scott A LTC MIL USA ATEC" <scott.alan.campbell@...>
Date: Wed May 6, 2009 4:29 pm
Subject: RE: [Military Families Autism Support] Advice requested (UNCLASSIFIED)
campbel32000
Offline Offline
Send Email Send Email
 
Classification: UNCLASSIFIED
Caveats: FOUO

Cecilia, having lived in Europe for a total of nearly 10 out of 27 years in
the military, I would never take a child with autism to continental Europe due
to the nearly complete lack of appropriate services.  In spite of what DODEA
folks will tell you, they can barely spell ABA, much less actually implement
it in the schools.  Also, there is only one BCBA or BCABA that is approved by
TRICARE in Germany, and there are only two in Italy (one in Florence and one
in Venice), but I doubt either of them is approved by TRICARE.  The UK has
more BCBAs, but I would definitely not take a kid with autism to continental
Europe.  Good luck!  Scott

-----Original Message-----
From: militaryfamiliesautismsupport@yahoogroups.com
[mailto:militaryfamiliesautismsupport@yahoogroups.com] On Behalf Of cig_ptp
Sent: Wednesday, May 06, 2009 10:20 AM
To: militaryfamiliesautismsupport@yahoogroups.com
Subject: [Military Families Autism Support] Advice requested



Hello all,

I'm a mother of 3 children. One who is autistic. I am stationed at Kunsan AB,
Korea so that my son could go to an ABA-VB school. He was fortunate to be
referred by the public school system to Y.A.L.E. Southeast. It is the best
school I've found for him so far.

I've run into a few parents who are here for similar reasons-to keep their
families in the same place or move them to a better place.

I've had a lot of success using support groups in the past so I thought that I
would start here on the behalf of a friend. I have a friend who has an
autistic son and his orders to Aviano will probably be cancelled due to lack
of services for his son. His 9 year old son presently uses an aide and has
speech therapy provided by the school system. His son has no ABA services.
Aviano says that the DODEA school system can not provide for his son. He wants
to go to Europe with his family. Do you know if there are any DODEA schools in
Europe that may provide an aide and speech services?

Thank you very much for your help.

Cecilia

Classification: UNCLASSIFIED
Caveats: FOUO




[Non-text portions of this message have been removed]

#3830 From: "cig_ptp" <cc_garin@...>
Date: Wed May 6, 2009 2:25 pm
Subject: Re: [Military Families Autism Support] Orders cancelled NEED HELP FINDING ABA
cig_ptp
Offline Offline
Send Email Send Email
 
My family lives at McGuire AFB, NJ.  The Pemberton School District, one of the
districts off-base, does offer ABA therapy in the school system.  I've checked. 
The EFMP program sent us a letter saying that there isn't ABA therapy in the
school system.  Our son is non-verbal and has moderate autism so he got referred
to a non-profit school, Y.A.L.E. SE.  I've been told that there are ABA services
available but with a waiting list.  I've not had the opportunity to look myself
due to not living with my family presently.  I've been told that there is a
large autism community at McGuire/Fort Dix/Fort Lakehurst.

Cecilia
--- In militaryfamiliesautismsupport@yahoogroups.com, Ketzie De Gorostiza
<ketzie79@...> wrote:
>
> Hi,
>
> Charleston, SC has BCBA's available with little to no wait.  We are DEMO and
> get both BCBA and Line Therapy.  There are many others than the ones below,
> but I do not know them or have their information.
>
> http://www.sceap.com/index2.shtml
> http://www.starcarolina.com/index.html
>
> Good Luck,
>
> Ketzie
>
> On Tue, Apr 28, 2009 at 8:53 AM, patmarq68 <patmarq68@...> wrote:
>
> >
> >
> > We were suppose to fly out next month and last Friday at 5pm our orders to
> > Minot got cancelled due to the lack of ABA services in the area.
> > My husband has been in close contact with AFPC(or someone). They pulled up
> > a list that has the following places:
> >
> > McCord, AFB Washington
> >
> > Scott, Ill.
> >
> > Luke Az.
> >
> > Charleston South Carolina
> >
> > Moody Georgia
> >
> > I have been doing some research and have been on the phone non-stop. This
> > is difficult since we live in Germany.
> >
> > Please if their is anyone who has children in the ABA program any
> > information would be greatly appreciated. We are trying to get as much info
> > for ouselves and the powers that be so we can all make the right decision
> > for our boys. Thank you so much!!
> >
> > Warmest Regards,
> > Proud Air Force Family
> > Patrick, Shelli, Aidan, and Ethan
> >
> >
> >
>
>
>
> --
> Ketzie De Gorostiza
> Need Threelac or other vitamins and minerals click here:
> www.ghthealth.com/autism/
> Family Website:  www.ineedhelpwithautism.com
> ketzie79@...
> "It does not matter how slowly you go so long as you do not stop." Confucius
>
>
> [Non-text portions of this message have been removed]
>

#3829 From: "cig_ptp" <cc_garin@...>
Date: Wed May 6, 2009 2:20 pm
Subject: Advice requested
cig_ptp
Offline Offline
Send Email Send Email
 
Hello all,

I'm a mother of 3 children.  One who is autistic.  I am stationed at Kunsan AB,
Korea so that my son could go to an ABA-VB school.  He was fortunate to be
referred by the public school system to Y.A.L.E. Southeast.  It is the best
school I've found for him so far.

I've run into a few parents who are here for similar reasons-to keep their
families in the same place or move them to a better place.

I've had a lot of success using support groups in the past so I thought that I
would start here on the behalf of a friend.  I have a friend who has an autistic
son and his orders to Aviano will probably be cancelled due to lack of services
for his son.  His 9 year old son presently uses an aide and has speech therapy
provided by the school system. His son has no ABA services.  Aviano says that
the DODEA school system can not provide for his son. He wants to go to Europe
with his family.  Do you know if there are any DODEA schools in Europe that may
provide an aide and speech services?

Thank you very much for your help.

Cecilia

#3828 From: "singinggrass1" <singinggrass1@...>
Date: Wed May 6, 2009 1:42 pm
Subject: Re: New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
singinggrass1
Offline Offline
Send Email Send Email
 
I believe this phenomenon was announced about two years ago by Kennedy Krieger
Institute in Baltimore, MD. The study was published in the journal Pediatrics.

Vicky

--- In militaryfamiliesautismsupport@yahoogroups.com, jothomas111 <no_reply@...>
wrote:
>
> Oh my god, thank you for posting this....
> It makes me feel so validated after what happened to my son in June of 07'.
>
> My son Brendon has never really caught a "regular cold" but he is prone to
every stomach flu that happens to come around. It was strange than when one
evening he felt hot but there was no vomiting, I tried to give him Tylenol but
he wouldn't take it, it is usually a fight to get him to take any medicine.
While I tried to pin him, he looked right at me and yelled, "mom, why do I have
to take that god damn stuff, I don't like it and tastes nasty.."... I stopped
what I was doing.. sat up and than told him I had to give it to him because he
his sick. I than asked him if his stomach hurt or if he needed to throw up.. he
told me " my tummy is fine, I don't have to puke, I am just really hot."  During
this whole time he made full eye contact with me, was actually comprehending
everything I was telling him and I was shocked. I than went downstairs and
slipped the tylenol into his apple juice, rushed around the house looking for a
digital camera to record and forgot that the husband took it on deployment. I
went back upstairs gave him the juice he put his tongue in it and looked right
at me and said " I know you put in here..." I than told him you are not going to
get better if you don't take it.. he than told me "fine, and he drank it. Than
he told me he was done and was going to bed now, good night mom...
>
>     In June of 07' Brendon had just turned 5 years of age, and was only
speaking in 3 to 4 word sentences... wasn't good at maintaining any eye contact
and had only been in ABA therapy for 3 weeks. We are in the Central Valley of
California stationed at NAS Lemoore. I tried asking professionals here and no
one could tell me anything and of course thought it was either a fluke or maybe
something was wrong with me. A friend had mentioned a theory about this that she
read on some medical article while she was attending college Pepperdine
University, but I couldn't find it or I just hadn't typed in the correct
information....
>
> Thank you..
>
> Joyce Thomas-Hedrick
>
> --- In militaryfamiliesautismsupport@yahoogroups.com, "renee_lyn17"
<renee_lyn17@> wrote:
> >
> > New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
> > ScienceDaily (Apr. 2, 2009) —
> > http://www.sciencedaily.com/releases/2009/04/090401145312.htm
> >
> > Scientists at Albert Einstein College of Medicine of Yeshiva
> > University have proposed a sweeping new theory of autism that suggests
> > that the brains of people with autism are structurally normal but
> > dysregulated, meaning symptoms of the disorder might be reversible.
> >
> > The central tenet of the theory, published in the March issue of
> > Brain Research Reviews, is that autism is a developmental disorder
> > caused by impaired regulation of the locus coeruleus, a bundle of
> > neurons in the brain stem that processes sensory signals from all
> > areas of the body.
> >
> > The new theory stems from decades of anecdotal observations that some
> > autistic children seem to improve when they have a fever, only to
> > regress when the fever ebbs. A 2007 study in the journal Pediatrics
> > took a more rigorous look at fever and autism, observing autistic
> > children during and after fever episodes and comparing their behavior
> > with autistic children who didn't have fevers. This study documented
> > that autistic children experience behavior changes during fever.
> >
> > "On a positive note, we are talking about a brain region that is not
> > irrevocably altered. It gives us hope that, with novel therapies, we
> > will eventually be able to help people w
> > ith autism," says theory
> > co-author Mark F. Mehler, M.D., chairman of neurology and director of
> > the Institute for Brain Disorders and Neural Regeneration at Einstein.
> >
> > Autism is a complex developmental disability that affects a person's
> > ability to communicate and interact with others. It usually appears
> > during the first three years of life. Autism is called a "spectrum
> > disorder" since it affects individuals differently and to varying
> > degrees. It is estimated that one in every 150 American children has
> > some degree of autism.
> >
> > Einstein researchers contend that scientific evidence directly points
> > to the locus coeruleus–noradrenergic (LC-NA) system as being
> > involved in autism. "The LC-NA system is the only brain system
> > involved both in producing fever and controlling behavior," says
> > co-author Dominick P. Purpura, M.D., dean emeritus and distinguished
> > professor of neuroscience at Einstein.
> >
> > The locus coeruleus has widespread connections to brain regions that
> > process sensory information. It secretes most of the brain's
> > noradrenaline, a neurotransmitter that plays a key role in arousal
> > mechanisms, such as the "fight or flight" response. It is also
> > involved in a variety of complex behaviors, such as attentional
> > focusing (the ability to concentrate attention on environmental cues
> > relevant to the task in hand, or to switch attention from one task to
> > another). Poor attentional focusing is a defining characteristic of
> > autism.
> >
> > "What is unique about the locus coerule
> > us is that it activates almost
> > all higher-order brain centers that are involved in complex cognitive
> > tasks," says Dr. Mehler.
> >
> > Drs. Purpura and Mehler hypothesize that in autism, the LC-NA system
> > is dysregulated by the interplay of environment, genetic, and
> > epigenetic factors (chemical substances both within as well as outside
> > the genome that regulate the expression of genes). They believe that
> > stress plays a central role in dysregulation of the LC-NA system,
> > especially in the latter stages of prenatal development when the fetal
> > brain is particularly vulnerable.
> >
> > As evidence, the researchers point to a 2008 study, published in the
> > Journal of Autism and Developmental Disorders, that found a higher
> > incidence of autism among children whose mothers had been exposed to
> > hurricanes and tropical storms during pregnancy. Maternal exposure to
> > severe storms at mid-gestation resulted in the highest prevalence of
> > autism.
> >
> > Drs. Purpura and Mehler believe that, in autistic children, fever
> > stimulates the LC-NA system, temporarily restoring its normal
> > regulatory function. "This could not happen if autism was caused by a
> > lesion or some structural abnormality of the brain," says Dr. Purpura.
> >
> > "This gives us hope that we will eventually be able to do something
> > for people with autism," he adds.
> >
> > The researchers do not advocate fever therapy (fever induced by
> > artificial means), which would be an overly broad, and perhaps even
> > dangerous, remedy. Instead, they say, the
> >  future of autism treatment
> > probably lies in drugs that selectively target certain types of
> > noradrenergic brain receptors or, more likely, in epigenetic therapies
> > targeting genes of the LC-NA system.
> >
> > "If the locus coeruleus is impaired in autism, it is probably because
> > tens or hundreds, maybe even thousands, of genes are dysregulated in
> > subtle and complex ways," says Dr. Mehler. "The only way you can
> > reverse this process is with epigenetic therapies, which, we are
> > beginning to learn, have the ability to coordinate very large
> > integrated gene networks."
> >
> > "The message here is one of hope but also one of caution," Dr. Mehler
> > adds. "You can't take a complex neuropsychiatric disease that has
> > escaped our understanding for 50 years and in one fell swoop have a
> > therapy that is going to reverse it — that's folly. On the other
> > hand, we now have clues to the neurobiology, the genetics, and the
> > epigenetics of autism. To move forward, we need to invest more money
> > in basic science to look at the genome and the epigenome in a more
> > focused way."
> >
>

#3827 From: "Vivian Duckett" <impdegas@...>
Date: Wed May 6, 2009 11:04 am
Subject: RE: [Military Families Autism Support] Re: New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
impdegas
Offline Offline
Send Email Send Email
 
Wow! That's incredible.  I don't remember the last time my 7 year old ASD
had a fever.  Besides his seasonal allergies he rarely gets sick.  I need to
make a note of how he reacts next time he gets a fever.  It might be a long
time before that happens.

Vivian

   _____

From: militaryfamiliesautismsupport@yahoogroups.com
[mailto:militaryfamiliesautismsupport@yahoogroups.com] On Behalf Of
jothomas111
Sent: Wednesday, May 06, 2009 1:02 AM
To: militaryfamiliesautismsupport@yahoogroups.com
Subject: [Military Families Autism Support] Re: New Theory Of Autism
Suggests Symptoms Or Disorder May Be Reversible





Oh my god, thank you for posting this....
It makes me feel so validated after what happened to my son in June of 07'.

My son Brendon has never really caught a "regular cold" but he is prone to
every stomach flu that happens to come around. It was strange than when one
evening he felt hot but there was no vomiting, I tried to give him Tylenol
but he wouldn't take it, it is usually a fight to get him to take any
medicine. While I tried to pin him, he looked right at me and yelled, "mom,
why do I have to take that god damn stuff, I don't like it and tastes
nasty.."... I stopped what I was doing.. sat up and than told him I had to
give it to him because he his sick. I than asked him if his stomach hurt or
if he needed to throw up.. he told me " my tummy is fine, I don't have to
puke, I am just really hot." During this whole time he made full eye contact
with me, was actually comprehending everything I was telling him and I was
shocked. I than went downstairs and slipped the tylenol into his apple
juice, rushed around the house looking for a digital camera to record and
forgot that the husband took it on deployment. I went back upstairs gave him
the juice he put his tongue in it and looked right at me and said " I know
you put in here..." I than told him you are not going to get better if you
don't take it.. he than told me "fine, and he drank it. Than he told me he
was done and was going to bed now, good night mom...

In June of 07' Brendon had just turned 5 years of age, and was only speaking
in 3 to 4 word sentences... wasn't good at maintaining any eye contact and
had only been in ABA therapy for 3 weeks. We are in the Central Valley of
California stationed at NAS Lemoore. I tried asking professionals here and
no one could tell me anything and of course thought it was either a fluke or
maybe something was wrong with me. A friend had mentioned a theory about
this that she read on some medical article while she was attending college
Pepperdine University, but I couldn't find it or I just hadn't typed in the
correct information....

Thank you..

Joyce Thomas-Hedrick

--- In militaryfamiliesaut
<mailto:militaryfamiliesautismsupport%40yahoogroups.com>
ismsupport@yahoogroups.com, "renee_lyn17" <renee_lyn17@...> wrote:
>
> New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
> ScienceDaily (Apr. 2, 2009) -
> http://www.scienced
<http://www.sciencedaily.com/releases/2009/04/090401145312.htm>
aily.com/releases/2009/04/090401145312.htm
>
> Scientists at Albert Einstein College of Medicine of Yeshiva
> University have proposed a sweeping new theory of autism that suggests
> that the brains of people with autism are structurally normal but
> dysregulated, meaning symptoms of the disorder might be reversible.
>
> The central tenet of the theory, published in the March issue of
> Brain Research Reviews, is that autism is a developmental disorder
> caused by impaired regulation of the locus coeruleus, a bundle of
> neurons in the brain stem that processes sensory signals from all
> areas of the body.
>
> The new theory stems from decades of anecdotal observations that some
> autistic children seem to improve when they have a fever, only to
> regress when the fever ebbs. A 2007 study in the journal Pediatrics
> took a more rigorous look at fever and autism, observing autistic
> children during and after fever episodes and comparing their behavior
> with autistic children who didn't have fevers. This study documented
> that autistic children experience behavior changes during fever.
>
> "On a positive note, we are talking about a brain region that is not
> irrevocably altered. It gives us hope that, with novel therapies, we
> will eventually be able to help people w
> ith autism," says theory
> co-author Mark F. Mehler, M.D., chairman of neurology and director of
> the Institute for Brain Disorders and Neural Regeneration at Einstein.
>
> Autism is a complex developmental disability that affects a person's
> ability to communicate and interact with others. It usually appears
> during the first three years of life. Autism is called a "spectrum
> disorder" since it affects individuals differently and to varying
> degrees. It is estimated that one in every 150 American children has
> some degree of autism.
>
> Einstein researchers contend that scientific evidence directly points
> to the locus coeruleus-noradrenergic (LC-NA) system as being
> involved in autism. "The LC-NA system is the only brain system
> involved both in producing fever and controlling behavior," says
> co-author Dominick P. Purpura, M.D., dean emeritus and distinguished
> professor of neuroscience at Einstein.
>
> The locus coeruleus has widespread connections to brain regions that
> process sensory information. It secretes most of the brain's
> noradrenaline, a neurotransmitter that plays a key role in arousal
> mechanisms, such as the "fight or flight" response. It is also
> involved in a variety of complex behaviors, such as attentional
> focusing (the ability to concentrate attention on environmental cues
> relevant to the task in hand, or to switch attention from one task to
> another). Poor attentional focusing is a defining characteristic of
> autism.
>
> "What is unique about the locus coerule
> us is that it activates almost
> all higher-order brain centers that are involved in complex cognitive
> tasks," says Dr. Mehler.
>
> Drs. Purpura and Mehler hypothesize that in autism, the LC-NA system
> is dysregulated by the interplay of environment, genetic, and
> epigenetic factors (chemical substances both within as well as outside
> the genome that regulate the expression of genes). They believe that
> stress plays a central role in dysregulation of the LC-NA system,
> especially in the latter stages of prenatal development when the fetal
> brain is particularly vulnerable.
>
> As evidence, the researchers point to a 2008 study, published in the
> Journal of Autism and Developmental Disorders, that found a higher
> incidence of autism among children whose mothers had been exposed to
> hurricanes and tropical storms during pregnancy. Maternal exposure to
> severe storms at mid-gestation resulted in the highest prevalence of
> autism.
>
> Drs. Purpura and Mehler believe that, in autistic children, fever
> stimulates the LC-NA system, temporarily restoring its normal
> regulatory function. "This could not happen if autism was caused by a
> lesion or some structural abnormality of the brain," says Dr. Purpura.
>
> "This gives us hope that we will eventually be able to do something
> for people with autism," he adds.
>
> The researchers do not advocate fever therapy (fever induced by
> artificial means), which would be an overly broad, and perhaps even
> dangerous, remedy. Instead, they say, the
> future of autism treatment
> probably lies in drugs that selectively target certain types of
> noradrenergic brain receptors or, more likely, in epigenetic therapies
> targeting genes of the LC-NA system.
>
> "If the locus coeruleus is impaired in autism, it is probably because
> tens or hundreds, maybe even thousands, of genes are dysregulated in
> subtle and complex ways," says Dr. Mehler. "The only way you can
> reverse this process is with epigenetic therapies, which, we are
> beginning to learn, have the ability to coordinate very large
> integrated gene networks."
>
> "The message here is one of hope but also one of caution," Dr. Mehler
> adds. "You can't take a complex neuropsychiatric disease that has
> escaped our understanding for 50 years and in one fell swoop have a
> therapy that is going to reverse it - that's folly. On the other
> hand, we now have clues to the neurobiology, the genetics, and the
> epigenetics of autism. To move forward, we need to invest more money
> in basic science to look at the genome and the epigenome in a more
> focused way."
>



[Non-text portions of this message have been removed]

#3826 From: jothomas111
Date: Wed May 6, 2009 5:01 am
Subject: Re: New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
jothomas111
Offline Offline
 
Oh my god, thank you for posting this....
It makes me feel so validated after what happened to my son in June of 07'.

My son Brendon has never really caught a "regular cold" but he is prone to every
stomach flu that happens to come around. It was strange than when one evening he
felt hot but there was no vomiting, I tried to give him Tylenol but he wouldn't
take it, it is usually a fight to get him to take any medicine. While I tried to
pin him, he looked right at me and yelled, "mom, why do I have to take that god
damn stuff, I don't like it and tastes nasty.."... I stopped what I was doing..
sat up and than told him I had to give it to him because he his sick. I than
asked him if his stomach hurt or if he needed to throw up.. he told me " my
tummy is fine, I don't have to puke, I am just really hot."  During this whole
time he made full eye contact with me, was actually comprehending everything I
was telling him and I was shocked. I than went downstairs and slipped the
tylenol into his apple juice, rushed around the house looking for a digital
camera to record and forgot that the husband took it on deployment. I went back
upstairs gave him the juice he put his tongue in it and looked right at me and
said " I know you put in here..." I than told him you are not going to get
better if you don't take it.. he than told me "fine, and he drank it. Than he
told me he was done and was going to bed now, good night mom...

     In June of 07' Brendon had just turned 5 years of age, and was only speaking
in 3 to 4 word sentences... wasn't good at maintaining any eye contact and had
only been in ABA therapy for 3 weeks. We are in the Central Valley of California
stationed at NAS Lemoore. I tried asking professionals here and no one could
tell me anything and of course thought it was either a fluke or maybe something
was wrong with me. A friend had mentioned a theory about this that she read on
some medical article while she was attending college Pepperdine University, but
I couldn't find it or I just hadn't typed in the correct information....

Thank you..

Joyce Thomas-Hedrick

--- In militaryfamiliesautismsupport@yahoogroups.com, "renee_lyn17"
<renee_lyn17@...> wrote:
>
> New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
> ScienceDaily (Apr. 2, 2009) —
> http://www.sciencedaily.com/releases/2009/04/090401145312.htm
>
> Scientists at Albert Einstein College of Medicine of Yeshiva
> University have proposed a sweeping new theory of autism that suggests
> that the brains of people with autism are structurally normal but
> dysregulated, meaning symptoms of the disorder might be reversible.
>
> The central tenet of the theory, published in the March issue of
> Brain Research Reviews, is that autism is a developmental disorder
> caused by impaired regulation of the locus coeruleus, a bundle of
> neurons in the brain stem that processes sensory signals from all
> areas of the body.
>
> The new theory stems from decades of anecdotal observations that some
> autistic children seem to improve when they have a fever, only to
> regress when the fever ebbs. A 2007 study in the journal Pediatrics
> took a more rigorous look at fever and autism, observing autistic
> children during and after fever episodes and comparing their behavior
> with autistic children who didn't have fevers. This study documented
> that autistic children experience behavior changes during fever.
>
> "On a positive note, we are talking about a brain region that is not
> irrevocably altered. It gives us hope that, with novel therapies, we
> will eventually be able to help people w
> ith autism," says theory
> co-author Mark F. Mehler, M.D., chairman of neurology and director of
> the Institute for Brain Disorders and Neural Regeneration at Einstein.
>
> Autism is a complex developmental disability that affects a person's
> ability to communicate and interact with others. It usually appears
> during the first three years of life. Autism is called a "spectrum
> disorder" since it affects individuals differently and to varying
> degrees. It is estimated that one in every 150 American children has
> some degree of autism.
>
> Einstein researchers contend that scientific evidence directly points
> to the locus coeruleus–noradrenergic (LC-NA) system as being
> involved in autism. "The LC-NA system is the only brain system
> involved both in producing fever and controlling behavior," says
> co-author Dominick P. Purpura, M.D., dean emeritus and distinguished
> professor of neuroscience at Einstein.
>
> The locus coeruleus has widespread connections to brain regions that
> process sensory information. It secretes most of the brain's
> noradrenaline, a neurotransmitter that plays a key role in arousal
> mechanisms, such as the "fight or flight" response. It is also
> involved in a variety of complex behaviors, such as attentional
> focusing (the ability to concentrate attention on environmental cues
> relevant to the task in hand, or to switch attention from one task to
> another). Poor attentional focusing is a defining characteristic of
> autism.
>
> "What is unique about the locus coerule
> us is that it activates almost
> all higher-order brain centers that are involved in complex cognitive
> tasks," says Dr. Mehler.
>
> Drs. Purpura and Mehler hypothesize that in autism, the LC-NA system
> is dysregulated by the interplay of environment, genetic, and
> epigenetic factors (chemical substances both within as well as outside
> the genome that regulate the expression of genes). They believe that
> stress plays a central role in dysregulation of the LC-NA system,
> especially in the latter stages of prenatal development when the fetal
> brain is particularly vulnerable.
>
> As evidence, the researchers point to a 2008 study, published in the
> Journal of Autism and Developmental Disorders, that found a higher
> incidence of autism among children whose mothers had been exposed to
> hurricanes and tropical storms during pregnancy. Maternal exposure to
> severe storms at mid-gestation resulted in the highest prevalence of
> autism.
>
> Drs. Purpura and Mehler believe that, in autistic children, fever
> stimulates the LC-NA system, temporarily restoring its normal
> regulatory function. "This could not happen if autism was caused by a
> lesion or some structural abnormality of the brain," says Dr. Purpura.
>
> "This gives us hope that we will eventually be able to do something
> for people with autism," he adds.
>
> The researchers do not advocate fever therapy (fever induced by
> artificial means), which would be an overly broad, and perhaps even
> dangerous, remedy. Instead, they say, the
>  future of autism treatment
> probably lies in drugs that selectively target certain types of
> noradrenergic brain receptors or, more likely, in epigenetic therapies
> targeting genes of the LC-NA system.
>
> "If the locus coeruleus is impaired in autism, it is probably because
> tens or hundreds, maybe even thousands, of genes are dysregulated in
> subtle and complex ways," says Dr. Mehler. "The only way you can
> reverse this process is with epigenetic therapies, which, we are
> beginning to learn, have the ability to coordinate very large
> integrated gene networks."
>
> "The message here is one of hope but also one of caution," Dr. Mehler
> adds. "You can't take a complex neuropsychiatric disease that has
> escaped our understanding for 50 years and in one fell swoop have a
> therapy that is going to reverse it — that's folly. On the other
> hand, we now have clues to the neurobiology, the genetics, and the
> epigenetics of autism. To move forward, we need to invest more money
> in basic science to look at the genome and the epigenome in a more
> focused way."
>

#3825 From: "renee_lyn17" <renee_lyn17@...>
Date: Wed May 6, 2009 4:36 am
Subject: New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
renee_lyn17
Offline Offline
Send Email Send Email
 
New Theory Of Autism Suggests Symptoms Or Disorder May Be Reversible
ScienceDaily (Apr. 2, 2009) —
http://www.sciencedaily.com/releases/2009/04/090401145312.htm

Scientists at Albert Einstein College of Medicine of Yeshiva
University have proposed a sweeping new theory of autism that suggests
that the brains of people with autism are structurally normal but
dysregulated, meaning symptoms of the disorder might be reversible.

The central tenet of the theory, published in the March issue of
Brain Research Reviews, is that autism is a developmental disorder
caused by impaired regulation of the locus coeruleus, a bundle of
neurons in the brain stem that processes sensory signals from all
areas of the body.

The new theory stems from decades of anecdotal observations that some
autistic children seem to improve when they have a fever, only to
regress when the fever ebbs. A 2007 study in the journal Pediatrics
took a more rigorous look at fever and autism, observing autistic
children during and after fever episodes and comparing their behavior
with autistic children who didn't have fevers. This study documented
that autistic children experience behavior changes during fever.

"On a positive note, we are talking about a brain region that is not
irrevocably altered. It gives us hope that, with novel therapies, we
will eventually be able to help people w
ith autism," says theory
co-author Mark F. Mehler, M.D., chairman of neurology and director of
the Institute for Brain Disorders and Neural Regeneration at Einstein.

Autism is a complex developmental disability that affects a person's
ability to communicate and interact with others. It usually appears
during the first three years of life. Autism is called a "spectrum
disorder" since it affects individuals differently and to varying
degrees. It is estimated that one in every 150 American children has
some degree of autism.

Einstein researchers contend that scientific evidence directly points
to the locus coeruleus–noradrenergic (LC-NA) system as being
involved in autism. "The LC-NA system is the only brain system
involved both in producing fever and controlling behavior," says
co-author Dominick P. Purpura, M.D., dean emeritus and distinguished
professor of neuroscience at Einstein.

The locus coeruleus has widespread connections to brain regions that
process sensory information. It secretes most of the brain's
noradrenaline, a neurotransmitter that plays a key role in arousal
mechanisms, such as the "fight or flight" response. It is also
involved in a variety of complex behaviors, such as attentional
focusing (the ability to concentrate attention on environmental cues
relevant to the task in hand, or to switch attention from one task to
another). Poor attentional focusing is a defining characteristic of
autism.

"What is unique about the locus coerule
us is that it activates almost
all higher-order brain centers that are involved in complex cognitive
tasks," says Dr. Mehler.

Drs. Purpura and Mehler hypothesize that in autism, the LC-NA system
is dysregulated by the interplay of environment, genetic, and
epigenetic factors (chemical substances both within as well as outside
the genome that regulate the expression of genes). They believe that
stress plays a central role in dysregulation of the LC-NA system,
especially in the latter stages of prenatal development when the fetal
brain is particularly vulnerable.

As evidence, the researchers point to a 2008 study, published in the
Journal of Autism and Developmental Disorders, that found a higher
incidence of autism among children whose mothers had been exposed to
hurricanes and tropical storms during pregnancy. Maternal exposure to
severe storms at mid-gestation resulted in the highest prevalence of
autism.

Drs. Purpura and Mehler believe that, in autistic children, fever
stimulates the LC-NA system, temporarily restoring its normal
regulatory function. "This could not happen if autism was caused by a
lesion or some structural abnormality of the brain," says Dr. Purpura.

"This gives us hope that we will eventually be able to do something
for people with autism," he adds.

The researchers do not advocate fever therapy (fever induced by
artificial means), which would be an overly broad, and perhaps even
dangerous, remedy. Instead, they say, the
  future of autism treatment
probably lies in drugs that selectively target certain types of
noradrenergic brain receptors or, more likely, in epigenetic therapies
targeting genes of the LC-NA system.

"If the locus coeruleus is impaired in autism, it is probably because
tens or hundreds, maybe even thousands, of genes are dysregulated in
subtle and complex ways," says Dr. Mehler. "The only way you can
reverse this process is with epigenetic therapies, which, we are
beginning to learn, have the ability to coordinate very large
integrated gene networks."

"The message here is one of hope but also one of caution," Dr. Mehler
adds. "You can't take a complex neuropsychiatric disease that has
escaped our understanding for 50 years and in one fell swoop have a
therapy that is going to reverse it — that's folly. On the other
hand, we now have clues to the neurobiology, the genetics, and the
epigenetics of autism. To move forward, we need to invest more money
in basic science to look at the genome and the epigenome in a more
focused way."

#3824 From: "newdvfriends" <newdvfriends@...>
Date: Wed May 6, 2009 1:46 am
Subject: Message Alert - You Have 1 Important Unread Message!
newdvfriends
Offline Offline
Send Email Send Email
 
Message Alert - You Have 1 Important Unread Message!
http://coolababes.zoomshare.com/files/invite.htm

#3823 From: Angela Warner <autismrr@...>
Date: Tue May 5, 2009 5:11 pm
Subject: Re: [Military Families Autism Support] Candy Reyes- Ft. Lewis- Washington Pave
dnawarner
Offline Offline
Send Email Send Email
 
Hi Candy,

It was great talking with you this morning too. I'm glad you understand my
snarkiness - especially given the subject matter I am writing about. I got
on the site and they are "renovating" so I will have to check back, but it
looks good. Welcome to Washington. Not all Washatonians are as snarky as me
:D Just an FYI.

Thanks again,
Ang
P.S. I promise the rain will end soon. It's been a looooooong winter.

On Tue, May 5, 2009 at 10:00 AM, sevicandy <sevicandy@...> wrote:

>
>
> ---
> Hi Angela,
>
> Spoke to you this morning, and glad to always chat with you, granted I am
> sorry I missed your phone call, and please, always feel in contacting us, it
> was a joy to converse with this morning, and if Washington Pave and our 360
> program can be of service to you or families' you have my number, however as
> shared over the phone, please call Federation For Families they are national
> across the board pertaining to mental health mode.
>
> Kindly,
> Candy M. Reyes
> Washington PAVE
> 360 Navigator
> creyes@... <creyes%40wapave.org>
> 1-253-241-7562
>
> In
militaryfamiliesautismsupport@yahoogroups.com<militaryfamiliesautismsupport%40ya\
hoogroups.com>,
> Angela Warner <autismrr@...> wrote:
> >
> > Hi Candy,
> >
> > I am so happy to hear that you are the 360 navigator. I have tried to
> call
> > you three times tonight with no answer. How would you respond to a mom on
> > the verge of committing suicide? You put yourself out there and no one
> can
> > get ahold of you??? Yeh I have a PROBLEM with that. My hubby was just
> > pinned E-5 this week and is now gone.So, you're only working for E-4 and
> > below. I see a problem there... Would you care to respond???
> >
> > I may re-visit Harry Potter.
> > Welcome,
> > Ang
> >
> > On Mon, May 4, 2009 at 4:36 PM, sevicandy <sevicandy@...> wrote:
> >
> > >
> > >
> > > Hello All,
> > >
> > > I wanted to mention, that I am currently working full-time for
> Washington
> > > Pave, and serving our Mc A.F.Base and Ft. Lewis families; as 360
> Navigator.
> > > We are serving our enlisted (2 years) active duty families, E1 to E4 in
> the
> > > areas of mental health, special education, ECI, and Health Care!
> > >
> > > Please share as you all see fit and feel free in reaching us at,
> > >
> > > Washington Pave
> > > 6316 S. 12th Street
> > > Tacoma, WA 98465-1900
> > >
> > > 1-800-572-7368
> > > www.washingtonpave.org
> > >
> > > Kindly,
> > >
> > > Candy M. Reyes
> > > 360 Navigator
> > > 1-253-241-7562
> > >
> > >
> > >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>


[Non-text portions of this message have been removed]

#3822 From: "sevicandy" <sevicandy@...>
Date: Tue May 5, 2009 5:00 pm
Subject: Re: [Military Families Autism Support] Candy Reyes- Ft. Lewis- Washington Pave
sevicandy
Offline Offline
Send Email Send Email
 
---
Hi Angela,

Spoke to you this morning, and glad to always chat with you, granted I am sorry
I missed your phone call, and please, always feel in contacting us, it was a joy
to converse with this morning, and if Washington Pave and our 360 program can be
of service to you or families' you have my number, however as shared over the
phone, please call Federation For Families they are national across the board
pertaining to mental health mode.

Kindly,
Candy M. Reyes
Washington PAVE
360 Navigator
creyes@...
1-253-241-7562



In militaryfamiliesautismsupport@yahoogroups.com, Angela Warner <autismrr@...>
wrote:
>
> Hi Candy,
>
> I am so happy to hear that you are the 360 navigator. I have tried to call
> you three times tonight with no answer. How would you respond to a mom on
> the verge of committing suicide? You put yourself out there and no one can
> get ahold of you??? Yeh I have a PROBLEM with that. My hubby was just
> pinned  E-5 this week and is now gone.So, you're only working for E-4 and
> below. I see a problem there... Would you care to respond???
>
> I may re-visit Harry Potter.
> Welcome,
> Ang
>
> On Mon, May 4, 2009 at 4:36 PM, sevicandy <sevicandy@...> wrote:
>
> >
> >
> > Hello All,
> >
> > I wanted to mention, that I am currently working full-time for Washington
> > Pave, and serving our Mc A.F.Base and Ft. Lewis families; as 360 Navigator.
> > We are serving our enlisted (2 years) active duty families, E1 to E4 in the
> > areas of mental health, special education, ECI, and Health Care!
> >
> > Please share as you all see fit and feel free in reaching us at,
> >
> > Washington Pave
> > 6316 S. 12th Street
> > Tacoma, WA 98465-1900
> >
> > 1-800-572-7368
> > www.washingtonpave.org
> >
> > Kindly,
> >
> > Candy M. Reyes
> > 360 Navigator
> > 1-253-241-7562
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>

#3821 From: "Campbell, Scott A LTC MIL USA ATEC" <scott.alan.campbell@...>
Date: Tue May 5, 2009 1:36 pm
Subject: Looking for an active-Duty family with an individual with an Autism Spectrum Disorder living in NYC (UNCLASSIFIED)
campbel32000
Offline Offline
Send Email Send Email
 
Classification: UNCLASSIFIED
Caveats: FOUO

The parents coalition is looking for an active-Duty family with an
individual with an Autism Spectrum Disorder living in NYC to help with some
of our efforts there.  If you fit this bill, please contact Karen Driscoll
at karen0622@....  Thanks very much!  Scott
Classification: UNCLASSIFIED
Caveats: FOUO




[Non-text portions of this message have been removed]

#3820 From: Angela Warner <autismrr@...>
Date: Tue May 5, 2009 5:28 am
Subject: Re: [Military Families Autism Support] Candy Reyes- Ft. Lewis- Washington Pave
dnawarner
Offline Offline
Send Email Send Email
 
One more thing. You've wasted my time. I don't appreciate this. You might
want to be well prepared before you put yourself out there. :)
Ang

On Mon, May 4, 2009 at 10:24 PM, Angela Warner <autismrr@...> wrote:

> Well...  I hate to be cynical, but you are unavailable. How are you going
> to benefit Air Force Families? I have posted and tried to call you multiple
> times tonight. You've got a mom or dad in crisis... How are you gonna
> respond???
>
> My honest opinion, it's a waste. Shame on our government. So the 360 is now
> E-4 and below? Could you PLEASE explain? I'd like to know. Tell me about
> your child or children who have special needs. Would you like to introduce
> yourself in a personal way to the community??? Happy to have you here if you
> can do such :D
>
> Ohhhh forgive me. Been around the block with the AF. You didn't answer my
> calls or emails. What if I was mom in crisis?
> One tough Mom.
> Ang
>
>   On Mon, May 4, 2009 at 8:58 PM, Angela Warner <autismrr@...>wrote:
>
>> Hi Candy,
>>
>> I am so happy to hear that you are the 360 navigator. I have tried to call
>> you three times tonight with no answer. How would you respond to a mom on
>> the verge of committing suicide? You put yourself out there and no one can
>> get ahold of you??? Yeh I have a PROBLEM with that. My hubby was just
>> pinned  E-5 this week and is now gone.So, you're only working for E-4 and
>> below. I see a problem there... Would you care to respond???
>>
>> I may re-visit Harry Potter.
>> Welcome,
>> Ang
>>
>>   On Mon, May 4, 2009 at 4:36 PM, sevicandy <sevicandy@...> wrote:
>>
>>>
>>>
>>> Hello All,
>>>
>>> I wanted to mention, that I am currently working full-time for Washington
>>> Pave, and serving our Mc A.F.Base and Ft. Lewis families; as 360 Navigator.
>>> We are serving our enlisted (2 years) active duty families, E1 to E4 in the
>>> areas of mental health, special education, ECI, and Health Care!
>>>
>>> Please share as you all see fit and feel free in reaching us at,
>>>
>>> Washington Pave
>>> 6316 S. 12th Street
>>> Tacoma, WA 98465-1900
>>>
>>> 1-800-572-7368
>>> www.washingtonpave.org
>>>
>>> Kindly,
>>>
>>> Candy M. Reyes
>>> 360 Navigator
>>> 1-253-241-7562
>>>
>>>
>>>
>>
>>
>


[Non-text portions of this message have been removed]

#3819 From: Angela Warner <autismrr@...>
Date: Tue May 5, 2009 5:24 am
Subject: Re: [Military Families Autism Support] Candy Reyes- Ft. Lewis- Washington Pave
dnawarner
Offline Offline
Send Email Send Email
 
Well...  I hate to be cynical, but you are unavailable. How are you going to
benefit Air Force Families? I have posted and tried to call you multiple
times tonight. You've got a mom or dad in crisis... How are you gonna
respond???

My honest opinion, it's a waste. Shame on our government. So the 360 is now
E-4 and below? Could you PLEASE explain? I'd like to know. Tell me about
your child or children who have special needs. Would you like to introduce
yourself in a personal way to the community??? Happy to have you here if you
can do such :D

Ohhhh forgive me. Been around the block with the AF. You didn't answer my
calls or emails. What if I was mom in crisis?
One tough Mom.
Ang

On Mon, May 4, 2009 at 8:58 PM, Angela Warner <autismrr@...> wrote:

> Hi Candy,
>
> I am so happy to hear that you are the 360 navigator. I have tried to call
> you three times tonight with no answer. How would you respond to a mom on
> the verge of committing suicide? You put yourself out there and no one can
> get ahold of you??? Yeh I have a PROBLEM with that. My hubby was just
> pinned  E-5 this week and is now gone.So, you're only working for E-4 and
> below. I see a problem there... Would you care to respond???
>
> I may re-visit Harry Potter.
> Welcome,
> Ang
>
>   On Mon, May 4, 2009 at 4:36 PM, sevicandy <sevicandy@...> wrote:
>
>>
>>
>> Hello All,
>>
>> I wanted to mention, that I am currently working full-time for Washington
>> Pave, and serving our Mc A.F.Base and Ft. Lewis families; as 360 Navigator.
>> We are serving our enlisted (2 years) active duty families, E1 to E4 in the
>> areas of mental health, special education, ECI, and Health Care!
>>
>> Please share as you all see fit and feel free in reaching us at,
>>
>> Washington Pave
>> 6316 S. 12th Street
>> Tacoma, WA 98465-1900
>>
>> 1-800-572-7368
>> www.washingtonpave.org
>>
>> Kindly,
>>
>> Candy M. Reyes
>> 360 Navigator
>> 1-253-241-7562
>>
>>
>>
>
>


[Non-text portions of this message have been removed]

#3818 From: Angela Warner <autismrr@...>
Date: Tue May 5, 2009 3:58 am
Subject: Re: [Military Families Autism Support] Candy Reyes- Ft. Lewis- Washington Pave
dnawarner
Offline Offline
Send Email Send Email
 
Hi Candy,

I am so happy to hear that you are the 360 navigator. I have tried to call
you three times tonight with no answer. How would you respond to a mom on
the verge of committing suicide? You put yourself out there and no one can
get ahold of you??? Yeh I have a PROBLEM with that. My hubby was just
pinned  E-5 this week and is now gone.So, you're only working for E-4 and
below. I see a problem there... Would you care to respond???

I may re-visit Harry Potter.
Welcome,
Ang

On Mon, May 4, 2009 at 4:36 PM, sevicandy <sevicandy@...> wrote:

>
>
> Hello All,
>
> I wanted to mention, that I am currently working full-time for Washington
> Pave, and serving our Mc A.F.Base and Ft. Lewis families; as 360 Navigator.
> We are serving our enlisted (2 years) active duty families, E1 to E4 in the
> areas of mental health, special education, ECI, and Health Care!
>
> Please share as you all see fit and feel free in reaching us at,
>
> Washington Pave
> 6316 S. 12th Street
> Tacoma, WA 98465-1900
>
> 1-800-572-7368
> www.washingtonpave.org
>
> Kindly,
>
> Candy M. Reyes
> 360 Navigator
> 1-253-241-7562
>
>
>


[Non-text portions of this message have been removed]

#3817 From: "sevicandy" <sevicandy@...>
Date: Mon May 4, 2009 11:44 pm
Subject: Re: Candy Reyes- Ft. Lewis- Washington Pave
sevicandy
Offline Offline
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Mc Chord Airforce Base here in Washington State!

Thank you,
Candy



In militaryfamiliesautismsupport@yahoogroups.com, "sevicandy" <sevicandy@...>
wrote:
>
> Hello All,
>
> I wanted to mention, that I am currently working full-time for Washington
Pave, and serving our Mc  A.F.Base and Ft. Lewis families; as 360 Navigator.  We
are serving our enlisted (2 years) active duty families, E1 to E4 in the areas
of mental health, special education, ECI, and Health Care!
>
> Please share as you all see fit and feel free in  reaching us at,
>
> Washington Pave
> 6316 S. 12th Street
> Tacoma, WA 98465-1900
>
> 1-800-572-7368
> www.washingtonpave.org
>
> Kindly,
>
> Candy M. Reyes
> 360 Navigator
> 1-253-241-7562
>

#3816 From: "sevicandy" <sevicandy@...>
Date: Mon May 4, 2009 11:36 pm
Subject: Candy Reyes- Ft. Lewis- Washington Pave
sevicandy
Offline Offline
Send Email Send Email
 
Hello All,

I wanted to mention, that I am currently working full-time for Washington Pave,
and serving our Mc  A.F.Base and Ft. Lewis families; as 360 Navigator.  We are
serving our enlisted (2 years) active duty families, E1 to E4 in the areas of
mental health, special education, ECI, and Health Care!

Please share as you all see fit and feel free in  reaching us at,

Washington Pave
6316 S. 12th Street
Tacoma, WA 98465-1900

1-800-572-7368
www.washingtonpave.org

Kindly,

Candy M. Reyes
360 Navigator
1-253-241-7562

#3815 From: "Campbell, Scott A LTC MIL USA ATEC" <scott.alan.campbell@...>
Date: Mon May 4, 2009 9:04 pm
Subject: Autism, Medical and Education Information, 4 May 2009 (UNCLASSIFIED)
campbel32000
Offline Offline
Send Email Send Email
 
Classification: UNCLASSIFIED
Caveats: FOUO

I meant to send this out on last Friday, but I got a new government computer
last week and I could not get all of the files transferred until today, so
this is going out a few days later than I originally intended for it to go.
You will see that the format changed slightly for the news articles.  If
this is a problem for you, please send an email directly back to me  (not a
reply all to the whole list serv).  I do not know if I can do anything about
it, but I will try.  Enjoy!  Scott


All local event notices have been deleted, since they are primarily for
families living in Virginia and Maryland, and I did not want to send useless
information to the folks in the rest of the country. However, please let me
know if you live in Virginia, Maryland or DC; so that I can add you to my
private email distribution list for events in those states.


A doctoral student at the College of Notre Dame of Maryland in Baltimore, MD
is completing research as part of a requirement for a doctoral degree. The
purpose of the study is to explore the experiences of special education
teachers who are also parents of a child with a disability. I would like to
conduct face-to-face interviews with special education teachers who are also
parents of a child with a disability. I expect that the interviews will last
approximately one hour. You will be asked questions about your experiences
as a parent of a child with a disability, your experiences as a teacher of
children with disabilities and about your challenges, successes and conflict
in those roles. The interviews will be recorded and later transcribed. You
will also be asked, over a period of two weeks following the interview, to
write any additional thoughts you feel are important with regards to the
research topic. Those written thoughts will be added to the research data.
You will be provided with a summary of your interview and written comments
to make additional comments or corrections. The recorded data, the
transcriptions and your personal writing will be available only to the
researcher and members of the dissertation committee. Your identity will be
kept confidential and at the completion of the study, all data will be
destroyed.  If you would be willing to participate in this study or have
more questions, please contact me at 301-481-0931 or
pakoch@....

The Spring 2009 edition of the quarterly newsletter of Advisory Board On
Autism and Related Disorders is at
http://aboard.web.officelive.com/newsletter.aspx

"Ockham's Razor and autism: The case for developmental neurotoxins
contributing to a disease of neurodevelopment" dated 21 March 2009 by M.
Catherine DeSoto in a press release from the University of Northern Iowa at
http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6W81-4VWHVWY-1&_us
er=10&_rdoc=1&_fmt=&_orig=search&_sort=d&view=c&_acct=C000050221&_version=1&
_urlVersion=0&_userid=10&md5=597606bf9d664e3db464eef987cb6a7a

"Proof is in the poison: PCB toxins are hazardous to humans- Studies: Even
low levels alter brain's development" dated 19 April 2009 by Tony Walter
from the Green Bay Press-Gazette at
http://www.greenbaypressgazette.com/article/20090419/GPG0101/904190612/1207/
GPG01

"People With Autism May Be Ignored In Favour Of Quick Wins: A National
Autistic Society Response To The Budget 2009" dated 22 April 2009 in a press
release from the National Autistic Society (UK) at
http://www.medicalnewstoday.com/articles/147063.php

"Autism Speaks Joins the Missouri Autism Community In Applauding State
Senate Members for Passing Autism Insurance Legislation Missouri Senate Bill
167 Passes on Senate Floor" dated 23 April 2009 in a press release from
Autism Votes at
http://www.autismvotes.org/site/c.frKNI3PCImE/b.3937871/k.D446/Missouri.htm

"Parents say police beat autistic boy" dated 24 April 2009 from Chicago
Breaking News.com at
http://www.chicagobreakingnews.com/2009/04/post-1.html?obref=outbrain

"Mansfield family learns to cope with sisters' autism" dated 24 April 2009
by TERRICHA BRADLEY from the Mansfield News Journal at
http://www.mansfieldnewsjournal.com/article/20090424/LIFESTYLE/904240321

"The Principal And The Paddle- One South Carolina educator used corporal
punishment to turn around his struggling elementary school. Why he's so
conflicted about it." dated 25 April 2009 by Eric Adelson from NEWSWEEK at
http://www.newsweek.com/id/195119

"A lesson in understanding" dated 25 April 2009 by Danielle Portteus from
the Monroe News at
http://www.monroenews.com/article/20090425/NEWS01/304259998

"Student With Rare Autism Seeks Diploma- Father Files Lawsuit After
Controversy" dated 25 April 2009 from WSMV4 News at
http://www.wsmv.com/news/19289514/detail.html

"Mother's Immune Response May Play Role In Autism" dated 25 April 2009 in a
press release from Johns Hopkins Hospital at
http://www.redorbit.com/news/health/1677082/mothers_immune_response_may_play
_role_in_autism

"Family claims Chicago police officer beat autistic teenager- Cops decline
to discuss incident which they say is under investigation" dated 25 April
2009 by Lolly Bowean from the Chicago Tribune at
http://www.chicagotribune.com/news/local/chi-weis-cops-autism-26apr26,0,7986
452.story

"Critics say bill denies some sexual freedom- Aim is to protect mentally
disabled" dated 26 April 2009 by S.I. Rosenbaum from the Boston Globe at
http://www.boston.com/news/local/massachusetts/articles/2009/04/26/critics_s
ay_bill_denies_some_sexual_freedom/?page=full

"Growing up with Asperger's: School helps create normalcy" dated 26 April
2009 by Erin Pustay from the GateHouse News Service at
http://www.uticaod.com/lifestyles/x303482916/Growing-up-with-Aspergers-Schoo
l-helps-create-normalcy

"Autism Linked to Being Firstborn, Breech or Moms 35 and Older Giving Birth"
dated 26 April 2009 in a press release from the University of Utah School of
Medicine at http://www.newswise.com/articles/view/551657

"Utah researchers link autism to breech births" dated 27 April 2009 by
Heather May from The Salt Lake Tribune at
http://www.sltrib.com/news/ci_12220683

"Music helps tame teen's autistic symptoms" dated 27 April 2009 by D. AILEEN
DODD from The Atlanta Journal-Constitution at
http://www.ajc.com/metro/content/metro/gwinnett/stories/2009/04/27/autism_be
nefit_wild_bills.html

"Prenatal, Perinatal, and Neonatal Factors Associated With Autism Spectrum
Disorders" dated 27 April 2009 by Deborah Bilder, MD, Judith
Pinborough-Zimmerman, PhD, Judith Miller, PhD and William McMahon, MD from
the University of Utah School of Medicine at
http://pediatrics.aappublications.org/cgi/content/abstract/123/5/1293

"Forget Vaccines - Maybe We Can Lessen Autism By Having Fewer Firstborn
Children" dated 27 April 2009 from Scientific Blogging at
http://www.scientificblogging.com/news_articles/forget_vaccines_maybe_we_can
_lessen_autism_having_fewer_firstborn_children

"Parents Finding Yoga Helps Children With Autism" dated 27 April 2009 from
CBS11 News at http://cbs11tv.com/local/Autism.Therapeutic.Yoga.2.995824.html


"Supreme Court Weighs Funding for Special Education- Public schools'
responsibility to pay for disabled children in question." dated 27 April
2009 by Robert Barnes and Daniel de Vise from The Ledger at
http://www.theledger.com/article/20090427/NEWS/904275040/1005?Title=Supreme-
Court-Weighs-Funding-for-Special-Education

"Healthy Living: Autism can be managed with early intervention" dated 27
April 2009 by Ravi Prakash from The Norwich Bulletin at
http://www.norwichbulletin.com/lifestyles/x50634038/Healthy-Living-Autism-ca
n-be-managed-with-early-intervention

"Parents of autistic children attend training workshop" dated 27 April 2009
by Len Kiese from WALB10 News at
http://www.walb.com/Global/story.asp?S=10260497&nav=5kZQ

"M-A Little League forms new Challenger Division- M-A Red Sox travel
throughout the Bay Area" dated 27 April 2009 by Doug Kaufman from the M-A
Little League at http://www.almanacnews.com/news/show_story.php?id=3876

"Dogs Heel Autism" dated 27 April 2009 by JULIE FIEDLER from NBC4 TV News at
http://www.nbclosangeles.com/health/topics/Dogs-Heel-Autism.html

"Students plan hike for autism" dated 27 April 2009 by DAVID BRUCE from the
Erie Times-News at
http://www.goerie.com/apps/pbcs.dll/article?AID=/20090427/NEWS02/304279952/-
1/NEWS02

"Herding Squirrels: The zen of autism" dated 27 April 2009 by TRACI ARBIOS
from The Centre Daily Times at
http://www.centredaily.com/living/story/1251718.html

"Neighbors Go To War Over 4-Year-Old Boy- Neighbors Try To Restrict Boy,
Family To Home, Driveway" dated 27 April 2009 by Lauren Reynolds from
10News.com at http://www.10news.com/news/19306624/detail.html

"TEMECULA: Councilman helps raise autism awareness- Joins with area leaders
to help parents" dated 27 April 2009 by AARON CLAVERIE from The North County
Times at
http://www.nctimes.com/articles/2009/04/27/news/californian/temecula/z37a9bd
5da87458928825759e008179e0.txt

"Father inspires families with new book on autism" dated 27 April 2009 by
JANE SHANNON from KIRO Radio at
http://www.mynorthwest.com/?nid=11&sid=161052

"White House fails with Community Choice, 91 ADAPT activists arrested."
dated 27 April 2009 by Tim Wheat from the ADAPT Action Report at
http://www.adapt.org/freeourpeople/cca09/report03.htm

"Police Arresting Angry Members of the Disabled Community Who Are Picketing
White House" dated 27 April 2009 by Jake Tapper and Sunlen Miller from ABC
News at http://blogs.abcnews.com/politicalpunch/2009/04/police-arrestin.html


"Neighbors, Parents Spar Over Autistic Boy" dated 28 April 2009 from the
Post Chronicle at
http://www.postchronicle.com/news/breakingnews/article_212226398.shtml?ref=r
ss

"Risk of Autism Tied to Genes that Influence Brain Cell Connections" dated
28 April 2009 in a press release from the NIH at
http://www.nih.gov/news/health/apr2009/ninds-28.htm

"Step Forward in Autism Genetics" dated 28 April 2009 by Jennifer
Couzin-Frankel from ScienceNOW Daily News at
http://sciencenow.sciencemag.org/cgi/content/full/2009/428/2

"Autism Linked to Genes That Govern How the Brain Is Wired" dated 28 April
2009 by Claudia Wallis from Time magazine at
http://www.time.com/time/health/article/0,8599,1894409,00.html

"Fish Wish Shows Best of Autism Treatment" dated 28 April 2009 by Marc
Pickard from 11Alive News at
http://www.11alive.com/news/national/story.aspx?storyid=129587&catid=13

"Kresge announces autism support benefit pro-am during annual Bristol Rotary
charity golf tourney" dated 28 April 2009 by Pat Kenney from the
Times-News.net at http://www.timesnews.net/article.php?id=9013461

"Devices Aim to Help Children With Autism Speak" dated 28 April 2009 by
Rebekah Davis from The Washington Post at
http://www.washingtonpost.com/wp-dyn/content/article/2009/04/27/AR2009042702
695.html

"Unlock Your Health with OSR, The Powerful Antioxidant From CTI Science"
dated 28 April 2009 by Kim Stagliano from the Age of Autism blog at
http://www.ageofautism.com/2009/04/unlock-your-health-with-osr-the-powerful-
antioxidant-from-cti-science.html

"Parents want video of alleged attack on son- Couple reportedly was told
their autistic child was repeatedly assaulted on a bus." dated 28 April 2009
by Kathleen O'Dell from the Springfield News-Leader at
http://www.news-leader.com/article/20090428/NEWS01/904280320

"House Democrats walk out after 'Nick's law' defeat- The setback is the
latest in on- going efforts to get insurance coverage for autism." dated 28
April 2009 by MICHAEL MCNUTT from NewsOK.com at
http://www.tulsaworld.com/news/article.aspx?subjectid=11&articleid=20090428_
11_A11_OKLAHO826017

"Bill requiring autism coverage moves forward" dated 28 April 2009 from
KUSA9 TV News at
http://www.9news.com/news/article.aspx?storyid=114616&catid=339

"State program to aid autistic children should not be cut" dated 28 April
2009 by Dorian Kleinstuber in a letter to the editor of Delaware Online at
http://www.delawareonline.com/article/20090428/OPINION10/90427065/1004/OPINI
ON

"Phone alerts re wandering disabled, kids" dated 28 April 2009 from WXVT15
News at http://www.wxvt.com/Global/story.asp?S=10262384&nav=menu1344_2

"Autism still not covered under KSU benefits plan" dated 28 April 2009 by
Nicole Stempak from the Kent State University Office of Student Media at
http://media.www.kentnewsnet.com/media/storage/paper867/news/2009/04/28/News
/Autism.Still.Not.Covered.Under.Ksu.Benefits.Plan-3728744.shtml

"Adults with autism seek help, guidance" dated 28 April 2009 by Jan Biles
from The Topeka Capital-Journal at
http://www.cjonline.com/life/2009-04-28/adults_with_autism_seek_help_guidanc
e

"Chris Banner: Living with autism" dated 28 April 2009 by Jan Biles from The
Topeka Capital-Journal at
http://www.cjonline.com/life/2009-04-28/chris_banner_living_with_autism

"Bikers hit the streets for autistic kids" dated 28 April 2009 by Mary
Reeves from the Shelbyville Times-Gazette at
http://www.t-g.com/story/1534428.html

"Autism Genes Discovered; Help Shape Connections Among Brain Cells- Findings
Suggest Biological Reasons for Altered Early Neural Development" dated 28
April 2009 in a press release from Autism Speaks at
http://www.autismspeaks.org/press/autism_genes_discovered_chop.php

"Latest Autism Gene Studies Find..Not Very Much" dated 28 April 2009 by Mark
Blaxill from the Age of Autism blog at
http://www.ageofautism.com/2009/04/latest-autism-gene-studies-findnot-very-m
uch.html#more

"Martin J. Walker From the UK's GMC" dated 28 April 2009 by Martin J. Walker
from the Age of Autism blog at
http://www.ageofautism.com/2009/04/by-martin-j-walkerbroken-english--its-jus
t-an-old-warnot-even-a-cold-wardont-say-it-in-russiandont-say-it-in-germansa
y-i.html#more

"High Court Hears Special Education Case" dated 28 April 2009 by Erik W.
Robelen from Education Week at
http://www.edweek.org/ew/articles/2009/04/28/31scotus.h28.html?tkn=WZSFGrtc0
FtqFm4zDIDvULY%2FdVpXGcj31wC%2B

"High court: Who pays for special education?" dated 28 April 2009 by
MATTHHEW DALY from The Associated Press at
http://www.katu.com/news/national/43920887.html

"Research Points to Genetic Link in Autism- Scientists Unlock Groundbreaking
Clues in Understanding Genetics of Autism- Research Holds Promise for Future
Cure" dated 28 April 2009 by JOHN DONVAN and CAREN ZUCKER from ABC News at
http://abcnews.go.com/Health/AutismNews/Story?id=7451376&page=1

"Genes have key role in autism'- Scientists have produced the most
compelling evidence to date that genetics play a key role in autism." dated
28 April 2009 from BBC News (UK) at
http://news.bbc.co.uk/1/hi/health/8020837.stm

"LI student confirmed as swine flu victim LI student confirmed as swine flu
victim" dated 28 April 2009 by RIDGELY OCHS AND MICHAEL FRAZIER from
Newsday.com at
http://www.newsday.com/news/printedition/longisland/ny-liswin2912705700apr28
,0,66829.story

"Autism Speaks Joins the Minnesota Autism Community In Applauding State
House Members for Passing Autism Insurance Legislation- Amended Omnibus
Health and Human Services Finance Bill Passed by State House Last Night
Includes Autism Insurance Reform" dated 28 April 2009 in a press release
from Autism Votes at
http://www.autismvotes.org/site/c.frKNI3PCImE/b.4130579/k.EEF8/Minnesota.htm

"Autism Speaks Joins the Colorado Autism Community In Applauding State
Senate Members for Passing Autism Insurance Legislation Colorado Senate Bill
09-244 Passed on Senate Floor" dated 28 April 2009 in a press release from
Autism Votes at
http://www.autismvotes.org/site/c.frKNI3PCImE/b.4432805/k.D472/Colorado.htm

"First Neuroimaging Study Examining Motor Execution In Children With Autism
Reveals New Insights" dated 29 April 2009 in a press release from the
Kennedy Krieger Institute at
http://www.sciencedaily.com/releases/2009/04/090429142649.htm

"Autism Recovery: Pediatricians Coming Along Slooowly" dated 29 April 2009
by Holly Robinson Peete from The Huffington Post blog at
http://www.huffingtonpost.com/holly-robinson-peete/autism-recovery-pediatric
_b_191152.html

"Autism File Campaign Presents: The New Jersey Moms" dated 29 April 2009
from the Age of Autism blog at
http://www.ageofautism.com/2009/04/autism-filemagazine-is-running-a-campaign
-featuring-strong-beautiful-women-also-known-as-autism-mothers-heres-a-group
-from.html#more

"11/4/79 60 Minutes Episode Exposed Swine Flu Vaccine Injuries, Lack of
Safety" dated 29 April 2009 by Kim Stagliano from the Age of Autism blog at
http://www.ageofautism.com/2009/04/1141979-60-minutes-episode-exposed-swine-
flu-vaccine-injuries-lack-of-safety.html#more

"High Court Justices Weigh Funding for Special Education" dated 29 April
2009 by Tony Mauro from The National Law Journal at
http://www.law.com/jsp/article.jsp?id=1202430265066&pos=ataglance

"Autism research: Scientists find genetic variations linked to autism-
Reports show problems with brain cell communication may be related to
condition" dated 29 April 2009 by Trine Tsouderos from the Chicago Tribune
at
http://www.chicagotribune.com/health/chi-autism-genetics-29apr29,0,6754959.s
tory

"Maryland health officials identify 6 probable swine flu cases" dated 29
April 2009 by Julekha Dash from the Washington Business Journal at
http://www.bizjournals.com/washington/stories/2009/04/27/daily69.html

" utism-Related Genes Identified in Three Studies" dated 29 April 2009 by
John Gever from MedPage Today at
http://www.medpagetoday.com/Neurology/Autism/13960

"Boy, 13, found in California after missing from suburban Boca Raton" dated
29 April 2009 by Jerome Burdi from the South Florida Sun Sentinel at
http://www.sun-sentinel.com/news/local/breakingnews/sfl-missing-west-boca-bo
y-p042809,0,5254488.story

"Lawsuits shine light on restraint procedures in Aurora school districts"
dated 29 April 2009 by AARON COLE from The Aurora Sentinel at
http://www.aurorasentinel.com/articles/2009/04/29/news/metro_aurora/doc49f8b
0429d9be734597785.txt

"Drug companies abuse power by quashing evidence linking vaccines to autism"
dated 30 April 2009 by Nicole Crosby from Greenwich Times at
http://www.greenwichtime.com/ci_12264635

"Swine Flu, Part 2 - Media's Vaccine Injury Dichotomy" dated 30 April 2009
by Nancy Hokkanen from the Age of Autism blog at
http://www.ageofautism.com/2009/04/swine-flu-part-2-medias-vaccine-injury-di
chotomy.html#more

"NIH Commits $60 Million to Autism Research" dated 30 April 2009 in a press
release from the National Institutes of Health at
http://speech-language-pathology-audiology.advanceweb.com/editorial/content/
editorial.aspx?cc=198795

"The Last Day of Andrew Wakefield's Defence at the General Medical Council"
dated 30 April 2009 by John Stone from the Age of Autism blog at
http://www.ageofautism.com/2009/04/the-last-day-of-andrew-wakefields-defence
-at-the-general-medical-council.html#more

"New Autism Service, 'Ask Doctor Stacy,' Will Provide Support to Parents,
Professionals and Caregivers- Family and caregivers of loved ones with
autism often suffer from depression, anxiety, and feelings of being lost and
overwhelmed. And while media attention, autism societies, and help centers
focus on the many new exciting treatment possibilities and research
breakthroughs, what these "silent victims" of autism really need is
reassuring expertise, live support and follow-up, and a plan of action."
dated 30 April 2009 in a press release from the Autism Help Center at
http://www.emediawire.com/releases/2009/4/prweb2374044.htm

"Behavioral therapy isn't always right" dated 30 April 2009 by Jean Kearns
Miller in a letter to the editor of the Ann Arbor News at
http://www.mlive.com/opinion/ann-arbor/index.ssf/2009/04/letter_behavioral_t
herapy_isnt.html

"Gardasil Linked to Nerve Disorder- Cervical Cancer Vaccine May Raise Risk
of Guillain-Barre Syndrome" dated 30 April 2009 by Charlene Laino from WebMD
Health News at
http://www.webmd.com/cancer/cervical-cancer/news/20090430/gardasil-linked-to
-nerve-disorder?src=RSS_PUBLIC

"Communities look for ways to foster independence as autistic kids become
adults" dated 30 April 2009 by Kate Goshorn from the Medill Reports at
http://news.medill.northwestern.edu/chicago/news.aspx?id=127837

"Sports Program Teaches Autistic Kids Confidence- Sport Plus programs focus
on special needs children" dated 30 April 2009 by DOREEN GENTZLER from NBC4
News at
http://www.nbcwashington.com/health/tips_info/Sports-Program-Teaches-Autisti
c-Kids-Confidence.html

"Grace Notes: Asperger's and the rest of us" dated 30 April 2009 by Natalie
Costanza-Chavez from Fort Collins Now at
http://www.fortcollinsnow.com/article/20090430/NEWS/904299977/1026/FRONTPAGE


"Police, CFS officials question Suleman- The mother of the octuplets, Nadya
Suleman was questioned Wednesday by police and child welfare officials."
dated 30 April 2009 from ABC7 News at
http://abclocal.go.com/kabc/story?section=news/local/orange_county&id=679042
4

"Lawsuit says NY failed to protect disabled kids" dated 30 April 2009 by
ADAM GOLDMAN from The Associated Press at
http://www.google.com/hostednews/ap/article/ALeqM5izYvV-Kd0WIaVdQZZ8XYxwU6dB
QgD97T16581

"Youth center changes young man's life" dated 30 April 2009 by BRIAN J.
LOWNEY from the Rhode Island Catholic at
http://thericatholic.com/stories/2127.html

"Nanticoke teen hits high note" dated 1 May 2009 by Sherry Long from the
Times Leader at
http://www.timesleader.com/news/Nanticoke_teen_hits_high_note_05-01-2009.htm
l

"Cultural perceptions of mental health affect treatment" dated 1 May 2009 in
a press release from Autism Speaks at
http://www.columbiaspectator.com/2009/04/30/cultural-perceptions-mental-heal
th-affect-treatment

"Woman says son is bus aggressor; wants video" dated 1 May 2009 by Gregory
Trotter from the Springfield News-Leader at
http://www.news-leader.com/article/20090501/NEWS04/905010359

"A go-getter's game plan for success- Morristown teen's nonprofit encourages
autistic kids to enjoy sports, play together" dated 1 May 2009 by TANYA
DROBNESS from The Star-Ledger at
http://www.nj.com/news/ledger/jersey/index.ssf?/base/news-13/124115077530136
0.xml&coll=1

"Mom shares autistic son's story through children's book" dated 1 May 2009
by Adam Chodak from 9News.com at
http://www.9news.com/news/local/article.aspx?storyid=114852&catid=346

"Parents of autistic children move to Martin to get kids in Hope Center"
dated 1 May 2009 by Colleen Wixon from the Treasure Coast and Palm Beaches
at
http://www.tcpalm.com/news/2009/may/01/parents-autistic-children-move-martin
-get-kids-hop

"Autism sessions to draw 500 to S.J." dated 1 May 2009 by WILFORD S. SHAMLIN
from the South Jersey Courier-Post at
http://www.courierpostonline.com/article/20090501/NEWS01/905010342/1006/news
01

"ON MEDIA: Pay no Attention to that Tsunami." dated 1 May 2009 by Anne
Dachel from the Age of Autism blog at
http://www.ageofautism.com/2009/05/on-media-pay-no-attention-to-that-tsunami
.html#more

"May Day! (Every Day Is Autism Awareness Day)" dated 1 May 2009 by Lin
Wessels from the Age of Autism blog at
http://www.ageofautism.com/2009/05/may-day-every-day-is-autism-awareness-day
.html#more

"ON MEDIA: Pay no Attention to that Tsunami." dated 1 May 2009 by Anne
Dachel from the Age of Autism blog at
http://www.ageofautism.com/2009/05/on-media-pay-no-attention-to-that-tsunami
.html#more

"2 Hurt In Explosion At Hyperbaric Chamber Facility- One Woman & One Child
Hurt, Both Taken To Broward General Medical Center" dated 1 May 2009 by
Natalia Zea from CBS4 News at
http://cbs4.com/local/Hyperbaric.Chamber.Explosion.2.999108.html

"Woman dies a day after explosion at Lauderdale-by-the-Sea hyperbaric
clinic- Italian woman's death is first from oxygen chamber in U.S.;
4-year-old boy remains in critical condition" dated 2 May 2009 by Rachel
Hatzipanagos from the South Florida Sun Sentinel at
http://www.orlandosentinel.com/news/local/breakingnews/sfl-hyperbaric-explos
ion-bn050109,0,5237340.story?track=rss

"Meet Dustin Nunn, Author, Cartoonist, Adult with Autism" dated 2 May 2009
from the Age of Autism blog at
http://www.ageofautism.com/2009/05/meet-dustin-nunn-author-cartoonist-adult-
with-autism.html#more

"Politics, Profits & Pandemic Fear Mongering" dated 2 May 2009 by Barbara
Loe Fisher from the Age of Autism blog at
http://www.ageofautism.com/2009/05/politics-profits-pandemic-fear-mongering.
html#more

"Burglars Make Off With Boy's Communication Device" dated 2 May 2009 by
KENNETH DEAN from TylerPaper.com at
http://www.tylerpaper.com/apps/pbcs.dll/article?AID=/20090502/NEWS01/9050203
26

"'Green' lightbulbs poison workers- Hundreds of factory staff are being made
ill by mercury used in bulbs destined for the West" dated 3 May 2009 by
Michael Sheridan from the Sunday Times (UK) at
http://www.timesonline.co.uk/tol/news/world/asia/article6211261.ece

"Insurance companies question autism clinic's charges- Owner of clinic,
which uses controversial therapies, says she's had to lay off staff, cut
hours." dated 3 May 2009 by Mary Ann Roserfrom the AMERICAN-STATESMAN STAFF
at
http://www.statesman.com/news/content/news/stories/local/05/03/0503autismcli
nic.html

"efaS s'tI yrroW t'noD" dated 3 May 2009 by Jim Thompson from the Age of
Autism blog at
http://www.ageofautism.com/2009/05/efas-sti-yrrow-tnod.html#more

"Swine Flu 1999: We Were Warned" dated 3 May 2009 by David Kirby from The
Huffington Post blog at
http://www.huffingtonpost.com/david-kirby/swine-flu-1999-we-were-wa_b_195349
.html

"Jenny McCarthy inks Harpo deal- To develop projects including a syndicated
talk show" dated 3 May 2009 by Nellie Andreeva from The Hollywood Reporter
at
http://www.hollywoodreporter.com/hr/content_display/television/news/e3i06056
b3e434534849b89e2410d154779

"Goodwill needs employers for Workforce Development Program" dated 4 May
2009 by Elizabeth Jackman from the Peoria Times at
http://peoriatimes.com/articles/2009/05/01/news/news08.txt

"Autism and Seizures - Will Gene Research Save the Day?" dated 4 May 2009 by
Teresa Conrick from the Age of Autism blog at
http://www.ageofautism.com/2009/05/autism-and-seizures---will-gene-research-
save-the-day.html#more

"Doctors stand by research to treat autism" dated 4 May 2009 by STEPHEN
DAILY from the South Jersey Courier-Post at
http://www.courierpostonline.com/article/20090504/NEWS01/905040344/1006/Doct
ors+stand+by+research+to+treat+autism

"Restraining of students questioned- Some wonder whether schools cross the
line" dated 4 May 2009 by James Vaznis from the Boston Globe at
http://www.boston.com/news/education/k_12/articles/2009/05/04/restraining_of
_students_questioned

"Federal Legal Appeals Project Helps Families Where It Counts- Amicus Brief
Filed in Supreme Court In Forest Grove Case" in a press release from Autism
Speaks at
http://www.autismspeaks.org/community/family_services/flap_overview_2009.php

"ASD Video Glossary Upgrade Completed - Please Register" in a press release
from Autism Speaks at http://www.autismspeaks.org/video/glossary.php

"In Their Own Words: I Beat Autism" by Jason Ross in a press release from
Autism Speaks at
http://www.autismspeaks.org/community/ownwords/intheirownwords_ross.php

"Six Good Reasons to Avoid the Flu Shot" by Sheryl Walters in a press
release from Homefirst Health Services at
http://www.homefirst.com/six_good_reasons_to_avoid_the_flu_shot.html

Classification: UNCLASSIFIED
Caveats: FOUO




[Non-text portions of this message have been removed]

#3814 From: "Rebecca Estepp" <restepp@...>
Date: Wed Apr 29, 2009 6:58 pm
Subject: Age of Autism Post on OSR
becky92064
Offline Offline
Send Email Send Email
 
Hey everyone,

Dr. Haley has worked tirelessly for years for the Autism Community,
especially for the ASD kiddos that show elevated heavy metals. The Age of
Autism ran this post yesterday about Dr. Haley's new product.


<http://www.ageofautism.com/2009/04/unlock-your-health-with-osr-the-powerful
-antioxidant-from-cti-science.html>
http://www.ageofautism.com/2009/04/unlock-your-health-with-osr-the-powerful-
antioxidant-from-cti-science.html

I just wanted to you all to be aware of his product. We have seen some nice
results with my son since he has been on it.

Take care,

Becky



[Non-text portions of this message have been removed]

#3813 From: Nateysmama@...
Date: Tue Apr 28, 2009 11:19 pm
Subject: Re: [Military Families Autism Support] Orders cancelled NEED HELP FINDING ABA
riley0926
Offline Offline
Send Email Send Email
 
We are at Luke AFB in AZ. Both of our boys are diagnosed with Autism and we
  are participating in the Demo Project through Maxim Health. I believe we
are  their only family so far! They are just starting out so there is a bit
of trial  and error at this point. The tutors we have are really good! There
are a number  of BCBAs in the area and we have found some great resources in
the surrounding  community. It was a bit of a wait for speech for the kids
but other than  that no problems.



Yvonne
Mama to
  (http://lilypie.com/)

and
_


In a message dated 4/28/2009 5:55:04 A.M. US Mountain Standard Time,
patmarq68@... writes:






We were suppose to fly out next month and last Friday at 5pm our orders to
Minot got cancelled due to the lack of ABA services in the area.
My  husband has been in close contact with AFPC(or someone). They pulled up
a list  that has the following places:

McCord, AFB Washington

Scott,  Ill.

Luke Az.

Charleston South Carolina

Moody  Georgia

I have been doing some research and have been on the phone  non-stop. This
is difficult since we live in Germany.

Please if their  is anyone who has children in the ABA program any
information would be greatly  appreciated. We are trying to get as much info for
ouselves and the powers  that be so we can all make the right decision for our
boys. Thank you so  much!!

Warmest Regards,
Proud Air Force Family
Patrick, Shelli,  Aidan, and Ethan



**************An Excellent Credit Score is 750. See Yours in Just 2 Easy
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[Non-text portions of this message have been removed]

#3812 From: Susie Salinas <susiesalinas@...>
Date: Wed Apr 29, 2009 12:18 am
Subject: Re: [Military Families Autism Support] Any one taken there autisticchild to disney world?
henrysmom04
Offline Offline
Send Email Send Email
 
You should check in to the shuttles from the airport to Shades of Green.  They
might be the same cost as renting a car.  The airport is about 30 minutes away. 
I know it was expensive when we looked into it and so we decided to rent a car. 
I think the company I used was EZ Rental and they were based at the airport.  It
was super cheap to rent a car and car seats ($7/day).

Also, I had no problem bringing in any food or drinks to the parks.

One word of warning--the fireworks were way too loud for my son who is sensitive
to noise.

We also greatly lowered our expectation of how much we would do at each park. 
We basically visited a park a day until noon (so much less crowded if you get
there when they open) and then spent the afternoons at the hotel pool.  We found
it was a good balance and kept my son from feeling overwhelmed.

Have a great time!




________________________________
From: Christine Szczurek Cho <christinecho@...>
To: militaryfamiliesautismsupport@yahoogroups.com
Sent: Tuesday, April 28, 2009 12:43:00 PM
Subject: RE: [Military Families Autism Support] Any one taken there
autisticchild to disney world?





We stayed at Shades of Green in past, it's a great hotel for the price -
easily as nice or better than the "civilian" Disney hotels - except maybe
their deluxe ones like the Grand Floridian.  They do have their own shuttle
service to the parks, although when we stayed there last (2005) the shuttles
did not run as frequently as the shuttles to the other hotels - I think
every thirty minutes rather than every 15-20 like some.  Also, they didn't
go to all the areas directly but sometimes to the main transportation area
where you had to switch buses.  However, if money is an issue, it's doable
without a car.  There is only one place to eat a sit-down meal there and one
breakfast bar (unless they've added on) so if your child is on a special
diet you will want to bring or buy lots of snacks.

Our autistic son was only two when we were there, so he couldn't go on many
of the rides yet, but we still got the guest assistance pass and that was
the greatest thing ever since we were there in August when it was insanely
packed.  We never waited more than 10 minutes in line for anything except
food (pass doesn't work there).  It is true that sometimes there is no real
alternate entrance other than the fastpass lane, so you do have to use that,
but again, no more than 5-10 minutes.  Someone has mentioned before that you
no longer need the letter from your pediatrician, but I would still get one
anyways, especially if your child "looks typical" to the average eye.  If
your pediatrician hasn't ever written one before, he just needs to state the
diagnosis of your child (including the word "autism" or "Autism Spectrum
Disorder" is helpful) and ask for any assistance that could be helpful.
Don't ask specifically for a special pass - although that's really the only
thing they can give you.  It can also be helpful to include words such as
"sensory overstimulation" or "unable to stand for long periods of time"  or
better yet "unable to tolerate large crowds" or something like that.  If the
person working at the guest center has any clue, they won't give you any
problem.  If they are brand new working there, then just ask for the manager
instead of fighting if an issue comes up.  There is no specific diagnosis
that is included or excluded - it's more based on the requirements of the
child (kinda like ECHO).

I do not think there is any restriction on taking food in, the people
searching the bags are looking for guns and weapons and bombs, not granola
bars.  I'm not sure about water bottles, though - I can't remember if you
have to empty them out or not.  If so, you may just have to refill it.

As for overheating, that's definitely an issue, although in May it may be
tolerable.  August was unbearable and I won't ever do that again.  You will
miss the super crowds in June/July/August if you are going in May, although
it will be more crowded than February.  They do have the covered strollers
so you can rent those if you don't have cover for your own (although they
may have updated those as well since we last visited almost three years
ago).  You can take a washcloth and wet it as often as necessary in the
bathroom which is nice on the back of the neck to help cool down.  Epcot
also has the water fountain area that kids can play in.  And there are mist
showers in several areas.  Shade is hit or miss, but you will probably do
fine.

Have fun, and don't try to do too much in one day.

Chris

_____

From: militaryfamiliesaut ismsupport@ yahoogroups. com
[mailto:militaryfamiliesaut ismsupport@ yahoogroups. com] On Behalf Of Vivian
Duckett
Sent: Tuesday, April 28, 2009 8:56 AM
To: militaryfamiliesaut ismsupport@ yahoogroups. com
Subject: RE: [Military Families Autism Support] Any one taken there
autisticchild to disney world?

Thanks for the tips. We also will be going to Disney World in August. We
are excited and nervous at the same time.

We'll be staying at Shades of Green (Military Facility). Has anyone had
experience with staying there with your ASD child? Are there shuttle buses
from and to Disney World, etc.? We are flying to Disney from Virginia and
rather not deal with a rental car (but will if need be). Our plans are to
visit all five parks and that's it. We don't plan to travel all over
Orlando. You mentioned a special parking pass. How do you get one?

Our son (7 yrs old) has mild Autism and sometime you can't tell. However,
when he gets excited it's obvious. He loves Disney so he'll definitely show
his "Autism".

Thanks again for all your info.

Vivian

_____

From: militaryfamiliesaut
<mailto:militaryfam iliesautismsuppo rt%40yahoogroups .com>
ismsupport@yahoogro ups.com
[mailto:militaryfam iliesaut
<mailto:militaryfam iliesautismsuppo rt%40yahoogroups .com>
ismsupport@yahoogro ups.com] On Behalf Of Kathleen
Roberts
Sent: Tuesday, April 28, 2009 8:45 AM
To: militaryfamiliesaut
<mailto:militaryfam iliesautismsuppo rt%40yahoogroups .com>
ismsupport@yahoogro ups.com
Subject: Re: [Military Families Autism Support] Any one taken there
autisticchild to disney world?

We just went to Disney world last month with our son (2 1/2, ASD) and had a
great time.

1) We kept things pretty simple and didn't try to do every ride in every
park, not even close. We made it all about him so we mostly hung out in
Fantasy Land at the main park. If you're staying on the property you'll be
able to shuttle back and forth to your hotel for breaks. If you're not
staying on the property let me know.. I have a special parking pass I can
send you :)

2) They do have passes for special needs. You'll need a note from your son's
pediatrician that states his diagnosis. Take that to guest services (each
park has a guest services building but we went to the one in Disney World)
and they will give you a Guest Assistance Pass. It's good for everybody in
your group for the duration of your visit. Once you're in the park, there is
a cast member at every ride - show them the pass and ask for the alternate
enterance. You'll go into the handi-capped enterance which is usually the
exit on most rides. There is never a line more of more than a few people in
front of you and it goes really quick. (We only had one person say that we
needed to go in the fast pass line and not the handi-capped because like
you, our son doesn't look disabled. We just went on another ride and by the
time we came backe he was gone since they switch out the cast members pretty
quickly). From other families we talked to, the phrase "alternate enterance"
is pretty important in getting their attention.

3) You can absolutely bring your own food into the park! The only thing you
can't have is plastic straws. They do check your backs when you're going
into each park but we never had an issue.

4) I didn't see a lot of places to cool down, but if you just go from ride
to ride most of the waiting you'll do is inside. Dumbo didn't have any shade
at all since it's an outdoor ride but things like Peter Pan and Its a Small
World that were indoors had indoor waiting areas. Disney cast members are
great 99.9% of the time and will help you out with anything they can.

If you have any other questions I'll be glad to help! We only encountered
one rude person that commented she wished she could get a pass like ours. I
informed her exactly why we had our pass and I don't think she'll make that
mistake again :) I hope you have a great time!!

On Tue, Apr 28, 2009 at 5:39 AM, zinkter <carrigg8582@
<mailto:carrigg8582 %40yahoo. com> yahoo.com> wrote:

>
>
> We are taking my two children along with my mother-in-law and my husbands
9
> year old sister to Disney world in a few weeks and I was wondering if
anyone
> had taken their little one. My son has an asperger's/PDD- NOS Diagnosis
(they
> can't decide yet since he is only 4) He appears normal in every way and he
> talks which in the past has always caused a fight with people when asking
> for special treatment for him. It seems that most people are under the
> misconception that all autistic children will never talk. He also has a
> diagnosis of sensory processing disorder, and mastocyctosis.
>
> 1) any suggestions while there?
> 2) We were told that they have passes for children with special needs but
> not what type of special needs they are given out for.
> 3) he is on a special diet because he is allergic to preservatives, has
> anyone been allowed to take their own food into the park?
> 4) He goes into anaphalatic shock if he gets to over heated are there a
lot
> of places to cool down in?
> 5) any other advice?
>
>
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

#3811 From: Shawn & Michelle Richie <msrichie@...>
Date: Wed Apr 29, 2009 12:08 am
Subject: Re: [Military Families Autism Support] ** McCord, WA ** Orders cancelled NEED HELP FINDING ABA
msrichie30
Offline Offline
Send Email Send Email
 
Please note that Maxim health care only deals with ABA in the demo program.
They are a good place to start and Billy is really nice.  There are others
out there that don¹t participate in the Demo program but do the normal ABA
under Tricare ECHO.  The University of Washington Tacoma Campus has a
department that offers ABA therapy and is a short drive from McCord.  When I
called in December they had a very short wait (if your times were more
flexible they could get you in sooner).  There is also a lady who is South
of McCord that offers ABA and comes to the McCord area twice a week.  She
was just starting the Demo program in December and had openings.  What I did
is go to the ABA certification web site and search for Washington State and
then e-mailed or called everyone on the list and asked if they went to my
area or their business was close by or if they could recommend anyone that
serviced my area.  Please note that the web site city listed is not accurate
at all.  I got a lot of responses back and was able to find someone with the
help of my case manager that accepted Tricare.

Good Luck!

Michelle
Seabeck, WA



From: "jordan0197@..." <jordan0197@...>
Reply-To: <militaryfamiliesautismsupport@yahoogroups.com>
Date: Tue, 28 Apr 2009 16:49:16 -0700
To: <militaryfamiliesautismsupport@yahoogroups.com>
Subject: [Military Families Autism Support] ** McCord, WA ** Orders
cancelled NEED HELP FINDING ABA







I live about 40 mins away from McCord, WA and right now ABA is tough. Our
ABA is driving from Seattle and they said that ABAs are limited in this
area. Here are two numbers to call for our area:

Triwest ECHO case manager Monica 866-876-2384 ext 42590

Maxim healthcare Billy 877-629-4658 or 253-671-9909 (they do all of the ABA
in the Seattle area so this would be your 1st call to see what availability
is then call Monica to start the process)

Adrienne

To: militaryfamiliesautismsupport@yahoogroups.com
<mailto:militaryfamiliesautismsupport%40yahoogroups.com>
From: patmarq68@... <mailto:patmarq68%40yahoo.com>
Date: Tue, 28 Apr 2009 12:53:59 +0000
Subject: [Military Families Autism Support] Orders cancelled NEED HELP
FINDING ABA

We were suppose to fly out next month and last Friday at 5pm our orders to
Minot got cancelled due to the lack of ABA services in the area.
My husband has been in close contact with AFPC(or someone). They pulled up a
list that has the following places:

McCord, AFB Washington

Scott, Ill.

Luke Az.

Charleston South Carolina

Moody Georgia

I have been doing some research and have been on the phone non-stop. This is
difficult since we live in Germany.

Please if their is anyone who has children in the ABA program any
information would be greatly appreciated. We are trying to get as much info
for ouselves and the powers that be so we can all make the right decision
for our boys. Thank you so much!!

Warmest Regards,
Proud Air Force Family
Patrick, Shelli, Aidan, and Ethan

[Non-text portions of this message have been removed]




>



[Non-text portions of this message have been removed]

#3810 From: "jordan0197@..." <jordan0197@...>
Date: Tue Apr 28, 2009 11:49 pm
Subject: ** McCord, WA ** Orders cancelled NEED HELP FINDING ABA
jordan0197
Offline Offline
Send Email Send Email
 
I live about 40 mins away from McCord, WA and right now ABA is tough. Our ABA is
driving from Seattle and they said that ABAs are limited in this area. Here are
two numbers to call for our area:



Triwest ECHO case manager Monica 866-876-2384 ext 42590



Maxim healthcare Billy 877-629-4658 or 253-671-9909 (they do all of the ABA in
the Seattle area so this would be your 1st call to see what availability is then
call Monica to start the process)



Adrienne








To: militaryfamiliesautismsupport@yahoogroups.com
From: patmarq68@...
Date: Tue, 28 Apr 2009 12:53:59 +0000
Subject: [Military Families Autism Support] Orders cancelled NEED HELP FINDING
ABA







We were suppose to fly out next month and last Friday at 5pm our orders to Minot
got cancelled due to the lack of ABA services in the area.
My husband has been in close contact with AFPC(or someone). They pulled up a
list that has the following places:

McCord, AFB Washington

Scott, Ill.

Luke Az.

Charleston South Carolina

Moody Georgia

I have been doing some research and have been on the phone non-stop. This is
difficult since we live in Germany.

Please if their is anyone who has children in the ABA program any information
would be greatly appreciated. We are trying to get as much info for ouselves and
the powers that be so we can all make the right decision for our boys. Thank you
so much!!

Warmest Regards,
Proud Air Force Family
Patrick, Shelli, Aidan, and Ethan










[Non-text portions of this message have been removed]

#3809 From: Naomi Love <casade_love@...>
Date: Tue Apr 28, 2009 11:43 pm
Subject: Re: [Military Families Autism Support] moving to Indianapolis
casade_love
Offline Offline
Send Email Send Email
 
Check out www.k12.com. Most public schools across the country offer virtual
public schools as an alternative and I believe Indiana offers it.
 
Best,
Naomi



--- On Tue, 4/28/09, Maggie Randall <maggiemran@...> wrote:

From: Maggie Randall <maggiemran@...>
Subject: [Military Families Autism Support] moving to Indianapolis
To: militaryfamiliesautismsupport@yahoogroups.com
Date: Tuesday, April 28, 2009, 7:22 PM








We will be moving in summer 2010 to Indianapolis (for a one year civilian
training opportunity for my husband - then back to the Navy).  We have three
children and one due in Oct.  Our 2nd son has high-functioning ASD.  The school
district here recommended full inclusion K (he will be 6 in a few days) this
year, but we opted for a part-time Montessori private preK/K school and have
been really pleased with this placement.  He will attend K there next year.  I
am thinking about homeschooling him for 1st grade since we will only be in
Indianapolis for one year. He definitely has the motivation to learn, but I am
concerned about the sensory overload in a typical classroom and the transitions
and long days.  He does much better with smaller 'work' times and lots of breaks
and smaller social settings.  Is anyone in Indianapolis or have any knowledge of
the area?  Good neighborhoods, etc?  Our oldest attends Catholic school and we
may try to find a
Catholic school for him or homeschool both kids (and have the 4 year old in a
typical preschool) -still debating that!
 
Our only therapies for our son are RDI (relationship development intervention)
and we can either transfer to another consultant or continue with our current
consultant long-distance through uploading videos, etc.  The other therapy our
son needs is sensory integration OT.  He actually now tests 'normal' range for
fine and gross motor, but somehow Tricare is still allowing OT for SI and our
therapist is well-known for SI.  I thought it best to get on a wait list now if
the OTs there are as busy as ours!
 
Thanks for any input!
 
Maggie

[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

#3808 From: Ketzie De Gorostiza <ketzie79@...>
Date: Tue Apr 28, 2009 11:29 pm
Subject: Re: [Military Families Autism Support] Orders cancelled NEED HELP FINDING ABA
ketzie79
Offline Offline
Send Email Send Email
 
Hi,

Charleston, SC has BCBA's available with little to no wait.  We are DEMO and
get both BCBA and Line Therapy.  There are many others than the ones below,
but I do not know them or have their information.

http://www.sceap.com/index2.shtml
http://www.starcarolina.com/index.html

Good Luck,

Ketzie

On Tue, Apr 28, 2009 at 8:53 AM, patmarq68 <patmarq68@...> wrote:

>
>
> We were suppose to fly out next month and last Friday at 5pm our orders to
> Minot got cancelled due to the lack of ABA services in the area.
> My husband has been in close contact with AFPC(or someone). They pulled up
> a list that has the following places:
>
> McCord, AFB Washington
>
> Scott, Ill.
>
> Luke Az.
>
> Charleston South Carolina
>
> Moody Georgia
>
> I have been doing some research and have been on the phone non-stop. This
> is difficult since we live in Germany.
>
> Please if their is anyone who has children in the ABA program any
> information would be greatly appreciated. We are trying to get as much info
> for ouselves and the powers that be so we can all make the right decision
> for our boys. Thank you so much!!
>
> Warmest Regards,
> Proud Air Force Family
> Patrick, Shelli, Aidan, and Ethan
>
>
>



--
Ketzie De Gorostiza
Need Threelac or other vitamins and minerals click here:
www.ghthealth.com/autism/
Family Website:  www.ineedhelpwithautism.com
ketzie79@...
"It does not matter how slowly you go so long as you do not stop." Confucius


[Non-text portions of this message have been removed]

#3807 From: Maggie Randall <maggiemran@...>
Date: Tue Apr 28, 2009 11:22 pm
Subject: moving to Indianapolis
maggiemran
Offline Offline
Send Email Send Email
 
We will be moving in summer 2010 to Indianapolis (for a one year civilian
training opportunity for my husband - then back to the Navy).  We have three
children and one due in Oct.  Our 2nd son has high-functioning ASD.  The school
district here recommended full inclusion K (he will be 6 in a few days) this
year, but we opted for a part-time Montessori private preK/K school and have
been really pleased with this placement.  He will attend K there next year.  I
am thinking about homeschooling him for 1st grade since we will only be in
Indianapolis for one year. He definitely has the motivation to learn, but I am
concerned about the sensory overload in a typical classroom and the transitions
and long days.  He does much better with smaller 'work' times and lots of breaks
and smaller social settings.  Is anyone in Indianapolis or have any knowledge of
the area?  Good neighborhoods, etc?  Our oldest attends Catholic school and we
may try to find a
  Catholic school for him or homeschool both kids (and have the 4 year old in a
typical preschool) -still debating that!
 
Our only therapies for our son are RDI (relationship development intervention)
and we can either transfer to another consultant or continue with our current
consultant long-distance through uploading videos, etc.  The other therapy our
son needs is sensory integration OT.  He actually now tests 'normal' range for
fine and gross motor, but somehow Tricare is still allowing OT for SI and our
therapist is well-known for SI.  I thought it best to get on a wait list now if
the OTs there are as busy as ours!
 
Thanks for any input!
 
Maggie






[Non-text portions of this message have been removed]

#3806 From: "Vivian Duckett" <impdegas@...>
Date: Tue Apr 28, 2009 8:54 pm
Subject: RE: [Military Families Autism Support] Any one taken thereautisticchild to disney world?
impdegas
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Thanks :-)

   _____

From: militaryfamiliesautismsupport@yahoogroups.com
[mailto:militaryfamiliesautismsupport@yahoogroups.com] On Behalf Of Kathleen
Roberts
Sent: Tuesday, April 28, 2009 9:01 AM
To: militaryfamiliesautismsupport@yahoogroups.com
Subject: Re: [Military Families Autism Support] Any one taken
thereautisticchild to disney world?





The pass I have is something through AAA and doesn't have anything to do
with austims. If you're staying on the property you won't need it since
you'll take the monorails & shuttles to the park. We stayed off property so
I'm not sure how all of the transportation on the property works.

On Tue, Apr 28, 2009 at 7:56 AM, Vivian Duckett <impdegas@verizon.
<mailto:impdegas%40verizon.net> net>wrote:

>
>
> Thanks for the tips. We also will be going to Disney World in August. We
> are excited and nervous at the same time.
>
> We'll be staying at Shades of Green (Military Facility). Has anyone had
> experience with staying there with your ASD child? Are there shuttle buses
> from and to Disney World, etc.? We are flying to Disney from Virginia and
> rather not deal with a rental car (but will if need be). Our plans are to
> visit all five parks and that's it. We don't plan to travel all over
> Orlando. You mentioned a special parking pass. How do you get one?
>
> Our son (7 yrs old) has mild Autism and sometime you can't tell. However,
> when he gets excited it's obvious. He loves Disney so he'll definitely
show
> his "Autism".
>
> Thanks again for all your info.
>
> Vivian
>
> _____
>
> From: militaryfamiliesaut
<mailto:militaryfamiliesautismsupport%40yahoogroups.com>
ismsupport@yahoogroups.com<militaryfamiliesautismsupport%40yahoogroups.com>
> [mailto:militaryfamiliesaut
<mailto:militaryfamiliesautismsupport%40yahoogroups.com>
ismsupport@yahoogroups.com<militaryfamiliesautismsupport%40yahoogroups.com>]
> On Behalf Of Kathleen
> Roberts
> Sent: Tuesday, April 28, 2009 8:45 AM
> To: militaryfamiliesaut
<mailto:militaryfamiliesautismsupport%40yahoogroups.com>
ismsupport@yahoogroups.com<militaryfamiliesautismsupport%40yahoogroups.com>
> Subject: Re: [Military Families Autism Support] Any one taken there
> autisticchild to disney world?
>
>
>
> We just went to Disney world last month with our son (2 1/2, ASD) and had
a
> great time.
>
> 1) We kept things pretty simple and didn't try to do every ride in every
> park, not even close. We made it all about him so we mostly hung out in
> Fantasy Land at the main park. If you're staying on the property you'll be
> able to shuttle back and forth to your hotel for breaks. If you're not
> staying on the property let me know.. I have a special parking pass I can
> send you :)
>
> 2) They do have passes for special needs. You'll need a note from your
> son's
> pediatrician that states his diagnosis. Take that to guest services (each
> park has a guest services building but we went to the one in Disney World)
> and they will give you a Guest Assistance Pass. It's good for everybody in
> your group for the duration of your visit. Once you're in the park, there
> is
> a cast member at every ride - show them the pass and ask for the alternate
> enterance. You'll go into the handi-capped enterance which is usually the
> exit on most rides. There is never a line more of more than a few people
in
> front of you and it goes really quick. (We only had one person say that we
> needed to go in the fast pass line and not the handi-capped because like
> you, our son doesn't look disabled. We just went on another ride and by
the
> time we came backe he was gone since they switch out the cast members
> pretty
> quickly). From other families we talked to, the phrase "alternate
> enterance"
> is pretty important in getting their attention.
>
> 3) You can absolutely bring your own food into the park! The only thing
you
> can't have is plastic straws. They do check your backs when you're going
> into each park but we never had an issue.
>
> 4) I didn't see a lot of places to cool down, but if you just go from ride
> to ride most of the waiting you'll do is inside. Dumbo didn't have any
> shade
> at all since it's an outdoor ride but things like Peter Pan and Its a
Small
> World that were indoors had indoor waiting areas. Disney cast members are
> great 99.9% of the time and will help you out with anything they can.
>
> If you have any other questions I'll be glad to help! We only encountered
> one rude person that commented she wished she could get a pass like ours.
I
> informed her exactly why we had our pass and I don't think she'll make
that
> mistake again :) I hope you have a great time!!
>
> On Tue, Apr 28, 2009 at 5:39 AM, zinkter <carrigg8582@
> <mailto:carrigg8582%40yahoo.com <carrigg8582%2540yahoo.com>> yahoo.com>
> wrote:
>
> >
> >
> > We are taking my two children along with my mother-in-law and my
husbands
> 9
> > year old sister to Disney world in a few weeks and I was wondering if
> anyone
> > had taken their little one. My son has an asperger's/PDD-NOS Diagnosis
> (they
> > can't decide yet since he is only 4) He appears normal in every way and
> he
> > talks which in the past has always caused a fight with people when
asking
> > for special treatment for him. It seems that most people are under the
> > misconception that all autistic children will never talk. He also has a
> > diagnosis of sensory processing disorder, and mastocyctosis.
> >
> > 1) any suggestions while there?
> > 2) We were told that they have passes for children with special needs
but
> > not what type of special needs they are given out for.
> > 3) he is on a special diet because he is allergic to preservatives, has
> > anyone been allowed to take their own food into the park?
> > 4) He goes into anaphalatic shock if he gets to over heated are there a
> lot
> > of places to cool down in?
> > 5) any other advice?
> >
> >
> >
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>

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