wow thats deep KP I hope you stay strong and always find and pray for patience
and endurance. remember to get a break from time to time if you can from
someone that is capable of helping you out. from one dad to another.


----- Original Message ----
From: k p <deovplaton26@...>
To: microcephalysupportgroup@yahoogroups.com
Sent: Tuesday, June 20, 2006 1:58:01 AM
Subject: Re: [Microcephaly Support Group] Microcephaly


dear b43465,

you are very lucky that your baby could crawl and sit on her own even for a
short period of time.... its a very good sign that one of this days she has a
very good chance of standing on her own.... just take her to therapy school...
and NEVER LOOSE HOPE....

your daughter is strong....

DO YOU KNOW THAT MY MICROCEPHALIC DAUGHTER IS NOW 4 YEARS OLD BUT COULD NOT SIT
0R EVEN CRAWL.... BUT AS A FATHER I AM DOING EVERYTHING TO CARE FOR HIM....

I ALWAYS PRAY TO "GOD" TO KEEP ME STRONG EACH DAY....

GOD BLESS....

deovplaton


b43465 <b43465@yahoo. com> wrote:
Hi I am new to the group. I am very frustrating right now. I don't
know how to get my baby help. Her head circumf is 38 cm. My
daugher is 1 year old and just diagnosis with microcephaly by her
neurosurgeon. She can sit on her own since she was about 9 months
old, and about a couple of weeks ago she start to army crawl. She
can sit up from her back and also from her stomach. She grab
everything and push it off. She plays with her toy. She cannot sit
still very long. She cry alots though. Also she cannot passed one
object to another and she don't grab small object like a raisin.
She don't put anything in her mouth, except her hands. But
sometimes she will chew on tables, my arm, or some of her toys
without using her hand to put it in her mouth. To get from place to
place she roll and then sit up. Her feet looks croaked and whopple
when she stands. She is on the NG tube feed since she is only 15lbs
8 oz. She is aspirating and have acid reflux problem. She head is
still on the curve at 6 months and weight double at 6 months. She
nurse a lot during the 6 months also. What can of life do I expect
for my baby when she is older? Will she be able to walk, eat on her
own, etc? Have a normal life? Is there a program I can start her
on? She is in early prevention program right now.

Thanks,


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