Thank you for sharing your story.
My daughter has had some therapy for a huge lack of appetite. It helped some
what...but she really just started to increase her intake on her own.
Funny...my daughter drinks pediasure 3x a day also...but we are just starting
to wean her from it. We are going down to 1x a day, and whole milk instead of
pediasure. We hope that will increase her appetite even more.
I wish you the best for your family.....Thank you again so much for sharing
your loving story....You are going a great job, getting the help you need.
MELISSA
Carolyn <ladygator122358@...> wrote:
--- In microcephalysupportgroup@yahoogroups.com, "cms.3322"
<cms.3322@...> wrote:
>
> Hi,
>
> I am new to the group, and I just wanted to ask a question.
>
> I have a 2 1/2 year old daughter, and I was just told by a Genetic Dr.,
> that she has a microcephalic head. As of right now, my daugher does not
> have any issues, except for getting her to eat a decent sized meal.
>
> My question is, as she grows and gets older, is it possible we might
> start to see some issues, because of the small head size.
>
> Right now she is 33 1/2 inches tall, 23 lbs, and a head cir. of approx
> 17 1/2 inches or 44cm.
>
> Any info would be greatly appreciated.
Welcome to the group, We have a son with microcephaly. his name is
Jeremiah, and he will be 3 in June. He talks more like a 20mo.old. and
he dose not eat a lot. he drinks PediaSure three time a day. Jeremiah
weigh is 29lb. which is the 30th percentile. and his head size is
46.5cm with is less then the 2nd percentile.and he is 36in tall.
Jeremiah has low muscle tone. he gets cold easy. when you ask any of
his Dr. what the out come is for him. they say give him a loving home.
it is because they do not know what the outcome will be. so if your
child needs any kind of therapy, get it it will help her. i do know
that. Jeremiah gets PT,OT and Speech and Early intervention. he has
been getting it for a little over a year now. And it has helped him a
lot. We are blessed for having Jeremiah. He lights up our world. I
know it is hard not to know what the outcome will be with our kids. We
got to put it all in Gods hands. we will be praying for your little
one and family. God bless you.
Carolyn,Kennie, Jeremiah
>
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