Tips for handling doctors and yourself with raising a child with
microcephaly. I have a 15 month old little girl that has
microcephaly, is blind(macular and retinal folds), other small
abnormalities. I know how you feel in every aspect. But a few things
I can guarentee you is......
-Doctors arent always right about everything---
-They almost tell you the worst so you can prepare yourself although
the truth is that they do not know what the future will bring your
child.
-Doctors have statistics, we have our children.
-Love motivates
-Repatition is key
-Time and patience truely is a virtue
-Our children will know all the real things they to----who we are,
that they love us, and they are taken care of.
As hard as that may be to hear, it is often hard to deal with but
cherish every moment, every accomplishment, every smile, be thankful
for what you do have and dont cncentrate on what you dont. Since
having Jazmine one thing I will and have always said is, "God gave me
a smile."
Jazmine is "vocal", not verbal.
She "gets her way around," she doesnt crawl.
I will always wait for the day she says "mom", or even "dad", but
then again, that day may never come.
But doctors arent always right.
In microcephalysupportgroup@yahoogroups.com, christine caoile
<xtin23caoile@...> wrote:
>
> Hi.
>  
> My daughter was diagnosed with microcephaly at birth which means
her brain and head circumference is way below normal in size.  We
were told not to expect anything from her.  Now she's 10 years old
and is incorporated in grade 2 because of her age.  Her mental
capacity is still of a pre-schooler.  She has difficulty reading
words unless the ones she has memorized.  She could not write
sentences but can write her name and numbers and very few words. 
There are times she has mood swings which is normal of children with
such.
>  
> We followed all the advises and interventions needed. So I advise
you to do so.  This will help a lot in the physical and mental
development of your child.  You are lucky because only one part of
your child's brain is small.  The right side can be developed in time
to compensate for what the left side can't do.
>  
> These kids usually are very sweet and loving.  Your son will bring
you joy, you'll see.  Just love him, love him, love him.  Let him
grow in a natural environment.  Bring him where you go.  Don't
deprive him of anything that will help in his development.
>  
> Let him go with you to the malls, church, park, anywhere...
>  
> I hope I have been of help and I hope that you will look at this as
a blessing.  You have a big loving heart.
>  
> God bless.
>
>
>
> ----- Original Message ----
> From: labugtong <labugtong@...>
> To: microcephalysupportgroup@yahoogroups.com
> Sent: Tuesday, September 23, 2008 10:59:36 AM
> Subject: [Microcephaly Support Group] possible treatments or
medications
>
>
> Hi, i joined this group with a hope that i can get some ideas on
how to
> cope up with my problem with my only son, he is 8months old and im
> looking for possible ways to speed up his development, according to
his
> mri his left brain is small and their would be delays in his
> milestones, and the only solution accordingto our doctor is
physical
> and occupationla theraphy which is 3x a week.
> Maybe some of your could share something for me and my son.
>
> Thanks
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>