--- In microcephalysupportgroup@yahoogroups.com, k p
Thanks for the encouragement. Is there something else wrong with
your daughter? Mine have one ventricle bigger than another and the
doctor said that all her brain parts are there.
<deovplaton26@...> wrote:
>
> dear b43465,
>
> you are very lucky that your baby could crawl and sit on her own
even for a short period of time.... its a very good sign that one of
this days she has a very good chance of standing on her own.... just
take her to therapy school... and NEVER LOOSE HOPE....
>
> your daughter is strong....
>
> DO YOU KNOW THAT MY MICROCEPHALIC DAUGHTER IS NOW 4 YEARS OLD
BUT COULD NOT SIT 0R EVEN CRAWL.... BUT AS A FATHER I AM DOING
EVERYTHING TO CARE FOR HIM....
>
> I ALWAYS PRAY TO "GOD" TO KEEP ME STRONG EACH DAY....
>
> GOD BLESS....
>
> deovplaton
>
>
> b43465 <b43465@...> wrote:
> Hi I am new to the group. I am very frustrating right
now. I don't
> know how to get my baby help. Her head circumf is 38 cm. My
> daugher is 1 year old and just diagnosis with microcephaly by her
> neurosurgeon. She can sit on her own since she was about 9 months
> old, and about a couple of weeks ago she start to army crawl. She
> can sit up from her back and also from her stomach. She grab
> everything and push it off. She plays with her toy. She cannot sit
> still very long. She cry alots though. Also she cannot passed one
> object to another and she don't grab small object like a raisin.
> She don't put anything in her mouth, except her hands. But
> sometimes she will chew on tables, my arm, or some of her toys
> without using her hand to put it in her mouth. To get from place
to
> place she roll and then sit up. Her feet looks croaked and whopple
> when she stands. She is on the NG tube feed since she is only
15lbs
> 8 oz. She is aspirating and have acid reflux problem. She head is
> still on the curve at 6 months and weight double at 6 months. She
> nurse a lot during the 6 months also. What can of life do I expect
> for my baby when she is older? Will she be able to walk, eat on
her
> own, etc? Have a normal life? Is there a program I can start her
> on? She is in early prevention program right now.
>
> Thanks,
>
>
>
>
>
>
> ---------------------------------
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>
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>