I have been debating on what to do about this for awhile, but had
few people to use as a soundboard for my ideas. My FRG leader (and
close friend of mine) said she would call and talk to her, but I
didn't want to put her in that position. But the more I think about
it, the more I think I should do something about it.

We took our 3 yr old dd, Sierra, to see the EFMP (?director?) doctor
in late March, early April. While we were there, we gave her the
updated progress on Sierra (since it had been over a year since we
had been in to see them due to scheduling conflicts). While we were
there, we asked about the gfcf diet and vitamins and so forth.

Here is where I need help. The woman spent the next ten minutes
talking about parents who have children with autism are very
desperate to fix their children and do these diets, etc out of
desperation. She told me there is no known cure for autism (well,
duh) and just went on and on, basically making me feel GUILTY for
wanting to look into these options.

The worst part is that my husband over heard someone in his office
(my husband is in personnelle) talking about this exact same dr
putting his autistic son on this diet and doing the enzymes! This
is what made us feel safe to talk to her about it.

I was just totally stunned by her calling me desperate at the time
that I didn't bring up this fact to her, plus it was my husband who
heard it, and didn't know the name of the guy either.

What can I do? I feel like I should do something, because I dread
going back into that office to see them. When my husband went in
the other day, the secretary was like "Oh, your the one with the off
post dr" and whatever. This all comes from when our off post peds
dr wrote a letter to TriCare asking that I be able to see someone
out of the network since no one in network seemed to be able to help
us. It somehow got sent to the EFMP office (when it was originally
faxed to Outcomes Mngmt by the TriCare office) and the lady had the
nerve to call me and *itch me out for ten minutes how the EFMP dr
was fully qualified to work with Sierra and that our peds dr didn't
know what she was talking about!

Well, if she is qualified, why isn't she offering to assist us?

Anyway, at the end of that appointment, I told the dr that I would
like to pursue the supplements and so forth and asked what kind I
should start with and at what dosage (you know, I love my kid and I
don't want to kill her with an overdose of anything!). Her
professional medical opinion was she didn't see medical evidence
that these were needed but if I was desperate enough to try,go on
the internet! Now, I know I have learned a lot from the internet
about Autism, but when it comes to actual meds and so forth, that
isn't something that I feel I should be getting total advice on from
the internet! Everyone has different opinions and different ways
they approach things.

Anyway, if I want to put in a complaint about this, how do I
approach it and so forth?

Thanks for listening!
Jessica in KY
Jennifer age 7 dx w/ADHD
Sierra age 3 dx w/autism