I read your emails and wanted to say the best I can offer is that you love your
son for who he is and do not expect him to be a rocket scientist. My son is
almost 2 1/2. This has also been very painful for me. He still does not walk
or talk. He has started cruising furniture, and my therapist has always said he
will walk, but only when he is ready. Obviously walking is a small piece of the
picture. He is one of triplets, and I would love nothing more than for him to
be able to get in on the action with his triplet siblings and do some damage
around the house. They get to have all the fun, and he is in his own world by
himself.
Also, I have a good support group of friends who are local to me. These are
friends who also have triplets with one who has special needs. I have found my
support group has given me strength beyond what I couldn't have imagined. Find
a support group that you can meet with regularly (this online group is a very
caring group, but a local group that you can meet with personally is very
important, too).
Are physical, occupational, and speech therapies available in Pakistan?
Irum, your baby needs your love and support. It is painful, yes. I cannot tell
you how many tears I have shed, how many nights I lie awake thinking about the
future, how many "if only " scenarios I play over and over in my mind, how many
"why me?" conversations I have had with God. I am confident to say we all have
thought along these lines. You are not alone with your depression. We are all
here for you, and pulling for you, and right there with you in your sadness
because we have been through these exact same emotions.
Michelle
irumadnan2003 <irumadnan2003@...> wrote:
--- In microcephalysupportgroup@yahoogroups.com, S Berrier
<shandy_berrier@y...> wrote:
> Hi sweetie,
>
> I'm so very sorry for your pain. I'm just amazed at your strength,
though. You are a strong woman. I don't think you want to know my
story but if I can support you in any way...I will. I've been
touched, personally by the torments of micro. My experience with it
was the worst time of my life and may always be. I'm sorry for your
pain and saddness. It's hard to deal with, I am sure. Please, tell
me more about your story. When did you find out about the micro?
What else does your boy have, if anything? Please, tell your
story..it might help you feel better. Tell me what you are feeling
emotionally.
>
> Peace, love, and blessings to you
>
> Shandy
> SWEET SHANDY WHO ARE YOU AND I AM IN PAKISTAN
MY BABY IS BY BIRTH MICROCEPHALY AND THE BIGESST PRB IS THAT HE IS
NOW TOW YEAR OLD BUT IS UNABLE TO WALK AND TALK AND IT IS REALLY VERY
VERY PAINFUL
> irum adnan <irumadnan2003@y...> wrote:
>
> HELLO,I AM MOTHER OF TWO YEAR BABY BOY WHO IS MICROCEPHALY.I DONT
KNOW HOW TO BEAR THIS PAIN AND HOW TO DEAL .HE IS MY FIRST BABY AND I
AM REALLY DEPRESS AND NEED SOME SUPPORT AND GUIDE LINE.REGARDS TO ALL
>
>
> ---------------------------------
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>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>
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