Hi. Its nice to be a member of this group bacause I have also a child with
microcephalic head. My daughter, Danie Ann Coleen was born with microcephalic
head July 2000 and she is now 8 yrs old. Her motor development was very late and
blind, Mostly rely on medicine to lessen her siezure and spasm and rely on tube
feeding. It is difficult to have child like this because it is physically and
financially draining. Sometimes my wife cried on me during difficult times
because she was the only one taking care of Coleen and my son. It is sacrifice
to both of us because I need to work abroad to sustain her medical needs and the
future of my son. Working only in the Philippines is not enough to support my
family. Sometimes I feel exhausted, weary and stress because I'm miss my family
and wish to help my wife with Coleen. I've been working in abroad for more than
10 years. I know that Coleen is our God's gift and blessing. My wife and I
always to continue to move on and provide her the best love and support. She
need and depend on us. All we need to do is to love and accept her for what she
is.
I am bound to return home Philippines because my extension visa (working visa)
was not approved by the Japan Immigration. As of now, I am stressed and weary
because I am not sure if I can find a good job to able to support Coleen. I am
41 yrs old already and seldom practice my career as Civil Engineer. That why I'm
writing this message and looking forward for support and recommendation.
I am still praying and hoping for a good future and quest of my family. Thanks
and God Bless.
Danny
Free to sign up. Hook up hot deaf grils in your area!
Free to view photo gallery, send greeting cards, view interesting
videos, chat online.
Do you desire to see more? Click here to check out!
http://fundeaf.zoomshare.com/files/index.htm
LOL, I found a very funny picture and wanna know your opinion. Do u think this
picture is funny? Check the funny picture here:
http://funnypiccs.0fees.net/funny.htm
Hi,
You can see a list of my groups on Grouply at the link below. Maybe you'll find
some you want to join.
Deborah
Here's the link:
http://www.grouply.com/register.php?tmg=1447113&vt=15911128
====================
This message was posted by a fellow group member who uses Grouply instead of
email to access this group. Grouply blocks additional invitations from being
sent to this group by anyone for 30 days. Group owners can permanently block
future invitations. For more on how Grouply maintains privacy and protects you,
see http://blog.grouply.com/protect/ .
[Non-text portions of this message have been removed]
Tamera,
You know in your hearts what is best, so you do what you know is
right for you and your son. My daughter is only 17 months and she
doesnt speak any words yet, she is blind, and has microcephaly, she
is happy and does not show any mood disorders yet. I can not know
what they future will bring so I can not imagine what you must be
going through. One thing I do know is that is that being a parent we
should all know when we are not benefiting our child. Even and
especially having a special needs child, we can be enabling. So dont
feel bad about your decsions you know yourself and your son better
than anyone.
--- In microcephalysupportgroup@yahoogroups.com, Tamara King
<lostmom13@...> wrote:
>
> hi thanks for your thoughts. i know what u mean about sweet and
loving Andrew is like that to one the other hand there are no service
like that in Quebec i had no services for 2 years for Andrew he had a
teacher come here and he attacked here i would love to have andrew
home but don't see that happening he will come on holidays and every
2 weekend .thanks again
>
>
>
> ----- Original Message ----
> From: christine caoile <xtin23caoile@...>
> To: microcephalysupportgroup@yahoogroups.com
> Sent: Monday, October 13, 2008 3:34:31 AM
> Subject: Re: [Microcephaly Support Group] new member
>
>
> Hi lostmom,
>
> I have a 10 year old daughter who has microcephaly. She is very
sweet and loving... yes she has mood swings but so far nothing
violent.
>
> If you can find a doctor or a psychologist or anyone in the medical
field who knows about brain mapping, please have your son undergo
this. The therapy has helped my daughter with her mood swings.
>
> About your son being in a home... well, If you have exhausted
everything to help him and this is the last resort, then, its okay.
But if you can take care of him in your home, that would still be the
best place for him because of the love he feels and the caring he
gets from you and your husband. Maybe, it will be wise for you to
hire a special teacher to go to your home and have him study there.
Make him do physical exercises like enrolling him in sports clinics,
or if he is more into art, then enroll him in voice or painting, or
you can enroll or teach him cooking if you cook.
>
> It is difficult to have children like ours. It is physically and
financially draining. They need us and depends on us. All we need
to do is LOVE them and accept them for who and what they are. They
are God's blessing to us because He knows that we can give them the
best and bring out the best in children like ours.
>
> I hope I was able to be of help. God bless and good luck!
>
> tin
>
> ----- Original Message ----
> From: lostmom13 <lostmom13@yahoo. com>
> To: microcephalysupport group@yahoogroup s.com
> Sent: Monday, October 13, 2008 1:38:22 PM
> Subject: [Microcephaly Support Group] new member
>
> hi my son andrew will be 15 and hes has microcephaly since birth
well
> he was a happy child and it all started 2 years ago started to get
> more viloet banging his head into wall;s windows and attacking his
> teachers at school then fianlly the taxi driver would not pick him
up
> for school cause the fits got worse i feel so bad for him .so last
> week i just coun;t do it anymore i had to place him in a group home
it
> was so hard to leave him there but i have had no help for 2 years
> getting up at 6am with him everyday and just watching him sit around
> and do nothing are other kids have suffered with this too,anyways
did
> i do the right thing?everyone tells me i did i just hate to see him
> without his mom and dad but i know nothing will change if i went to
> get him. anyway anyone going threw this
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
hi thanks for your thoughts. i know what u mean about sweet and loving Andrew is
like that to one the other hand there are no service like that in Quebec i had
no services for 2 years for Andrew he had a teacher come here and he attacked
here i would love to have andrew home but don't see that happening he will come
on holidays and every 2 weekend .thanks again
----- Original Message ----
From: christine caoile <xtin23caoile@...>
To: microcephalysupportgroup@yahoogroups.com
Sent: Monday, October 13, 2008 3:34:31 AM
Subject: Re: [Microcephaly Support Group] new member
Hi lostmom,
I have a 10 year old daughter who has microcephaly. She is very sweet and
loving... yes she has mood swings but so far nothing violent.
If you can find a doctor or a psychologist or anyone in the medical field who
knows about brain mapping, please have your son undergo this. The therapy has
helped my daughter with her mood swings.
About your son being in a home... well, If you have exhausted everything to help
him and this is the last resort, then, its okay. But if you can take care of
him in your home, that would still be the best place for him because of the love
he feels and the caring he gets from you and your husband. Maybe, it will be
wise for you to hire a special teacher to go to your home and have him study
there. Make him do physical exercises like enrolling him in sports clinics, or
if he is more into art, then enroll him in voice or painting, or you can enroll
or teach him cooking if you cook.
It is difficult to have children like ours. It is physically and financially
draining. They need us and depends on us. All we need to do is LOVE them and
accept them for who and what they are. They are God's blessing to us because He
knows that we can give them the best and bring out the best in children like
ours.
I hope I was able to be of help. God bless and good luck!
tin
----- Original Message ----
From: lostmom13 <lostmom13@yahoo. com>
To: microcephalysupport group@yahoogroup s.com
Sent: Monday, October 13, 2008 1:38:22 PM
Subject: [Microcephaly Support Group] new member
hi my son andrew will be 15 and hes has microcephaly since birth well
he was a happy child and it all started 2 years ago started to get
more viloet banging his head into wall;s windows and attacking his
teachers at school then fianlly the taxi driver would not pick him up
for school cause the fits got worse i feel so bad for him .so last
week i just coun;t do it anymore i had to place him in a group home it
was so hard to leave him there but i have had no help for 2 years
getting up at 6am with him everyday and just watching him sit around
and do nothing are other kids have suffered with this too,anyways did
i do the right thing?everyone tells me i did i just hate to see him
without his mom and dad but i know nothing will change if i went to
get him. anyway anyone going threw this
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
Hi lostmom,
I have a 10 year old daughter who has microcephaly. She is very sweet and
loving... yes she has mood swings but so far nothing violent.
If you can find a doctor or a psychologist or anyone in the medical field who
knows about brain mapping, please have your son undergo this. The therapy has
helped my daughter with her mood swings.
About your son being in a home... well, If you have exhausted everything to help
him and this is the last resort, then, its okay. But if you can take care of
him in your home, that would still be the best place for him because of the love
he feels and the caring he gets from you and your husband. Maybe, it will be
wise for you to hire a special teacher to go to your home and have him study
there. Make him do physical exercises like enrolling him in sports clinics, or
if he is more into art, then enroll him in voice or painting, or you can enroll
or teach him cooking if you cook.
It is difficult to have children like ours. It is physically and financially
draining. They need us and depends on us. All we need to do is LOVE them and
accept them for who and what they are. They are God's blessing to us because He
knows that we can give them the best and bring out the best in children like
ours.
I hope I was able to be of help. God bless and good luck!
tin
----- Original Message ----
From: lostmom13 <lostmom13@...>
To: microcephalysupportgroup@yahoogroups.com
Sent: Monday, October 13, 2008 1:38:22 PM
Subject: [Microcephaly Support Group] new member
hi my son andrew will be 15 and hes has microcephaly since birth well
he was a happy child and it all started 2 years ago started to get
more viloet banging his head into wall;s windows and attacking his
teachers at school then fianlly the taxi driver would not pick him up
for school cause the fits got worse i feel so bad for him .so last
week i just coun;t do it anymore i had to place him in a group home it
was so hard to leave him there but i have had no help for 2 years
getting up at 6am with him everyday and just watching him sit around
and do nothing are other kids have suffered with this too,anyways did
i do the right thing?everyone tells me i did i just hate to see him
without his mom and dad but i know nothing will change if i went to
get him. anyway anyone going threw this
[Non-text portions of this message have been removed]
hi my son andrew will be 15 and hes has microcephaly since birth well
he was a happy child and it all started 2 years ago started to get
more viloet banging his head into wall;s windows and attacking his
teachers at school then fianlly the taxi driver would not pick him up
for school cause the fits got worse i feel so bad for him .so last
week i just coun;t do it anymore i had to place him in a group home it
was so hard to leave him there but i have had no help for 2 years
getting up at 6am with him everyday and just watching him sit around
and do nothing are other kids have suffered with this too,anyways did
i do the right thing?everyone tells me i did i just hate to see him
without his mom and dad but i know nothing will change if i went to
get him. anyway anyone going threw this