Thank you, Mary. I've had only 6 seizures, very mild ones, over the
last two weeks. That's a major improvement, so I'm very hopeful.
Mark
--- In migraineswithepilepsy@yahoogroups.com, denverbroncoselway
<no_reply@y...> wrote:
> you in my prayers let as know what happens Mary
>
> --- In
migraineswithepilepsy@yahoogroups.com, "einsteins_inspiration"
> <einsteins_inspiration@y...> wrote:
> > Hi, Karin. Unfortunately, I am manic-depressive and tricyclics
are
> > notorious for swinging us into manic episodes, so that is not an
> > option for me. However, after a long search I'm on an
> antidepressant
> > that works for my depression, Effexor. I noticed that when I was
> > started on it that both my seizures and migraines became more
> intense
> > and frequent. Is it just a coincidence or is it the Effexor?
> > Considering the timing it's hard not to blame the Effexor, but
it's
> > the only antidepressant that's worked for me and it got me out of
a
> > suicidal depression, so I'm really loath to experiment with it.
> >
> > I was on Remeron for a short time, and it did make me very
relaxed
> > but I don't remember how it affected my headaches (if I even took
> > time to notice). Wellbutrin was very bad for my seizures (it's
> well
> > known for lowering the seiure threshold in people with a history
of
> > seizures). It made my seizures happen non-stop one after the
other.
> I
> > was on Lamictal for a couple of years (they use it in manic-
> > depressives as a substitute for antidepressants), but I was never
> on
> > a dose large enough to cause me headaches or even help my
seizures.
> I
> > took my final dose of it last night. There's no way I can ever
> take
> > Depakote. I was on it for over a year and it made me very ill.
> They
> > use it not only for seizures but also for migraines and manic-
> > depression. It would be a magic pill for me, but it makes me
very
> > sick as well as clinically depressed. Definitely no toleration.
> >
> > Across the counter medications do nothing for me, and the ones
with
> > caffeine make me anxious--nervousness with a migraine is more
than
> I
> > can take.
> >
> > I'll look into the supplements you suggested. Thanks. Thanks
also
> > for the other suggestions, though I'm not able to pursue them.
I'm
> > sure that if the Cardizem doesn't help me more that my
neurologist
> > will try something else.
> >
> > Mark
> >
> > --- In migraineswithepilepsy@yahoogroups.com, Karin Schacht
> > <karinschacht@e...> wrote:
> > > hi mark~
> > >
> > >
> > > Are you able to take or tolerate an additional med like an
> > > anti-depressant? I wonder if something like one of the
tricyclics
> > would
> > > help with some of your other migraine symptoms.
> > > Although a higher dose of remeon made my siezure problems
worse,
> > the
> > > remeron in general helped with many of the other migraine
> symptoms
> > you
> > > mentioned- nausea, sensitivity,etc.. Can you do an adjunct
> > > anti-convulsant? Have you tried Neurontin yet? I would like to
go
> > back
> > > on that because i had a lot less migraines on it than now,even
> > though i
> > > was on a fairly low dose. I was taken off that to go on topomax
> > (didn't
> > > tolerate) then lamictal (recently started and sure enough I
have
> a
> > > headache:o() - these for the seizure activity.
> > >
> > > I found my migraines also started when I got my first complex
> > partial,
> > > at age 13. My mothers side of her family has migraines.
> > >
> > > Right now I im in a medication limbo-land, trying to get off
> > remeron
> > > for other reasons but trying to find another good subsitute and
a
> > > tolerable anti-convulsant. I notice my migraine problems
> worsening
> > (or
> > > really going back to the way they used to be) as I get lower
and
> > lower
> > > on my remeron dosage.
> > >
> > > Two things I have found helpful somewhat (as a preventative but
> > I've
> > > read of some using these to abort a migraine) is
> > magnesium..chelated
> > > magnesium in a pill form, and WaterOz (an aqueous magnesium
> product
> > > that you can order online), which has been pretty good..up
until
> i
> > > started this lamictal :0(.
> > >
> > > I hope you can work with your drs to come up with something
that
> > will
> > > stop your frequent migraines... out of all the meds i've tried,
> the
> > > neurontin and the remeron have helped me the most...
> > >
> > > best of luck in finding something helpful!!
> > >
> > > karin