Dan
if you are on medical assistance the thing you should do is call
medical assistance about getting a new doctor and tell them what you
told me that you are going to doctor that is not helping you and ask
if you can go to another doctor also they might fall under the same
catolonge I asked my mom you can call the american medical referral
and ask them if they take your insurrance and if they do see if they
will put you on tomapax and so on there is help out and i will do
what i can for you ok let me know how that works i will try to find a
website Mary
--- In migraineswithepilepsy@yahoogroups.com, LordDragonDan
<lorddragondan@y...> wrote:
> Hi Mary,
>
> I don't know if I introduced myself when I joined the
> group awhile back. In Febuary 1999 I was hospitalize
> with menigital encephilitis. I had my first seizure in
> the ct machine on Feb 1. The doctors had a very hard
> time getting the seizures under control. I spent most
> of my time in a coma. My wife was told on at least two
> occations that I wouldn't make it through the night.
> The entire time the seizures continued. On March 11,
> 1999 I woke up. My wife and sister were there. Before
> I could ask anything the doctor walked in and ask me
> what day it was. I got the year wrong. Then I found
> out what happened.
> I've had migraines all my life. Usually 3 to 4 a
> year. Now about 11 to 13 per month. The only signs of
> seizures I have are complex-partial. Though I am still
> on seizure meds. The doctors are now doing nothing for
> my migrains. The nuerologist wants to put me in the
> epilepsy observation unit and take away the meds to
> see if I'm still having seizures. He's not concerned
> about the migrains or the memory and concentration
> problems caused by the brain damage. Seizures are the
> least of my problems. I lost my job of 14 yrs. I have
> a wife and 6 kids to support and can't work. Social
> Security is draging their feet. The lawyer I have is
> little help. If I could solve the migrain problem I
> could work again. Preventing the seizures would be
> great! We are now on medicaid so the list of doctors I
> can see is now down to one. My original nuerologist
> has left the area. Any one have a idea where I can
> find a new one?
> The seizures are somewhat undercontrol. The memory
> and concentration can be dealt with to an extent. The
> migraines take away my ability to live my life with my
> family, work and support them. I can't take anything
> in the triptan family of drugs. I'll talk to my doctor
> about the topamax (dout he listen at all).
>
> Thanks,
>
> dan
>
>
>
>
> --- denverbroncoselway <no_reply@yahoogroups.com>
> wrote:
>
> >
> >
> > Hi Dan
> >
> > I wanted to make a suggest to you if your doctor is
> > not helping you
> > then get a new one now I have a hmo so if I don't
> > like the one they
> > send me to all I have to do is call them get a
> > reffer or read the
> > book that book if you have medical assistance you
> > call medical
> > assistance there is always a way if your doctor is
> > not helping you so
> > look into Dan I am the owner I wanted to help people
> > who suffer from
> > epilepsy and mirgraines if there is anything I can
> > do for you let me
> > know you can e-mail or instant message me Mary
> >
> >
> >
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