I have encountered this quite a bit myself. I am sorry they are not
being very helpful:o( I feel like everyone at the MTF here and at
the Tricare office know who I am since I have gone out of my way
(and theirs) to get what my son needs.
My son has done well with the diet. It is defiantely somthing well
worth giving a try for a trial period of time. There is a ton of
info on the net as well as recipe and grocery store food lists
galore.
Our pharmacy carried vitamins from Kirkmanlabs for quite awhile and
I believe Congressman Weldon's office is trying to write it into the
Tricare benefits so that all bases have the option to stock it. You
may have to contact his office and request it for your base.
Tiffany

--- In
militaryfamiliesautismsupport@yahoogroups.com, "bris_sunshine"
<bris_sunshine@y...> wrote:
> I have been debating on what to do about this for awhile, but had
> few people to use as a soundboard for my ideas. My FRG leader
(and
> close friend of mine) said she would call and talk to her, but I
> didn't want to put her in that position. But the more I think
about
> it, the more I think I should do something about it.
>
> We took our 3 yr old dd, Sierra, to see the EFMP (?director?)
doctor
> in late March, early April. While we were there, we gave her the
> updated progress on Sierra (since it had been over a year since we
> had been in to see them due to scheduling conflicts). While we
were
> there, we asked about the gfcf diet and vitamins and so forth.
>
> Here is where I need help. The woman spent the next ten minutes
> talking about parents who have children with autism are very
> desperate to fix their children and do these diets, etc out of
> desperation. She told me there is no known cure for autism (well,
> duh) and just went on and on, basically making me feel GUILTY for
> wanting to look into these options.
>
> The worst part is that my husband over heard someone in his office
> (my husband is in personnelle) talking about this exact same dr
> putting his autistic son on this diet and doing the enzymes! This
> is what made us feel safe to talk to her about it.
>
> I was just totally stunned by her calling me desperate at the time
> that I didn't bring up this fact to her, plus it was my husband
who
> heard it, and didn't know the name of the guy either.
>
> What can I do? I feel like I should do something, because I dread
> going back into that office to see them. When my husband went in
> the other day, the secretary was like "Oh, your the one with the
off
> post dr" and whatever. This all comes from when our off post peds
> dr wrote a letter to TriCare asking that I be able to see someone
> out of the network since no one in network seemed to be able to
help
> us. It somehow got sent to the EFMP office (when it was
originally
> faxed to Outcomes Mngmt by the TriCare office) and the lady had
the
> nerve to call me and *itch me out for ten minutes how the EFMP dr
> was fully qualified to work with Sierra and that our peds dr
didn't
> know what she was talking about!
>
> Well, if she is qualified, why isn't she offering to assist us?
>
> Anyway, at the end of that appointment, I told the dr that I would
> like to pursue the supplements and so forth and asked what kind I
> should start with and at what dosage (you know, I love my kid and
I
> don't want to kill her with an overdose of anything!). Her
> professional medical opinion was she didn't see medical evidence
> that these were needed but if I was desperate enough to try,go on
> the internet! Now, I know I have learned a lot from the internet
> about Autism, but when it comes to actual meds and so forth, that
> isn't something that I feel I should be getting total advice on
from
> the internet! Everyone has different opinions and different ways
> they approach things.
>
> Anyway, if I want to put in a complaint about this, how do I
> approach it and so forth?
>
> Thanks for listening!
> Jessica in KY
> Jennifer age 7 dx w/ADHD
> Sierra age 3 dx w/autism