--- Ashley Joffrion <charmedbrown_eyes@...> wrote:
Hi Ashley,

I understand how you feel. I also have trouble talking some times. My memory
problems keep me from working again. I can't take care of my family. Instead
they take care of me. The ringing in the ears (if it's the same as mine) is
never gone (for me). My balance is gone and I fall allot. It is hard to get
excited about anything. Depression goes with this sort of problems. We have to
hold out for hope and push on. At least your doctors are trying to figure things
out. Maybe they will soon. Hang in there. You never know what tomorrow will
bring. I could recommend some chat sites if you want to talk to others that have
disabilities. You can learn how they cope with these things. One helped me allot
back in 2000 when I had to finally accept my problems and learn to adjust. Any
way I just wanted you to know your not alone.

dan
>
> Hi everyone
>
> So much has been going on for me. It is just
> driving me crazy and tired.
>
> I try so hard to keep a positive attitude but it is
> getting harder and harder on me.
>
> I went to see my doctor (Fisch) on Monday. I told
> him that the other neuro. for my right side was
> saying it was not dystonia, the problems I have is
> due to epilepsy. So he (Fisch) has another neuro.
> that works with him looking into it. So I half to
> go back at the end of this month for the botox shot.
> We also talked about the problems I have now during
> a seizure. Back in April of 2002 when I had a grand
> mal seizure that caused me to here a loud sound in
> my right ear everyday/all day for around 3 months,
> he put me on medication to help it. It is called
> zyprexa (5mg.). This medication is originally use
> for people with certain mental disorders. I felt so
> uncomfortable about taking it. Well because of the
> loud sounds I now get when I have a seizure he put
> me back on the medication. But only to take it for
> 4 days after a seizure.
> And my right side is really getting bad. The pain I
> have at times is horrible. I just never thought
> that I would have such a hard time like this after
> surgery. I new that there was not a 100% chance of
> never having seizures. I just never thought it
> would be like this and have these problems.
> I have hardly any energy to want and do things
> anymore. I just feel mad, depressed, very tired and
> I just want to get away from it all. I would love
> to go back to work, but with the problems and my
> short term memory I can not.
> With what I experience now during a seizure is so
> different then what I experienced before surgery.
> It only effects my right side and I feel, here,
> experience it all. I hate it. I also have another
> one were I just lose my ability to talk. I know
> what others are saying and I know what I want to
> say, just can not do it.
> I never thought that at age 32 I would still be
> living with my parents, not being able to drive and
> have problems like this.
> I just can not get happy. This weekend is my father
> b'day and we are giving him a big b'day party. You
> would think I would be so excited about it. I'm
> not. And as for as the up coming holidays.....just
> ready for it to be over and done with.
>
> let me go. thanks for reading. I do hope that
> everyone has been doing well.
>
> Take care
> ashley
>
>
>
>
>
> Ashley



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