I've been getting these e-mails and was curious about some older children with
microcephaly. I have a son that's 18 months with microcephaly. That is the
only thing doctors have found ''abnormal'' with him as of yet. I can't seem to
find photos of older children or any information on what to expect as he grows.
My sons neurologist says having a small head does not necessarly mean anything,
but my pediatrician acts as if he'll have serious problems. I don't know what
to think. He does have developmental delays. He is not walking yet, and his
left hand tends to stay closed and ''tense''. He has seizures that have been
completely under control for almost a year now. He also has this thing with
pulling hair which seems almost obsessive, but I don't know if that's just
normal baby behavior.

ANY ADVICE, HELP, KNOWLEDGE, would be great!!! Thanks in advance.

Zach's Mom,
Kelly

christine caoile <xtin23caoile@...> wrote:
Hi Janet. May I know what school have you put your daughter in to? What do
they do there? We do not have schools to cater to children with microcephaly.
May I know if this school is the the United States? Sorry for the tons of
questions because I would like to see if it will help my daughter better.

Thank you. Christine, mother of Ana 8 years old.


janet_martingell <janet.m.martingell@...> wrote:
Hello My daughter Helene is 16yrs, 17 in july,she has microcephaly and
polymicrogyria which was discovered 2005. she has epilepsy controlled
by medication, deaf in left ear some hearing in right ear, behaviour
problems, which have improved since taking quetiapine, Helene had a
psycosis 4yrs ago but since being on quetiapine she is 95% better. she
takes thing literal you have to be careful how you put things. She
apes very well, she has learnt a lot that way, Helene is at special
college, she started in sept 2005, she had not settled very well been
in some trouble, she does not fully understand relationships, she has
made friends but she tends to force herself on others, which has
scared some students, hopefully in time she will come to understand.
She has been moved to one of the college houses where older students
live and it has been a successful move, she gets on better with older
people and with much younger children but has difficulty with her own
age. Helene used to live more in a fantasy world but as she has got
older she lives more in reality. does anybody have a child who is
older than Helene, and if so how are they getting on. from Janet,
Helenes mum





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To unsubscribe from this group, send an email to:
microcephalysupportgroup-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


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