Dear BB,

Are you looking to learn more about epilepsy? If so, check out the
Links section in our Yahoogroup's web site. A lot of interesting
resources reside there.

If you are not satisfied with the help you are getting from your current
doctor, by all means seek some "second opinions." It's easy to do
online. Just go to an epilepsy clinic that has a web site and start
asking questions via e-mail. One such clinic I have found to be
extremely helpful is Andrews-Reiter at www.andrewsreiter.com . There
are many others.

In my personal opinion, what many people fail to do (myself included for
34 years of my life) is understand their epileptic condition. Why is it
that you have epilepsy? No two people can claim to have epilepsy for
exactly the same reason. Yet, it has been my experience that most
people with epilepsy are not treated to a tailor-made diagnosis.
Instead, they are experimented upon - told to take drugs which at best
can only the problem rather than get rid of it. If one drug does not
satisfy, then let's either change its level of potency or try another
and see what happens. As a result, many people with epilepsy remain in
the dark as far as to what is really wrong. If there happen to be
better options available to address the problem than popping are they
ever going to know? Unless they ask, I seriously doubt it. Why?
Because they are under the impression they are already doing all that is
necessary. After all, a doctor gave the diagnosis. Isn't he required
by an oath "first, to do no harm?"

True, not every person with epilepsy has the option of becoming
drug-free. But, ever person with epilepsy deserves to know if they
might possibly have that option. Like so many things in life, you have
to ask the right questions to the right people to get the right
answers. It took me 34 years to do that, to uncover the truth regarding
my epilepsy and become drug-free. I feel very fortunate. I have been
drug-free now for two years. Technically, I am still epileptic.
However, since becoming drug-free, I have only suffered two seizures.
Both occurred during my sleep. Both were the result of not getting
adequate sleep - not becausing I was off medication. But, this never
would have happened had I remained content popping pills and not
aggressively sought a better quality of life!

Good luck to you.

Lamar Morgan




cyberwaif2000 wrote:

> Hi Everyone
>
> This is just a quick one to say Hello.
>
> I've suffered from severe migraines (with and without aura) all my
> life and now I'm finally on medication for it (pizotifen), which
> seems to help.
> I started having seizures about a year and a half ago and after 6
> months the neurologist finally put me on Keppra which helped cut
> doen the number of seizures I was having, the problem is that when I
> went back to him he said he wasnt sure if it was epilepsy (cos I
> dont lose consciousness completly when I fit) and took me off the
> meds then and there, so I havnt been taking anything since January
> I'm back to fitting evry 3-4 weeks and my work isnt very
> understanding of my health/ absence record (grrrr !).
> So thats a quick intro about me-I'd be intersted to meet other
> people who might have had similar experiences with their doctors etc
> or to just chat to other people like me.
> look forward to talking 2 u all.
> BB
> Cyberwaif
>
>
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