Okay, then let's talk multiples.  ;)
My Baby A weighed 6 lbs 13 oz at birth.  Blake, Baby
C, weighed 4 lbs 13 oz.  It has been thrown around
that Piers, Baby A, "got it all" in utero...implying
that this could have been attributed to Blake's
microcephaly.  Have you heard anything like that?
Regarding life expectancy, I hope nothing comes of it;
my son is so beautiful, I would want him around
forever.
Michelle

--- stephanie  <keith@...> wrote:
> ---Hi, Michelle,
> We found out that BreAnna had microcephaly pretty
> much at birth she
> was hospitalized for two months at birth she is a
> twin. I have not
> been a part of the group before. I have a friend who
> was asking
> about life span and so i decided to do more research
> but i have not
> really found any new info.
>
> thanks for replying
> stef
>
>
>
>
>
>  In microcephalysupportgroup@yahoogroups.com,
> Michelle Dudar
> <Mmdudar@y...> wrote:
> > Hi, Stef.  My son who has microcephaly also has
> > profound hearing loss in his right ear.  I wonder
> how
> > that happens.  My son is a triplet.  I went
> farther in
> > my pregnancy than anyone in my entire triplet
> group in
> > my hometown, and I think there are at least more
> than
> > 100 families, so I'm not sure his micro has
> anything
> > to do with the multiples thing.  When did you find
> out
> > about your daughter?  Regarding life expectancy, I
> am
> > not familiar with shorter life span.  Maybe
> someone
> > else can speak up on the issue.  Welcome to the
> group.
> >  You will get comfort and good support.  Out of
> > curiousity, since your daughter is six, have you
> been
> > part of a support group at all before this one?
> > Michelle
> >
> > --- stephanie  <keith@f...> wrote:
> > > Hi my name is Stef, I am new to your group. I
> also
> > > have a daughter
> > > with microcephaly , she is 9 years old. very
> small
> > > for her age has a
> > > g-tube ,profound hearing loss,developmentally
> > > delayed,hyperactive,doesn't sleep well .
> > > I have tried looking for info. before on micro.
> but
> > > its all vague.
> > > some of the info i have read said that life span
> can
> > > be shorten,but
> > > why. if anyone has info on this i would love to
> read
> > > it. the docs.
> > > don't seem to know much either
> > >
> > > I'm rambaling sorry.
> > >
> > > I would love to hear from someone
> > >
> > > Thanks take care
> > > stef
> > >
> > >
> >
> >
> > __________________________________
> > Do you Yahoo!?
> > SBC Yahoo! DSL - Now only $29.95 per month!
> > http://sbc.yahoo.com
>
>


__________________________________
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!
http://sbc.yahoo.com

---Hi, Michelle,
We found out that BreAnna had microcephaly pretty much at birth she
was hospitalized for two months at birth she is a twin. I have not
been a part of the group before. I have a friend who was asking
about life span and so i decided to do more research but i have not
really found any new info.

thanks for replying
stef





  In microcephalysupportgroup@yahoogroups.com, Michelle Dudar
<Mmdudar@y...> wrote:
> Hi, Stef.  My son who has microcephaly also has
> profound hearing loss in his right ear.  I wonder how
> that happens.  My son is a triplet.  I went farther in
> my pregnancy than anyone in my entire triplet group in
> my hometown, and I think there are at least more than
> 100 families, so I'm not sure his micro has anything
> to do with the multiples thing.  When did you find out
> about your daughter?  Regarding life expectancy, I am
> not familiar with shorter life span.  Maybe someone
> else can speak up on the issue.  Welcome to the group.
>  You will get comfort and good support.  Out of
> curiousity, since your daughter is six, have you been
> part of a support group at all before this one?
> Michelle
>
> --- stephanie  <keith@f...> wrote:
> > Hi my name is Stef, I am new to your group. I also
> > have a daughter
> > with microcephaly , she is 9 years old. very small
> > for her age has a
> > g-tube ,profound hearing loss,developmentally
> > delayed,hyperactive,doesn't sleep well .
> > I have tried looking for info. before on micro. but
> > its all vague.
> > some of the info i have read said that life span can
> > be shorten,but
> > why. if anyone has info on this i would love to read
> > it. the docs.
> > don't seem to know much either
> >
> > I'm rambaling sorry.
> >
> > I would love to hear from someone
> >
> > Thanks take care
> > stef
> >
> >
>
>
> __________________________________
> Do you Yahoo!?
> SBC Yahoo! DSL - Now only $29.95 per month!
> http://sbc.yahoo.com

Hi, Stef.  My son who has microcephaly also has
profound hearing loss in his right ear.  I wonder how
that happens.  My son is a triplet.  I went farther in
my pregnancy than anyone in my entire triplet group in
my hometown, and I think there are at least more than
100 families, so I'm not sure his micro has anything
to do with the multiples thing.  When did you find out
about your daughter?  Regarding life expectancy, I am
not familiar with shorter life span.  Maybe someone
else can speak up on the issue.  Welcome to the group.
  You will get comfort and good support.  Out of
curiousity, since your daughter is six, have you been
part of a support group at all before this one?
Michelle

--- stephanie  <keith@...> wrote:
> Hi my name is Stef, I am new to your group. I also
> have a daughter
> with microcephaly , she is 9 years old. very small
> for her age has a
> g-tube ,profound hearing loss,developmentally
> delayed,hyperactive,doesn't sleep well .
> I have tried looking for info. before on micro. but
> its all vague.
> some of the info i have read said that life span can
> be shorten,but
> why. if anyone has info on this i would love to read
> it. the docs.
> don't seem to know much either
>
> I'm rambaling sorry.
>
> I would love to hear from someone
>
> Thanks take care
> stef
>
>


__________________________________
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!
http://sbc.yahoo.com

Hi my name is Stef, I am new to your group. I also have a daughter
with microcephaly , she is 9 years old. very small for her age has a
g-tube ,profound hearing loss,developmentally
delayed,hyperactive,doesn't sleep well .
I have tried looking for info. before on micro. but its all vague.
some of the info i have read said that life span can be shorten,but
why. if anyone has info on this i would love to read it. the docs.
don't seem to know much either

I'm rambaling sorry.

I would love to hear from someone

Thanks take care
stef

Hi, Jane.  I would like to chat with you when you get
back from vacation.  My son has microcephaly; he is 10
months old.  Look forward to hearing from you again.
Michelle

--- MamaSRD@... wrote:
> Hi,
>
>    My name is Jane. I have a 11 year old Daughter
> name Rachel with Microcephaly. She is residentialy
> placed in a facility in New Jersey.  I have not
> found much in the way of activity in this yahoo
> froup. It would be nice to build a group for
> support. I thinkI am going to try an open chat
> sometime in August I will let you know. We will see
> how many people join in.
>      I find it difficult to talk about microcepahly.
> It presents itself in many ways and forms.  Each
> child is effected differently. However, I hope that
> a chat will be successful. I will notify you as soon
> as I set it up.
>     I am going away for vacation. I will e mail you
> when I get back and maybe we can talk.  Hope you and
> yours are well..
>
>
> JAne
>


__________________________________
Do you Yahoo!?
SBC Yahoo! DSL - Now only $29.95 per month!
http://sbc.yahoo.com

Hi,

    My name is Jane. I have a 11 year old Daughter name Rachel with Microcephaly.
She is residentialy placed in a facility in New Jersey.  I have not found much
in the way of activity in this yahoo froup. It would be nice to build a group
for support. I thinkI am going to try an open chat sometime in August I will let
you know. We will see how many people join in.
      I find it difficult to talk about microcepahly. It presents itself in many
ways and forms.  Each child is effected differently. However, I hope that a chat
will be successful. I will notify you as soon as I set it up.
     I am going away for vacation. I will e mail you when I get back and maybe we
can talk.  Hope you and yours are well..


JAne

hello my son is trey and he is 3 he doesnt talk he has delays in all
areas his head is very small and he has constipation problems eating
problems i just wanted to talk with someone thanks
tcogley2003@...

--- In microcephalysupportgroup@yahoogroups.com, "cbroecker2077"
<Cbgrange@a...> wrote:
> Hello I just found this group and joined.  I am looking to chat with
>
> others.  Please email me.  My daughter is 22 mos old with
> microcephaly.
>
> Thanks
>
> Casey
hello my name is tonya i just found this group my son is 3 and he has
microcephaly also he doesnt say anything which worries me the most
and he just started walking at 2 how is your daughter?

im just wanting someone to talk to about microcephaly support group please feel
free to email me at tcogley2003@... anytime thank you


---------------------------------
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[Non-text portions of this message have been removed]

Alternatives for Special Kids (ASK!) has a limited amount of scholarships
available for its upcoming conference in Irvine, California on May 8 - 11.
Alternatives for Special Kids Conference, Workshops, Exhibits, and Consults is
by far the largest conference of its kind. ASK! brings together world-wide
expertise in hands-on approaches to dealing with the tough challenges that our
children with special needs face. This is not a conference about reporting the
latest research, but instead, ASK! 2003 will help parents and professionals to
readily improve the lives of their children.

ASK! scholarships will allow families and professionals to both work and consult
with over 120 speakers who will present 220 presentations/demonstrations and 75
more concentrated workshops.  The eight tracks of the conference range from
Healing Therapies, to Technologies, to the Best of the Resources. Presentations
span from healing acquired and traumatic brain injuries, to mobility and body
control, to g-tube nutrition, to learning, to unscrambling children with
multiple issues, to alternatives and resources for teens.  Presentations are
geared for children ranging in age from infants to teens and focus on a broad
range of physical and cognitive challenges.

There are partial, full, and full-working scholarships (one parent/friends
volunteers in exchange for the other attending the conference) available. ASK's
goals are to:

1. Reduce the time it takes to piece together the right puzzle that can best
help our children.
2. Create meeting spaces where professionals, parents, children, and
manufactures can
collaborate to problem solve the hurdles that our children have to struggle
through.
3. Educate the public to alternatives that can improve the lives of children
with these tough
challenges and to bring to the public resources that can enrich the family.

ASK! also offers a very exciting Kids Care / Conference that runs at the same
time for both the children with special needs and for their siblings. The Kids
Conference includes many age and ability appropriate activities.  There are also
workshops for teens that range from careers, to dealing with emotions, to ways
of helping in the dynamics of a family with a special needs child. In addition,
some of the main conference speakers in the arts, music, movement, and adaptive
sports will work with all of the children. The Kids Conference will provide
professional nursing care.

With three weeks to go, ASK! is also looking for assistance in getting the word
out.  We have add cards, brochures, and other publications available. We also
have a shortened version of this post.

For additional information, view our Web site at  www.4healthykids.org, e-mail
darien@..., or call 401.315.0590.  The full list of topics will be
posted this weekend. Scholarship requests should be submitted as soon as
possible.

Darien C. Small
Alternatives for Special Kids
darien@...
Irvine, California
May 8-11, 2003
"Doing the best that we
can for our children."



[Non-text portions of this message have been removed]

The Alternatives for Special Kids Conference is just around the corner, May 8 -
11, 2003 in Irvine, California.  ASK! Provides a meeting place for
practitioners, parents, and children to collaborate on the health and healing of
our children and their families. The focus of this conference is not research,
but application. The 210 sessions and 72 workshops focus on specifics that can
make significant changes in the lives of both our children and our families.

While the majority of the almost 300 sessions have application to children with
Lissencephaly, Microcephaly, and other cephalic challenges, there are two
workshops specifically oriented to issues that our kids face.  These two
workshops were originally posted as one single workshop.  ASK! responded to
requests to divide it into two workshops to free up time to attend other
presentations.

The ASK! schedule of speakers is now posted. We will host 112 presenters who are
having fantastic success in changing the lives of children with special needs.
Two of the strongest tracks that relate to our children with cephalic challenges
are the tracks, "Healing and Therapies" and "Learning and Cognition."  I would
also recommend surveying the speakers in "The Best of the Resources."

General presentations are open to anyone who registers for the conference.  In
contrast, workshops are limited to the first 20 who register.  Some workshops
will fill well before the conference.  Currently, there are two promotions going
on. Information can be found on www.4healthykids.org.

Here are the two Workshops to pay particular attention to:
Lissencephaly, Microcephaly, and Cephalic Challenges, Changing Children's Lives
Workshop ID: 69.0
Date: May 10 | Day: Sunday | Time: 1:15 pm | Duration: 4 hours | Cost: $75

Title: Neurological Repair, Seizure Control, and Immune System Health
Speaker: Alex Sutton

Title: Meal Times for Tube and Oral Feeders
Speaker: Suzanne Evans Morris

Lissencephaly, Microcephaly, and Cephalic Challenges, Physical and Mechanical
Mobility
Workshop ID: 70.0
Date: May 11 | Day: Saturday | Time: 1:15 pm | Duration: 4 hours | Cost: $75

Title: Body control and mobility
Speaker: Annie Lauchaud

Title: What you Really Should Know about Seating Solutions
Speaker: Katie Burgeon

Darien C. Small
Alternatives for Special Kids
www.4healthykids.org
May 8 - 11, 2003
Irvine, California
"Doing the Best that We Can
for our Kids and Families"



[Non-text portions of this message have been removed]

Hi,
   I have a new e mail. My new e mail is janegonzalez@...
thank You.

Hi Valerie, I am a grandfather to a beautiful 24 month baby girl who
shows no interest in crawling, sitting or using her hands/arms to
support herself. My immediate interest would be in assisting Lauren
to stand and maybe to walk in the future. Her life would be so much
more better if she could walk. Where would I get more info on
a 'giraffe stander' ?
Paul

_________________________________________________________________
Add photos to your messages with MSN 8. Get 2 months FREE*.
http://join.msn.com/?page=features/featuredemail

Hi, I'm new to this group.  I'm enlisted on another craniosynostosis group and
got this email address from one of those moms.  My daughter was diagnosed with
craniosynostosis when she was three-and-a-half-months-old.  The neurologist and
neurosurgeon who saw her decided it wouldn't be beneficial to open up her
sutures, though.  They were all closed.  Her brain wasn't growing as it should. 
Her head is still very small--it's not even on the growth charts.  She's
14-months-old now.   She has many other problems--cerebral palsy, dysphagia,
cortical visual impairment, petit mal and grande mal seizures, myoclonic jerk,
and is developmentally delayed both physically and mentally.  What is the
quality of life for children like her?  I'm assuming it's about the same, she'll
just have a smaller head and be slow to develop in many areas.  She's my first
child and the neurologists that she's seen theorize that she had a stroke the
day before she was born.  The placenta had come lose (30%) before she was born,
but there was hardly any blood loss.  If any of you parents out there have a
similar situation or know what I can expect I would like to hear from you.

Sue in New York



---------------------------------
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[Non-text portions of this message have been removed]

The ASK! workshops offer small group, hands-on interactions with some of
the most accomplished expertise in the field. Registrations are limited
to 20 pre-conference seats per workshop.  Our family has worked with
Suzann Morris personally and she has been fundamental in turning our
son's feeding from a nightmare to a pleasant experience for all.


Feeding the Whole Child Workshop
Friday, May 9
Alternatives for Special Kids
Conference, Workshops,
Consultations, Exhibits
May 8 - 11, 2003

www.4healthykids.org <http://www.4healthykids.org/>

8:00 am - 12:15 pm
Kelly Dorfman
Kelly Dorfman is a health program planner and nutritionist with twenty
years of clinical experience. Her specialty is developing nutrition and
lifestyle strategies to address complex health problems from autism to
bone loss to rare genetic disorders. Physicians and other medical
professionals refer cases to her for insight when traditional methods do
not attain optimal results.

1:30 pm - 5:45 pm
Suzzane Morris
Suzanne Evans Morris, Ph.D. is a speech-language pathologist in private
practice near Charlottesville, Virginia. With more than 35 years of
clinical experience, she is nationally and internationally known for her
work in identifying and treating young children with pre-speech and
feeding disorders. Dr. Morris maintains a practice which includes direct
clinical work, continuing education workshops, development of clinical
materials, and clinical research. She is the director of New Visions,
which sponsors innovative workshops for the teaching of feeding-related
skills, and provides family-oriented clinical services.


Other Feeding Workshops and Presentations include:

1. The Journey from Tube Feeding to Oral Feeding.

2. Gastrointestinal Comfort and the Child with Feeding Problems.

3. Concept of Mealtimes in relationship to children who are both oral
feeders and tube feeders. Why it is important and how parents and
therapists can become partners with their children in creating a
mealtime program.

4. Sensory Integration and Nutrition.

5. Oral feeding, stepping toward communication.

6. Whole foods, g-tubes, and nutrition for healing.

7. Feeding and swallowing issues in special needs children.


Darien C. Small
Alternatives for Special Kids
  <http://www.4healthykids.org/> www.4healthykids.org
  <mailto:darien@...> darien@...
"Resources for the healing, health, and
happiness of children with special needs
and their families."



Darien C. Small
Alternative Therapies for Special Kids
www.4healthykids.org <http://www.4healthykids.org/>
  <mailto:darien@...> darien@...
"Resources for the healing, health, and
happiness of children with special needs
and their families."




[Non-text portions of this message have been removed]

Hi Valerie

How old is Allison?  She sounds very similar to Chiara, she is 16 mths now, and
her dimensions are  similar, (+ very long legs)
She isn't quite rolling yet, but the physio was talking to me about a frame for
her legs to get strength in them.  She also babbles alot and smiles alot.  Again
doesn't play with toys but loves to look at the lighted ones, she has severe
cortical visual impairment.  Chiara also has bad constipation as well, and has
to have lactuose morning and night and sometimes suppositories. pool little
things!!!  I am not aware of dental problems though she has 12 teeth but she
does suffer badly when they come out (off her food, dribble and fingers in the
mouth)  .Does a jaw tooth mean a double?  is this an american term - sorry to
seem thick (I'm British)!!  Chiara has 4 doubles.  She grinds them badly though.
Love to hear more.  Or anyone with similar symptoms.

Suzanne (Chiara's mum)
   ----- Original Message -----
   From: vdogg30 <vdogg30@...>
   To: microcephalysupportgroup@yahoogroups.com
   Sent: Thursday, January 23, 2003 3:51 AM
   Subject: [Microcephaly Support Group] Allison


   Hi everyone.. I just thought I would tell you a little more about
   Allison. She is a bugger... She is 12 lbs. and is 251/2 inches long.
   Her head circ. is 34.5cm, when she was born, it was 28.3 cm.. The
   Docs. are concerned because she has craneocenostosis.(soft spots have
   fused early) Her brain isn't growing fast enough to push her skull
   out.
        Allison rolls all over the place. She will set if you set her
   there.She doesn't play with toys, but loves to look at the lighted
   ones. She loves to swing. She does babble a little, and she laughs if
   tickled. She has a very funny sound when she is happy.I can't even
   spell the sound.
        Allison is it Pt,ST,OT. They are going to put her in a giraffe
   stander next mon. and than put her in a walker soon. the only problem
   is that she is so small. She has very long legs.
        Allison also has constipation. She has a bowel movement every
   2/3 days. They have tried, lactolose and milk of mag. nothing seems
   to really help. But it seems to be getting softer.
        I have one question for everyone.... Does anyone's kids have
   dental problems. Allison just got her first teeth. both came in at
   one time. the only problem is that the third one came in and it is a
   jaw tooth...This is just so weird.
   Please contact me and let me know. Thanks:
                                   Valerie(Allison's mom)


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[Non-text portions of this message have been removed]

Hi everyone.. I just thought I would tell you a little more about
Allison. She is a bugger... She is 12 lbs. and is 251/2 inches long.
  Her head circ. is 34.5cm, when she was born, it was 28.3 cm.. The
Docs. are concerned because she has craneocenostosis.(soft spots have
fused early) Her brain isn't growing fast enough to push her skull
out.
      Allison rolls all over the place. She will set if you set her
there.She doesn't play with toys, but loves to look at the lighted
ones. She loves to swing. She does babble a little, and she laughs if
tickled. She has a very funny sound when she is happy.I can't even
spell the sound.
      Allison is it Pt,ST,OT. They are going to put her in a giraffe
stander next mon. and than put her in a walker soon. the only problem
is that she is so small. She has very long legs.
      Allison also has constipation. She has a bowel movement every
2/3 days. They have tried, lactolose and milk of mag. nothing seems
to really help. But it seems to be getting softer.
      I have one question for everyone.... Does anyone's kids have
dental problems. Allison just got her first teeth. both came in at
one time. the only problem is that the third one came in and it is a
jaw tooth...This is just so weird.
Please contact me and let me know. Thanks:
                                 Valerie(Allison's mom)

Hi i am new to the group and i have a three year old son that has
microcephaly. All his doctors have been trying to locate the cause
for 2 and a half years. he also has developmental delays, mild MR,
speech delays and other various health problems. I was sick the hole
nine months of pregnacy. I was on the depo shot for ten years prior
to getting pregnant with him. I was told by my doctor that it would
take 2 years for me to have a baby once i got off but it only took 4
months. Do you think that might have been the cause behind all that?
I would like to hear some opinions.

The Alternatives for Special Kids Auctions '03 launch today. Here is
an opportunity to support our children and their families in
improving their healing, health, and happiness.  This is also an
opportunity to get to the ASK! Conference FREE!

1. Register to list items for auction (required only once)

2. List your items (professional services, products, baby gear,
heirlooms, ugly holiday gifts, special needs equipment, etc.)

3. Advertise the ASK! auctions as well as YOUR auction.

4. Up to 50% of an auction revenues can be earmarked for scholarship
to a specific person and family.

5. Support the auctions by bidding yourself!

Many of the ASK! speakers will be offering their services, products,
and workshops.

Go to the ASK! site for more details: www.4healthykids.org

List your items NOW for the first auction that begins on January
15th.

If the parents of Daniel Sykes is on this list, can you please
contact me? Thanks.

Darien Small
Alternatives for Special Kids
darien@...

Alternatives for Special Kids is looking for children to be a part of
its 2003 Calendar series.  These are a collection of calendars that
will be sold worldwide to raise moneys for the ASK! scholarship fund
and the ASK conference.  Each child who participates gets a free
calendar.

The ASK 2003 Calendar has been well recieved. If you would like your
child to be included in our calendars, we still have a few spots left
for the second run of our 2003 series.  Both the first set and second
set of the calendars will be shipped 2nd day mail from December 16 to
Decemnber 20.

You can order the ASK calendars at this URL:
http://www.4healthykids.org/calendar.html

This quick sample has a link to a temporary order page. A full online
ordering site for the calendars will be avaialble shortly.  If you
are trying to recieve your calendars before the holidays, please
follow the directions provided.

If you are planning to submit your child to the ASK Calendar, please
review the MODIFIED instructions at this link:

http://www.4healthykids.org/calendar_instructions.htm

Thank you for supporting the Alternatives for Special Kids Conference.

Darien Small
Alternatives for Special Kids
www.4healthykids.org
darien@...

Kids Wanted for 2003 ASK Microcephaly Calendar

Alternatives for Special Kids is looking for children to be a part of its
2003 Calendar series on Microcephaly Children.  These are a collection of
calendars that will be sold worldwide to raise moneys for the ASK!
scholarship fund and the ASK conference.  Each child who participates gets a
free calendar.

The first two sets of calendars will be ready to ship before the holidays.
Each will have a collage of 12 children, then a spotlight on a single child
in each of the 12 months.

Here is what you need to provide to be included:

* 2 – 6 images of your child (pictures, digital images, sketches). It would
be great if one of these could be a picture with any siblings.
* A paragraph written in your child’s voice that let’s us know something
about their personality, things they like, etc.
* A paragraph describing your child, short history, and a goal or two that
you have for the coming year.

Contact me via e-mail, phone, or mail if you want to be included. The
calendars will sell for $9.95 with discounts of 30% for orders above 5
copies.  Each of the twelve “stars” for the year will receive a free
calendar. The first ASK calendar series will ship on 12/15.  The second
series will ship on 12/20.

Darien Small
Alternatives for Special Kids
PO Box 37
Carolina, RI 02812
darien@... <mailto:darien@...>

401.377.6044





[Non-text portions of this message have been removed]

Lissencephaly / Microcephaly Workshop


The Alternatives for Special Kids Conference will have four components:

* 200+ 90-minute demonstrations / presentations
* 150+ exhibitors
* professional consultations
* 45 workshops (4, 8, or 16 hours)

The workshops provide opportunity for concentrated focus in small groups of
no more than 20.  One of these workshops will focus on Lissencephaly
(Lissencephaly, Microcephaly, Macrocephaly and Cephalic Disorders).

* Maximum of 20 participants (17 seats left)
* Four, two-hour presenters
	 * Functional Research
	 * Seizure control and pediatric health
	 * Neurodevelopment and cognition
	 * Tone and mobility
* Hands-on workshops with substantial opportunities for questions.
* $150 per participant (VISA / MC accepted)
* Fully refundable up to 7 days prior to the workshop
* Online support after the conference
* May 10th, 8 am – 5 pm

To register, please contact Darien Small ( darien@...
<mailto:darien@...> ), register online at
http://www.4healthykids.org/reg.cfm or call 401.377.6044.

* Also consider these other workshops
	 *  Oral Motor Development (May 11th, AM, 4-hours, $75)
	 * G-Tube Health and Enteral Feeding Nutrition
		 (May 11th, PM, 4-hours, $75)


* Limited, promotional early registration and payment for the Conference
(does not pertain to the Workshops) offers one free-night at the Hyatt for
each paid registration.



[Non-text portions of this message have been removed]

A note to me from another list:

Just wanted to say that I continue to second what Darien has to say
about the cell salts... Claire should have intractable epilepsy
right now, according to Dr. Dobyns, and she DOESN'T, and I fully
believe it's because we've had such great luck with the cell salts,
kept her off of harmful meds, and she has responded beautifully.

We'd gotten up to 10+ seizures a day (some lasting over 5 min. each
even) some days, and now that we've been on the cell salts (all-
natural -- NO side effects!!!!  It's all naturally occurring in the
body -- it is how medicine began!) for about 6 weeks, Claire has
MAYBE 5 a week, if that?  Sometimes we'll go days without seeing
any...

It is THE BEST thing we've done to date.  We met with Alex Sutton
yesterday in Texas, and he is a wonderful, caring, highly
intelligent, helpful man.  He's studied Scheussler's cell salts for
many years, and he is amazing at listening to your issues and
finding the perfect mix of minerals needed to rebalance the body.

I can't tell you enough how amazing the minerals are for my Claire,
and most of all, how they've not only reduced her seizures/reflux
DRASTICALLY, but they've also improved her entire immune system.
We've all had nasty colds this winter on numerous occasions, and on
the salts, she has YET to become sick because her body is finally in
balance & on its way to optimum health.

Just my 2 cents, as always.  Consult with neuros/drs./etc.  I just
feel like I'd be doing you a HUGE disservice if I didn't at least
SHARE this with you!  What a healthy, wonderful way to treat
seizures & many other health issues!

Thanks to you, Darien & Audrey, for pointing us this direction!

Happy Thanksgiving to you all!

xo Gwen & Claire-bug, 16 mo. with MSG

>
>
>
Darien C. Small
Alternatives for Special Kids
Conference, Exhibits, Workshops, 2003
May 8 - 11, 2003 | Irvine, California
www.4healthykids.org
darien@...
"Doing the best that we can for our kids."

Hi - I have just found this sight after 8 months.  I am a mum with a
beautiful little girl of 14 months named Chiara.  She has the longest
eyelashes and big smile and is an inspiration to me.   I discovered
at 5 months that she had microcephaly.  She has low musle-tone, bad
reflux, cerebral palsy and high visual impairment.  I thought it was
a milk intolerance when I went to the hospital with my dad,  the
hospital was very blunt, and I thought hey - I haven't even got my
husband with me - how insensitive.  I was wrecked my little girl -
what sort of life would she lead, how was she going to suffer not
being able to see, maybe not to walk and the list was endless.  My
dad was in disbelief as well - they didn't even explain to me what
microcephaly was.

After a couple of seizures, one very bad in June where she was put in
intensive care she has now had her medication stabalised and seems to
be thriving with her gastro condition.
Now she is 14 months she has 3 meals a day (pureed of course) and her
head is getting stronger, she has rolled over by herself when she was
one but she hasn't done it for a while - along with physio and
portage we should get there soon.  I long for the day she can look at
me though.  But she is a very happy little angel and she is adored by
all of us - especially by her big brother of 4, Luca.

I am so glad I have found this sight it really is a boost.  I will
keep you posted on her developments.

Hi. Mr. Alex Sutton, a homeopathic biochemist, is having fantastic
success helping kids with severe seizures to be seizure free WITHOUT
meds.  Let me know if you would like some more information.

Darien C. Small
Alternatives for Special Kids
Conference, Exhibits, Workshops, 2003
May 8 - 11, 2003 | Irvine, California
www.4healthykids.org
darien@...
"Doing the best that we can for our kids."




--- In microcephalysupportgroup@y..., "mommy8222001" <mafuller@c...>
wrote:
> Hello my name is Malea and I'm Dillon's mom. He's one years old and
> has microcephaly, cerebral palsy, and seizures. I have my hands
full
> but he is my life!! I couldn't ask for anything better!! The only
> thing that i know about microcephaly is that it has something to do
> with abnormal head growth. That is all the doctors have told me. I
> would like to learn more.

Hi. The preview of the new Alternatives for Special Kids site can be
found at the URL that you have used before, www.4healthykids.org.

At the ASK conference, there will me more than a dozen presentatins
and workshops focused upon microcephaly and lissencephaly, as well as
many others focused on helping our children to be healthier and
extend both their cognitive as well as their physical abilities.

In the weeks to come, you will notice many cosmetic as well as
substantive changes in the ASK Web site.  One of these many
enhancements will include a searchable database that will include
speaker's interviews, publications, and question / answer sessions.

In a less elegant fashion, the speaker list for ASK '03 is posted.
Complete bios, topics, and demonstration summaries are in the works
and will be available before Thanksgiving.

The registration special that is available now, but not broadcast yet
to the general public offers a free, one-night stay at the Hyatt
Regency for each paid full-conference registration AND free
registration to one of the 45 workshops. Use the code, 103, if you
register online.  This offer will expire after the next 20
registrations. We also were given some all-day family passes to
Disney attractions. These passes cost almost as much as the ASK
registration. I will include one with each of the next 10
registrations.

You can register online at: www.4healthykids.org/reg.cfm , e-mail me
at darien@... , or call 401.377.6044.

Darien C. Small
(Father of Josiah, 22 months, microcephalic and a great son!)
Alternatives for Special Kids
Conference, Exhibits, Workshops, 2003
May 8 - 11, 2003 | Irvine, California
www.4healthykids.org
darien@...
"Doing the best that we can for our kids."

Rebekah is the youngest of 5 sibs. We were told at birth that she had
microcephaly. They gave us the worst prognosis imagined. Rebekah
spoke late around 2 1/2 she had incredible hand eye coordination but
was so clumsy. The neurologist just kept saying she is fine bring her
back in a couple of months. They really don't give you any
information about what to expect. Finally at school age she was a
loner at headstart. Even though she is a loving bright child. Most of
the times too loving, she has never met a stranger and hugs and tells
everyone she loves them. Even in the grocery store. Kindergarten was
a wasted year. 1st grade she progressed but to about beginning
kindergarten level. Still the school dist refused to test her or told
us there wasn't enough delay to justify the spending. We took he to
one of the best childrens hospitals and were told just wait by the
time she is in 3rd grade and suppose to be reading she will have
fallen enough behind and then they will test her. Bull, I took her to
all of the required specialist, occupational, speech and language,
eye doctor, psycologist, psychiatrist you name it we went. Finally a
new neuroligist helped. He told us she had developed physically very
normally, except the small head size, her fine motor and her speech
and language were problems. We retained Rebekah in the 1st grade last
year. She entered second grade this year doing middle of 1st grade
work. Math is still a mystery. But she is reading. We are still not
getting any special services from the school. We have an iep but it
is just for modified homework and class placement. The only thing
really helping her now is that she is in a combined 1st and 2nd grade
class with 10 kids. She is very sly and watches the 1st grade lessons
and practices when she gets home. She will be 9 years old in January.
I know this is long but my husband is in denial about any problems.
And just for your information the best thing the neurologist told us
is to watch out for puberty, she can develop seisures because of the
increased brain activity. Has anyone else heard that?
Thanks for letting me vent. debi (mom to 5)

Hello my name is Malea and I'm Dillon's mom. He's one years old and
has microcephaly, cerebral palsy, and seizures. I have my hands full
but he is my life!! I couldn't ask for anything better!! The only
thing that i know about microcephaly is that it has something to do
with abnormal head growth. That is all the doctors have told me. I
would like to learn more.