Hi. Its nice to be a member of this group bacause I have also a child with
microcephalic head. My daughter, Danie Ann Coleen was born with microcephalic
head July 2000 and she is now 8 yrs old. Her motor development was very late and
blind, Mostly rely on medicine to lessen her siezure and spasm and rely on tube
feeding. It is difficult to have child like this because it is physically and
financially draining. Sometimes my wife cried on me during difficult times
because she was the only one taking care of Coleen and my son. It is sacrifice
to both of us because I need to work abroad to sustain her medical needs and the
future of my son. Working only in the Philippines is not enough to support my
family. Sometimes I feel exhausted, weary and stress because I'm miss my family
and wish to help my wife with Coleen. I've been working in abroad for more than
10 years. I know that Coleen is our God's gift and blessing. My wife and I
always to continue to move on and provide her the best love and support. She
need and depend on us. All we need to do is to love and accept her for what she
is.
I am bound to return home Philippines because my extension visa (working visa)
was not approved by the Japan Immigration. As of now, I am stressed and weary
because I am not sure if I can find a good job to able to support Coleen. I am
41 yrs old already and seldom practice my career as Civil Engineer. That why I'm
writing this message and looking forward for support and recommendation.
I am still praying and hoping for a good future and quest of my family. Thanks
and God Bless.

Danny