Well after just having one, well about two, good days of finally getting over a
strong seizure I had over the weekend - had another strong one last night.
Lasted about 8 min. I have no idea what is going on. I usually am not like
this with my seizures. All that I can think is that last week I saw my doctor
he lowered my vns. So with it being so low it is not controlling the seizures.
He only is in office on Wednesdays, so I called today just to see if there was a
way to get a early message to him. The nurse that I talked with did take my
message and will get in touch with his nurse.
It has really been crazy the past year, well since the hurricane with talking
with my doctor on days when he is not in his office. My doctor is located in
New Orleans. He just moved to "another" location, but was told this will be
there permanent stay. He also lost some of his assistant doctors when he moved
to this area. So that is another reason why it is hard. Hopefully now that
they have a permanent location, new neurosurgeon, and other accident doctors
coming in things will improve.
There is some good about this location it's at - the Memorial Medical Center
of New Orleans, La. Now I know that you all do not know or remember hearing or
reading about how this hospital was greatly damaged and also during the
hurricane many problems happened there. Many people thought this place would
never be usable again. Goes to show that dreams, prayers, and a lot of
determination from supportive people can do. There are still areas of the
hospital that may not be usable soon. Still the hospital is doing very well and
improving everyday.

Take care
Ashley








Hi everyone
I have not posted in a long time. So sorry. I have been trying to keep up
with other post.

My weekend started of good then turned around on me. I had a dinner party
Saturday night and things were going great. Then a strong aura started.
Luckily I was able to walk into my bed room before the seizure started. I have
simple partial seizures - so I stay alert about 90% alert of what is happening
around me. Like always it affects my right side and starts in my foot and moves
up my leg. My leg has a great amount of pain when this happens. Then fear came
over me. My husband came into the room and I would not let him get close to me
I was so scared, but not of him. He said it was like I was looking around at
other things that were scaring me. I was also crying. This lasted for about 3
min. or so. Then I just sat down and my right side started jerking. I also see
bright, colorful lights in the corner of my right eye. When I do I will follow
them because the lights will start moving. Then I feel back and my husband
could not get my attention. So he used a
diastat. Once the seizure was over I rested for a few minutes. (My husband
feels it lasted for about 10 min. or so.) Then I went back to the table with
everyone. They all new what had happened, but did not say anything. Once
everyone was gone I went to bed. Then woke up yesterday feeling like a truck
ran over me. I could hardly move my head was hurting so bad. I slept for the
rest of the day. Today I still am very tired, confused and not very alert.
I saw my doctor last week. I told him the only time that I have been having
seizures is at time of ovulation and my monthly cycle. So during this time he
was me to increase my klonopin & lamictal. That I understand, just I am trying
to get pregnant so I am not to crazy about the idea of it.
I am also going to start going to speech therpay due to the trouble I am still
having.

Do hope that everyone has been doing good.

Take care
Ashley

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