Hi. My son is 3 1/2, born with microcephaly, and
still not walking. BUT, he sat still for the longest
time...then he started scooting backwards to get to
something he wanted by about age 3. And now at 3 y 10
m, he scoots forward, backward, and sideways to
explore something he's interested in. It obviously
gives me hope that he will eventually walk and move
himself around independently of me or my husband. He
also doesn't talk, but he's very communicative. He
knows several signs, as we are learning American Sign
Language right along with him.
Deo, I noticed that you're from the Philippines. I am
half filipino. There is another lady on this list
whose daughter has microcephaly. Are you related to
her...just wondering if it's the same family, OR is it
purely coincidental that there are two families on
this list from the Philippines, then ME who is half
Filipino. ;)
md


--- k p <deovplaton26@...> wrote:

> Dear Jared,
>
> thank you for your advice... word of wisdom is
> really needed by fathers like us who had special
> child.... I always pray each night and day for the
> welfare of my child and guidance from "GOD" to guide
> my path and enlighten my way...
>
> As a father I also feel depressed sometime but I
> have no choice.. I had to take care of my child for
> I am still very lucky to have her.... BECAUSE of her
> I learned more and realized more the true meaning of
> life....
>
> We cannot bring back time to change what is
> present... But we can do a lot today to make our
> tomorrow better.....
>
> "GOD BLESS...."
>
> Deo V. Platon
> Philippines
>
> by the way if u dont mind Jared... where are you
> from?
>
>
> Jared Mason <mrjemason@...> wrote:
> wow thats deep KP I hope you stay strong
> and always find and pray for patience and endurance.
> remember to get a break from time to time if you can
> from someone that is capable of helping you out.
> from one dad to another.
>
> ----- Original Message ----
> From: k p <deovplaton26@...>
> To: microcephalysupportgroup@yahoogroups.com
> Sent: Tuesday, June 20, 2006 1:58:01 AM
> Subject: Re: [Microcephaly Support Group]
> Microcephaly
>
> dear b43465,
>
> you are very lucky that your baby could crawl and
> sit on her own even for a short period of time....
> its a very good sign that one of this days she has a
> very good chance of standing on her own.... just
> take her to therapy school... and NEVER LOOSE
> HOPE....
>
> your daughter is strong....
>
> DO YOU KNOW THAT MY MICROCEPHALIC DAUGHTER IS NOW 4
> YEARS OLD BUT COULD NOT SIT 0R EVEN CRAWL.... BUT AS
> A FATHER I AM DOING EVERYTHING TO CARE FOR HIM....
>
> I ALWAYS PRAY TO "GOD" TO KEEP ME STRONG EACH
> DAY....
>
> GOD BLESS....
>
> deovplaton
>
> b43465 <b43465@yahoo. com> wrote:
> Hi I am new to the group. I am very frustrating
> right now. I don't
> know how to get my baby help. Her head circumf is 38
> cm. My
> daugher is 1 year old and just diagnosis with
> microcephaly by her
> neurosurgeon. She can sit on her own since she was
> about 9 months
> old, and about a couple of weeks ago she start to
> army crawl. She
> can sit up from her back and also from her stomach.
> She grab
> everything and push it off. She plays with her toy.
> She cannot sit
> still very long. She cry alots though. Also she
> cannot passed one
> object to another and she don't grab small object
> like a raisin.
> She don't put anything in her mouth, except her
> hands. But
> sometimes she will chew on tables, my arm, or some
> of her toys
> without using her hand to put it in her mouth. To
> get from place to
> place she roll and then sit up. Her feet looks
> croaked and whopple
> when she stands. She is on the NG tube feed since
> she is only 15lbs
> 8 oz. She is aspirating and have acid reflux
> problem. She head is
> still on the curve at 6 months and weight double at
> 6 months. She
> nurse a lot during the 6 months also. What can of
> life do I expect
> for my baby when she is older? Will she be able to
> walk, eat on her
> own, etc? Have a normal life? Is there a program I
> can start her
> on? She is in early prevention program right now.
>
> Thanks,
>
> ------------ --------- --------- ---
> Sneak preview the all-new Yahoo.com. It's not
> radically different. Just radically better.
>
> [Non-text portions of this message have been
> removed]
>
> [Non-text portions of this message have been
> removed]
>
>
>
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Get on board. You're invited to try the new Yahoo!
> Mail Beta.
>
> [Non-text portions of this message have been
> removed]
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com