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Re: [migraines with epilepsy] help,please,med suggestions   Message List  
Reply | Forward Message #231 of 678 |
I'm a little late in replying, but I wanted to tell you my experience. I get
migraines too, bad ones. I was on Dilantin for almost 5 years, and although it
helped with the seizures I would still get the headaches. I got a new neuro and
he switched me to Carbatrol, which has helped tremendously. I haven't had a
headache in months, and the last one I did have, it was managable. Carbatrol is
a form of Tegretol which is longer lasting. Maybe you could check this out? It
is working for me! Good luck, Jennifer

elizjan60s <karinschacht@...> wrote:Hello to all:

I've been diagnosed with right temporal lobe partial complex
seizures (I think they've identified them as most likely coming
from the right area near my eye (towards the side of the face
around the temple, not in front)..perhaps frontal lobe...anyway.. (I
also have migraines)

Neuro put me on Topomax first...wonderful for migraines, but
had this taste perversion stuff and by the second week couldn't
taste anything..would make me gag. Yuck

Now wants me to try Lamictal. I've been putting it off because I've
read a great deal of very bad experiences with severe headache
and vomiting side effects..if you get them, they are REALLY bad. I
do not feel comfortable even trying this drug at this point, as I've
had other drugs in the past do one or the other and no way i'm
going to put myself through either if I can help it. I am very med
sensitive..

Please, can anyone suggest some ideas re meds with less
severe headache and nausea problems?

I was on a low dose of Neurontin which wasnt helping much with
seizures(200-300mgs) but except for stomach upset at first I
tolerated it quite well for a long time..but he doesnt like it, saying
its not so effective.

what about Klonopin? Please, any ideas on drugs would be
greatly appreciated! Thank you in advance.


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Sat Apr 26, 2003 11:09 pm

jjohnson823
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Message #231 of 678 |
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I'm a little late in replying, but I wanted to tell you my experience. I get migraines too, bad ones. I was on Dilantin for almost 5 years, and although it...
jjohnson823
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Apr 26, 2003
11:09 pm

i had migraines on dilitan but tegetol I did not and caratol did better on so yes it did make a difference and I take tomapax now which helps but do check out...
denverbroncoselway
denverbronco...
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Apr 27, 2003
1:08 am

My Neuro is putting me on Neurontin to control siezures with migraine. I did horribly on Topamax. Anyone have anything good or bad to say about Neurontin?...
Violet Flame
violetflame11
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Apr 27, 2003
6:30 am

they put me on that for migraines Neurontin and I did not do well on it at all in fact it made my headaches worse if anything so they had to take me off of it...
denverbroncoselway
denverbronco...
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Apr 27, 2003
9:24 pm
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