I use verapamil to control migraines, and I believe
that it is also used to treat manic depression.  Have
you tried this?  I use it with Neurontin.
Vi
--- einsteins_inspiration
<einsteins_inspiration@...> wrote:
> Hi, Karin.  Unfortunately, I am manic-depressive and
> tricyclics are
> notorious for swinging us into manic episodes, so
> that is not an
> option for me.  However, after a long search I'm on
> an antidepressant
> that works for my depression, Effexor.  I noticed
> that when I was
> started on it that both my seizures and migraines
> became more intense
> and frequent.  Is it just a coincidence or is it the
> Effexor?
> Considering the timing it's hard not to blame the
> Effexor, but it's
> the only antidepressant that's worked for me and it
> got me out of a
> suicidal depression, so I'm really loath to
> experiment with it.
>
> I was on Remeron for a short time, and it did make
> me very relaxed
> but I don't remember how it affected my headaches
> (if I even took
> time to notice).  Wellbutrin was very bad for my
> seizures (it's well
> known for lowering the seiure threshold in people
> with a history of
> seizures). It made my seizures happen non-stop one
> after the other. I
> was on Lamictal for a couple of years (they use it
> in manic-
> depressives as a substitute for antidepressants),
> but I was never on
> a dose large enough to cause me headaches or even
> help my seizures. I
> took my final dose of it last night.  There's no way
> I can ever take
> Depakote.  I was on it for over a year and it made
> me very ill.  They
> use it not only for seizures but also for migraines
> and manic-
> depression.  It would be a magic pill for me, but it
> makes me very
> sick as well as clinically depressed.  Definitely no
> toleration.
>
> Across the counter medications do nothing for me,
> and the ones with
> caffeine make me anxious--nervousness with a
> migraine is more than I
> can take.
>
> I'll look into the supplements you suggested.
> Thanks.  Thanks also
> for the other suggestions, though I'm not able to
> pursue them.  I'm
> sure that if the Cardizem doesn't help me more that
> my neurologist
> will try something else.
>
> Mark
>
> --- In migraineswithepilepsy@yahoogroups.com, Karin
> Schacht
> <karinschacht@e...> wrote:
> > hi mark~
> >
> >
> > Are you able to take or tolerate an additional med
> like an
> > anti-depressant? I wonder if something like one of
> the tricyclics
> would
> > help with some of your other migraine symptoms.
> > Although a higher dose of remeon made my siezure
> problems worse,
> the
> > remeron in general helped with many of the other
> migraine symptoms
> you
> > mentioned- nausea, sensitivity,etc.. Can you do an
> adjunct
> > anti-convulsant? Have you tried Neurontin yet? I
> would like to go
> back
> > on that because i had a lot less migraines on it
> than now,even
> though i
> > was on a fairly low dose. I was taken off that to
> go on topomax
> (didn't
> > tolerate) then lamictal (recently started and sure
> enough I have a
> > headache:o() - these for the seizure activity.
> >
> > I found my migraines also started when I got my
> first complex
> partial,
> > at age 13. My mothers side of her family has
> migraines.
> >
> > Right now I im in a medication limbo-land, trying
> to get off
> remeron
> > for other reasons but trying to find another good
> subsitute and a
> > tolerable anti-convulsant. I notice my migraine
> problems worsening
> (or
> > really going back to the way they used to be) as I
> get lower and
> lower
> > on my remeron dosage.
> >
> > Two things I have found helpful somewhat (as a
> preventative but
> I've
> > read of some using these to abort a migraine) is
> magnesium..chelated
> > magnesium in a pill form, and WaterOz (an aqueous
> magnesium product
> > that you can order online), which has been pretty
> good..up until i
> > started this lamictal :0(.
> >
> > I hope you can work with your drs to come up with
> something that
> will
> > stop your frequent migraines... out of all the
> meds i've tried, the
> > neurontin and the remeron have helped me the
> most...
> >
> > best of luck in finding something helpful!!
> >
> > karin
>
>
>


=====

Violet




__________________________________
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Hi, Karin.  Unfortunately, I am manic-depressive and tricyclics are
notorious for swinging us into manic episodes, so that is not an
option for me.  However, after a long search I'm on an antidepressant
that works for my depression, Effexor.  I noticed that when I was
started on it that both my seizures and migraines became more intense
and frequent.  Is it just a coincidence or is it the Effexor?
Considering the timing it's hard not to blame the Effexor, but it's
the only antidepressant that's worked for me and it got me out of a
suicidal depression, so I'm really loath to experiment with it.

I was on Remeron for a short time, and it did make me very relaxed
but I don't remember how it affected my headaches (if I even took
time to notice).  Wellbutrin was very bad for my seizures (it's well
known for lowering the seiure threshold in people with a history of
seizures). It made my seizures happen non-stop one after the other. I
was on Lamictal for a couple of years (they use it in manic-
depressives as a substitute for antidepressants), but I was never on
a dose large enough to cause me headaches or even help my seizures. I
took my final dose of it last night.  There's no way I can ever take
Depakote.  I was on it for over a year and it made me very ill.  They
use it not only for seizures but also for migraines and manic-
depression.  It would be a magic pill for me, but it makes me very
sick as well as clinically depressed.  Definitely no toleration.

Across the counter medications do nothing for me, and the ones with
caffeine make me anxious--nervousness with a migraine is more than I
can take.

I'll look into the supplements you suggested.  Thanks.  Thanks also
for the other suggestions, though I'm not able to pursue them.  I'm
sure that if the Cardizem doesn't help me more that my neurologist
will try something else.

Mark

--- In migraineswithepilepsy@yahoogroups.com, Karin Schacht
<karinschacht@e...> wrote:
> hi mark~
>
>
> Are you able to take or tolerate an additional med like an
> anti-depressant? I wonder if something like one of the tricyclics
would
> help with some of your other migraine symptoms.
> Although a higher dose of remeon made my siezure problems worse,
the
> remeron in general helped with many of the other migraine symptoms
you
> mentioned- nausea, sensitivity,etc.. Can you do an adjunct
> anti-convulsant? Have you tried Neurontin yet? I would like to go
back
> on that because i had a lot less migraines on it than now,even
though i
> was on a fairly low dose. I was taken off that to go on topomax
(didn't
> tolerate) then lamictal (recently started and sure enough I have a
> headache:o() - these for the seizure activity.
>
> I found my migraines also started when I got my first complex
partial,
> at age 13. My mothers side of her family has migraines.
>
> Right now I im in a medication limbo-land, trying to get off
remeron
> for other reasons but trying to find another good subsitute and a
> tolerable anti-convulsant. I notice my migraine problems worsening
(or
> really going back to the way they used to be) as I get lower and
lower
> on my remeron dosage.
>
> Two things I have found helpful somewhat (as a preventative but
I've
> read of some using these to abort a migraine) is
magnesium..chelated
> magnesium in a pill form, and WaterOz (an aqueous magnesium product
> that you can order online), which has been pretty good..up until i
> started this lamictal :0(.
>
> I hope you can work with your drs to come up with something that
will
> stop your frequent migraines... out of all the meds i've tried, the
> neurontin and the remeron have helped me the most...
>
> best of luck in finding something helpful!!
>
> karin

Hi.  My name is Mark and I'm new in this group.  I have complex
partial seizures which are pretty well controlled on Dilantin.  I
also get viscious migraines which are starting to be controlled by
Cardizem.  At this point I still get a migraine almost every day but
they are only moderate, through I still get the nausea, weakness,
numbness, sensetivity to light, sound, and smells, and extra left-
sided weakness in full force.  It's only been within the last 3
months that I've had migraines so many days in a row (sometimes a
single one lasts for 4 days), so life is pretty bizarre right now.
When the pain gets to be too much I take Amerge once or twice, but it
really dosen't help that much, only about half as much as I would
like.

I'm interested in possible links between migraines and epilepsy.
I've had both since I was a little kid (5 or 6) and my neurologist
believes that my epilepsy is the result of small areas of brain
damage caused by the vasoconstrictive stage of untreated migraines.
He's apparently seen a number of these kinds of cases.  Migraines
definitely run in my family.  I can remember my grandmother holding
her head and having to go to her room many times.  Some of my aunts
and uncles and my mother get them. (This is all on my mother's side
of the family.) I even remeber my great grandmother acting like I do
when I get them, so who's to say she didn't get them too?

Well, it's nice to be here.  I am very interested to find out about
the experiences of other people with these two disorders and how the
disorders might interact in their lives.

Mark

Dear Group:

You can buy books, audio books on tape, videos, CD's and DVD's.  But,
does anyone know of a CD about epilepsy that not only educates you
about the disease, but helps you bring it under better control?  I
think there is a need for such a CD.  I just don't know if it is
already out on the shelves.  Or, is such a CD something that would
only interest a very small audience - and therefore no real market
for it?

Lamar Morgan

Dear Group:

Some people who have epilepsy and are taking medication may
experience memory recall difficulty.  I know for sure I did.  I had
my memory medically tested four times during a five-year period of
time. What I did not know at the time was that the memory problems
were not caused by my being epileptic.  They were caused by the
medication I was taking to control gran mal seizures.

Although there are some epileptic treatment centers which specialize
in reducing the need for medication in bringing an epileptic
condition under better control - such as Andrews-Reiter - not
everyone has the option of becoming completely drug-free.  No doubt,
that is a worthwhile pursuit.  If a person is able to bring a seizure
disorder under better control without drugs, why remain on them?  For
that reason alone, it is very important to know what your options are
for improved healthcare.

But, back to your memory recall ability.  In some ways, your brain is
like a muscle.  It benefits from exercise.  In fact, it is possible
to re-educate your own brain.  I experienced this myself via a neuro-
physical assessment - a precursor to EEG Biofeedfack or
neurofeedback. Light, sound and magnetism all play a part.  Beleive
it or not, our brain responds to the stimulation they provide.  The
result can be the building of new neuro-pathways in the brain.

Want proof?  Then, I suggest you go play a little memory game which
is available online for free.  But first, make sure you upgrade your
Internet Explorer browser (which is recommended for playing the game).
Then, go to www.scala.com/channels/index.com.  After that, click on
Channel #57 and play the game.  If you play the game numerous times
and improve your score, you are likely building new neuro-pathways in
your brain.  And, that's a good thing.

Good luck.

Lamar Morgan

Dear Group:

Below is the link for an interesting article concerning epilepsy.  It
was sent to me by another epilepsy-related Yahoogroup.  The article
concerns methods for learning self-control of seizures.  Does anyone
out there need to bring a seizure disorder under better control?  If
so, this article may provide some helpful information.  In fact, it
may be "new information" for a lot of you.  I spent 34 years on
medication before such a treatment option even came to my attention.
But, today I am drug-free.

It's amazing what asking the right people the right questions can
accomplish.  Make no mistake, asking  questions of qualified medical
professionals can help transform your quality of life  for the better.
  That's what happened to me, anway.  I just wish I had been asking
questions about my epilepsy from the day of my initial seizure
forward.  But, like they say, hindsight is 20/20.

Here is the link to the article:
www.epilepsytoronto.org/people/eaupdate/vol18-3.html .

Lamar Morgan

I do agree with you there is something wrong with our medical system
today or even you should have power of attorney but something is
wrong with this picture but i don't know what to say all you can say
you should fight for it so your mom is taken care of and that i am
treated with respect by a doctor i had rude treatment this last doct
dose not believe i have a learning disabilty but that ok I don't have
nothing to proof to him oh well Mary

--- In migraineswithepilepsy@yahoogroups.com, "Lamar Morgan"
<lamar@m...> wrote:
> Dear Group:
>
> I don't understand how the medical system works when it comes to
> sharing and providing information.  Had my parents not
> shared certain information with me and a certain neurologist, I
might
> not be alive today.  I certainly would not be drug-free after
> having spent 34 years on anti-convulsant medications.  I know
> first-hand the importance of being able to share information
> about one's life.  I believe such information can save lives.  I am
> convinced it saved mine.
>
> For that reason, I am perplexed by the situation surrounding my
> mother.  She is currently living in a nursing home and taking
> anti-convulsant medication.  It is doubtful
> she will ever get out.  Nevertheless, I have information which I
> believe might be able to help her doctors in her treatment.  I have
> written and shared this information with at least one of those
> doctors.  But, I remain in the dark with regard to what is
> happening.  Why?  Because I do not have "power of attorney" with
> regard to my mother.  Doctors will not tell me anything.
> They might even be ignoring the information I freely provided
them.  I
> haven't the slightest idea.  This makes absolutely no sense
> to me.  I am watching my mother go down-the-tubes and appear to be
> powerless to do anything about it.
>
> Perhaps I am a little cynical; but, I sometimes wonder if nursing
> homes really want their patients to get well and leave?  If people
> get well and leave, so does the government subsidy payment
(Medicare)
> that entitles so many of them to be there in the first
> place.  It almost seems like getting people well is not "good for
> business."  And, healthcare is a business...big business.
>
> My father went right from a nursing home into a hospital's
intensive
> care unit on life-support due the incompetent treatment he
> received at that nursing home.  He later died in that hospital on
> their life-support system.  Believe it or not, a year earlier the
> nursing home's social worker approached my sister.  At the time,
she
> was pushing my Dad in a wheelchair down the hallway.
> The social worker stopped her to ask about making funeral
arrangements
> for him.  Although my Dad could not talk, he could
> hear everything the social worker was saying.  Is this the way our
> healthcare system is supposed to operate?   What's wrong
> with this picture?
>
> I suppose just like there is an attorney-client privilege, there is
> something similar between a patient and a doctor.  But, should
> this relationship prohibit important information from being shared
> when a person's very life may hang in the balance?  Is a
> "power of attorney" limited to just one person - or can it be
shared
> within a family?  What can be done to make our healthcare
> system more responsive to its patients than it is to its own
> beauracracy?
>
> Please advise.
>
> Lamar Morgan

Dear Group:

I don't understand how the medical system works when it comes to
sharing and providing information.  Had my parents not
shared certain information with me and a certain neurologist, I might
not be alive today.  I certainly would not be drug-free after
having spent 34 years on anti-convulsant medications.  I know
first-hand the importance of being able to share information
about one's life.  I believe such information can save lives.  I am
convinced it saved mine.

For that reason, I am perplexed by the situation surrounding my
mother.  She is currently living in a nursing home and taking
anti-convulsant medication.  It is doubtful
she will ever get out.  Nevertheless, I have information which I
believe might be able to help her doctors in her treatment.  I have
written and shared this information with at least one of those
doctors.  But, I remain in the dark with regard to what is
happening.  Why?  Because I do not have "power of attorney" with
regard to my mother.  Doctors will not tell me anything.
They might even be ignoring the information I freely provided them.  I
haven't the slightest idea.  This makes absolutely no sense
to me.  I am watching my mother go down-the-tubes and appear to be
powerless to do anything about it.

Perhaps I am a little cynical; but, I sometimes wonder if nursing
homes really want their patients to get well and leave?  If people
get well and leave, so does the government subsidy payment (Medicare)
that entitles so many of them to be there in the first
place.  It almost seems like getting people well is not "good for
business."  And, healthcare is a business...big business.

My father went right from a nursing home into a hospital's intensive
care unit on life-support due the incompetent treatment he
received at that nursing home.  He later died in that hospital on
their life-support system.  Believe it or not, a year earlier the
nursing home's social worker approached my sister.  At the time, she
was pushing my Dad in a wheelchair down the hallway.
The social worker stopped her to ask about making funeral arrangements
for him.  Although my Dad could not talk, he could
hear everything the social worker was saying.  Is this the way our
healthcare system is supposed to operate?   What's wrong
with this picture?

I suppose just like there is an attorney-client privilege, there is
something similar between a patient and a doctor.  But, should
this relationship prohibit important information from being shared
when a person's very life may hang in the balance?  Is a
"power of attorney" limited to just one person - or can it be shared
within a family?  What can be done to make our healthcare
system more responsive to its patients than it is to its own
beauracracy?

Please advise.

Lamar Morgan

I have received quite a lot of requests for the transcript of that
International Conference on Epilepsy back in 2001. There seems to be
a lot of interest in knowing who was there and what they had to say.

To my surprise, it was pointed out to me that my transcript was not
complete. I had no information following that presented by Dr.
Stephen Pacia, MD. Well, I am happy to report I now have the complete
transcript. Anyone who wants it, feel free to send me a private
e-mail at lamar@.... I am more than happy to share it.

I think it is important to know what the world is doing about
epilepsy. And, it is important to show that our federal government
and even the pharmacuetical industry is in support of alternative and
complimentary therapies. After all, they helped sponsor the
conference. It might not have happened without their support.

Anyone who has not seen the nice write-up promoting the
2001 conference, just visit ww.ersvp.com/dfiles/information.pdf.

Lamar Morgan

Dear Group:

Are you aware of what the world's experts on epilepsy are saying and
doing?  Many gathered at NYU in 2001 to talk about their therapies.
If you would like to look at the agenda for that conference, go to
www.ersvp.com/dfiles/information.pdf.

If you would like to know more, e-mail me privately at
lamar@....  I have a rather lengthy transcript from someone who
actually attended the conference.  He took extensive notes.  Due to
the length of his transcript, I am somewhat hesitant to post it to
the entire group.  But, I am more than willing to share it with those
who specifically request it.

Lamar Morgan

I take topomax and it really helps a lot it good for seizures as well
so this medication has worked well for me it been out a year so give
it a try I have not had any problems so that is the good news and a
lot of people have had good results on it so give it a try Mary

--- In migraineswithepilepsy@yahoogroups.com, "spirithorsefarm"
<spirithorse@a...> wrote:
> Hi,
>
> I am a newbie pretty much on this list.  I have some questions and
> really would appreciate feedback.
>
> I take Klonopin and Lamictal, and am going to start Topomax.  What
> do you all think of all of these drugs?  The first two seem to work
> well for me, but do not help with my migraines at all.  Depakote
did
> help for both my migraines and seizures, but killed my stomach and
I
> got really bad ulcers from it.  So I went off of it.  I was sick
all
> of the time.  The regimen I am on now seems to be okay with my
> stomach, don't know what about the Topomax.
>
> I would greatly appreciate feedback about all of the above...
>
> Thanks,
> Spirithorse

Hi,

I am a newbie pretty much on this list.  I have some questions and
really would appreciate feedback.

I take Klonopin and Lamictal, and am going to start Topomax.  What
do you all think of all of these drugs?  The first two seem to work
well for me, but do not help with my migraines at all.  Depakote did
help for both my migraines and seizures, but killed my stomach and I
got really bad ulcers from it.  So I went off of it.  I was sick all
of the time.  The regimen I am on now seems to be okay with my
stomach, don't know what about the Topomax.

I would greatly appreciate feedback about all of the above...

Thanks,
Spirithorse

Dear Group:

I have been posting to epilepsy-related Yahoogroups for nearly three
years now.  It was through the exchanging of e-mails with
ordinary people like you that extraordinary things began to happen in
my life.  Let's face it, only through the Internet would a
woman in German introduce a guy like me (living in Atlanta, GA at the
time) to an epilepsy clinic in Santa Rosa, CA.  A year
later thanks to that clinic and for the first time in my life, I know
why I have epilepsy.  But, that is not all.  I am drug-free and
have my seizure disorder under control.  Indeed, good things can
happen by sharing needs on epilepsy-related Yahoogroups.

You would think that everybody welcomes "good news" - regardless of
how that news was achieved.  Since participating in
Yahoogroups, I have learned of many different ways people with
epilepsy have addressed their problems.  Some have used
medication.  Some have used surgery(including the installation of a
VNS device).  Some have used diets.  Some have used
vitamin therapy.  Some have even used EEG Biofeedback.  If I have
learned anything about epilepsy, it is that there is no
"one-size-fits-all" solution with regard to this affliction.  Every
person with epilepsy is a unique case and deserves to be treated
that way.

To my surprise, I learned a few days ago that not everyone
applauds "good news" - unless it is delivered in a mainstream
manner.  During last weekend, someone on a Yahoogroup (which will
remain nameless) went to a website for a clinic that treats
epilepsy.  They read on the website that epilepsy was described as
a "behavioral problem."  They did not make inquiry as to
what that meant at the website where they learned this information.
Instead, they went ballistic and began to trash the clinic on
their Yahoogroup.  This in turn made me go ballistic.  Unfortunately
for me, the person who initially went ballistic owned the
Yahoogroup.  So, guess what happened to me?  I was kicked off that
Yahoogroup.

You would think that any person - whether that person had epilepsy or
not - would realize that epilepsy is a "behavioral
disorder of the brain."  After all, any time you take as much as a
sleeping pill, that medication is going to change the behavior of
the brain.  That is why after taking sleeping pills, people are able
to sleep.  The behavior of the brain has been altered by the
medicine.  But, certain people on that Yahoogroup did not see it - or
understand it - that way.  Before being kicked off the
group, I got the feeling the term "behavior" angered people.  For
some reason, to tie the words "behavior" and "epilepsy"
together was wrong.  Instead, they must remain as mutually exclusive
terms.  One must not have anything to do with the other.
To believe otherwise, was somehow blasphemy.  At least, that was the
impression I got.

I would appreciate a little insight from this group with regard to
the following two questions:

1) Why would a Yahoogroup designed to help people who have epilepsy
not applaud success through alternative therapies?

2) Why would the same Yahoogroup be upset with a statement indicating
a relationship between behavior(of the brain) and
epilepsy?

I appreciate your feedback.

Lamar Morgan

they put me on that for migraines Neurontin and I did not do well on
it at all in fact it made my headaches worse if anything so they had
to take me off of it forget what they put me on next i did they put
me on other medication which helped but and was on too much
medication anyway so i took myself off of it but I seeing a new
doctor on tomapax which is great along with depokote so this is the
best I felt but you might do great don't let my experience stop you
ok Mary

--- In migraineswithepilepsy@yahoogroups.com, Violet Flame
<violetflame11@y...> wrote:
>
> My Neuro is putting me on Neurontin to control
> siezures with migraine.  I did horribly on Topamax.
> Anyone have anything good or bad to say about
> Neurontin?  Has it worked for anyones migraines?  How
> about wierd side effects? How many times a day do you
> have to take it?
> Thanks,
> Vi
>
> __________________________________
> Do you Yahoo!?
> The New Yahoo! Search - Faster. Easier. Bingo.
> http://search.yahoo.com

My Neuro is putting me on Neurontin to control
siezures with migraine.  I did horribly on Topamax.
Anyone have anything good or bad to say about
Neurontin?  Has it worked for anyones migraines?  How
about wierd side effects? How many times a day do you
have to take it?
Thanks,
Vi

__________________________________
Do you Yahoo!?
The New Yahoo! Search - Faster. Easier. Bingo.
http://search.yahoo.com

i had migraines on dilitan but tegetol I did not and caratol did
better on so yes it did make a difference and I take tomapax now
which helps but do check out what caratol if I spelling it right see
if that will help you Mary

--- In migraineswithepilepsy@yahoogroups.com, jjohnson823
<jjohnson823@y...> wrote:
> I'm a little late in replying, but I wanted to tell you my
experience.  I get migraines too, bad ones.  I was on Dilantin for
almost 5 years, and although it helped with the seizures I would
still get the headaches.  I got a new neuro and he switched me to
Carbatrol, which has helped tremendously.  I haven't had a headache
in months, and the last one I did have, it was managable.  Carbatrol
is a form of Tegretol which is longer lasting.  Maybe you could check
this out?  It is working for me!   Good luck, Jennifer
>
> elizjan60s <karinschacht@e...> wrote:Hello to all:
>
> I've been diagnosed with right temporal lobe partial complex
> seizures (I think they've identified them as most likely coming
> from the right area near my eye (towards the side of the face
> around the temple, not in front)..perhaps frontal lobe...anyway..
(I
> also have migraines)
>
> Neuro put me on Topomax first...wonderful for migraines, but
> had this taste perversion stuff and by the second week couldn't
> taste anything..would make me gag. Yuck
>
> Now wants me to try Lamictal. I've been putting it off because I've
> read a great deal of very bad experiences with severe headache
> and vomiting side effects..if you get them, they are REALLY bad. I
> do not feel comfortable even trying this drug at this point, as
I've
> had other drugs in the past do one or the other and no way i'm
> going to put myself through either if I can help it. I am very med
> sensitive..
>
> Please, can anyone suggest some ideas re meds with less
> severe headache and nausea problems?
>
> I was on a low dose of Neurontin which wasnt helping much with
> seizures(200-300mgs) but except for stomach upset at first I
> tolerated it quite well for a long time..but he doesnt like it,
saying
> its not so effective.
>
> what about Klonopin? Please, any ideas on drugs would be
> greatly appreciated! Thank you in advance.
>
>
> Yahoo! Groups SponsorADVERTISEMENT
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> To unsubscribe from this group, send an email to:
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> Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> "We will always remember.
> We will always be proud.
> We will always be prepared,
> So we may always be free."
> Ronald W. Reagan
>
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I'm a little late in replying, but I wanted to tell you my experience.  I get
migraines too, bad ones.  I was on Dilantin for almost 5 years, and although it
helped with the seizures I would still get the headaches.  I got a new neuro and
he switched me to Carbatrol, which has helped tremendously.  I haven't had a
headache in months, and the last one I did have, it was managable.  Carbatrol is
a form of Tegretol which is longer lasting.  Maybe you could check this out?  It
is working for me!   Good luck, Jennifer

elizjan60s <karinschacht@...> wrote:Hello to all:

I've been diagnosed with right temporal lobe partial complex
seizures (I think they've identified them as most likely coming
from the right area near my eye (towards the side of the face
around the temple, not in front)..perhaps frontal lobe...anyway.. (I
also have migraines)

Neuro put me on Topomax first...wonderful for migraines, but
had this taste perversion stuff and by the second week couldn't
taste anything..would make me gag. Yuck

Now wants me to try Lamictal. I've been putting it off because I've
read a great deal of very bad experiences with severe headache
and vomiting side effects..if you get them, they are REALLY bad. I
do not feel comfortable even trying this drug at this point, as I've
had other drugs in the past do one or the other and no way i'm
going to put myself through either if I can help it. I am very med
sensitive..

Please, can anyone suggest some ideas re meds with less
severe headache and nausea problems?

I was on a low dose of Neurontin which wasnt helping much with
seizures(200-300mgs) but except for stomach upset at first I
tolerated it quite well for a long time..but he doesnt like it, saying
its not so effective.

what about Klonopin? Please, any ideas on drugs would be
greatly appreciated! Thank you in advance.


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"We will always remember.
We will always be proud.
We will always be prepared,
So we may always be free."
Ronald W. Reagan





---------------------------------
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The New Yahoo! Search - Faster. Easier. Bingo.

[Non-text portions of this message have been removed]

The drug Klonopin I have heard some good results on headaches you can
give it a try I have migaines and epilepsy too I take tomaxax there
is also deporcoat a seizures medicatition may be spelling wrong give
it a try keep me posted Mary

--- In migraineswithepilepsy@yahoogroups.com, "elizjan60s"
<karinschacht@e...> wrote:
> Hello to all:
>
> I've been diagnosed with right temporal lobe partial complex
> seizures (I think they've identified them as most likely coming
> from the right area near my eye (towards the side of the face
> around the temple, not in front)..perhaps frontal lobe...anyway..
(I
> also have migraines)
>
> Neuro put me on Topomax first...wonderful for migraines, but
> had this taste perversion stuff and by the second week couldn't
> taste anything..would make me gag. Yuck
>
> Now wants me to try Lamictal. I've been putting it off because I've
> read a great deal of very bad experiences with severe headache
> and vomiting side effects..if you get them, they are REALLY bad. I
> do not feel comfortable even trying this drug at this point, as
I've
> had other drugs in the past do one or the other and no way i'm
> going to put myself through either if I can help it. I am very med
> sensitive..
>
> Please, can anyone suggest some ideas re meds with less
> severe headache and nausea problems?
>
> I was on a low dose of Neurontin which wasnt helping much with
> seizures(200-300mgs) but except for stomach upset at first I
> tolerated it quite well for a long time..but he doesnt like it,
saying
> its not so effective.
>
> what about Klonopin? Please, any ideas on drugs would be
> greatly appreciated! Thank you in advance.

Lorri,

From what I understand, to some degree everyone is affected by light,
sound and magnetism.  Of course, the amount some people are affected is
so minute that it is hardly noticeable.  For example, I have heard that
some people become sick just walking through the metal detectors at
airports.

Have you ever been a victim of highway hypnosis - that is to say you
felt yourself suddenly wake up behind the wheel of a car while driving a
long monotonous distance?  That's happened to me more often than I want
to admit.  What amazed me about this phenonenon called highway hypnosis
is that there is a lot going on here.  You are adversely affected by
light, sound and magnetism in ways you probably never realized.

First, the light.  That comes from the white strip down the middle of
the road.  That strips acts like a flashing light on your brain when you
are driving at high rate of speed.  This relaxes or tires the brain.

Second, the sound.  When the tires go over those cement crevices in the
pavement, you have a repititous thumping.  This too relaxes the brain.

Third, magetism.  My steel-belted tires spinning round-and-round creates
a magnetic field.  In addition, there is magnetism evident in a motor
engine that is running as well.  Some way somehow this magnetic field
reaches your brain.  When it does it serves to relax it.

All the forces of light, sound and magnetism evident in a long-distance
trip in a car can cause you brain to relax to the point that your
sub-conscious takes over.  At least, that is what the psychologist who
gave me my one-and-only neurophysical assessment told me.  Until then, I
simply thought what tired me out was simply the boring landscape.  If
you have ever driven down the Sunshine State Parkway in Florida, you
know what I am talking about.

Lamar Morgan


lorrif wrote:

>  Hi,
> Does fluorescent lighting have any effect on you guys?  Certain
> stores seem to have really lousy lighting and I'll know
> it...headaches, queasy stomach and just generally feeling *off
> balance*.
> Also I read what some of you were saying about Topamax.  I was on it
> a couple years ago but couldn't deal with the side effects. I'm
> ordinarily accident prone but was even more clumsy when I was on it
> and also it was difficult to concentrate. I work in a bank and
> couldn't even balance my checkbook, duh. I felt like my IQ points
> rose when the doctor took me off that stuff.
> I take Keppra twice a day and that also helps with the migraines.
> Occasionally I might take Motrin if a headache finds me anyway.
>
> Lorri
>
> --- In migraineswithepilepsy@yahoogroups.com, denverbroncoselway
> <no_reply@y...> wrote:
> > there are seizures called photo seizures whiche means they happen
> > when you spend too much time on the computer and so on or you watch
> > to much tv and or play to much videio games but there needs to do
> > more reseach and if that is your problem spend a little less time
> off
> > the computer i know people that had to do this less time watching
> tv
> > and so on i know it hard but you got to be smart and do what is
> best
> > and rember I will pray for you Mary owner
> >
> > --- In migraineswithepilepsy@yahoogroups.com, "Lamar Morgan"
> > <lamar@m...> wrote:
> > > Dear Group:
> > >
> > > Every time I ever went for an EEG, I went under strobe lights.  I
> > was
> > > told this was actually done to make me have a seizure.  Then, the
> > > doctor could pinpoint where the problem was and what was wrong.
> > That
> > > was really no surprise to me because I always hated those
> flashing
> > > strobe lights.  But, I never really gave much thought as to why.
> I
> > > just knew the flicking strobe bothered me.  But, when I had a
> neuro-
> > > physical assessment, I learned the flicker alone was not the
> > > problem.  It was the unchanging pattern of the flicker that was
> the
> > > problem.  Beleive it or not, my brain could not stand that the
> > > pattern did not change.  Why that is I haven't the slightest idea.
>
> > >
> > > Here's how I learned that truth.  When I had my neuro-physical
> > > assessment, I was asked to put on goggles that had flashing red
> > > designs in lights.  Well, at first, I refused to put the goggle
> > on.
> > > I felt certain this was designed to try to induce a seizure and I
> > > wanted nothing to do with it.  However, I was told wearing the
> > > goggles would instead relax me. How come?  Because the pattern of
> > the
> > > light beams constrantly changed.  Beleive it or not, that's
> exactly
> > > what happened.
> > > The changing pattens of the flashing lights relaxed me.  I was
> > truly
> > > amazed.
> > >
> > > Your computer screen and your TV set is in reality a flashing
> > light.
> > > Were those flashing lights not involved in changing patterns,
> would
> > > more people be having seizures?  I would not be a bit surprised.
> In
> > > that respect, I suppose multimedia should be considered more of a
> > > blessing than a curse.  Perhaps it is not too much of a stretch
> to
> > > think that multimedia can help facilitate healing - not directly
> > but
> > > indirectly.  Put it on the same par as reading a book or watching
> > an
> > > educational video.
> > >
> > > For those who do not know, it is possible to experience this kind
> > of
> > > multimedia - both online and off.  All you have to do is have the
> > > right FREE software on your computer - www.scala.com/iplay and
> > visit
> > > the Scala Internet Channel Index at
> > www.scala.com/channels/index.html.
> > >
> > > We need all the help we can get, do we not?  Mulitmedia is simply
> > one
> > > more available resource - thanks in part to the Internet.  I just
> > > hope more and more doctors will start utilizing it to educate the
> > > public on what their clinics have to offer.  In the future, I
> > believe
> > > Internet Channels will be commonplace for the showcasing of
> medical
> > > services.  But, now is the time to learn about them.  It's a lot
> > > easier to download a Channel one time and receive all the updates
> > > automatically than it is to constantly have to surf the Net
> looking
> > > for information.
> > >
> > > Lamar Morgan
>
>
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[Non-text portions of this message have been removed]

i know the lights don't brother me but can't speak for the rest of
the group and I am glad keppra works on yours mirgaines but it goes
to show you that everyone system is different and I also have
seizures as well so feel great but I will pray for you one of the
things I always do for people keep us posted on your process I really
want to know Mary owner

--- In migraineswithepilepsy@yahoogroups.com, "lorrif" <lorrif@y...>
wrote:
> Hi,
> Does fluorescent lighting have any effect on you guys?  Certain
> stores seem to have really lousy lighting and I'll know
> it...headaches, queasy stomach and just generally feeling *off
> balance*.
> Also I read what some of you were saying about Topamax.  I was on
it
> a couple years ago but couldn't deal with the side effects. I'm
> ordinarily accident prone but was even more clumsy when I was on it
> and also it was difficult to concentrate. I work in a bank and
> couldn't even balance my checkbook, duh. I felt like my IQ points
> rose when the doctor took me off that stuff.
> I take Keppra twice a day and that also helps with the migraines.
> Occasionally I might take Motrin if a headache finds me anyway.
>
> Lorri
>
> --- In migraineswithepilepsy@yahoogroups.com, denverbroncoselway
> <no_reply@y...> wrote:
> > there are seizures called photo seizures whiche means they happen
> > when you spend too much time on the computer and so on or you
watch
> > to much tv and or play to much videio games but there needs to do
> > more reseach and if that is your problem spend a little less time
> off
> > the computer i know people that had to do this less time watching
> tv
> > and so on i know it hard but you got to be smart and do what is
> best
> > and rember I will pray for you Mary owner
> >
> > --- In migraineswithepilepsy@yahoogroups.com, "Lamar Morgan"
> > <lamar@m...> wrote:
> > > Dear Group:
> > >
> > > Every time I ever went for an EEG, I went under strobe lights.
I
> > was
> > > told this was actually done to make me have a seizure.  Then,
the
> > > doctor could pinpoint where the problem was and what was
wrong.
> > That
> > > was really no surprise to me because I always hated those
> flashing
> > > strobe lights.  But, I never really gave much thought as to
why.
> I
> > > just knew the flicking strobe bothered me.  But, when I had a
> neuro-
> > > physical assessment, I learned the flicker alone was not the
> > > problem.  It was the unchanging pattern of the flicker that was
> the
> > > problem.  Beleive it or not, my brain could not stand that the
> > > pattern did not change.  Why that is I haven't the slightest
idea.
> > >
> > > Here's how I learned that truth.  When I had my neuro-physical
> > > assessment, I was asked to put on goggles that had flashing red
> > > designs in lights.  Well, at first, I refused to put the goggle
> > on.
> > > I felt certain this was designed to try to induce a seizure and
I
> > > wanted nothing to do with it.  However, I was told wearing the
> > > goggles would instead relax me. How come?  Because the pattern
of
> > the
> > > light beams constrantly changed.  Beleive it or not, that's
> exactly
> > > what happened.
> > > The changing pattens of the flashing lights relaxed me.  I was
> > truly
> > > amazed.
> > >
> > > Your computer screen and your TV set is in reality a flashing
> > light.
> > > Were those flashing lights not involved in changing patterns,
> would
> > > more people be having seizures?  I would not be a bit
surprised.
> In
> > > that respect, I suppose multimedia should be considered more of
a
> > > blessing than a curse.  Perhaps it is not too much of a stretch
> to
> > > think that multimedia can help facilitate healing - not
directly
> > but
> > > indirectly.  Put it on the same par as reading a book or
watching
> > an
> > > educational video.
> > >
> > > For those who do not know, it is possible to experience this
kind
> > of
> > > multimedia - both online and off.  All you have to do is have
the
> > > right FREE software on your computer - www.scala.com/iplay and
> > visit
> > > the Scala Internet Channel Index at
> > www.scala.com/channels/index.html.
> > >
> > > We need all the help we can get, do we not?  Mulitmedia is
simply
> > one
> > > more available resource - thanks in part to the Internet.  I
just
> > > hope more and more doctors will start utilizing it to educate
the
> > > public on what their clinics have to offer.  In the future, I
> > believe
> > > Internet Channels will be commonplace for the showcasing of
> medical
> > > services.  But, now is the time to learn about them.  It's a
lot
> > > easier to download a Channel one time and receive all the
updates
> > > automatically than it is to constantly have to surf the Net
> looking
> > > for information.
> > >
> > > Lamar Morgan

Hi,
Does fluorescent lighting have any effect on you guys?  Certain
stores seem to have really lousy lighting and I'll know
it...headaches, queasy stomach and just generally feeling *off
balance*.
Also I read what some of you were saying about Topamax.  I was on it
a couple years ago but couldn't deal with the side effects. I'm
ordinarily accident prone but was even more clumsy when I was on it
and also it was difficult to concentrate. I work in a bank and
couldn't even balance my checkbook, duh. I felt like my IQ points
rose when the doctor took me off that stuff.
I take Keppra twice a day and that also helps with the migraines.
Occasionally I might take Motrin if a headache finds me anyway.

Lorri

--- In migraineswithepilepsy@yahoogroups.com, denverbroncoselway
<no_reply@y...> wrote:
> there are seizures called photo seizures whiche means they happen
> when you spend too much time on the computer and so on or you watch
> to much tv and or play to much videio games but there needs to do
> more reseach and if that is your problem spend a little less time
off
> the computer i know people that had to do this less time watching
tv
> and so on i know it hard but you got to be smart and do what is
best
> and rember I will pray for you Mary owner
>
> --- In migraineswithepilepsy@yahoogroups.com, "Lamar Morgan"
> <lamar@m...> wrote:
> > Dear Group:
> >
> > Every time I ever went for an EEG, I went under strobe lights.  I
> was
> > told this was actually done to make me have a seizure.  Then, the
> > doctor could pinpoint where the problem was and what was wrong.
> That
> > was really no surprise to me because I always hated those
flashing
> > strobe lights.  But, I never really gave much thought as to why.
I
> > just knew the flicking strobe bothered me.  But, when I had a
neuro-
> > physical assessment, I learned the flicker alone was not the
> > problem.  It was the unchanging pattern of the flicker that was
the
> > problem.  Beleive it or not, my brain could not stand that the
> > pattern did not change.  Why that is I haven't the slightest idea.
> >
> > Here's how I learned that truth.  When I had my neuro-physical
> > assessment, I was asked to put on goggles that had flashing red
> > designs in lights.  Well, at first, I refused to put the goggle
> on.
> > I felt certain this was designed to try to induce a seizure and I
> > wanted nothing to do with it.  However, I was told wearing the
> > goggles would instead relax me. How come?  Because the pattern of
> the
> > light beams constrantly changed.  Beleive it or not, that's
exactly
> > what happened.
> > The changing pattens of the flashing lights relaxed me.  I was
> truly
> > amazed.
> >
> > Your computer screen and your TV set is in reality a flashing
> light.
> > Were those flashing lights not involved in changing patterns,
would
> > more people be having seizures?  I would not be a bit surprised.
In
> > that respect, I suppose multimedia should be considered more of a
> > blessing than a curse.  Perhaps it is not too much of a stretch
to
> > think that multimedia can help facilitate healing - not directly
> but
> > indirectly.  Put it on the same par as reading a book or watching
> an
> > educational video.
> >
> > For those who do not know, it is possible to experience this kind
> of
> > multimedia - both online and off.  All you have to do is have the
> > right FREE software on your computer - www.scala.com/iplay and
> visit
> > the Scala Internet Channel Index at
> www.scala.com/channels/index.html.
> >
> > We need all the help we can get, do we not?  Mulitmedia is simply
> one
> > more available resource - thanks in part to the Internet.  I just
> > hope more and more doctors will start utilizing it to educate the
> > public on what their clinics have to offer.  In the future, I
> believe
> > Internet Channels will be commonplace for the showcasing of
medical
> > services.  But, now is the time to learn about them.  It's a lot
> > easier to download a Channel one time and receive all the updates
> > automatically than it is to constantly have to surf the Net
looking
> > for information.
> >
> > Lamar Morgan

there are seizures called photo seizures whiche means they happen
when you spend too much time on the computer and so on or you watch
to much tv and or play to much videio games but there needs to do
more reseach and if that is your problem spend a little less time off
the computer i know people that had to do this less time watching tv
and so on i know it hard but you got to be smart and do what is best
and rember I will pray for you Mary owner

--- In migraineswithepilepsy@yahoogroups.com, "Lamar Morgan"
<lamar@m...> wrote:
> Dear Group:
>
> Every time I ever went for an EEG, I went under strobe lights.  I
was
> told this was actually done to make me have a seizure.  Then, the
> doctor could pinpoint where the problem was and what was wrong.
That
> was really no surprise to me because I always hated those flashing
> strobe lights.  But, I never really gave much thought as to why.  I
> just knew the flicking strobe bothered me.  But, when I had a neuro-
> physical assessment, I learned the flicker alone was not the
> problem.  It was the unchanging pattern of the flicker that was the
> problem.  Beleive it or not, my brain could not stand that the
> pattern did not change.  Why that is I haven't the slightest idea.
>
> Here's how I learned that truth.  When I had my neuro-physical
> assessment, I was asked to put on goggles that had flashing red
> designs in lights.  Well, at first, I refused to put the goggle
on.
> I felt certain this was designed to try to induce a seizure and I
> wanted nothing to do with it.  However, I was told wearing the
> goggles would instead relax me. How come?  Because the pattern of
the
> light beams constrantly changed.  Beleive it or not, that's exactly
> what happened.
> The changing pattens of the flashing lights relaxed me.  I was
truly
> amazed.
>
> Your computer screen and your TV set is in reality a flashing
light.
> Were those flashing lights not involved in changing patterns, would
> more people be having seizures?  I would not be a bit surprised. In
> that respect, I suppose multimedia should be considered more of a
> blessing than a curse.  Perhaps it is not too much of a stretch to
> think that multimedia can help facilitate healing - not directly
but
> indirectly.  Put it on the same par as reading a book or watching
an
> educational video.
>
> For those who do not know, it is possible to experience this kind
of
> multimedia - both online and off.  All you have to do is have the
> right FREE software on your computer - www.scala.com/iplay and
visit
> the Scala Internet Channel Index at
www.scala.com/channels/index.html.
>
> We need all the help we can get, do we not?  Mulitmedia is simply
one
> more available resource - thanks in part to the Internet.  I just
> hope more and more doctors will start utilizing it to educate the
> public on what their clinics have to offer.  In the future, I
believe
> Internet Channels will be commonplace for the showcasing of medical
> services.  But, now is the time to learn about them.  It's a lot
> easier to download a Channel one time and receive all the updates
> automatically than it is to constantly have to surf the Net looking
> for information.
>
> Lamar Morgan

Dear Group:

Every time I ever went for an EEG, I went under strobe lights.  I was
told this was actually done to make me have a seizure.  Then, the
doctor could pinpoint where the problem was and what was wrong.  That
was really no surprise to me because I always hated those flashing
strobe lights.  But, I never really gave much thought as to why.  I
just knew the flicking strobe bothered me.  But, when I had a neuro-
physical assessment, I learned the flicker alone was not the
problem.  It was the unchanging pattern of the flicker that was the
problem.  Beleive it or not, my brain could not stand that the
pattern did not change.  Why that is I haven't the slightest idea.

Here's how I learned that truth.  When I had my neuro-physical
assessment, I was asked to put on goggles that had flashing red
designs in lights.  Well, at first, I refused to put the goggle on.
I felt certain this was designed to try to induce a seizure and I
wanted nothing to do with it.  However, I was told wearing the
goggles would instead relax me. How come?  Because the pattern of the
light beams constrantly changed.  Beleive it or not, that's exactly
what happened.
The changing pattens of the flashing lights relaxed me.  I was truly
amazed.

Your computer screen and your TV set is in reality a flashing light.
Were those flashing lights not involved in changing patterns, would
more people be having seizures?  I would not be a bit surprised. In
that respect, I suppose multimedia should be considered more of a
blessing than a curse.  Perhaps it is not too much of a stretch to
think that multimedia can help facilitate healing - not directly but
indirectly.  Put it on the same par as reading a book or watching an
educational video.

For those who do not know, it is possible to experience this kind of
multimedia - both online and off.  All you have to do is have the
right FREE software on your computer - www.scala.com/iplay and visit
the Scala Internet Channel Index at www.scala.com/channels/index.html.

We need all the help we can get, do we not?  Mulitmedia is simply one
more available resource - thanks in part to the Internet.  I just
hope more and more doctors will start utilizing it to educate the
public on what their clinics have to offer.  In the future, I believe
Internet Channels will be commonplace for the showcasing of medical
services.  But, now is the time to learn about them.  It's a lot
easier to download a Channel one time and receive all the updates
automatically than it is to constantly have to surf the Net looking
for information.

Lamar Morgan

have you tried topamax it comes it different mgs but it works very
well on epilepsy it has controled my seizures and migraines very well
I know it works well with me it comes in 25, 50, 100, 200, mg I take
it twice a day when the tegetetol stoped working and I changed
doctors and I have not had a seizures since december and my headaches
have reduced in half so ask you doctor about that medication I know
the headaches and seizures are better so ask your doctor and keep me
posted on what him or her saids Mary

--- In migraineswithepilepsy@yahoogroups.com, "cyberwaif2000"
<cyberwaif2000@y...> wrote:
> Hi Everyone
>
> This is just a quick one to say Hello.
>
> I've suffered from severe migraines (with and without aura) all my
> life and now I'm finally on medication for it (pizotifen), which
> seems to help.
> I started having seizures about a year and a half ago and after 6
> months the neurologist finally put me on Keppra which helped cut
> doen the number of seizures I was having, the problem is that when
I
> went back to him he said he wasnt sure if it was epilepsy (cos I
> dont lose consciousness completly when I fit) and took me off the
> meds then and there, so I havnt been taking anything since January
> I'm back to fitting evry 3-4 weeks and my work isnt very
> understanding of my health/ absence record (grrrr !).
> So thats a quick intro about me-I'd be intersted to meet other
> people who might have had similar experiences with their doctors
etc
> or to just chat to other people like me.
> look forward to talking 2 u all.
> BB
> Cyberwaif

Dear BB,

Are you looking to learn more about epilepsy?  If so, check out the
Links section in our Yahoogroup's web site.  A lot of interesting
resources reside there.

If you are not satisfied with the help you are getting from your current
doctor, by all means seek some "second opinions."  It's easy to do
online.  Just go to an epilepsy clinic that has a web site and start
asking questions via e-mail.  One such clinic I have found to be
extremely helpful is Andrews-Reiter at  www.andrewsreiter.com .  There
are many others.

In my personal opinion, what many people fail to do (myself included for
34 years of my life) is understand their epileptic condition.  Why is it
that you have epilepsy?  No two people can claim to have epilepsy for
exactly the same reason.  Yet, it has been my experience that most
people with epilepsy are not treated to a tailor-made diagnosis.
Instead, they are experimented upon - told to take drugs which at best
can only the problem rather than get rid of it.  If one drug does not
satisfy, then let's either change its level of potency or try another
and see what happens.  As a result, many people with epilepsy remain in
the dark as far as to what is really wrong.  If there happen to be
better options available  to address the problem than popping  are they
ever going to know?  Unless they ask, I seriously doubt it. Why?
Because they are under the impression they are already doing all that is
necessary.  After all, a doctor gave the diagnosis.  Isn't he required
by an oath "first, to do no harm?"

True, not every person with epilepsy has the option of becoming
drug-free.  But, ever person with epilepsy deserves to know if they
might possibly have that option.  Like so many things in life, you have
to ask the right questions to the right people to get the right
answers.  It took me 34 years to do that, to uncover the truth regarding
my epilepsy and become drug-free.  I feel very fortunate.  I have been
drug-free now for two years.  Technically, I am still epileptic.
However, since becoming drug-free, I have only suffered two seizures.
Both occurred during my sleep.  Both were the result of not getting
adequate sleep - not becausing I was off medication.  But, this never
would have happened had I remained content popping pills and not
aggressively sought a better quality of life!

Good luck to you.

Lamar Morgan




cyberwaif2000 wrote:

>  Hi Everyone
>
> This is just a quick one to say Hello.
>
> I've suffered from severe migraines (with and without aura) all my
> life and now I'm finally on medication for it (pizotifen), which
> seems to help.
> I started having seizures about a year and a half ago and after 6
> months the neurologist finally put me on Keppra which helped cut
> doen the number of seizures I was having, the problem is that when I
> went back to him he said he wasnt sure if it was epilepsy (cos I
> dont lose consciousness completly when I fit) and took me off the
> meds then and there, so I havnt been taking anything since January
> I'm back to fitting evry 3-4 weeks and my work isnt very
> understanding of my health/ absence record (grrrr !).
> So thats a quick intro about me-I'd be intersted to meet other
> people who might have had similar experiences with their doctors etc
> or to just chat to other people like me.
> look forward to talking 2 u all.
> BB
> Cyberwaif
>
>
>                    Yahoo! Groups Sponsor


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[Non-text portions of this message have been removed]

Hi Everyone

This is just a quick one to say Hello.

I've suffered from severe migraines (with and without aura) all my
life and now I'm finally on medication for it (pizotifen), which
seems to help.
I started having seizures about a year and a half ago and after 6
months the neurologist finally put me on Keppra which helped cut
doen the number of seizures I was having, the problem is that when I
went back to him he said he wasnt sure if it was epilepsy (cos I
dont lose consciousness completly when I fit) and took me off the
meds then and there, so I havnt been taking anything since January
I'm back to fitting evry 3-4 weeks and my work isnt very
understanding of my health/ absence record (grrrr !).
So thats a quick intro about me-I'd be intersted to meet other
people who might have had similar experiences with their doctors etc
or to just chat to other people like me.
look forward to talking 2 u all.
BB
Cyberwaif

Dear Group:

I just went to Amazon.com  Believe it or not, Amazon.com lists 596
books concerning epilepsy.  Here's a list of the Top 5
best-sellers:

1) The Ketogenic Diet: A Treatment for Epilepsy by John M. Freeman,
MD.

2) Seizures and Epilepsy in Childhood: A Guide by John M. Freeman, MD.

3) In Bad Taste: The Msg Symptom Complex by George R. Schwartz, MD
and Kathleen A. Schwartz.

4) Epilepsy: A New Approach by Adrienne Richard and Joel Reiter, MD.
(Available in the public library system in the US.)

5) Treating Epilepsy Naturally: A Guide to Alternative and Adjunct
Therapies by Patricia A. Murphy and Russell L. Blaylock.

All these books have five-star ratings.  If you go to Amazon.com you
can the read reviews of these books.  I hope this
information is helpful to those of you who are seeking help.

Lamar Morgan

Hi

Just to let the group know that I had chronic IBS and
related stomach problems, migraine, mood swings etc. I
underwent tests like sigmodoscopy, ultrasonic, barium
tests besides stool, urine and blood tests. I was
given courses after courses of endobex, flyzyl with
iron tables besides antacids, liver tonic and what
not—I don’t remember many of them now. All these would
give me temporary relief and condition will worsen
after couple of days. I became lethargic, my eye sight
deteriorated, was prone to fever, cough and cold
often, I had to put on specs, my menstruation became
irregular, I became irritable by nature even, prone to
mood swings and what not.  I was even told by doctors
that I had no disease and it is only psychological and
I should stop thinking about it. But, how can I stop
thinking when it is bothering me all the time. Then, I
tried homeopathy, ayurvedi, unani, naturopathy but the
condition remained same more or less. I was losing my
will to live. I don’t want to make the story longer
and boring.
Then, I stumbled upon a life natural expert and my
whole life changed. I look ten years younger to my
age, forgotten what migraine is like, no IBS, no acne
problem or morning sickness, mood swings given rise to
cheerfulness, more serenity in life, menstruation more
regular, I can go on counting all the blessings. And,
I save lots of money, which I used to spend on
doctors, medicines and other helps. I was suggested
life natural by a friend and initially I was
skeptical. But, I tried as a last resort. Since I did
not have diabetes, blood pressure etc., I could easily
stop lethal medicines and switched over to new regime
of healthy living.

The person who helped me is Mr. Bhuwan Prasad who was
in New Delhi (India) and now he is in Toronto. His
advice is totally free. He has been ordained by his
Guru not to accept even donations (the practitioners
of this system are not supposed to make living from
miseries of others) and not to make any publicity
about himself. It has to spread only through words of
mouth. He is kind of a recluse but very supportive
when approached with a desire to improve health.
Having benefited so much I thought it is my duty to
spread the words so that the suffering humanity can
take advantage. His methods are very simple and do not
involve intervention of any drugs and not complicated
Yoga postures. Therefore, there is no harm in giving a
try. You don’t lose anything, not even a dime.

I wish, I could have known him earlier; I would not
have to suffer for so many years. I would always be
grateful to my friend who told me about him. (I will
write in full detail about my entire medical history
shortly as suggested by a group member).

A kind soul has also set up some information on his
web-site about him (Prasad) which can be accessed on
the following manner:

Go to
http://www.geocities.com/sameerlal_1/newspaper.html
then click on (e-center for holistic healing) and
follow the links.

You may perhaps like to go through FAQ at first and
then other links as well.
He can also be contacted at the following email
address: bhuwan.prasad@...

He has also been advising chronic patients through
internet chat and telephone (of course, depending upon
the nature of disease and his comfort level in dealing
through distance.
If you have any question, feel free to write me.

Sushma


__________________________________________________
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:) Hello Everyone! posting to invite you all to our chatroom for Webtv user's
well it's open to anyone that wants to join us in chat at 9:00 pm eastern time
everyday the room will be open...On StarChat Network Room Name CHRONIC_HEALTH
port #7000

To join us please visit my home page
look on the content for "Chronic illness links" click onto that site then scroll
down and you will see the listing for
CHRONIC_HEALTH chatroom for webtv user's as well as computer users and computer
users please download the Starpirch or StarmIRC to enter the room hope to see
you all soon..take care everyone & God Bless!

url to my hompage is

http://community.webtv.net/MzMinnieMouse/Understanding

Dear Group:

Yahoogroups bring like-minded people together for sharing, caring and
encouraging.  Sometimes, in the process of
communicating concerns, solutions to problems are discovered.  My life
with epilepsy was transformed for the better because
I sought second opinions from qualified medical professionals online.
  I asked a lot of folks a lot of questions.  Making such
inquiries is what helped facilitate my becoming drug-free after 34
years on medication.  I now have my seizure disorder under
control and am enjoying a better quality of life.

The Internet can teach all of us a lot more than we currently know.
Of course, that's pretty obvious.  What's no so obvious is
that mulitmedia to your desktop from the Internet could prove helpful
in this process.  What's more, you don't need to access
your e-mail or a web site to make this happen.  A free software
program brings it to your desktop while you're online doing
other things.  This free software program works in the background
while you are online.  It will even update the presentation
for you if that is something that needs to be done.  And, it will do
this for you automatically.  But, that's not the best part.  In
my opinion, the best part is you can actually view the multimedia
presentation at your convenience, offline.  You do not have
to remain online for this program to work.  That's a real blessing for
people who have dial-up Internet access.

How do I know all this?  I design multimedia-scripted CD's for a
living.  The CD's I design are primarily for keynote
speakers - members of the National Speakers Association.  Like many
designers, I set up an Internet Channel to showcase
my presentations freely to the public.  All one has to do to see a
designer's presentation is subscribe to their channel.  This
also is done free-of-charge.  Anyone wishing to subscribe to an
Internet Channel should download the free software
( www.scala.com/iplay ) and then take a look at the Channel Index (
www.scala.com/channels/index.html ).  My channel is
#59 on the list.

I bring this matter to the attention of our group because I would like
to expand the scope of my Internet Channel to include
medical programs and procedures which are transforming peoples lives
for the better - including treatments for epilepsy.  This
is not something I can accomplish overnight.  But, it can be done over
a period of time if medical professionals have an
interest.  I personally believe multimedia is get way to educate the
public - which is one of the reasons why I am invoved in
the industry that promotes it.  If you know of doctors or clinics
which would have an interest in this type of communication
with the public, please have them contact me at lamar@....

Lamar Morgan