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microcephalysupportgroup · Microcephaly Support Group - For families of microcephalic children and adults
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Re: new to group   Message List  
Reply | Forward Message #226 of 765 |
Re: [Microcephaly Support Group] re: new to group--Brenda

Hi, Brenda. My son with microcephaly is 3. I
noticed you said your son was non-verbal. My son is
also pretty non-verbal, and the neurologist says we
should be concerned since he is 3. I was wondering if
your child has hypotonia, or low muscle tone. We
think this is the reason our child can't speak or chew
food. He eats food well, but we cut it up small, and
he moves it around and then swallows it. Anyway, we
are preparing ourselves for the reality that Blake may
never be verbal, so I wanted to ask about some of your
experiences with your child and his journey with
communicating. Does he do sign language? Does he
make any noise at all? Regarding using utensils, if
the utensil has food on it, can he put it to his
mouth?? Any other information you have regarding
communicating, eating, etc. would be very helpful.
Michelle


--- Brenda <pacefamx7@...> wrote:

> Hi I am Brenda. My son is 9yrs. old and has been in
> school since he
> was 4. I am not expecting him to ever be in normal
> class as he is
> nonverbal and not potty trained. He is smart. He
> obeys a lot of
> commands, but his skills are limited. It is hard
> for him to open
> doors unless he has a handicapped lever. He doesn't
> seem to possess
> motor skills such as turning round knobs, eating
> with utensils is
> limited. He does pretty good sometimes, but he gets
> so frustrated
> with it and throws a screaming fit when things spill
> on the floor. He
> has certain routines about things. He displays
> autistic behavior
> alot. One day, I hope he will be able to do more,
> we'll just have to
> see what each day brings. Brenda in Louisiana
>
>
>
>
>


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Wed Apr 5, 2006 1:07 pm

mmdudar
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Message #226 of 765 |
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Hi I am Brenda. My son is 9yrs. old and has been in school since he was 4. I am not expecting him to ever be in normal class as he is nonverbal and not...
Brenda
unique_red6200
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Apr 5, 2006
1:30 am

Hi, Brenda. My son with microcephaly is 3. I noticed you said your son was non-verbal. My son is also pretty non-verbal, and the neurologist says we should...
Michelle Dudar
mmdudar
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Apr 5, 2006
1:07 pm

... you. my son dane is 15 years old he didnt start to talk till he 7 or 8, he growled for years, we seen specialiest and had camras down his throat to see why...
lornajpoll
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Apr 29, 2006
4:06 pm

hi, my name is angel. i am 36 weeks pregnant and was just told that my unborn daughter has microcephaly. i never even heard of this disease until then. i have...
amseals1979
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Dec 12, 2007
9:48 pm

Hi Angel My name is Heather. A few days before I had my daughter they said her head was small but so was the rest of her body. When she was born dr.'s did an...
HEATHER ANDERSON
littlemom056
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Dec 12, 2007
10:37 pm

hi heather, well i had my daughter she was born dec. 31, 2007. she weighed 5 lbs. 7 oz. she is now almost 5 weeks old and doing great so far. we really don't...
angel seals
amseals1979
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Feb 3, 2008
3:49 am

... my name is Carolyn i have a 2 1/2 year old. he dose not talk like a 1 year old. he go's to speech.and to ot. pt. he dose not eat a lot. and he has very low...
Carolyn
ladygator122358
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Dec 19, 2007
1:43 am

... my name is Carolyn. I have a 2 1/2 year old. he dose not talk a lot, he go's to speech, ot. and pt. in the last few mo. he has got where he say more words....
Carolyn
ladygator122358
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Dec 19, 2007
1:52 am
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