if I had to guess you had what was called pariical complex seizures
and that will make you forget even if your doctor thinks you didn't
cause this is what happen to me this week and it was a seizure so be
assure it was a seizure Mary

--- In migraineswithepilepsy@yahoogroups.com, Ashley Joffrion
<charmedbrown_eyes@y...> wrote:
> First I want to say I am sorry for emailing a blank letter. Hit
the wrong button by accident.
>
> I was wondering besides memory problems, speech problems, etc. - if
anyone after surgery has dealt with permanent damage from the surgery?
>
> Since I developed epilepsy when I was 9 (left temple lobe), I have
always had problems with my right leg. My big toe will stick up by
itself and I will have pain in my leg. I have very little balance on
my right side. I was never told much about it. So to me and my
family it was not a "big" problem for me.
>
> As I got older I have had more problems with this, but again my
neuro. never said much. He would look at it, but he felt it had
nothing to do with me having epilepsy.
>
> I have always worn a brace on my knee. I also can not run because
the pain gets so bad and then my leg gives out.
>
> Last year after the grand mal seizure I had in April, the next day
I could not feel my right side. I also could not talk and remember
anything. The feeling and use of my leg improved during the day.
Finally after around 3 or 4 days I was able to walk correctly and my
memory had improved.
> Now even through I was able to use my right leg, it still was very
painful and from my knee to my foot it was numb and cold. It also
looked like I had to make my leg move when walking it by dragging it.
My balance was worse. I would be walking and my leg would just give
out. That is when my doctor started to pay more attention to it.
This was in 2003. The feeling of it being numb did stop after about
3 months. But the pain was/is there.
> My neuro (Dr. Fisch) told me I may have dystonia and recommended me
to see another neurologist that worked in the same clinic with him,
that specialized with problems like this.
> So I did. This neuro (Dr. Ryall) was not sure what I had. He did
know that the reason why I dragged my foot/leg was because I had
developed foot drop. To try and help my toe relax he would give me
botox shots in my right leg every three months.
>
> When I saw Dr. Ryall last Tuesday he told me that it is not
dystonia that I have and he can not find any other medical condition
that could cause it, except for one - me having epilepsy.
>
> Dr. Ryall feels that when I developed epilepsy some damaged was
done to my right side. After I had surgery in 2002, he feels that
the more damaged could have happened. When I had such a strong grand
mal seizure in 2003 that more damaged happened and that is what cause
the drop foot, my leg giving out, and the pain. He said that there
really was nothing more he could do, only my neuro. for epilepsy Dr.
Fisch. Dr. Ryall could give me the botox shot still. So he was
supposed to do so the day I was there. After waiting almost 3 hours,
no one bothered to tell me that my insurance would not cover it. By
this time I was very tired and mad. I had a long drive back home
(almost 2 - 3 hours, depends on traffic), so I left.
>
> Also since I had surgery in 2002, I have noticed that when I do
have a seizure that it effects my right side. So I feel that every
time one happens it is putting more pressure on the use of my right
side. Besides problems with my leg, I now have problems with my
arm. It hurts when I hold things and feels like it wants to give
out.
>
> This is all so over whelming to me. I am very happy and proud that
I was able to have surgery. It just seems that since the surgery so
many more problems have developed. It is getting very confusing for
me.
>
> So if anyone has any input, let me know.
>
> Thanks for reading.
>
> Y'all Take Care
>
>
>
>
>
> Ashley
>
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