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Reply | Forward Message #255 of 766 |
Re: [Microcephaly Support Group] Microcephaly

WOW! That IS a great story, and gives me great hope.
I looked at the Web site, and Zachary is adorable!!
md


--- debbieofocoee <no_reply@yahoogroups.com> wrote:

> Hello all, been awhile for me to write but I need to
> pipe in here to
> give some of you parents with babies and toddlers
> some hope.
> Some of you may remember my Zachary, some of you
> don't.
> Zachary was born 4 weeks preemie, weighed 5 pounds
> and 13 ounces,
> measured 18 inches long and his head was only 13
> inches around.
> They told me they didn't recognized the micro
> because he was so
> small, he was officially dxed when he was 12 months
> old. At that
> time we were told he would walk some day (maybe
> around 8 or 9 years
> old), would never run, talk, read, write, or be
> potty trained. They
> said he would remain a 3 year old mentally his
> entire life. Barring
> any tragic incidents he had a 50/50 chance of living
> past age 5.
> His micro is caused by an undiagnosed syndrome. He
> also had several
> major health issues which kept us in the hospital
> most of his first
> 4 years of life. Things seemed bleak, but then mom
> got tired of it
> all and took out his feeding tube and since then he
> has not had one
> overnight hospital stay.
> Here's the hope part: At 18 months of age he stood
> independently
> for the first time and took his first unaided step.
> By age 2 1/2 he
> was able to walk across a room without falling. At
> age 3 1/2 he was
> doing what they called an official run. At age 4
> 1/2 he became
> potty trained and started talking. Now at age 8 he
> just finished up
> normal 2nd grade is reading and writing on a 1st
> grade level and is
> highly advanced in math.
> He is God's little miracle, no doctors can explain
> why he is doing
> all he is doing and appears to be still going
> forward with skills.
> He now weighs 50 pounds, stands about 49 inches tall
> and his head is
> only 18 1/2 inches around. Despite his numerous
> difficulty with his
> health and dealing with mild CP, he also suffered a
> near drowning
> accident back in 2001 and should have never survived
> that (according
> to the doctors).
> So as you can see doctors don't always know what
> they are talking
> about and the power of pray does work as far as I am
> concerned,
> Zachary is proof of that. If you would like to read
> a little about
> him he was featured on the Hugs and Hope website in
> September 2001,
> you can go to www.hugsandhope.com .
> Sorry for the length talk to you all later.
> Deborah
>
>
>
>


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Fri Jun 23, 2006 2:22 pm

mmdudar
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Forward
Message #255 of 766 |
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Hi I am new to the group. I am very frustrating right now. I don't know how to get my baby help. Her head circumf is 38 cm. My daugher is 1 year old and...
b43465
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Jun 20, 2006
5:28 am

dear b43465, you are very lucky that your baby could crawl and sit on her own even for a short period of time.... its a very good sign that one of this days...
k p
deovplaton26
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Jun 20, 2006
6:58 am

wow thats deep KP I hope you stay strong and always find and pray for patience and endurance. remember to get a break from time to time if you can from...
Jared Mason
mrjemason
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Jun 21, 2006
1:17 am

Dear Jared, thank you for your advice... word of wisdom is really needed by fathers like us who had special child.... I always pray each night and day for the...
k p
deovplaton26
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Jun 21, 2006
5:13 am

its hard on us especially when sometimes we think its our genes or our fault this happened some way you know heck I even was like man what if I had just had...
Jared Mason
mrjemason
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Jun 21, 2006
3:26 pm

yeah that email was for KP I thought it went to his email address not the group sorry. ... From: k p <deovplaton26@...> To:...
Jared Mason
mrjemason
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Jun 21, 2006
8:02 pm

Hi. My son is 3 1/2, born with microcephaly, and still not walking. BUT, he sat still for the longest time...then he started scooting backwards to get to ...
Michelle Dudar
mmdudar
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Jun 22, 2006
6:44 pm

... Thanks for the encouragement. Is there something else wrong with your daughter? Mine have one ventricle bigger than another and the doctor said that all...
b43465
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Jun 22, 2006
7:32 pm

Hello all, been awhile for me to write but I need to pipe in here to give some of you parents with babies and toddlers some hope. Some of you may remember my...
debbieofocoee
Offline
Jun 23, 2006
11:38 am

WOW! That IS a great story, and gives me great hope. I looked at the Web site, and Zachary is adorable!! md ... ...
Michelle Dudar
mmdudar
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Jun 23, 2006
2:22 pm

... May I asked what was his head circum. at age 1 years? Did Zachary head stop grow after 1 year old? Also was Zachary muscle very tight when he was an...
b43465
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Jun 23, 2006
9:36 pm

... micro at 3 years old. fifteen years ago, it seemed very rare as there was no computers or web sites to find out anything about this condition. so the only...
lornajpoll
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Jun 24, 2006
8:49 am

What was Dane like when he was an infant? When did he start crawling, walking, babbling, talking and etc? Did he have any seizure or any other problems? I...
b43465
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Jun 29, 2006
8:05 pm
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